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The Home and Community-Based PAS Project

AboutTwo people walking together

The primary goal of this 5-year research project is to identify, track and analyze programs and policies concerning formal (paid) PAS delivered in the home and community (as opposed to institutional settings). The project is directed by Martin Kitchener and Charlene Harrington at the University of California, San Francisco and comprises four streams of research.

Map of the United StatesState by State Home and Community-Based PAS Data Available

The 1999 Olmstead Supreme Court Decision

In a landmark interpretation of the ADA (Americans with Disabilities Act), the Supreme Court decided that people with disabilities have a right to receive care in the most integrated setting appropriate and that unnecessary institutionalization violates the ADA. All states must now comply with the decision. The Center for PAS is tracking the legal and policy ramifications of the Olmstead decision in each state.

State by State Medicaid Home and Community Based Services for 2001

Find the total amount of expenditures, expenditures per 1,000 population, the number of participants, and the participants per 1,000 population for various Medicaid HCBS programs: Home Health, Personal Care Services, and the 1915(c) HCBS Waivers. Compare these data with US totals.

State by State Medicaid 1915(c) HCBS Waiver Data for 2001

Find the total amount of expenditures, expenditures per 1,000 population, the number of participants, and the participants per 1,000 population for several waiver target groups. Compare these data with US totals.

Reports and Publications

A list of publications produced by the Home and Community-Based PAS project. The citations provide links to abstracts, press releases, and either the entire publication, or information about where to obtain it.

All Home and Community-Based PAS Reports and Publications

Recent additions

Harrington, C., O’Meara, J. (2004). Report on California’s Nursing Homes, Home Health Agencies, and Hospice Programs Prepared for the California HealthCare Foundation for California Nursing Home Search - www.calnhs.org. Retrieved from the Center for PAS website http://pascenter.org/documents/CCIS_Overview.pdf

View Abstract and Obtain Full Version

Kitchener, M., Bostrom, A., & Harrington, C. (2004) Smoke Without Fire: Nursing Facility Closures, 1997-2001. Inquiry 41/2: 189-202.
View Abstract and Obtain Full Version

Kitchener M., Beynon, M., & Harrington, C. (2004). Explaining the Diffusion of Medicaid Home Care Waiver Programs Using VPRS Decision Rules. Healthcare Management Science 7/3: 237-244.
View Abstract and Obtain Full Version

Library

Citations and abstracts of important publications related to Home and community-based PAS. Information on how to obtain the complete text is provided with each citation.

Selected readings from the Home and Community-Based PAS Library

Recent additions:

Liese, H., and Sheen, J. (2003). Employment Personal Assistance Services (EPAS): Focus group report on program awareness and needs. Salt Lake City, UT: Utah Governor’s Committee on Employment of People with Disabilities.
View Abstract and Obtain Full Version

Enbar, E.G., Fred, M.A., Miller, L., Naiditch, Z. (2004). A nationwide study of deinstitutionalization & community integration: A special report of the public policy and legal advocacy programs Equip for Equality, Illinois. (233 pages)
View Abstract and Obtain Full Version

National Council on Disability (2004). Consumer directed health care: How well does it work? National Council on Disability, Washington, D.C. (207 pages)
View Abstract and Obtain Full Version

Presentations

Presentations given by the Home and Community-Based PAS project with links to abstracts, powerpoint files and summaries.

All Home and Community-Based PAS presentations

Recent additions:

Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., & Oxford, M. (2004, November 15). Center for Personal Assistance Services. Presented at the National Association of State Medicaid Directors Fall 2004 Annual Meeting hosted by Held in Cooperation with the Centers for Medicare & Medicaid Services (CMS).
Summary | Download Powerpoint

Kitchener, M. (2004, November 2). Institutional Change in the U.S. Disability Field. Presented at the Institute for Health and Aging Faculty Seminar .

Alameida, M., Kitchener, M. Wilmott, M., and Harrington, C. (2004, November 21). Findings from an Exploratory Study of State Olmstead Plans. Presented at the 57th Annual Scientific Meeting of the Gerontological Society of America hosted by The Gerontological Society of America.

Home and Community-Based PAS Links

The Center for PAS has assembled a list of links to organizations, resources and information available on the web related to Home and Community-Based PAS.

Home and Community-Based PAS Links