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National Council on Disability (2004). Consumer directed health care: How well does it work? National Council on Disability, Washington, D.C. (207 pages)
Abstract
This report assesses the nature, scope and quality of consumer-directed health care policy, practice, programs and practice across the U.S. It has 6 sections covering; (1) the legal and regulatory framework for consumer direction; (2) program and policy trends; (3) outcomes of consumer-directed health care; (4) lessons learned about implementing effective reforms and strategies; (5) the role of federal agencies in promoting research; and (6) recommendations to state and federal policymakers.
The report evaluates policies and identifies evidence of effectiveness for consumer-directed health care for people with disabilities and is derived from a review of published and unpublished literature and telephone interviews with experts and key informants. The overarching recommendation is that consumers with disabilities should be included at every step in the process of shaping programs. The report goes on to make a series of recommendations concerning policies and programs and for research, concluding that services need to be individualized and serve people with a range of disabilities and to achieve this, an oversight agency is required within government.
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