Agree, E.M., Freedman, V.A., Cornman, J.C., Wolf, D.A. & Marcotte, J.E. (2005). Reconsidering substitution in long-term care: When does assistive technology take the place of personal care? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 60B, 5, S272-S280.
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Albert, S.M. & Levine, C. (2005). Family caregiver research and the HIPAA factor. Gerontologist, 45(4), 432-437.
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Albert, S.M., Simone, B., Brassard, A., Stern, Y. & Mayeux, R. (2005). Medicaid home care services and survival in New York City. Gerontologist, 45(5), 609-616.
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Amador, T.K., Travis, S.S., McAuley, W.J., Bernard, M. & McCutcheon, M. (2006). Recruitment and retention of ethnically diverse long-term family caregivers for research. Journal of Gerontological Social Work, 47(3/4), 139-152.
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Andersen, R. & Newman, J.F. (2005). Societal and individual determinants of medical care utilization in the United States. The Milbank Quarterly, 83(4), Online-only.
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Anderson, W. L., Wiener, J.M., Greene, A.M., & O'Keeffe, J. (2004, April). Direct service workforce activities of the Systems Change grantees. RTI International. Retrieved February 12, 2007 from: http://www.hcbs.org/files/35/1708/CMSWorkforce.pdf
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Anderson, W.L., Wiener, J.M. & Khatutsky, G. (2006). Workforce issues and consumer satisfaction in Medicaid personal assistance services. Health Care Financing Review, 28, 1, 87-101. Retrieved November 21, 2006 from:
http://www.cms.hhs.gov/HealthCareFinancingReview/09_2006%20Edition.asp#TopOfPage
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Argiropolis, M., Nielsen, A. & Ricker, R. (2006). Eldercare in New Hampshire: Labor market trends and their implications. New Hampshire Economic and Labor Market Information Bureau: Concord, NH.
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Bainbridge, D., Traci, M.A., Brod, R. & Seekins, T. (2005, December 13). Why personal assistant staff leave: Factors that increase turnover. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Baldridge, D.C., & Veiga, J.F. (2006). The impact of anticipated social consequences on recurring disability accommodation requests. Journal of Management, 32 (1), 158-179.
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Barcus, J.M., & Targett, P. (2003). Maximizing employee effectiveness through use of Personal Assistance Services at the workplace. Journal of Vocational Rehabilitation, 18(2), 99-106.
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Barker, J.C. (2002). Neighbors, friends, and other nonkin caregivers of community-living dependent elders. Journal of Gerontology B: Social Sciences, 57(3), S158-S167.
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Barrett, E. (2005). Family-directed support network for families of people with disabilities. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
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Barrett, J.C. (2003). Being an effective workplace personal assistant. Journal of Vocational Rehabilitation, 18(2), 93-97.
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Barrett, Jocelyn. (2004). "Common sense and patience: Arlene’s story." Our Stories series, Maine Personal Assistance Services Association
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Beauchamp, N., Irvine, B., Seeley, J. & Johnson, B. (2005). Worksite-based internet multimedia program for family caregivers of persons with dementia. Gerontologist, 45, 6, 793-801.
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Bell, H.S. (2003). Creating financial incentives to serve partial benefit recipients in the Ticket to Work program. Washington, D.C.: Urban Institute.
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Benach, J., Amable, M., Muntaner, C. & Benavides, F.G. (2002). The consequences of flexible work for health: Are we looking at the right place? Journal of Epidemiology and Community Health, 56, 405-406.
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Benjamin, A.E. (2001). Consumer-directed services at home: A new model for persons with disabilities. Health Affairs, 20 (6): 80-95.
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Benjamin, A.E. & Matthias, R.E. (2004). Work-life differences and outcomes for agency and consumer-directed home care workers. Gerontologist, 44 (4): 479-88.
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Better Jobs Better Care. (2007). FutureAge. Washington, D.C.: Institute for the Future of Aging Services. Retrieved on April 30, 2007, from: http://www.bjbc.org/page.asp?pgID=224
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Beynon, M. & Kitchener, M. (2005). Ranking the 'balance' of state long-term care systems: A comparative exposition of the SMARTER and CaRBS techniques. Health Care Management Science, Pgs. 157-166.
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Black, W.E., Liu, S., & Ireys, H.T. (2006, May). How much are Medicaid Buy-In participants earning? Working with Disability Issue Brief, 1. Retrieved July 5, 2006 from Mathematica Policy Research web site: http://www.mathematica-mpr.com/publications/PDFs/howmuchmedicaid
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Boris, E. & Klein, J. (2006). Organizing home care: Low-waged workers in the welfare state. Politics & Society, 34, 1, 81-108.
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Boris, E., Chung, G., Delp, L., Matthias, R. & Zubin, C. (2004, May). Workforce needs in California’s healthcare system. Briefing Paper. California Policy Research Center, Berkeley, CA.
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Bradley, E.H., Webster, T.R., Baker, D., Schlesinger, M., Inouye, S.K., Barth, M.C., Lapane, K.L., Lipson, D., Stone, R. & Koren, M.J. (2004). Translating research into practice: Speeding the adoption of innovative health care programs. Issue Brief (Commonwealth Fund), 724, 1-12.
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Braun, K.L., Cheang, M. & Shigeta, D. (2005). Increasing knowledge, skills, and empathy among direct care workers in elder care: A preliminary study of an active-learning model. Gerontologist, 45, 1, 118-124.
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Brega, A.G., Goodrich, G.K., Powell, M.C. & Grigsby, J. (2005). Racial and ethnic disparities in the outcomes of elderly home care recipients. Home Health Care Services Quarterly, 24, 3, 1-21.
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Bridges, T. & Regan, C. (2006). Subsidizing health insurance coverage for the home care workforce in two Wisconsin counties: An analysis of options. Bronx, New York: Paraprofessional Healthcare Institute. Retrieved June 26, 2007, from:
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Brown, J.G., Trinkoff, A., Rempher, K., McPhaul, K., Brady, B., Lipscomb, J. & Muntaner, C. (2005, May). Nurses’ inclination to report work-related injuries: Organization, work-group and individual factors associated with reporting. American Association of Occupational Health Nurses Journal, 53 (5), 213-217.
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Buhr, G.T., Kuchibhatla, M. & Clipp, E.C. (2006). Caregivers’ reasons for nursing home placement: Clues for improving discussions with families prior to the transition. Gerontologist, 46, 1, 52-61.
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Burack-Weiss, A. (2006). The caregiver’s tale: Loss and renewal in memoirs of family life. New York: Columbia University Press.
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Burke, S.P., Feder, J. & Vander de Water P.N. (eds.) (2005, November). Developing a better long-term care policy: A vision and strategy for America’s future. Washington: National Academy of Social Insurance.
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Burns, B. (2006). Comparing long-term care insurance policies: Bewildering choices for consumers. AARP Public Policy Institute Issue Paper. Washington, D.C.: American Association of Retired Persons. Retrieved on June 23, 2006 from:
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Burton, C. & Bridges, K. (2007). Long-term care: An AARP survey of New York residents age 50+. Washington, D.C.: AARP Public Policy Institute. Retrieved April 30, 2007 from:
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Butler, S.S., Kaye, L.W., Ruffin, L. & Downey, R. (2005). Depression and caregiver burden among rural elder caregivers. Journal of Gerontological Social Work, 46, 2, 47-63.
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California Center for Long Term Care Integration. (2003). Creating better systems of care for people with chronic conditions: A building block approach. Los Angeles, CA: California Center for Long Term Care Integration. Retrieved on December 7, 2006 from:
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California Center for Long Term Care Integration. Long term care integration primer. Los Angeles, CA: California Center for Long Term Care Integration. Retrieved on December 7, 2006 from:
http://www.ltci.ucla.edu/ccltciproducts/Integration%20Primer.pdf
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Capitman, J., Bishop, C., and Casler, R. (2005). Long-term care quality: Historical overview and current initiatives. Washington, DC: National Quality Forum.
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Carder, P.C. & Hernandez, M. (2004). Consumer discourse in assisted living. Journal of Gerontology , Volume 59B(2) , Pgs. S58-S67.
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Carlson, B.L., Foster, L., Dale, S.B. and Brown, R. (2007). Effects of Cash and Counseling on personal care and well-being. Health Services Research, 42, 1, 467-487.
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Carpenter, G.I., Hastie, C. L., Morris, J.N., Fries, B.E. & Ankri, J. (2005). Measuring change in activities of daily living in nursing home residents with moderate to severe cognitive impairment. BMC Geriatrics.
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Castle, N.G. & Engberg, J. (2006). Organizational characteristics associated with staff turnover in nursing homes. Gerontologist, 46, 1, 62-73.
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Center for Practical Bioethics. (1999). Implementing end-of-life treatment preferences across clinical settings. State Initiatives in End-of Life Care, Issue 3. Kansas City, MO: Center for Practical Bioethics. Retrieved on December 7, 2006 from:
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Center for Workers with Disabilities (n.d.). PAS eligibility criteria: Technical assistance for the Medicaid Infrastructure Grants. Retrieved May 25, 2006, from http://www.cms.hhs.gov/TWWIA/Downloads/PASeligibilitycriteria.pdf
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Center for Workers with Disabilities. (2002). Building work incentives using Section 1902(r)(2) of the Medicaid statute. (Report No. 02-2). Washington, D.C.: Author.
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Center for Workers with Disabilities. (n.d.) Overview of MBI for working individuals with disabilities. Washington, D.C.: Author.
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Center on an Aging Society (2004, June). Workers affected by chronic conditions: How can workplace policies and programs help? (Issue Brief Number 7). Washington DC: Georgetown University.
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Centers for Medicare and Medicaid Services. (2004). Increasing service flexibility for caregivers. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
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Centers for Medicare and Medicaid Services. (2004). Supporting family caregivers in ethnic minority communities. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
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Chapman, S., Kaye, S., & Newcomer, R. (2004) Home and Personal Care Workers by State. Published on the Center for PAS website http://pascenter.org/state_based_stats/acs_workforce_state.php
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Cinsavich, S. & Rado, G. (2002, April). Medicaid Buy-In: Concept and implementation (Policy Brief Volume 4, Number 2). Boston, MA: Institute for Community Inclusion.
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Coble-Temple, A. (Summer, 2002). Understanding the differences between worksite personal assistance services (PAS) and personal PAS on the job: Why this is important to rehabilitation? Rehabilitation Psychology News, 29(4).
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Coble-Temple, A., Mona, L.R., & Bleecker, T. (2003). Accessing personal assistance services in the workplace: Struggles and successes. Journal of Vocational Rehabilitation, 18(2), 113-123.
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Cohen, A., Timmons, J.C. & Fesko, S.L. (2005). The Workforce Investment Act: How policy conflict and policy ambiguity affect implementation Journal of Disability Policy Studies, 15, 4, 221-230.
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Coleman, B., Fox-Grage, W., & Folkemer, D. (2003) State Long-Term Care: Recent Developments and Policy Directions 2003 Update. National Conference of State Legislators.
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Coleman, B.J. (2004). Navigating the care system: A guide for providers to help family caregivers.San Francisco, CA.: Family Caregiver Alliance. Retrieved March 13, 2006, from:
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Collier, E. and Harrington, C. Discharge planning, nursing home placement, and the internet. Nursing Outlook. 53(2): 95-103.
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Cranford, C. (2004, August 17). Security without Flexibility: Personal Care Workers and People with Disabilities in Ontario. Paper presentation at the 99th Annual Meeting of the American Sociological Association.
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Cranford, Cynthia J. 2005. "From Precarious Workers to Unionized Employees and Back Again?: The Challenges of Organizing Personal-Care Workers in Ontario." Pp. 96-135 in Self-Employed Workers Organize: Law, Unions and Policy, by Cynthia J. Cranford, Judy Fudge, Eric Tucker and Leah F. Vosko. Montreal: McGill-Queens University Press.
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Crowley, J.S. (2006). Medicaid long-term services reforms in the Deficit Reduction Act. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7486.cfm
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Dal Santo, T., Scharlach, A. & Fox, P. (2005, November 19). Implementation of the National Family Caregiver Support Program: How has caregiver service use changed in California? Presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Dalby, D.M., Kirdes, J.P.; Fries, B.E. (2005) Risk adjustment methods for home care quality indicators (HCQIs) based on the minimum data set for home care. BMC Health Services Research.
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Dale, S., Brown, R. (2006, August). Reducing Nursing Home Use Through Consumer-Directed Personal Care Services. Medical Care. 44(8):760-767.
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Dale, S., Brown, R., Phillips, B. & Carlson, B. (2003, June). The experiences of workers hired under consumer direction in Arkansas. Final Report, Mathematica Evaluation Reports: 1-56.
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Dale, S., Brown, R., Phillips, B. & Carlson, B. (2005, August). The experiences of workers hired under Cash and Counseling: Findings from Arkansas, Florida, and New Jersey. Final Report, Mathematica Evaluation Reports: 1-98.
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Dale, S., Brown, R., Phillps, B. & Carlson, B.L. (2005). How do hired workers fare under consumer-directed personal care? Gerontologist, 45, 5, 583-592.
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Daly, Mary (Ed.). (2001). Care Work: The Quest for Security. Geneva: International Labour Office. Retrieved June 20, 2005, from http://www.ilo.org/public/english/protection/ses/info/publ/care.htm
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Dautel, P., & Frieden, L. (1999). Consumer choice and control: Personal attendant services and supports in America. Report of the Blue Ribbon Panel on personal assistance services. Houston, TX: Independent Living Research Utilization.
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Davis, S.R. & Ireys, H.T. (2006). How does the Medicaid Buy-In Program relate to other federal efforts to improve access to health coverage for adults with disabilities? Mathematica Policy Research, Inc., Work and Insurance in Brief, Number 2. Retrieved on November 14, 2006 from: http://www.mathematica-mpr.com/publications/pdfs/buyinprogram.pdf Davis, S.R. & Ireys, H.T. (2006). How does the Medicaid Buy-In Program relate to other federal efforts to improve access to health coverage for adults with disabilities? Mathematica Policy Research, Inc., Work and Insurance in Brief, Number 2. Retrieved on November 14, 2006 from: http://www.mathematica-mpr.com/publications/pdfs/buyinprogram.pdf
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Delp, L. & Quan, K. (2002). “Homecare worker organizing in California: An analysis of a successful strategy.” Labor Studies Journal, 27, 1, 1-23.
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Department of Health and Human Services and Department of Labor. (2003). The future supply of long-term care workers in relation to the aging baby boom generation: Report to Congress. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP). Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/ltcwork.htm
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Desonia, R. (2003) Is community care a civil right? The unfolding saga of the Olmstead decision. National Health Policy Forum.
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Dixon, Kl, Kruse, D., & Van Horn, C. (2003). Restricted access: A survey of employers about people with disabilities and lowering barriers to work (Work Trends Survey, 3:6). New Brunswick, NJ: Rutgers University, John J. Heldrich Center for Workforce Development.
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Donelan, K., Hill C.A., Hoffman, C., Scoles, K., Feldman, P.H., Levine, C. & Gould, D. (2002). Challenged to care: Informal caregivers in a changing health system. Health Affairs, 21 (4), 222-231.
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Doty, P. (2004, October). Consumer directed home care: Effects on family caregivers. Policy Brief, Family Caregiver Alliance, San Francisco, CA.
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Doty, P. (1998). The cash and counseling demonstration: An experiment in consumer-directed personal assistance services. American Rehabilitation, Summer-Autumn. Retrieved November 29, 2006, from http://www.hhp.umd.edu/AGING/CCDemo/Publications/dotyRehab.html
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Duffy, Niev. (2004, October). Keeping workers covered: Employer-provided health insurance benefits in the developmental disabilities field. JFK, Jr. Institute for Worker Education, City University of New York, New York.
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Ebenstein, W. (2006). Health insurance coverage of direct support workers in the developmental disabilities field. Mental Retardation, 44, 2, 128-134.
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Eiken, S. (2004, November). Promising practices in long term care systems reform: Common factors of systems change. Washington, D.C.: Centers for Medicare & Medicaid Services. Retrieved December 11, 2006 from:
http://www.cms.hhs.gov/PromisingPractices/Downloads/commonfactors.pdf
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Enbar, E.G., Fred, M.A., Miller, L., Naiditch, Z. (2004). A nationwide study of deinstitutionalization & community integration: A special report of the public policy and legal advocacy programs Equip for Equality, Illinois. (233 pages)
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Feder, J., Komisar, H.L. & Friedland, R.B. (2007). Long-term care financing: Policy options for the future. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved June 25, 2007, from: http://ltc.georgetown.edu/forum/ltcfinalpaper061107.pdf
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Feinberg, L.F, Newman, S.L., Gray, L. & Kolb, K.N. (2004, November) The state of the states in family caregiver support: A 50-state study. Family Caregiver Alliance, San Francisco, CA.
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Feinberg, L.F., Wolkwitz, K. & Goldstein, C. (2006). Ahead of the curve: Emerging trends and practices in family caregiver support. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Feldman, P.H., Nadash, P. & Gursen, M. (2001). Response to “Improving communication between researchers and policy makers in long term care: Or researchers are from Mars; Policy makers are from Venus” Reply. Gerontologist, 41 (6), 831.
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Folbre, N. (2006). Demanding quality: Worker/consumer coalitions and “High Road” strategies in the care sector. Politics & Society, 34, 1, 11-32.
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Folkemer, D. & Coleman, B. (2006). Home care quality: Emerging state strategies to deliver person-centered services. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Foster, L., Brown, R., Phillips, B. & Carlson, B.L. (2003, August). . Easing the burden of caregiving: The impact of consumer direction on primary informal caregivers in Arkansas. . Washington, D.C.: Mathematica Policy Research, Inc. Retrieved June 20, 2005. Executive summary available from http://aspe.hhs.gov/daltcp/reports/easinges.htm
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Foster, L., Brown, R., Phillips, B. & Carlson, B.L. (2005). Easing the burden of caregiving: The impact of consumer-direction on primary informal caregivers in Arkansas. Gerontologist, 45, 4, 474-485.
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Foster, L., Brown, R., Phillips, B., Schore, J. & Carlson, B.L. (2003, March). Improving the quality of Medicaid personal assistance through consumer direction. Health Affairs, Supplemental Web Exclusives: W3-162-175.
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Foster, L., Dale, S.B. and Brown, R. (2007). How caregivers and workers fared in Cash and Counseling. Health Services Research, 42, 1, 510-532.
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Fox-Grage, W., Folkemer, D., & Lewis, J. (2003) The States’ response to the Olmstead decision: How are states complying? National Conference of State Legislators.
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Fried, T.R., Bradley, E.H., O’Leary, J.R. & Byers, A.L. (2005). Unmet desire for caregiver-patient communication and increased caregiver burden. Journal of the American Geriatrics Society, 53, 1, 59-65.
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Friedman, S.M., Steinwachs, D.M., Temkin-Greener, H. & Mukamel, D.M. (2006). Informal caregivers and the risk of nursing home admission among individuals enrolled in the Program of All-Inclusive Care for the Elderly. Gerontologist, 26, 4, 456-463.
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Gamble, M.J., Dowler, D.L., & Orslene, L.E. (2006). Assistive technology: Choosing the right tool for the right job. Journal of Vocational Rehabilitation, 24(2), 73-80.
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Geiger-Brown, J., Muntaner, C., Lipscomb, J. & Trinkoff, A. (2004, October). Demanding work schedules and mental health in nursing assistants working in nursing homes. Work and Stress, 18 (4), 292-304.
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Geiger-Brown, J., Muntaner, C., McPhaul, K., Lipscomb, J. & Trinkoff, A. (2007). Abuse and violence during home care work as predictor of worker depression. Home Health Care Services Quarterly, 26, 1, 59-77.
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General Accounting Office (December 2005) Nursing Homes: Despite increased oversight, challenges remain in ensuring high-quality care and resident safety. Washington DC: General Accounting Office. GAO-06-117.
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Georgetown University Long-Term Care Financing Project. (2007). Medicaid and long term care: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved January 16, 2007, from: http://ltc.georgetown.edu/papers.html
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Georgetown University Long-Term Care Financing Project. (2007). Medicaid’s spousal impoverishment protections: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. February 5, 2007, from: http://ltc.georgetown.edu/papers.html
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Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet (updated). Washington, D.C.: Georgetown University Long-Term Care Financing Project. February 5, 2007, from: http://ltc.georgetown.edu/papers.html
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Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved January 16, 2007, from: http://ltc.georgetown.edu/papers.html
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Gershon, R.R.M., Sherman, M., Rosen, J., Qureshi, K., Barrera, M., Gebbie, & Brandt-Rauf, P. (2005, December 12). Bloodborne pathogen exposure in non-hospital based nurses. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved June 26, 2007 from:
http://www.aarp.org/research/housing-mobility/caregiving/ib82_caregiving.html
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Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the state estimates of the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved June 26, 2007 from:
http://www.aarp.org/research/longtermcare/programfunding/dd158_caregiving.html
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Gibson, M.J. (2006). A growing crisis in health and long-term services and supports for older persons with disabilities: Changes from 2002-2005. Washington, D.C.: AARP Public Policy Institute. Retrieved February 11, 2007 from:
http://www.aarp.org/research/housing-mobility/homecare/2006_26_il.html
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Gibson, M.J. and Verma, S. (2006). Just getting by: Unmet need for personal assistance services among persons 50 or older with disabilities. Washington, D.C.: AARP Public Policy Institute. Retrieved February 11, 2007 from:
http://www.aarp.org/research/housing-mobility/homecare/2006_25_disability.html
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Gibson, M.J., Gregory, S.R., Houser, A.N., & Fox-Grage, W. (2004). Across the states: Profiles of Long-Term Care 2004. AARP Public Policy Institute, Washington, D.C. Retrieved from
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Gilbride, D. Stensrud, R., Ehlers, C., Evans, E., & Peterson, C. (2000). Employers' attitudes toward hiring persons with disabilities and vocational rehabilitation services. Journal of Rehabilitation, 66(4), 17-23.
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Gilbride, D., Stensrud, R., Vandergoot, D., & Golden, K. (2003). Identification of the characteristics of work environments and employers open to hiring and accommodating people with disabilities.Rehabilitation Counseling Bulletin, 463, 130-139. Available at http://www.worksupport.com/Main/proed_Identification.asp.
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Gillespie, Jennifer. (2003). Direct care worker associations and public authorities. Portland, ME: National Academy for State Health Policy. Retrieved June 20, 2005, from http://www.nashp.org/_docdisp_page.cfm?LID=AFF9D26A-8784-4138-A81023587341EA73
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Gillespie, Jennifer. (2005). Assessment instruments in 12 states. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
http://www.nashp.org/Files/Assessmentinstruments022205.pdf
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Glass, A.P., Teaster, P.B., Roberto, K.A. & Brossoie, N. (2005). Elderly and disabled waiver services: Important dimensions of personal care from the client’s perspective. Home Health Care Services Quarterly, 24, 3, 59-77.
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Glazier, R. E. (2001). The “reinvention” of personal assistance services. Disability Studies Quarterly, 12 (Spring). Retrieved November 29, 2006 from http://www.dsq-sds.org/_articles_pdf/2001/Spring/dsq_2001_Spring_12.pdf
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Goodman, N., & Livermore, G. (2004).The effectiveness of Medicaid Buy-In programs in promoting the employment of people with disabilities: Briefing paper prepared for the: Ticket to Work and Work Incentives Advisory Panel. Washington, DC: Cornell University Institute for Policy Research.
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Gran, J. (2003) Olmstead: reclaiming institutionalized lives. Public Interest Law Center of Philadelphia for the National Council on Disability.
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Gray, L. & Feinberg, L.F.. (2003, March). Survey of Californians about in-home care services. Report, Family Caregiver Alliance, San Francisco, CA.
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Gustavson, K.A. & Scharlach, A.E. (2005, November 19). Impact of employment on caregiver and care recipient service use. Presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Hams, M., Herold, N., Lee, M. & Worters, A. (2002). Health insurance access survey of direct-care workers in nursing homes and home-based care agencies in Boston, New Bedford/Fall River, including surveys of employees and of employers. (Final report). New York: Direct Care Workers Initiative and Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=2070
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Han, B. & Remsburg, R.E. (2006). Impact of the Medicare interim payment system on length of use in home care among patients with Medicare-only payment source.Home Health Care Services Quarterly, 24, 4, 65-79.
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Hanley, E. (2004). The role of home care in palliative care services. Care Management Journals, 5, 3, 151-157.
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Harmuth, S. & Dyson, S. (2005). Results of the 2005 national survey of state initiatives on the long-term care workforce. Bronx, NY: National Clearinghouse on the Direct Care Workforce and the Direct Care Workers Association of North Carolina. Retrieved on May 9, 2006, from http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=184110
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Harrington, C. (2005). Long Term Care Staff and Quality of Care. Published on the Center for PAS website http://www.pascenter.org/news/Harrington_LTC_Testimony.html
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Harrington, C., & O'Meara, J. (2007) Snapshot: The Changing Face of California's Nursing Home Industry. California HealthCare Foundation, Oakland, CA.
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Harrington, C., Carrillo, H., & LaCava, C. (2006). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 1999 through 2005. University of California, San Francisco.
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Harrington, C., Carrillo, H., & Mercado-Scott, C. (2005). Nursing facilities, staffing, residents, and facility deficiencies, 1998 through 2004. University of California, San Francisco.
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Harrington, C., Chapman, S., Miller, E., Miller, N., and Newcomer, R. (2005). Trends in the supply of long-term-care facilities and beds in the United States. Journal of Applied Gerontology 24(4) 265-282.
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Harrington, C., O'Meara, J., Tsoukalas, T., & Ng, T. (2007) Snapshot: Long Term Care, Facts and Figures. California HealthCare Foundation, Oakland, CA.
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Harrington, C., O’Meara, J. (2004). Report on California’s Nursing Homes, Home Health Agencies, and Hospice Programs Prepared for the California HealthCare Foundation for California Nursing Home Search - www.calnhs.org. Retrieved from the Center for PAS website http://pascenter.org/documents/CCIS_Overview.pdf
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Harris-Kojetin, L., Lipson, D., Fielding, J., Kiefer, K. & Stone, R.I. (2004). Recent findings on frontline long-term care workers: A research synthesis 1999-2003. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/insight.htm
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Hash, K. (2006). Caregiving and post-caregiving experiences of midlife and older gay men and lesbians.Journal of Gerontological Social Work, 47, 3/ 4, 123-138.
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Health Care for Health Care Workers. (2006). Caregivers without coverage: The facts about a critical gap in long-term care (Policy Brief no. 1). New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=191010
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Health Care for Health Care Workers. (2006). Caregivers without health care: Maine fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.hchcw.org/docs/HCHCW_ME_FactSheet.Final.pdf
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Health Care for Health Care Workers. (2006). Caregivers without health care: Michigan fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.hchcw.org/docs/HCHCW_Fact_Sheet-MI.pdf
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Health Care for Health Care Workers. (2006). Caregivers without health care: Pennsylvania fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.hchcw.org/docs/HCHCW_Fact_Sheet-PA.pdf
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Hernandez, B., Keys, C., & Balcazar, F. (2000). Employer attitudes toward workers with disabilities and their ADA employment rights: A literature review. Journal of Rehabilitation, 66(4). Retrieved April 11, 2004, from http://www.findarticles.com/p/articles/mi_m0825/is_4_66/ai_68865430/print.html
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Hewitt, A. & Lakin, K. C. (2001). Issues in the direct support workforce and their connections to the growth, sustainability and quality of community supports. Research and Training Center on Community Living, University of Minnesota.
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Hewitt, A., & Lakin, K.C. (2001). Issues in the direct support workforce and their connections to the growth, sustainability and quality of community supports. Minneapolis, MN: Research and Training Center on Community Living, University of Minnesota. Retrieved on June 18, 2006, from:
http://rtc.umn.edu/publications/
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Hoff, D., Dreilinger, D., Fesko, S., Fichera, K., Jordan, M., Marrone, J. et. al. (2001). Access for all: A resource manual for meeting the needs of One-Stop customers with disabilities. Boston: University of Massachusetts, Institute for Community Inclusion.
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Holcomb, P., & Barnow, B. (2004). Serving people with disabilities through the Workforce Investment Act's One-Stop Career Centers. Washington, D.C.: Urban Institute.
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Holley, L.M., Montgomery, R.J.V., & Kosloski, K.D. (2004, November 19). Innovations in 33 states that address the respite worker crisis: Lessons from the ADDGS program. Poster presentation presented at the 57th Annual Scientific Meeting of the Gerontological Society of America.
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Horowitz, A., Goodman, C.R. & Reinhardt, J.P. (2004, August) Congruence between disabled elders and their primary caregivers. Gerontologist, 44 (4): 532-542.
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Houser, A.N. (2007). Women & Long-Term Care. Washington, D.C.: AARP Public Policy Institute. Retrieved May 21, 2007 from: http://www.aarp.org/research/longtermcare/trends/fs77r_ltc.html
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Houser, A.N. and Gibson, M.J. (2007). Valuing the Invaluable: A New Look at State Estimates of the Economic Value of Family Caregiving. Washington, D.C.: AARP Public Policy Institute.
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Houser, A.N., Fox-Grage, W. & Gibson, M.J. (2006). Across the states: Profiles of long-term care and independent living. Washington, D.C.: AARP Public Policy Institute. Retrieved January 13, 2007 from: http://www.aarp.org/research/longtermcare/trends/d18763_2006_ats.html
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HRSA/Bureau of Health Professions/National Center for Health Workforce Analyses. (2004,February). Nursing Aides, Home Health Aides, and Related Health Care Occupations -- National and Local Workforce Shortages and Associated Data Needs. Health Resources and Services Administration.
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Hunt, G., Levine, C. & Naiditch, L. (2005, September). Young caregivers in the U.S.: Findings from national survey. Bethesda, MD: National Alliance for Caregiving in collaboration with United Hospital Fund.
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Infield, Donna Lind. (2004). States’ experiences implementing consumer-directed home and community services: Results of the 2004 survey of state administrators, opinion survey and telephone interviews. Washington, D.C.: National Association of State Units on Aging and The National Council on the Aging. Retrieved June 20, 2005, from http://www.consumerdirection.org/news.php
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InfoUse. (2003). Consumer direction in personal assistance services: How to work together [CD Rom & Video]. United States: Program Development Associates.
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Ireys, H., White, J., & Thornton, C. (2003). The Medicaid Buy-In Program: Quantitative measures of enrollment trends and participant characteristics in 2002. Washington, D.C.: Mathematica Policy Research, Inc.
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Ireys, H.T., Davis, S.R. & Andres, K.L. (May 2007). The interaction of policy and enrollment in the Medicaid Buy-In Program, 2005. Mathematica Policy Research, Inc.: Washington, D.C. Retrieved May 14, 2007 from: http://www.mathematica-mpr.com/publications/redirect_pubsdb.asp?strSite=pdfs/interaction.pdf
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Jacoby, D. (2006). Caring about caring labor: An introduction. Politics & Society, 34, 1, 5-10.
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Jans, L. & Kraus, L. 2007. Personal Assistance Services (PAS) Cooperatives: An Annotated Bibliography.
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Jans, L., & Kraus, L. (2007). Annotated bibliography of literature on personal assistance service cooperatives. Center for Personal Assistance Services.
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Jans, L., & Scherer, M. (2006). Assistive technology training: Diverse audiences and multidisciplinary content. Disability and Rehabilitation: Assistive Technology, 1(1-2), 69-77.
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Jensen, A., & Silverstein, B. (2002). SSDI state work incentive policy demonstration projects: Purposes, principles, and issues. University of Iowa, Rehabilitation Research and Training Center on Workforce Investment and Employment Policy.
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Jensen, A., Silverstein, R., Folkemer, D. & Straw, T. (2002). Policy Frameworks for Designing Medicaid Buy-In Programs and Related State Work Incentive Initiatives. Washington, D.C.: U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and George Washington University
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Job Accommodation Network, Center for Personal Assistance Services (2004). Personal Assistance Services (PAS) in the Workplace. Retrieved July 7, 2004 from http://www.jan.wvu.edu/media/PAS.html.
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Johantgen, M., Trinkoff, A., Gray-Siracusa, K., Muntaner, C. & Nielsen, K. (2004). Using state administrative data to study nonfatal worker injuries: Challenges and opportunities. Journal of Safety Research, 35 (3), 30-315.
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Johnson, R.W. (2007). The burden of caring for frail parents: Statement before the Joint Economic Committee, United States Congress. Washington, D.C.: Urban Institute. Retrieved June 26, 2007, from: http://www.urban.org/UploadedPDF/901078_johnson_testimony.pdf
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Johnson, R.W., Toohey, D. & Wiener, J.M. (2007). Meeting the long-term care needs of the baby boomers: How changing families will affect paid helpers and institutions. Washington, D.C.: Urban Institute. Retrieved June 26, 2007, from:
http://www.urban.org/UploadedPDF/311451_Meeting_Care.pdf
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Kadushin, G. & Egan, M. (2006). Unmet patient need in home care under managed care. Journal of Gerontological Social Work, 47, 3/ 4, 103-120.
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Kahn, K. (2003). Multi-stakeholder coalitions: Promoting improvements in the long-term care workforce. Better jobs, better care. Issue brief, 1 (1). Retrieved February 16, 2007 from http://www.paraprofessional.org/publications/BJBCIssueBriefv1n1.pdf
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Kaiser Family Foundation Issue Paper. (2006). Medicaid 1915(c) home and community-based services program: Data update. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7575.cfm
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Kaiser Family Foundation. (2007). The basics of Medicare and Medicaid. Washington, D.C.: Kaiser Family Foundation. Retrieved April 30, 2007, from:
http://www.kff.org/medicare/med031907pkg.cfm
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Kassner, E. (2006). Home and community-based long-term services and supports for older people. AARP Public Policy Institute Fact Sheet: Washington, D.C.
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Kauff, J., Kirby, G. & Pavetti, L. (2005). Linking TANF recipients with paraprofessional long-term care jobs (Issue Brief No. 8). Princeton, NJ: Mathematica Policy Research, Inc. Retrieved March 13, 2006, from:
http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=171210
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Kaye, H.S., Chapman, S., Newcomer, R.J. & Harrington, C. (2006). The personal assistance workforce: Trends in supply and demand. Health Affairs, 25, 4, 1113-1120.
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Keefe, J., Légaré, J. & Y. Carrière. (2005, November). Developing new strategies to support future caregivers of the aged in Canada: Projections of need and their policy implications. Research Paper No. 140. Hamilton, Ontario: SEDAP (Program for Research on Social and Economic Dimensions of an Aging Population).
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Keeslar, K. (2007). Governor’s FY 07-08 State Budget Proposal on IHSS (memo). Sacramento, CA: California Association of Public Authorities for IHSS.
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Keilson, J. (2004). Recruiting direct service professionals/personal assistants in a competitive environment. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/itemdetail.asp?filterType=none&filterByDID;=-99&sortByDID;=1&sortOrder;=ascending&itemID;=CMS040670
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Keller, P. (2000). Pre-employment intentions of home care aides. Caring 19:26-31.
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Kemper, P., Komisar, H.L. & Alecxih, L. (2006). Long-term care over an uncertain future: What can current retirees expect? Inquiry, 42, 4, 335-350.
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Khatutsky, G., Anderson, W.L. & Wiener, J.M. (2006). Personal care satisfaction among aged and physically disabled Medicaid beneficiaries. Health Care Financing Review, 28, 1, 69-86. Retrieved November 21, 2006 from:
http://www.cms.hhs.gov/HealthCareFinancingReview/09_2006%20Edition.asp#TopOfPage
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Kiernan, W.E., Halliday, J.F., & Boeltzig, H. (2004). Economic engagement: An avenue to employment for individuals with disabilities. Boston: University of Massachusetts, Institute for Community Inclusion.
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Kitchener M., Beynon, M., & Harrington, C. (2004). Explaining the Diffusion of Medicaid Home Care Waiver Programs Using VPRS Decision Rules. Healthcare Management Science 7/3: 237-244.
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Kitchener, M, Hernandez, M, Ng, T, & Harrington, C (2006). Residential Care Provision in Medicaid Home and Community Based Waivers: A National Suty of Program Trends. The Gerontologist, 46, 165-172.
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Kitchener, M., Carrillo. H., & Harrington, C. (2004). Medicaid Community-Based Programs: A Longitudinal Analysis of State Variation in Expenditures and Utilization. Inquiry, 40, 375-389.
Press release
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Kitchener, M., Ng, T., & Harrington, C. (2004) Medicaid 1915(c) Home and Community Based Services Waivers: A National Survey of Eligibility Criteria, Caps and Waiting Lists. Home Health Care Services Quarterly 23/2: 55-69.
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Kitchener, M., Ng, T., & Harrington, C. (February 2005). Medicaid Home and Community-Based Services Data, 2001. Published on the Center for PAS website: http://pascenter.org/medicaid/
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Kitchener, M., Ng, T., Carrillo, H., Miller, N., and Harrington, C. (2007). Developing personal care programs: National trends and interstate variation, 1992-2002. Inquiry 44, 69-87.
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Kitchener, M., Ng, T., Grossman, B., & Harrington, C. (2005) Medicaid Waiver Programs for Traumatic Brain and Spinal Cord Injury. Journal of Health and Social Policy 20/3: 51-66
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Kitchener, M., Ng, T., Miller, N. & Harrington C. (2006). Institutional and community-based long-term care: A comparative estimate of public costs. Journal of Health & Social Policy, Vol. 22(2) 2006.
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Kitchener, M., Ng, T., Miller, N., & Harrington, C. (2005). Medicaid Home And Community-Based Services: National Program Trends. Health Affairs 24(1) 206-212.
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Kitchener, M., Willmott, M. & Harrington, C. (11/2004). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. Published on the Center for PAS website: http://pascenter.org/demo_waivers/demoWaiverReport_2004.php
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Kitchener, M., Willmott, M., & Harrington, C. (11/2004). Home and Community-Based Service Programs: Selected Robert Wood Johnson Foundation Grants to States. Published on the Center for PAS website: http://www.pascenter.org/foundation_grants/
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Kitchener, M., Willmott, M., Alameida, M., Wong, A. and Harrington, C. (2006). Introduction to Olmstead Lawsuits and Olmstead Plans. Retrieved from http://pascenter.org/olmstead/
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Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (11/2006). Federal Systems Change Grants to States and Territories: 2001-2005. Retrieved from http://pascenter.org/systemschange/
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Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (11/2006). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. Published on the Center for PAS website.
http://pascenter.org/demo_waivers/demoWaiverReport_2006.php
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Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (4/2007). Home and Community-Based Services: Federal Funding to States. Published on the Center for PAS Website: http://www.pascenter.org/federal_funding_to_states/
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Kitchener, M., Willmott, M., Wong, A., & Harrington, C. (December 2006)
Medicaid Managed Long-Term Care: An Introduction.
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Kitchener, M., Wong, A., Willmott, M. & and Harrington, C. (2/2007). Home & Community-Based Services: State-Only Funded Programs. Published on the Center for PAS website: http://pascenter.org/state_funded/index.php
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Koehler, M., Rabinowitz, T., Hirdes, J., Stones, M., Carpenter, G.I., Fries, B.E., Morris, J.N., Jones, R.N. (2005). Measuring depression in nursing home residents with the MDS and GDS: An observational psychometric study. BMC Geriatrics.
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Kregel, J., O'Mara, S., & West, M. (2003). Consumer advocacy in the implementation of the Ticket to Work Act. Richmond, VA: Virginia Commonwealth University, Rehabilitation Research and Training Center on Workplace Supports.
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Kuster, P.A. & Badr, L.K. (2006). Mental health of mothers caring for ventilator-assisted children at home. Issues in Mental Health Nursing, 27, 8, 817-835.
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LaPlante, M., Kaye, H.S., Kang, T., and Harrington, C. (2004). Unmet need for personal assistance services: Estimating the shortfall in hours of help and adverse consequences. J. Gerontol. B. Psychol. Sci. Soc. Sci. 2004 59: S98-S108.
View press release from:Accessible Society or UCSF.
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LaPlante, M.P., Harrington, C., & Kang, T. (2002). Estimating paid and unpaid hours of personal assistance services in activities of daily living provided to adults living at home. Health Services Research, 37(2): 397-415.
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Lauren, D.,Harris-Kojetin, L., Kiefer, K., Brannon, D., Barry, T., Vasey, J. & Lepore, M. (2005). Measuring long-term care work: A guide to selected instruments to examine direct care worker experiences and outcomes. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/dcwguide-file.htm
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Leavitt, J. & Lingafelter, T. (2005). “Low wage workers and high housing costs.” Labor Studies Journal, 30, 2, 41-60.
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Levine, C. Hunt, G.G., Harper, D., Hart, A.Y., Lautz, J., Gould, D.A. (2005). Young adult caregivers: A first look at an unstudied population. American Journal of Public Health, 95 (9): 2071-2075.
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Li, L.W. (2005). Longitudinal changes in the amount of informal care among publicly paid home care recipients. Gerontologist, 45, 4, 465-473.
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Lida, K. (2006, May). Highlights of fourth quarter MIG activities. Center for Workers with Disabilities. Retrieved August 10, 2006 from http://www.aphsa.org/disabilities/home/index.htm
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Lin, C.J. & Meit, M. (2005). Changes in Medicare home health care use and practices in rural communities. Journal of Aging and Health, 17, 3, 351-362.
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Lipson, D. (2005, November 19). Stand up and tell them: Views from the frontline of long-term care. Media presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Lipson, D.J. (2004). Current findings and future directions in research on homecare work issues. Healthcare & Aging, 12, 3, 2-3, 6.
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Litt, J. (2004). “Women’s carework in low-income households: The special case of children with Attention Deficit Hyperactivity Disorder.” Gender & Society, 18, 5, 625-644.
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Liu, S., & Ireys, H.T. (2006, May). Participation in the Medicaid Buy-in program: A statistical profile from integrated data. Final report. Mathematica Policy Research, Inc. Retrieved February 27, 2007 from: http://www.mathematica-mpr.com/publications/PDFs/medbuyinstatprof.pdf
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Livermore, G., Nowak, M., & Stapleton, D. (2001). The role of health insurance in successful labor force entry and employment retention. Falls Church, VA: The Lewin Group.
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Livermore, G.A. (2003). Proceedings of the Employment Network (EN) summit: Summary of work group recommendations. Washington, D.C.: Cornell Center for Policy Research.
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Lopez, S.H. (2006). Culture change management in long-term care: A shop-floor view. Politics & Society, 34, 1, 55-80.
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Loprest, P., & Maag, E. (2001). Barriers to and supports for work among adults with disabilities: Results from the NHIS-D. Washington, D.C.: Urban Institute.
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Loughlin, D.M., Simon-Rusinowitz, L., Mahoney, K.J., Desmond, S.M., Squillace, M.R. & Powers, L.E. (2004). Preference for a cash option versus traditional services for Florida children and adolescents with developmental disabilities. Journal of Disability Policy Studies, 14, 4, 229-240.
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Luecking, R.G. (2003) Doing it the company way: Employer perspectives on workplace supports. Washington, D.C.: George Washington University, HEATH Resource Center.
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Lum, T.Y. (2005). Understanding the racial and ethnic differences in caregiving arrangements. Journal of Gerontological Social Work, 45, 4, 3-21.
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Lundsgaard, J. (2005). “Consumer direction and choice in long-term care for older persons, including payments for informal care: How can it help improve care outcomes, employment and fiscal sustainability?” Health Working Papers, No. 20. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from:
http://www.oecd.org/dataoecd/53/62/34897775.pdf
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Lynch, M., Estes, C. & Hernandez, M. (2007). Long-term care policy option proposal: Consumer controlled chronic, home and community care for the elderly and disabled. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved June 25, 2007, from: http://ltc.georgetown.edu/forum/4lynch061107.pdf
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MacDonald-Wilson, K.L., Rogers, E.S., Massaro, J. M., Lyass, A., Crean, T. (2002). An investigation of reasonable workplace accommodations for people with psychiatric disabilities: Quantitative findings from a multi-site study. Community Mental Health Journal, 38, 35-50.
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Maine Department of Health and Human Services. (2007). Study of Maine’s direct care workforce: Wages, health coverage, and a worker registry. Report to the 123rd Maine legislature. Retrieved April 30, 2007 from: http://www.maine.gov/dhhs/beas/Maine_Direct_Care_Workforce_Report_2007.pdf
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Mains, D., Fairchild, T.J. & René, A.A. (2006). Cultural attitudes and caregivers service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47, 1/ 2, 159-175.
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Malone, J. (2003). Back-up support when a person’s attendant is absent. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/itemdetail.asp?filterType=none&filterByDID;=-99&sortByDID;=1&sortOrder;=ascending&itemID;=CMS040649
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Mareschal, P. (2006). Innovation and adaptation: Contrasting efforts to organize home care workers in four states. Labor Studies Journal, 31, 1, 25-49.
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Master, R.J. & Eng, C. (2001). Integrating acute and long-term care for high-cost populations. Health Affairs, 20, 6, 161-172.
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Matthias, R.E. & Benjamin, A.E. (2005). “Intent to stay” among paid home care workers in California. Home Health Care Services Quarterly, 24, 3,39-57.
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Matthias, R.E. & Benjamin, A.E. (2003). Abuse and neglect of clients in agency-based and consumer-directed home care. Health Social Work, 28, 3, 174-184.
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Maxwell, J., Belser, J.W. and David, D. (2007). A health handbook for women with disabilities. Hesperian Foundation: Berkeley, CA.
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McDonald, I. (January 2007). Emerging strategies for providing health coverage to the frontline workforce in long term care. Paraprofessional Healthcare Institute.: Bronx, NY. Retrieved May 14, 2007 from: http://www.dswresourcecenter.org/
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McDonald, I.J. (April 2007). Respectful relationships: The heart of Better Jobs Better Care. BJBC Issue Brief No. 7. Institute for the Future of Aging Services: Washington, D.C. Retrieved May 14, 2007 from: http://www.bjbc.org/Page.asp?PgID=27
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McDonald, I.J. & Davis, G.S. (2007). The SEIU 775 long-term care training, support ad career development network: A blueprint for the future. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.paraprofessional.org/Sections/documents/BlueprintSEIU775.pdf
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McDonald, I.J. (2007). Comprehensive health coverage for consumer-directed home care workers: Washington State case study. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from: http://www.paraprofessional.org/Sections/documents/CaseStudy-WA-1.pdf
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McDowell, R.W. All 50 states' and D.C.'s home pages and Workers' Compensation agencies. Retrieved November 2, 2005, from http://www.comp.state.nc.us/ncic/pages/all50.htm. Date last updated: October 28, 2005.
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McMillan, S.C., Small, B.J., Weitzner, M., Schonwetter, R., Tittle, M., Moody,L. & Haley, W.E. (2006, January). Impact of coping skills intervention with family caregivers of hospice patients with cancer. Cancer, 106 (1), 214-222.
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McPhaul, K. (2004, September). Home care security: Nurses can take simple precautions to ensure safety during home visits. American Journal of Nursing, 104 (9), 96.
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McPhaul, K., Zanoni, J., Glassman, M., Kaufman, K., Lipscomb, J., Nickels, L., Vega, L., Johnson, J., Sokas, R. & Vasireddy, L. (2005, December 12). Focus groups of union home care workers and blood exposure. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Meagher, G. (2006). What can we expect from paid carers? Politics & Society, 34, 1, 33-54.
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MetLife Mature Market Institute and National Alliance for Caregiving. (2006). The MetLife caregiving cost study: Productivity losses to U.S. business. Bethesda, MD: National Alliance for Caregiving. Retrieved on July 21, 2006 from: http://www.caregiving.org/pubs/data.htm
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Meyer, J.D. & Muntaner, C. (1999). Injuries in home health care workers: An analysis of occupational morbidity from a state compensation database. American Journal of Industrial Medicine, 35 (3),295-301.
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Miller, B., Ranji, U., Hisey, H. & Salganicoff, A. (2007). KaiserEDU.org issue module: Financing long-term care. Washington, D.C.: Kaiser Family Foundation. Retrieved April 30, 2007, from:
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Miller, E.A. & Mor, V. (2006). Out of the shadows: Envisioning a brighter future for long-term care in America. Brown University Report for the National Commission for Quality Long Term Care. Retrieved on November 14, 2006 from:
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Miller, NA, Elder, KT, Rubin, A, Kitchener, M, & Harrington, C (2006). Strengthening Home and Community Based Care Through Medicaid Waivers. Journal of Aging & Social Policy, 18, 1-16.
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Miller, NA, Kitchener, M, Elder, KT, Kang, Y, Rubin, A, & Harrington, C (2005). Variation by Disability in State Predictors of Medicaid 1915c Waiver Use and Expenditures. The Gerontologist, 45, 764-772.
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Milne, D., Chang, D., Mollica, R. (2004, January). State perspectives on Medicaid long-term care: Report from a July 2003 state forum. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
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Misiorski, S. & Kahn, K. (2006). Changing the Culture of Long-Term Care Moving Beyond Programmatic Change. Journal of Social Work in Long-Term Care, 3, 3/4, 137-146.
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Misra, S. (2007). Personal Assistance Services (PAS) for Workers with Disabilities: Views and Experiences of Rehabilitation Service Providers, Disability Studies Quarterly . June.
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Mollica, R.L. & Gillespie, J. (2003, August). Single entry point systems: State survey results. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
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Mollica, R.L. (2003). Sustaining nursing home transition programs: Covering case management services. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
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Mollica, R.L. (2003, November). Building nursing home transition into a balanced long term care systems: The Washington model. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
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Montgomery, R.J.V., Holley, L., Deichert, J. & Kosloski, K. (2005). A profile of home care workers from the 2005 Census: How it changes what we know. Gerontologist, 45 (5), 593-600.
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Moss, H. (August 13, 2004). Bridging the gap between the needs of clients and the skills of the workforce in Oregon. Paper presented at Carework Conference, San Francisco, CA.
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Muntaner, C., Li, Y., Xue, X., O’Campo, P., Chung, H.J. & Eaton, W.W. (2004). Work organization, area labor-market characteristics, and depression among U.S. nursing home workers: a cross-classified multilevel analysis. International Journal of Occupational and Environmental Health, 10 (4), 392-400.
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National Academy for State Health Policy. (2006, January). Deficit Reduction Omnibus Reconciliation Act conference committee report offers states new options on home and community based services. Portland, ME: National Academy for State Health Policy News Brief. Retrieved December 11, 2006 from:
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National Academy for State Health Policy. Best practices and trade secrets: How to recruit and retain quality staff.Portland, ME: National Academy for State Health Policy. Retrieved June 18, 2006, from:
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National Council on Disability (2004). Consumer directed health care: How well does it work? National Council on Disability, Washington, D.C. (207 pages)
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National Council on Disability. (2005, December). The state of 21st century long-term services and supports: Financing and systems reform for Americans with disabilities. Washington: National Council on Disability.
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National Council on Disability. (2004, October 26). Consumer-directed health care: How well does it work? Washington, D.C.: National Council on Disability. Retrieved August 5, 2005, from http://www.ncd.gov/newsroom/publications/2004/publications.htm
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Navaie-Waliser, M., Feldman, P.H., Gould, D.A., Levine, C. Kuerbis, A.N. & Donelan, K. (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92 (3), 409-413.
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Navaie-Waliser, M., Feldman, P.H., Gould, D.A., Levine, C., Kuerbis, A.N. & Donelan, K. (2001). The experiences and challenges of informal caregivers: Common themes and differences among whites, blacks and Hispanics. Gerontologist, 41 (6), 733-741.
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Navaie-Waliser, M., Spriggs, A., & Feldman P.H. (2002). Informal caregiving—Differential experiences by gender. Medical Care, 40 (12), 1249-1259.
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Newcomer, R., Graham, C.G., Sotelo, E., Anderson, L. (2004) Nursing Home Transition: Implementing the Program Providing Assistance to Caregivers in Transition (PACT) Published on the Center for PAS website.
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Newcomer, R., Kang, T., LaPlante, M., and Kaye, S. (2005). Living quarters and unmet need for personal care assistance among adults with disabilities. Journal of Gerontology: Social Sciences, 60B(4): S205-S213.
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Ng, T., Kitchener, M., and Harrington, C. (2004). Medicaid Home Care Waivers for Persons with HIV/AIDS: Program Expenditures, Participants and Policies. AIDS and Public Policy Journal 19/3,4: 95-109
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Ng, T., Kitchener, M., and Harrington, C. (2004). Medicaid home care waivers for persons with HIV/AIDS: Program expenditures, participants and policies. AIDS and Public Policy Journal 19/3,4: 95-109
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O'Brien, D., Revell, G., & West, M. (2003). The impact of the current employment policy environment on the self-determination of individuals with disabilities. Journal of Vocational Rehabilitation, 19(2), 105-118.
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OECD. (2005). “Ensuring quality long-term care for older people.” OECD Policy Brief. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from:
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OECD. (2006). “Projecting OECD health and long-term care expenditures. What are the main drivers?” Economics Department Working Papers, No. 477. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from:
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Oktay, J.S. & Tompkins, C.J. (2004). Personal assistance providers’ mistreatment of disabled adults. Health and Social Work, 29, 3, 177-188.
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Older Women’s League. (2006). Women and long-term care: Where will I live and who will take care of me? Arlington, VA: Older Women’s League. Retrieved on June 23, 2006 from:
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Pandya, S.M. (2005). Racial and ethnic differences among older adults in long-term care service use. AARP Public Policy Institute Fact Sheet: Washington, D.C.
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Paraprofessional Healthcare Institute (2004). Direct care worker associations: Empowering workers to improve the quality of home- and community-based care. (Workforce Tools, No. 3). Bronx, NY: Paraprofessional Healthcare Institute. Retrieved on May 9, 2006, from
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Paraprofessional Healthcare Institute & The Institute for the Future of Aging Services. (2005). The role of training in improving the recruitment and retention of direct-care workers in long-term care. (Workforce Strategies No. 3)New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Paraprofessional Healthcare Institute. (2003). Personal assistance services and direct-support workforce: A literature review. New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Paraprofessional Healthcare Institute. (2004). Employing, supporting, and retaining your personal assistant: An orientation workshop for people with disabilities. New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Paraprofessional Healthcare Institute. (2006). Reimbursement practices and issues in Vermont’s long-term care programs. A report prepared by the Paraprofessional Healthcare Institute for the Long-Term Care Workforce Policy Committee of the Community of Vermont Elders. Accessed November 20, 2006 from:
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Paraprofessional Healthcare Institute. (2005, January). The role of training in improving the recruitment and retention of direct-care workers in long-term care. Workforce Strategies, No. 3. Paraprofessional Healthcare Institute, New York.
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Paraprofessional Healthcare Institute. (2006). Peer mentoring: A workshop series for direct-care workers in home and residential care. Paraprofessional Healthcare Institute Teaching Tool: Bronx, NY.
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Parker, M. & Bergmark, E. (2004). Reforming the system for workers providing homecare. Healthcare & Aging, 11, 4, 3-7.
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Phillips, B. & Schneider, B.. (2004). Changing to consumer-directed care: The implementation of the Cash and Counseling Demonstration in Florida. Princeton, NJ: Mathematica Policy Research, Inc. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/flchange.htm
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Piercy, K.W. & Dunkley, G.J. (2004). What quality paid home care means to family caregivers. Journal of Applied Gerontology, 23, 3, 175-192.
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Pillemer, K. & Suitor, J.J. (2006). Making choices: A within-family study of caregiver selection. Gerontologist, 26, 4, 439-448.
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Pita, D.D., Ellison, M.L., Farkas, M., & Bleecker, T. (2001). Exploring personal assistance services for people with psychiatric disabilities. Journal of Disability Policy Studies, 12(1), 2-9.
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Plumb, M., Weitz, T., Hernandez, M., Estes, C.L. & Goldberg, S. (2007). Improving care and assistance security for vulnerable older women in California. Los Angeles: The California Endowment. Retrieved June 27, 2007 from:
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Porter, E.J., Ganong, L.H., Drew, N. & Lane, T.I. (2004). A new typology of home-care helpers. Gerontologist, 44 (6): 750-759.
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President of the United States (2004). New Freedom Initiative: A progress report. Washington, DC: Author.
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Presidential Task Force on Employment of People with Disabilities (2002). People with disabilities: Strengthening the 21st century workforce. Washington, DC: Author.
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Priester, R. & Reinardy, J. R. (2003). Recruiting immigrants for long-term care nursing positions. Journal of Aging and Social Policy, 15(4), 1-19.
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Prince, H. (2006). Creating careers, improving care: A win-win economic advancement strategy for certified nursing assistants in long-term care. Boston, MA: Jobs for the Future. Retrieved on August 3, 2006 from:
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Promising practices: Home and community-based services for the elderly and people with disabilities. Various authors, National Conference of State Legislators, 2002
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Purdin, L., Liese, H., & Lehmann, S. (2003). Employer perception of need when hiring and retaining people with disabilities, Salt Lake City, UT: Utah Governor’s Committee on Employment of People with Disabilities.
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Radtke, J. (1998). Achieving successful employment outcomes with the use of assistive technology. Twenty-fourth Institute on Rehabilitation Issues. Menomonie, WI: University of Wisconsin-Stout, Stout Vocational Rehabilitation Institute.
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Ranney, M. (2005). The cultures of caregiving: Conflict and common ground among families, health, professionals, and policy makers. (Book review). Journal of Women & Aging, 17, 3, 109.
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Redfoot, D.L. & Houser, A.N. (2005). “We shall travel on”: Quality of care, economic development, and the international migration of long-term workers. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Research and Training Center on Community Living. (December 2006). CMS Direct Service Workforce Demonstration Promising Practices in Marketing, Recruitment and Selection Interventions. University of Minnesota.: Minneapolis, MN. Retrieved May 14, 2007 from: http://rtc.umn.edu/publications/
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Robert Wood Johnson Foundation. (2006). Workgroup’s recommendations help HMOs identify and care for high-risk chronically ill older patients. Princeton, NJ: Robert Wood Johnson Foundation. Retrieved on December 7, 2006 from:
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Roper Public Affairs and Media. (2006). The costs of long-term care: Public perceptions versus reality in 2006. Washington, D.C.: AARP Public Policy Institute. Retrieved January 13, 2007 from:
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Rosenbaum, S & Teitelbaum, J. (2004). Olmstead at five: Assessing the impact Kaiser Commission on Medicaid and the Uninsured.The Kaiser Family Foundation, Washington D.C. (34 pages)
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Rosenbaum, S, Burke, T & Teitelbaum, J. (2003) The Americans with Disabilities Act and community integration: An update on "Fundamental Alteration" litigation. Center for Health Care Strategies, Inc.
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Salter, V. & Wilner, M.A. (2006). Conversations about the future of direct-care workforce research. Bronx, NY: National Clearinghouse on the Direct Care Workforce and the Direct Care Workers. Retrieved January 13, 2007 from:
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San Antonio, P.M., Eckert, J.K. & Simon-Rusinowitz, L. (2006). The importance of relationship: Elders and their paid family caregivers in the Arkansas Cash and Counseling Qualitative Study. Journal of Applied Gerontology, 25, 1, 31-48.
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Sanders, S. & Adams, K.B. (2005). Grief reactions and depression in caregivers of individuals with Alzheimer’s disease: Results from a pilot study in an urban setting. Health and Social Work, 30, 4, 287-295.
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Scala, Elise. (2005). The illustrated history of Maine PASA: Establishing an association for direct care and direct support workers in Maine. Portland, ME: University of Southern Maine, Edmund S. Muskie School of Public Service, Institute for Health Policy. Retrieved June 18, 2006, from:
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Scharlach, A., Sirotnik, B., Bockman, S., Neiman, M., Ruiz, C. & Dal Santo, T. (2003, February) A profile of family caregivers: Results of the California statewide survey of caregivers. Center for the Advanced Study of Aging Services, University of California Berkeley, Berkeley, CA
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Scharlach, A.E., Kellam, R., Ong, N., Baski, A., Goldstein, C. & Fox, P.J. (2006). Cultural attitudes and caregivers service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47, 1/ 2, 135-158.
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Scherzer, T. (2005, December 13). Homecare workers’ experiences of and responses to occupational injury: Preliminary results from a qualitative study. Presented at the 2005 American Public Health Association 133rd Annual Meeting.
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Scherzer, T. & Wolfe, N. (2008). Barriers to workers’ compensation and medical care for injured Personal Assistance Services workers. Home Health Care Services Quarterly, vol. 27 (1), 2008.
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Scherzer, T., & Newcomer, R. (2007). Barriers to documenting occupational injuries among personal assistance services workers. American Journal of Industrial Medicine, 50, 7, 536-44.
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Scherzer, T., Chapman, S. & N. Newcomer. (2006). Integrating occupational health and safety into the United States’ personal assistance services workforce agenda. In S. Kunkel and V. Wellin (Eds.), Consumer voice and choice in long-term care. (Chapter 6). New York, NY: Springer Publishing.
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Scherzer, T., Chapman, S., & Newcomer, R. ( June, 2004 ) Lost-worktime injuries and illnesses of Nursing Aides, Orderlies, and Attendants. Published on the Center for PAS website.
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Scherzer, T., Chapman, S., Newcomer, R. (2004). Workforce Development Projects in Personal Assistance Services. Published on the Center for PAS website http://pascenter.org/state_based_stats/workforce_projects_inventory_home.php
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Scherzer, T., Wong, A. and Newcomer, R. (2007). Financial management services in consumer-directed programs. Home Health Care Services Quarterly, 26, 1, 29-42.
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Schore, Jennifer, and Barbara Phillips. (2004). Consumer and Counselor Experiences in the Arkansas Independent Choices Program. Princeton, NJ: Mathematica Policy Research, Inc. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/arkexp.htm
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Sciegaj, M., Capitman, J.A. & Kyriacou, C.K. (2004, August). Consumer-directed community care: Race/ethnicity and individual differences in preferences for control. Gerontologist, 44 (4): 489-499.
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Seavey, D. (2004, October). The cost of frontline turnover in long-term care. Better Jobs Better Care Practice & Policy Report: 1-3.
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Seavey, D. & Nakhnikian, E. (2005). Family care and paid care: Separate worlds or common ground? (Better Jobs Better Care Issue Brief No. 5). Washington, D.C.: Institute for the Future of Aging Services. Retrieved March 13, 2006, from:
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Seavey, D. & Salter, V. (2006). Bridging the gaps: State and local strategies for ensuring backup personal care services. Washington, D.C.: AARP Public Policy Institute. Retrieved on October 8, 2006 from:
http://www.aarp.org/research/longtermcare/quality/2006_19_pcs.html
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Seavey, D. & Salter, V. (2006). Paying for quality care: Strategies for improving wages and benefits for personal care assistants. Washington, D.C.: AARP Public Policy Institute. Retrieved on October 8, 2006 from: http://www.aarp.org/research/longtermcare/quality/2006_18_care.html
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Seavey, D., Dawson, S.L. & Rodat, C. (2006). Addressing New York City’s care gap: Aligning workforce policy to support home- and community-based care. Bronx, NY: National Clearinghouse on the Direct Care Workforce and the Direct Care Workers. Retrieved October 8, 2006 from: http://www.directcareclearinghouse.org/n_news_det.jsp?res_id=217610&res;_type=6&txn;_type=
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Service Employees International Union. (2005). Working together for quality personal care.Service Employees International Union. Retrieved March 13, 2006, from:
http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=170310
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Shireman, T.I. & Rigler, S.K. (2004). Penny wise, pound wise: A comparison of Medicaid expenditures for home and community-based services versus nursing facility care for older adults. Home Health Care Services Quarterly, 23, 4, 15-28.
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Shirk, C. (2007). Trading Places: Real Choice Systems Change Grants and the Movement to Community-Based Long-Term Care Supports. The National Health Policy Forum.
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Silverstein, R. (2003). The applicability of the ADA to personal assistance in the workplace. (Policy Brief). Boston, MA: The Institute for Community Inclusion.
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Siperstein, G.N., Roman, N., Mohler, A., & Parker, R. (2006). A national survey of consumer attitudes toward companies that hire people with disabilities. Journal of Vocational Rehabilitation, 24(1), 3-4.
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Sommers, A., Cohen, M. & O’Malley M. (2006). Medicaid’s long-term care beneficiaries: An analysis of spending patterns. Issue Brief #7576. Washington, D.C.: Kaiser Family Foundation. Retrieved on December 4, 2006 from: http://www.kff.org/medicaid/7485.cfm
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Sommers, A., Cohen, M. & O’Malley, M. (2006). Medicaid’s long-term care beneficiaries: An analysis of spending patterns. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7576.cfm
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Spandler, H. & Vick, N. (2006). Opportunities for independent living using direct payments in mental health. Health and Social Care in the Community, 14, 2, 107-115.
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Sparks, L., Travis, S.S. & Thompson, S.R. (2005). Listening for the communicative signals of humor, narratives, and self-disclosure in the family caregiver interview. Health and Social Work, 30, 4, 340-343.
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Spillman, B.C. & Black, K.J. (2005). Staying the course: Trends in family caregiving. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Spillman, B.C., Black, K.J. & Ormond, B.A. (2007). Beyond Cash and Counseling: The second generation of individual budget-based community long term care programs for the elderly. Washington, D.C.: Kaiser Family Foundation. Retrieved April 30, 2007, from:
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Squillace, M.R., Remsburg, R.E., Bercovitz, A., Rosenoff, E., & Branden, L. (2007). An introduction to the National Nursing Assistant Survey. Vital Health Statistics, 1, 44. Retrieved April 30, 2007 from: http://www.cdc.gov/nchs/data/series/sr_01/sr01_044.pdf
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Stacey, C.L. (2005). Finding dignity in dirty work: The constraints and rewards of low-wage home care labour. Sociology of Health & Illness, 27 (6), 831-854.
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Stapleton, D., Nowak, M., & Livermore, G. (2001). The role of supports in successful labor force entry for youth with disabilities. Falls Church, VA: The Lewin Group.
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Stern, A.L. (2002). Recruitment and hiring process to identify suitable direct support workers. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
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Stoddard, S. & Kraus, L. (2006). Arranging for personal assistance services and assistive technology at work. A report of the Rehabilitation Research and Training Center on Personal Assistance Services. Disability and Rehabilitation: Assistive Technology, 1(1-2), 89-95.
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Stoddard, S. (2006). Personal assistance services as a workplace accommodation. Work: A Journal of Prevention, Assessment and Rehabilitation, 27(4), 363-369.
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Stone, D. (2006). Providing assistance services through a Medicaid state plan option. Washington, D.C.: Center for Workers with Disabilities. Retrieved October 8, 2006 from: http://www.aphsa.org/disabilities/home/docs/PAS%20as%20a%20State%20Plan%20Option-%20Doug%20Stone.pdf
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Stone, D. (2006). Providing personal assistance services through a Medicaid State Plan Option. Center for Workers with Disabilities. Retrieved August 24, 2006 from http://www.aphsa.org/disabilities/home/docs/PAS%20as%20a%20State%20Plan%20Option-%20Doug%20Stone.pdf
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Stone, R.I. (2004). The direct care worker: the third rail of home care policy. Annual Reviews of Public Health, 25, 21-37.
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Stowell-Ritter, A. (2007). Long-term care preferences: An survey of Alabama residents age 35+. Washington, D.C.: AARP Public Policy Institute. Retrieved April 30, 2007 from:
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Strobel, W., & McDonough, J.T. (2003). Workplace personal assistance service and assistive technology. Journal of Vocational Rehabilitation, 18 (2), 107-112.
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Summer, L. (2007). Community-based long-term services financed by Medicaid: Managing resources to provide appropriate Medicaid services. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved June 25, 2007, from: http://ltc.georgetown.edu/pdfs/summer0607.pdf
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Summer, L., Friedland, R., Mack, K. & Mathieu, S. (2004, August). Measuring the years: State aging trends and indicators. Center on an Aging Society Health Policy Institute, Georgetown University, For the National Governors Association Center for Best Practices, Washington, D.C.
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Sweeney, E. P. (2004). SSA's disability demonstration projects likely to provide important information about disability work incentives. Washington, DC: Center on Budget and Policy Priorities.
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The Employment Policy Group (2003). Using workplace personal assistance to improve recruiting and retention. Des Moines, IA: University of Iowa, Center for Disabilities and Development.
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The Lewin Group Inc. (2002). National Family Caregiver Support Program Resource Guide. Falls Church, VA: The Lewin Group Inc. Retrieved on June 18, 2006, from
http://www.lewin.com/Lewin_Publications/Long_Term_Care/NFCSPResourceGuide.htm
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The Lewin Group, Inc. (2001). Research on employment supports for people with disabilities: Summary of the focus group findings. Washington, D.C.: U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP).
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Ticket to Work and Work Incentives Advisory Panel (2004). Advice report to Congress and the Commissioner of the Social Security Administration: The crisis in EN participation—a blueprint for action. Washington, DC: Author.
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Ticket to Work and Work Incentives Advisory Panel (2004). Annual report to the President and Congress: Year Four. Washington, DC: Author.
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Tilly, J. (2005). Recent research on consumer-directed home care in the Netherlands, England, Germany and the United States. Australasian Journal on Ageing, 24, s1, S59-S59.
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Toseland, R.W. (2004). Caregiver education and support programs: Best practice models.San Francisco, CA.: Family Caregiver Alliance. Retrieved March 13, 2006, from:
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1314
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Trinkoff, A.M., Johantgen, M., Muntaner, C. & Le, R. (2005). Staffing and worker injury in nursing homes. American Journal of Public Health, 95, 7, 1220-1225.
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Tritz, K. (2004, February). Long-term care: Consumer directed services under Medicaid. Congressional Research Service Report, Order Code: RL32219.
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Tritz, Karen. (2005). Long-term care: Consumer-directed services Under Medicaid. Congressional Research Service, Order Code RL 32219. Retrieved June 29, 2005, from http://www.law.umaryland.edu/marshall/crsreports/index.asp?AlphaStart=L
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Turner, E. (2003a). Using a personal assistant in the workplace. Journal of Vocational Rehabilitation, 18(2), 81-85.
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Turner, E. (2003b). Finding the right personal assistant. Journal of Vocational Rehabilitation, 18(2), 87-91.
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Turner, E., Barkus, J. M., West, M., & Revell, G. (2003). Personal assistance services: A vital workplace support. In Revell, G., Inge, K., Mank, D., Wehman, P. (Eds.) The impact of supported employment for people with significant disabilities: Preliminary findings from the National Supported Employment Consortium. Richmond, VA: Virginia Commonwealth University, Rehabilitation Research and Training Center on Workplace Supports and Job Retention
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Turner, E., Revell, G., & Brooke, V. (n.d.) Personal assistance in the workplace: A customer-directed guide. Richmond, VA: Virginia Commonwealth University.
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Unger, D., & Kregel, J. (2003). Employers’ knowledge and utilization of accommodations. Work, 21(1), 5-15.
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Unger, D., Kregel, J., Wehman, P., & Brooke, V. (Eds.). (2003). Employers’ view of workplace support: Virginia Commonwealth University Charter Business Roundtable’s National Study of Employers’ Experiences with Workers with Disabilities. Richmond, VA: Virginia Commonwealth University, Rehabilitation Research and Training Center on Workplace Supports and Job Retention
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United Cerebral Palsy. (2007). The case for inclusion 2007: An analysis of Medicaid for Americans with intellectual and developmental disabilities. Retrieved May 14, 2007 from: http://www.ucp.org/medicaid/
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University of Massachusetts, Boston, Institute for Community Inclusion. ( n.d.) "Show me the money": Flexible funding for job success. Retrieved April 8, 2005, from the Institute for Community Inclusion Web site, http://www.communityinclusion.org/article.php?article_id=150
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University of Nebraska Public Policy Center. (June 2003). Intermediary service organizations providing personal assistance services: Implementing lessons . Report prepared for the Medicaid Infrastructure Grant Program, Nebraska Department of Health and Human Services.
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van Bilsen, P.M.A., Hamers, J.P.H., Spreeuweberg, C. & Groot, W. (2005, November 21). Consumers’ and family caregivers’ perspectives on community-based homecare and welfare services: A acceptable alternative for residential care? Poster presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Wachino, V. (2007). The new Medicaid Integrity Program: Issues and challenges in ensuring program integrity in Medicaid. Washington, D.C.: Kaiser Family Foundation. Retrieved June 25, 2007, from: http://www.kff.org/medicaid/7650.cfm
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Wang, P.P., Badley, E.M., & Gignac, M.A. (2004). Perceived need for workplace accommodation and labor-force participation in Canadian adults with activity limitations. American Journal of Public Health, 94(9), 1515-1518.
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Webb, S. (2003). Independent living and employment services: Equal paths to community integration. Journal of Vocational Rehabilitation, 18(2), 125-130.
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Wehman, P. & Revell, W. (2003). The Ticket to Work Program: Marketing strategies and techniques to enhance implementation. Richmond, VA: Virginia Commonwealth University, Rehabilitation Research and Training Center.
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Wehman, P. (2003). Workplace inclusion: Persons with disabilities and coworkers working together. Journal of Vocational Rehabilitation, 18(2), 131-141.
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Wehman, P., & Bricout, J. (n.d.) Supported employment and natural supports: A critique and analysis. Retrieved June 12, 2006, from the Worksupport.com Web site: http://www.worksupport.com/resources/viewContent.cfm/128
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Weiner, J. (2003). Medicaid and Work Incentives for People with Disabilities: Background and Issues. The Urban Institute, Washington, DC.
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Weissert, W.G., Cready, C.M. & Pawelak, J.E. (2005). The past and future of home- and community-based long-term care. The Milbank Quarterly, 83, 4, Online-only.
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White, G.W., Fox, M.H. & Rooney, C. (2007). Assessing the impact of Hurricane Katrina on persons with disabilities. Lawrence, KS: The University of Kansas, The Research and Training Center on Independence Living. Retrieved April 30, 2007 from: http://www.rtcil.org/products/NIDRR_FinalKatrinaReport.pdf
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Whittier, S., Scharlach, A.E. & Dal Santo, T.S. (2005). Availability of caregiver support services: Implications of the National family Caregiver Support Program. Journal of Aging & Social Policy, 17 (1), 45-62.
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Willette-Murphy, K., Todero, C. & Yeaworth, R. (2006). Mental health and sleep of older wife caregivers for spouses with Alzheimer’s disease and related disorders. Issues in Mental Health Nursing, 27, 8, 837-852.
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Williams, B., & Tolbert , J. (2007). Aging Out of Early and Periodic Screening, Diagnostic and Treatment (EPSDT): Issues for Young Adults with Disabilities. Association of University Centers on Disabilities and the Kaiser Commission on Medicaid and the Uninsured.
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Williams, C., Rosen, J. & O’Malley, M. (2006). Profiles of nursing home residents on Medicaid. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7510.cfm
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Wilson, R. (2006). Invisible no longer: Advancing the entry-level workforce in health care. Boston, MA: Jobs for the Future. Retrieved on August 3, 2006 from:
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Wittenberg, D., & Loprest, P. (n.d.) Ability or inability to work: Challenges in moving towards a more work-focused disability definition for Social Security Administration (SSA) disability programs. Ticket to Work & Work Incentives Advisory Panel. Retrieved July 25, 2005 from http://www.ssa.gov/work/panel/panel_documents/briefingpapers.html
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Wittenburg, D. (2004, September). A health-conscious safety net? Health problems and program use among low-income adults with disabilities. (New Federalism: National Survey of America's Families, Series B, No. B-62). Washington, DC: Urban Institute.
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Wodchis, W.P., Fries, B.E., Pollack, H. (2004). Payer incentives and physical rehabilitation therapy for nonelderly institutional long-term care residents: Evidence from Michigan and Ontario. Archives of Physical Medicine and Rehabilitation , Volume 85(2) , Pgs. 210-217.
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Wodchis, W.P., Teare, G.F., Naglie, G., Bronskill, S.E., Gill, S.S., Hillmer, M.P., Anderson, G.M., Rochon, P.A.; Fries, B.E. (2005). Skilled nursing facility rehabilitation and discharge to home after stroke. Archives of Physical Medicine and Rehabilitation , Volume 86(3) , Pgs. 442-448.
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Wong, A. & Newcomer, R. (2007). Health promotion and disease prevention for people with disabilities: An annotated bibliography. San Francisco: Center for Personal Assistance Services.
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Wood, E.F. and Klem, E.M. (2007). Protections in Medicaid estate recovery: Findings, promising practices, and model notices. Washington, D.C.: AARP Public Policy Institute. Retrieved May 21, 2007 from: http://www.aarp.org/research/longtermcare/programfunding/2007_07_medicaid.html
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Wright, B. (2007). Assisted living in unlicensed housing: The regulatory experience of four states. Washington, D.C.: AARP Public Policy Institute. Retrieved May 21, 2007 from:
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Yamada, Y. & Sekiya, M. (2003). Licensing and training requirements for direct care workers in Japan: what can the United States and Japan learn from each other? Journal of Aging and Social Policy, 15(4), 113-29.
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Yamada, Y. (2001). Consumer direction in community-based long-term care: Implications for different stakeholders. Journal of Gerontological Social Work, 35(3), 83-97.
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Yamada, Y. (2002). Profile of home care aides, nursing home aides, and hospital aides: Historical changes and data recommendations. Gerontologist 42, 199-206.
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Yip, J.Y., Myrtle, R.C., Wilber, K.H. & Grazman, D.N. (2002). The networks and resource exchanges in community-based systems of care. Journal of Health and Human Services Administration, 25, 1/2, 219-259.
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Yoshida, K., Willi, V., Parker, I. & Locker, D. (2004). The emergence of self-managed attendant services in Ontario: Direct funding pilot project—An independent living model for Canadians requiring attendant services. Research in the Sociology of Health Care, 22, 177-204.
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Young, A.J. (2003). The evolution of personal assistance services as a workplace support. Journal of Vocational Rehabilitation, 18(2), 73-80.
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Young, L. & Newman, S. (2003, December). Caregiving and retirement planning: What happens to family caregivers who leave the workforce (Policy Brief). San Francisco, CA: Family Caregiver Alliance.
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Zabin, C. (2006). Quality services and quality jobs for supporting Californians with developmental disabilities. California Policy Research Center Author’s Report. Berkeley, CA: University of California. Retrieved on July 26, 2006 from:
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Zacharias, Lee. (June 2004). Cash and counseling demonstration and evaluation report on Florida paid worker focus groups.
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Zacharias, Lee. (June 2004). Cash and counseling demonstration and evaluation report on New Jersey paid worker focus groups.
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Zimmerman, M.K., Litt, J.S. & Bose, C.E. (2006). Global dimensions of gender and carework. Palo Alto, CA: Stanford University Press.
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Zola, I.K. (2005). Toward the necessary universalizing of a disability policy. The Milbank Quarterly, 83, 4, Online-only.
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Zwerling, C., Whitten, P., Sprince, N., Davis, C., Wallace, R., Blanck, P., & Heeringa, S. (2003). Workplace accommodations for people with disabilities: National Interview Survey Disability Supplement 1994-1995. Journal of Occupational and Environmental Medicine, 45, 517-525.
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