Department of Labor\'s Office of Disability Employment Policy. Disclosure Resources for Youth. Fact sheets. 2008.
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Principles of the Ideal Long Term Living System for Pennsylvania\'s Older Adults. September 2009. The Southwest Pennsylvania Partnership for Aging.
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Acosta, P. and Hendrickson, L. (2008). Advancing Medicaid HCBS policy: From capped consumer to consumer-directed. New Brunswick, NJ: Rutgers Center for State Health Policy.
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Adams, M., Beatty, P. (1998). Consumer-directed personal assistance services: Independent living, community integration and the vocational rehabilitation process. Journal of Vocational Rehabilitation. 10(2) 93-101
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Adini, B., Goldberg, A., Laor, D., Cohen, R., Zadok, R., Bar-Dayan, Y. (2006). Assessing levels of hospital emergency preparedness. Pre-hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with The Acute Care Foundation [Pre-Hosp Disaster Med] 2006 Nov-Dec; Vol.21 (6), pp.451-7
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Agency for Healthcare Research and Quality. (2008). Integrating Chronic Care and Business Strtegies in the Safety Net. AHRQ Publication No. 08-0104-EF. Rockville, MD: Agency for Healthcare Research and Quality. Retrieved February 10, 2009 from: http://www.improvingchroniccare.org/index.php?p=Toolkit&s;=244
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Agree, E.M., Freedman, V.A., Cornman, J.C., Wolf, D.A. & Marcotte, J.E. (2005). Reconsidering substitution in long-term care: When does assistive technology take the place of personal care? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 60B, 5, S272-S280.
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Albert, S.M. & Levine, C. (2005). Family caregiver research and the HIPAA factor. Gerontologist, 45(4), 432-437.
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Albert, S.M. & Schulz, R. (February 2010). New Insights and Innovations for Reducing Health Care Costs for Employers. Westport, CT: MetLife Mature Market Institute. Retrieved February 21, 2010 from: http://www.metlife.com/mmi/research/working-caregiver-employer-health-care-costs.html#findings
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Albert, S.M., Simone, B., Brassard, A., Stern, Y. & Mayeux, R. (2005). Medicaid home care services and survival in New York City. Gerontologist, 45(5), 609-616.
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Aldrich, N., Benson, W.F. (2008). Disaster preparedness and the chronic disease needs of vulnerable older adults. Preventing Chronic Disease [Pre Chronic Dis] 2008 Jan; Vol. 5 (1), pp.A27.
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Amador, T.K., Travis, S.S., McAuley, W.J., Bernard, M. & McCutcheon, M. (2006). Recruitment and retention of ethnically diverse long-term family caregivers for research. Journal of Gerontological Social Work, 47(3/4), 139-152.
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Andersen, R. & Newman, J.F. (2005). Societal and individual determinants of medical care utilization in the United States. The Milbank Quarterly, 83(4), Online-only.
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Anderson, G. (February 2010). Chronic Care: Making the Case for Ongoing Care. Princeton, NJ: Robert Wood Johnson Foundation.
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Anderson, W. L., Wiener, J.M., Greene, A.M., & O'Keeffe, J. (2004, April). Direct service workforce activities of the Systems Change grantees. RTI International. Retrieved February 12, 2007 from: http://www.hcbs.org/files/35/1708/CMSWorkforce.pdf
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Anderson, W.L., Wiener, J.M. & Khatutsky, G. (2006). Workforce issues and consumer satisfaction in Medicaid personal assistance services. Health Care Financing Review, 28, 1, 87-101. Retrieved November 21, 2006 from:
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Argiropolis, M., Nielsen, A. & Ricker, R. (2006). Eldercare in New Hampshire: Labor market trends and their implications. New Hampshire Economic and Labor Market Information Bureau: Concord, NH.
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Bachman, J. (2006). Pay-for-performance initiatives and B. F. Skinner. Psychiatric Services. 57(2) 273
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Bainbridge, D., Traci, M.A., Brod, R. & Seekins, T. (2005, December 13). Why personal assistant staff leave: Factors that increase turnover. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Baldridge, D.C., & Veiga, J.F. (2006). The impact of anticipated social consequences on recurring disability accommodation requests. Journal of Management, 32 (1), 158-179.
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Bank, A.L., Argüelles, S., Rubet, M., Eisdorfer, C. & Czaja, S.J. (2006). The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist, 46, 1, 134-138.
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Barcus, J.M., & Targett, P. (2003). Maximizing employee effectiveness through use of Personal Assistance Services at the workplace. Journal of Vocational Rehabilitation, 18(2), 99-106.
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Barker, J.C. (2002). Neighbors, friends, and other nonkin caregivers of community-living dependent elders. Journal of Gerontology B: Social Sciences, 57(3), S158-S167.
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Barrett, E. (2005). Family-directed support network for families of people with disabilities. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
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Barrett, J. (2007). Leadership Stories from Maine: The Voices of Direct-Care Workers in Culture Change. Bronx, NY: National Clearinghouse on the Direct Care Workforce, Northern New England LEADS Institute. Retrieved Dec. 9, 2007 from:
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Barrett, J.C. (2003). Being an effective workplace personal assistant. Journal of Vocational Rehabilitation, 18(2), 93-97.
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Barrett, Jocelyn. (2004). "Common sense and patience: Arlene's story." Our Stories series, Maine Personal Assistance Services Association
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Bass, D.M., Clark, P.A., Looman, W.J., McCarthy, C.A. & Eckert, S. (2003). The Cleveland Alzheimer’s Managed Care Demonstration: Outcomes after 12 months of implementation. Gerontologist, 43, 1, 73-85.
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Bazelon Center for Mental Health Law. (June 2009). Still waiting…the unfulfilled promise of Olmstead: A call to action on the 10th anniversary of the Supreme Court’s decision. Washington, DC: Bazelon Center for Mental Health Law.
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Beauchamp, N., Blair Irvine, A., Seeley, J. & Johnson, B. (2005). Worksite-based internet multimedia program for family caregivers of persons with dementia. Gerontologist, 45, 6, 793-801.
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Belknap, P.J.; Korwin, K.A. & Long, N.M. (1995). Job coaching: A means to reduce unemployment and underemployment in the deaf community. Journal of the American Deafness & Rehabilitation Association. Spring Vol 28(4) 21-38.
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Bell, H.S. (2003). Creating financial incentives to serve partial benefit recipients in the Ticket to Work program. Washington, D.C.: Urban Institute.
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Benach, J., Amable, M., Muntaner, C. & Benavides, F.G. (2002). The consequences of flexible work for health: Are we looking at the right place? Journal of Epidemiology and Community Health, 56, 405-406.
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Benjamin, A.E. (2001). Consumer-directed services at home: A new model for persons with disabilities. Health Affairs, 20 (6): 80-95.
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Benjamin, A.E. & Matthias, R.E. (2004). Work-life differences and outcomes for agency and consumer-directed home care workers. Gerontologist, 44 (4): 479-88.
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Better Jobs Better Care. (2007). FutureAge. Washington, D.C.: Institute for the Future of Aging Services. Retrieved on April 30, 2007, from: http://www.bjbc.org/page.asp?pgID=224
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Beynon, M. & Kitchener, M. (2005). Ranking the \'balance\' of state long-term care systems: A comparative exposition of the SMARTER and CaRBS techniques. Health Care Management Science, Pgs. 157-166.
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Binette, J. & Dinger, E.L. (2008). The 2008 Hawaii health and long-term care survey. Washington, D.C.: AARP Knowledge Management. Retrieved March 22, 2008 from:
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Binette, J. (2008). Long-term care in Tennessee: A survey of self-identified registered likely voters age 18+. Washington, D.C.: AARP Knowledge Management. Retrieved March 22, 2008 from:
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Black, W.E., Liu, S., & Ireys, H.T. (2006, May). How much are Medicaid Buy-In participants earning? Working with Disability Issue Brief, 1. Retrieved July 5, 2006 from Mathematica Policy Research web site: http://www.mathematica-mpr.com/publications/PDFs/howmuchmedicaid
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Blessman, J., Skupski, J., Jamil, M., Jamil, H., Bassett, D., Wabeke, R., Arnetz, B. (2007). Barriers to at-home-preparedness in public health employees: implications for disaster preparedness training. Journal of Occupational and Enviromental Medicine/American College of Occupational and Environmental Medicine [J Occup Environ Med] 2007 Mar; Vol. 49 (3), pp.318-26.
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Blitz, C. L., Mechanic, D. (2006). Facilitators and barriers to employment among individuals with psychiatric disabilities: A job coach perspective. Work: Journal of Prevention, Assessment & Rehabilitation. 26(4) 407-419
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Blume. R. (March, 2007). Money Follows the Person Toolbox: Services for Individuals with Developmental Disabilities. Rutgers Center for State Health Policy.
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Boris, E. & Klein, J. (2006). Organizing home care: Low-waged workers in the welfare state. Politics & Society, 34, 1, 81-108.
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Boris, E., Chung, G., Delp, L., Matthias, R. & Zubin, C. (2004, May). Workforce needs in California's healthcare system. Briefing Paper. California Policy Research Center, Berkeley, CA.
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Bornstein, S. & Rathmell, R.J. (December 2009). Caregivers as a Protected Class?: The Growth of State and Local Laws Prohibiting Family Responsibilities Discrimination. San Francisco, CA: University of California, Hastings College of Law. Retrieved December 17, 2009 from: http://www.worklifelaw.org/pubs/LocalFRDLawsReport.pdf
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Bradley, E.H., Webster, T.R., Baker, D., Schlesinger, M., Inouye, S.K., Barth, M.C., Lapane, K.L., Lipson, D., Stone, R. & Koren, M.J. (2004). Translating research into practice: Speeding the adoption of innovative health care programs. Issue Brief (Commonwealth Fund), 724, 1-12.
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Brannon, D., Barry, T., Kemper, P., Schreiner, A. & Vasey, J. (2007). Job perceptions and intent to leave among direct care workers: Evidence from the Better Jobs Better Care demonstrations. Gerontologist, 47, 6, 820-829.
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Braun, K.L., Cheang, M. & Shigeta, D. (2005). Increasing knowledge, skills, and empathy among direct care workers in elder care: A preliminary study of an active-learning model. Gerontologist, 45, 1, 118-124.
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Brega, A.G., Goodrich, G.K., Powell, M.C. & Grigsby, J. (2005). Racial and ethnic disparities in the outcomes of elderly home care recipients. Home Health Care Services Quarterly, 24, 3, 1-21.
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Brennan, J. (2009). The Disability Law Handbook. Houston, TX: DBTAC Southwest ADA Center. Retrieved on March 5, 2010.
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Bridges, K. (2008). Opinions of AARP Nebraska members on long-term care. Washington, D.C.: AARP Public Knowledge Management. Retrieved November 17, 2008 from:
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Bridges, K. (December 2008) AARP Member Opinions on Supportive Services in Georgia. Washington, D.C.: AARP Public Knowledge Management.
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Bridges, T. & Regan, C. (2006). Subsidizing health insurance coverage for the home care workforce in two Wisconsin counties: An analysis of options. Bronx, New York: Paraprofessional Healthcare Institute. Retrieved June 26, 2007, from: http://www.directcareclearinghouse.org/download/HealthInsCovWIreport.pdf
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Brooks-Lane, N., Hutcheson, S., Revell, G. (2005) Supporting consumer directed employment outcomes. Journal of Vocational Rehabilitation. 23(2) 123-134
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Brown, J.G., Trinkoff, A., Rempher, K., McPhaul, K., Brady, B., Lipscomb, J. & Muntaner, C. (2005, May). Nurse's inclination to report work-related injuries: Organization, work-group and individual factors associated with reporting. American Association of Occupational Health Nurses Journal, 53 (5), 213-217.
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Brown, R., Lepidus Carlson, B., Dale, S., Foster, L., Phillips, B. & Schore, J. (2007). Cash and Counseling: Improving the Lives of Medicaid Beneficiaries Who Need Personal Care or Home- and Community-Based Services. Princteon, NJ: Mathematica Policy Research, Inc. Retrieved Dec. 9, 2007 from: http://www.mathematica-mpr.com/publications/
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Bruyère, S. M.; Erickson, W. A.; VanLooy, S. A. (2006). The Impact of Business Size on Employer ADA Response. Rehabilitation Counseling Bulletin. 49(4) 194-206.
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Buhr, G.T., Kuchibhatla, M. & Clipp, E.C. (2006). Caregivers' reasons for nursing home placement: Clues for improving discussions with families prior to the transition. Gerontologist, 46, 1, 52-61.
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Burack-Weiss, A. (2006). The caregiver's tale: Loss and renewal in memoirs of family life. New York: Columbia University Press.
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Burke, S.P., Feder, J. & Vander de Water P.N. (eds.) (2005, November). Developing a better long-term care policy: A vision and strategy for America 's future. Washington: National Academy of Social Insurance.
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Burns, B. (2006). Comparing long-term care insurance policies: Bewildering choices for consumers. AARP Public Policy Institute Issue Paper. Washington, D.C.: American Association of Retired Persons. Retrieved on June 23, 2006 from: http://www.aarp.org/research/longtermcare/insurance/2006_13_ltci.html
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Burns, R., Nichols, L.O., Martindale-Adams, J., Graney, M.J. & Lummus, A. (2003). Primary care interventions for dementia caregivers: 2-Year outcomes from the REACH study. Gerontologist, 43, 4, 547-555.
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Burton, C. & Bridges, K. (2007). Long-term care: An AARP survey of New York residents age 50+. Washington, D.C.: AARP Public Policy Institute. Retrieved April 30, 2007 from:
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Butler, S.S., Kaye, L.W., Ruffin, L. & Downey, R. (2005). Depression and caregiver burden among rural elder caregivers. Journal of Gerontological Social Work, 46, 2, 47-63.
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Campbell, V., Gilyard, J., Sinclair, L., Sternberg, T. and Kailes, J. (2009) Preparing for and Responding to Pandemic Influenza: Implications for People With Disabilities, American Journal of Public Health | Supplement 2, 2009, Vol 99, No. S2 pp S294–S300.
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Capella, M. E. (2003). Comparing Employment Outcomes of Vocational Rehabilitation Consumers with Hearing Loss to Other Consumers and the General Labor Force. Rehabilitation Counseling Bulletin. 47(1) 24-33
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Capella-McDonnall, M. E. (2005). Predictors of Competitive Employment for Blind and Visually Impaired Consumers of Vocational Rehabilitation Services. Journal of Visual Impairment & Blindness. 99(5) 303-315
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Capella-McDonnall, M. E. (2005). The Ticket to Work Program: Employment Networks' Views on Serving Beneficiaries Who Are Blind or Visually Impaired. Journal of Visual Impairment & Blindness. 99(6) 336-344
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Capitman, J., Bishop, C., and Casler, R. (2005). Long-term care quality: Historical overview and current initiatives. Washington, DC: National Quality Forum.
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Carder, P.C. & Hernandez, M. (2004). Consumer discourse in assisted living. Journal of Gerontology, Volume 59B(2), Pgs. S58-S67.
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Cardin, D. (February, 2009). Report Offers Complete Look at Issues Facing Direct-Care Workforce. PHI Blog
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Carlson, B.L., Foster, L., Dale, S.B. and Brown, R. (2007). Effects of Cash and Counseling on personal care and well-being. Health Services Research, 42, 1, 467-487.
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Carpenter, G.I., Hastie, C. L., Morris, J.N., Fries, B.E. & Ankri, J. (2005). Measuring change in activities of daily living in nursing home residents with moderate to severe cognitive impairment. BMC Geriatrics.
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Casper, E. S.; Carloni, C.(2007). Assessing the Underutilization of Supported Employment Services. Psychiatric Rehabilitation Journal. 30(3) 182-188
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Castle, N.G. & Engberg, J. (2006). Organizational characteristics associated with staff turnover in nursing homes. Gerontologist, 46, 1, 62-73.
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Castro, C. M., King, A. C., Housemann, R., Bacak, S. J., McMullen, K. M., & Brownson, R. C. (2007). Rural family caregivers and health behaviors: results from an epidemiologic survey. Journal of Aging and Health, 19, 1, 87-105.
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Center for Medicare Advocacy, Inc. (December 2009). Medicare for People with Chronic Conditions. CMA Weekly Alert, December 17, 2009. Washington, DC: Center for Medicare Advocacy, Inc. Retrieved on December 23, 2009 from: http://www.medicareadvocacy.org/Chronic_09_12.17.Improvement.htm
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Center for Medicare Advocacy, Inc. (December 2009). Medicare and Discharge Planning: Think Through Your Needs. CMA Weekly Alert, December 3, 2009. Washington, DC: Center for Medicare Advocacy, Inc. Retrieved on December 4, 2009 from: http://www.medicareadvocacy.org/Discharge_09_12.03.CHecklist.ThinkThroughNeeds.htm
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Center for Medicare Advocacy, Inc. (March 2010). CMS Sanctions Missouri Medicaid for Overly Restrictive Home Health Standards. CMA Weekly Alert, March 11, 2010. Washington, DC: Center for Medicare Advocacy, Inc. Retrieved on March 11, 2010 from:
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Center for Personal Assistance Services. (2008). How to employ a personal assistant: Emergency care.
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Center for Personal Assistance Services. (2008). How to employ a personal assistant: Disaster preparedness.
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Center for Practical Bioethics. (1999). Implementing end-of-life treatment preferences across clinical settings. State Initiatives in End-of Life Care, Issue 3. Kansas City, MO: Center for Practical Bioethics. Retrieved on December 7, 2006 from:
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Center for Workers with Disabilities (n.d.). PAS eligibility criteria: Technical assistance for the Medicaid Infrastructure Grants. Retrieved May 25, 2006, from http://www.cms.hhs.gov/TWWIA/Downloads/PASeligibilitycriteria.pdf
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Center for Workers with Disabilities. (2002). Building work incentives using Section 1902(r)(2) of the Medicaid statute. (Report No. 02-2). Washington, D.C.: Author.
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Center for Workers with Disabilities. (n.d.) Overview of MBI for working individuals with disabilities. Washington, D.C.: Author.
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Center on an Aging Society (2004, June). Workers affected by chronic conditions: How can workplace policies and programs help? (Issue Brief Number 7). Washington DC: Georgetown University.
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Centers for Disease Control and Prevention. (2008). Assuring Healthy Caregivers, A Public Health Approach to Translating Research into Practice: The RE-AIM Framework Atlanta, GA: Centers for Disease Control and Prevention.
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Centers for Medicare and Medicaid Services. (2004). Increasing service flexibility for caregivers. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
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Centers for Medicare and Medicaid Services. (2004). Supporting family caregivers in ethnic minority communities. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
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Chapman, S., Kaye, S., & Newcomer, R. (2004) Home and Personal Care Workers by State. Published on the Center for PAS website http://pascenter.org/state_based_stats/acs_workforce_state.php
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Chiu, W.K. & Newcomer, R. (2007). A systematic review of nurse-assisted case management to improve hospital discharge transition outcomes for the elderly. Professional Case Management, 12, 6, 330-336.
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Cinsavich, S. & Rado, G. (2002, April). Medicaid Buy-In: Concept and implementation (Policy Brief Volume 4, Number 2). Boston, MA: Institute for Community Inclusion.
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Claypool, H. & O’Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: A review of four state programs. Washington, D.C.: Kaiser Family Foundation. Retrieved March 24, 2008, from: http://www.kff.org/medicaid/7757.cfm
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Clinton, B., DeGaetano, E., Foster, A., Lautz, C.A., Ryan, L.A., Sullivan, C., Wasserman, K. & Reynolds, L. (May 2009). When no one cares: Why we need to save Connecticut’s direct care workforce. Norwich, CT: Senior Resources Agency on Aging.
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Coble-Temple, A. (Summer, 2002). Understanding the differences between worksite personal assistance services (PAS) and personal PAS on the job: Why this is important to rehabilitation? Rehabilitation Psychology News, 29 (4).
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Coble-Temple, A., Mona, L.R., & Bleecker, T. (2003). Accessing personal assistance services in the workplace: Struggles and successes. Journal of Vocational Rehabilitation, 18(2), 113-123.
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Cohen, A., Timmons, J.C. & Fesko, S.L. (2005). The Workforce Investment Act: How policy conflict and policy ambiguity affect implementation Journal of Disability Policy Studies, 15, 4, 221-230.
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Coleman, B., Fox-Grage, W., & Folkemer, D. (2003) State Long-Term Care: Recent Developments and Policy Directions 2003 Update. National Conference of State Legislators.
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Coleman, B.J. (2004). Navigating the care system: A guide for providers to help family caregivers.San Francisco, CA.: Family Caregiver Alliance. Retrieved March 13, 2006, from:
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Collier, E. & Harrington, C. (2008). Staffing characteristics, turnover rates and quality of resident care in nursing facilities. Research in Gerontological Nursing, 1, 3, 157-170.
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Collier, E. and Harrington, C. Discharge planning, nursing home placement, and the internet. Nursing Outlook. 53(2): 95-103.
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Coogle, C.L., Parham, I.A., Jablonski, R. & Rachel, J.A. (2007). The Value of Geriatric Care Enhancement Training for Direct Service Workers. Gerontology & Geriatrics Education, 28, 2, 109-121.
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Craft Morgan, J., Haviland, S.B., Allyson Woodside, M. & Konrad, T.R. (2007). Fostering Supportive Learning Environments in Long-Term Care: The Case of WIN A STEP UP. Gerontology & Geriatrics Education, 28, 2, 55-75.
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Cranford, C. (2004, August 17). Security without Flexibility: Personal Care Workers and People with Disabilities in Ontario. Paper presentation at the 99th Annual Meeting of the American Sociological Association.
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Cranford, Cynthia J. 2005. "From Precarious Workers to Unionized Employees and Back Again?: The Challenges of Organizing Personal-Care Workers in Ontario." Pp. 96-135 in Self-Employed Workers Organize: Law, Unions and Policy, by Cynthia J. Cranford, Judy Fudge, Eric Tucker and Leah F. Vosko. Montreal: McGill-Queens University Press.
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Crowley, J.S. (2006). Medicaid long-term services reforms in the Deficit Reduction Act. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7486.cfm
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Crowley, J.S. & O’Malley, M. (2008) Vermont's Choices for Care Medicaid Long-Term Services Waiver: Progress and Challenges As the Program Concluded its Third Year. Washington, D.C.: Kaiser Family Foundation. Retrieved December 7, 2008.
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Crudden, A., Hanye, R. (1999). Employment differences among persons with congenital and adventitious vision loss. Journal of Vocational Rehabilitation. 12(1) 19-23
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Crudden, A., Sansing, W., Butler, S. (2005). Overcoming Barriers to Employment: Strategies of Rehabilitation Providers. Journal of Visual Impairment & Blindness. 99(6) 325-335
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Crudden, A.; McBroom, L. W. (1999). Barriers to employment: A survey of employed persons who are visually impaired. Journal of Visual Impairment & Blindness. 93(6) 341-350.
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Dal Santo, T., Scharlach, A. & Fox, P. (2005, November 19). Implementation of the National Family Caregiver Support Program: How has caregiver service use changed in California? Presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Dalby, D.M., Kirdes, J.P.; Fries, B.E. (2005) Risk adjustment methods for home care quality indicators (HCQIs) based on the minimum data set for home care. BMC Health Services Research.
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Dale, S., Brown, R. (2006, August). Reducing Nursing Home Use Through Consumer-Directed Personal Care Services. Medical Care. 44(8):760-767.
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Dale, S., Brown, R., Phillips, B. & Carlson, B. (2003, June). The experiences of workers hired under consumer direction in Arkansas. Final Report, Mathematica Evaluation Reports: 1-56.
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Dale, S., Brown, R., Phillips, B. & Carlson, B. (2005, August). The experiences of workers hired under Cash and Counseling: Findings from Arkansas, Florida, and New Jersey. Final Report, Mathematica Evaluation Reports: 1-98.
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Dale, S., Brown, R., Phillps, B. & Carlson, B.L. (2005). How do hired workers fare under consumer-directed personal care? Gerontologist, 45, 5, 583-592.
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Daly, Mary (Ed.). (2001). Care Work: The Quest for Security. Geneva: International Labour Office. Retrieved June 20, 2005, from http://www.ilo.org/public/english/protection/ses/info/publ/care.htm
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Dautel, P., & Frieden, L. (1999). Consumer choice and control: Personal attendant services and supports in America. Report of the Blue Ribbon Panel on personal assistance services. Houston, TX: Independent Living Research Utilization.
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Davis, S.R. & Ireys, H.T. (2006). How does the Medicaid Buy-In Program relate to other federal efforts to improve access to health coverage for adults with disabilities? Mathematica Policy Research, Inc., Work and Insurance in Brief, Number 2. Retrieved on November 14, 2006 from: http://www.mathematica-mpr.com/publications/pdfs/buyinprogram.pdf
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DeJonge, K.E., Taler, G. & Boling, P.A. (2009). Independence at home: Community-based care for older adults with severe chronic illness. Clinics in Geriatric Medicine, 25, 1, 155-69.
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Delp, L. & Quan, K. (2002). Homecare worker organizing in California: An analysis of a successful strategy. Labor Studies Journal, 27, 1, 1-23.
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Denny-Brown, N. & Lipson, D.J. (November 2009). Early Implementation Experiences of State MFP Programs. Washington, DC: Mathematica Policy Research, Inc.
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Department of Banking, Insurance, Securities and Health Care Administration. (July 2009). \"Chapter 5: Long Term Care Services.” 2009 The Health Resource Allocation Plan. Montpelier, VT: State of Vermont.
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Department of Health and Human Services and Department of Labor. (2003). The future supply of long-term care workers in relation to the aging baby boom generation: Report to Congress. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP). Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/ltcwork.htm
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Desonia, R. (2003) Is community care a civil right? The unfolding saga of the Olmstead decision. National Health Policy Forum.
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Diefenbach, G.J., Tolin, D.F., Meunier, S.A. & Gilliam, C.M. (2009). Assessment of anxiety in older home care recipients. Gerontologist, 49, 2, 141-153.
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Dinger, E.L. & Binette, J. (2008). Health care reform and long-term care: A survey of AARP members in New Mexico. Washington, D.C.: AARP Knowledge Management. Retrieved March 22, 2008 from: ttp://www.aarp.org/research/longtermcare/programfunding/nm_hcr_ltc_08.html
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Disability and Business Technical Assistance Center-Southwest ADA Center. (2009). Disability Law Handbook. Houston, TX: Disability and Business Technical Assistance Centers Southwest ADA Center. Retrieved April 28, 2009 from: http://www.swdbtac.org/html/publications/dlh/index.html
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Diwan, S., Shugarman, L.R. & Fries, B.E. (2004). Problem identification and care plan responses in a home and community-based services program. Journal of Applied Gerontology, 23, 3, 193-211.
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Dixon, J. M. (1983). Attitudinal barriers and strategies for overcoming them. Journal of Visual Impairment & Blindness. 77(6) 290-292
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Dixon, Kl, Kruse, D., & Van Horn, C. (2003). Restricted access: A survey of employers about people with disabilities and lowering barriers to work (Work Trends Survey, 3:6). New Brunswick, NJ: Rutgers University, John J. Heldrich Center for Workforce Development.
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Dobell, G. & Newcomer, R. (2008). Integrated care: Incentives, approaches and future considerations. Social Work in Public Health, 23, 4, 25-47.
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Donelan, K., Hill C.A., Hoffman, C., Scoles, K., Feldman, P.H., Levine, C. & Gould, D. (2002). Challenged to care: Informal caregivers in a changing health system. Health Affairs, 21 (4), 222-231.
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Doty, M., Koren, M.J. & Davis, K. (2008). Health care opinion leaders views on the future of long-term care. New York, NY: The Commonwealth Fund. Commonwealth Fund publication # 1157, Vol. 10. Retrieved July 23, 2008 from: http://www.commonwealthfund.org/publications/publications_show.htm?doc_id=695883
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Doty, P. (2004, October). Consumer directed home care: Effects on family caregivers. Policy Brief, Family Caregiver Alliance, San Francisco, CA.
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Doty, P. (1998). The cash and counseling demonstration: An experiment in consumer-directed personal assistance services. American Rehabilitation, Summer-Autumn. Retrieved November 29, 2006, from http://www.hhp.umd.edu/AGING/CCDemo/Publications/dotyRehab.html
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Driscoll, M. P., Rodger, S. A., de Jonge, D. M. (2001). Factors that prevent or assist the integration of assistive technology into the workplace for people with spinal cord injuries: Perspectives of the users and their employers and co-workers. Journal of Vocational Rehabilitation. 16(1) 53-66
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Duffy, Niev. (2004, October). Keeping workers covered: Employer-provided health insurance benefits in the developmental disabilities field. JFK, Jr. Institute for Worker Education, City University of New York, New York.
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Dulio, A., Perry, M., Claypool, H. & O’Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: Insights from enrollees in four states. Washington, D.C.: Kaiser Family Foundation. Retrieved March 24, 2008, from: http://www.kff.org/medicaid/7756.cfm
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D’Souza, J.C., James, M.L., Szafara, K.L., Fries, B.E. (2009). Hard times: The effects of financial strain on home care services use and participant outcomes in Michigan. Gerontologist, 49, 2, 154-165.
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Ebenstein, W. (2006). Health insurance coverage of direct support workers in the developmental disabilities field. Mental Retardation, 44, 2, 128-134.
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Eiken, S. (2004, November). Promising practices in long term care systems reform: Common factors of systems change. Washington, D.C.: Centers for Medicare & Medicaid Services. Retrieved December 11, 2006 from: http://www.cms.hhs.gov/PromisingPractices/Downloads/commonfactors.pdf
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Eisenman, D.P., Zhoe, Q., Ong, M., Asch, S., Glik, D., Long, A. (2009). Variations in disaster preparedness by mental health, perceived general health, and disability status. Disaster Medicine and Public Health Preparedness [Disaster Med Public Health Prep] 2009 Mar; Vol. 3 (1), pp.33-41.
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Enbar, E.G., Fred, M.A., Miller, L., Naiditch, Z. (2004). A nationwide study of deinstitutionalization & community integration: A special report of the public policy and legal advocacy programs Equip for Equality, Illinois. (233 pages)
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Equal Employment Opportunity Commission (EEOC). The 411 on your Job Rights. Fact sheet from the EEOC explaining to teens and young people their employment rights.
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Escovitz, K.; Donegan, K.; Granger, B. (2006) Staff Presence in job Interviews Is Still Suspect. Psychiatric Rehabilitation Journal. 30(1) 9-10
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Feder, J., Komisar, H.L. & Friedland, R.B. (2007). Long-term care financing: Policy options for the future. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved June 25, 2007, from: http://ltc.georgetown.edu/forum/ltcfinalpaper061107.pdf
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Feeney Mahoney, D., Tarlow, B.J. & Jones, R.N. (2003). Effects of an automated telephone support systems on caregiver burden and anxiety: Findings from REACH for TLC Intervention Study. Gerontologist, 43, 4, 556-567.
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Feinberg, L.F, Newman, S.L., Gray, L. & Kolb, K.N. (2004, November) The state of the states in family caregiver support: A 50-state study. Family Caregiver Alliance, San Francisco, CA.
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Feinberg, L.F., Wolkwitz, K. & Goldstein, C. (2006). Ahead of the curve: Emerging trends and practices in family caregiver support. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Feldman, P.H., Nadash, P. & Gursen, M. (2001). Response to improving communication between researchers and policy makers in long term care: Or researchers are from Mars; Policy makers are from Venus Reply. Gerontologist, 41 (6), 831.
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Feret, B., Bratberg, J. (2008). Pharmacist-based intervention to prepare residents of assisted-living facilities for emergencies. Journal of The American Pharmacists Association: Japha [J Am Pharm Assoc (2003)] 2008 Nov-Dec; Vol. 48 (6), pp.780-3.
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Flannery, K. B., Slovic, R., Treasure, T., Ackley, D., Lucas, F. (2002). Collaboration and partnership to improve employment outcomes. Journal of Vocational Rehabilitation. 17(3) 207-215
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Flores, C. and Newcomer, R. 2006. Toward a Framework for Monitoring the Quality of Care in Residential Care Facilities for the Elderly. Seniors Housing & Care Journal, 14 (1):59-72.
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Folbre, N. (2006). Demanding quality: Worker/consumer coalitions and "High Road" strategies in the care sector. Politics & Society, 34, 1, 11-32.
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Folkemer, D. & Coleman, B. (2006). Home care quality: Emerging state strategies to deliver person-centered services. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Foster, L., Brown, R., Phillips, B. & Carlson, B.L. (2003, August). Easing the burden of caregiving: The impact of consumer direction on primary informal caregivers in Arkansas. . Washington, D.C.: Mathematica Policy Research, Inc. Retrieved June 20, 2005. Executive summary available from http://aspe.hhs.gov/daltcp/reports/easinges.htm
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Foster, L., Brown, R., Phillips, B. & Carlson, B.L. (2005). Easing the burden of caregiving: The impact of consumer-direction on primary informal caregivers in Arkansas. Gerontologist, 45, 4, 474-485.
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Foster, L., Brown, R., Phillips, B., Schore, J. & Carlson, B.L. (2003, March). Improving the quality of Medicaid personal assistance through consumer direction. Health Affairs, Supplemental Web Exclusives: W3-162-175.
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Foster, L., Dale, S.B. and Brown, R. (2007). How caregivers and workers fared in Cash and Counseling. Health Services Research, 42, 1, 510-532.
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Fox-Grage, W., Folkemer, D., & Lewis, J. (2003) The States response to the Olmstead decision: How are states complying? National Conference of State Legislators.
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Fried, T.R., Bradley, E.H., O’Leary, J.R. & Byers, A.L. (2005). Unmet desire for caregiver-patient communication and increased caregiver burden. Journal of the American Geriatrics Society, 53, 1, 59-65.
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Friedman, D.B., Tanwar, M., Richter, J.V. (2008). Evaluation of online disaster and emergency preparedness resources. Pre-Hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with The Acute Care Foundation [Pre-Hosp Disaster Med] 2008 Sep-Oct; Vol. 23 (5), pp.438-46.
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Friedman, S.M., Steinwachs, D.M., Temkin-Greener, H. & Mukamel, D.M. (2006). Informal caregivers and the risk of nursing home admission among individuals enrolled in the Program of All-Inclusive Care for the Elderly. Gerontologist, 26, 4, 456-463.
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Fries, B.E., James, M., Hammer, S.S., Shugarman, L.R., Morris, J.N. 2004. Is Telephone Screening Feasible? Accuracy and Cost-Effectiveness of Identifying Persons Medically Eligible for Home- and Community-Based Services. The Gerontologist, 44(5):680-688.
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Fries, B.E., Wodchis, W., Buttar, A., Blaum, C., Morris, J.N., Drabek, J. (2005). A national study showed that diagnosis varied by age group in nursing home residents under age 65. Journal of Clinical Epidemiology, 58, 2, 198-205.
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Friss Feinberg, L. & Newman, S.L. (2004). A study of 10 states since the passage of the National Family Caregiver Support Program: Policies, perceptions, and program development. Gerontologist, 44, 6, 760-769.
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Furniss, F., Lancioni, G., Rocha, N., Cunha, B., Seedhouse, P., Morato, P., O'Reilly, M. F. (2001). VICAID: Development and evaluation of a palmtop-based job aid for workers with severe developmental disabilities. British Journal of Educational Technology. 32(3) 277-287
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Gallagher-Thompson, D. Solano, N., Coon, D. & Areán, P. (2003). Recruitment and retention of Latino dementia family caregivers in intervention research: Issues to face, lessons to learn. Gerontologist, 43, 1, 45-51.
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Gallagher-Thompson, D., Coon, D.W., Solano, N., Ambler, C., Rabinowitz, Y. & Thompson, L.W. (2003). Change in indices of distress among Latino and Anglo female caregivers of elderly relatives with dementia: Site-specific results from the REACH National Collaborative Study. Gerontologist, 43, 4, 580-591.
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Gamble, M.J., Dowler, D.L., & Orslene, L.E. (2006). Assistive technology: Choosing the right tool for the right job. Journal of Vocational Rehabilitation, 24(2), 73-80.
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Garcia-Iriarte, E.; Balcazar, F.; Taylor-Ritzler, T.(2007). Analysis of case managers' support of youth with disabilities transitioning from school to work. Journal of Vocational Rehabilitation. (3) 129-140
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Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer's disease during the transition to institutionalization? Results from the New York University Caregiver Intervention Study. Journal of the American Geriatrics Society, 56, 3, 421-428.
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Gaugler, J.E., Kane, R.L. & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. Journal of Gerontology: Psychological Sciences, 62, 1, 38-44.
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Gaugler, J.E., Kane, R.L., Kane, R.A. & Newcomer, R. (2006). Predictors of institutionalization in Latinos with dementia: a cross-cultural analysis. Journal of Cross-Cultural Gerontology, 21, 3-4, 139-155.
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Geiger-Brown, J., Muntaner, C., Lipscomb, J. & Trinkoff, A. (2004, October). Demanding work schedules and mental health in nursing assistants working in nursing homes. Work and Stress, 18 (4), 292-304.
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Geiger-Brown, J., Muntaner, C., McPhaul, K., Lipscomb, J. & Trinkoff, A. (2007). Abuse and violence during home care work as predictor of worker depression. Home Health Care Services Quarterly, 26,1, 59-77.
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General Accounting Office (December 2005) Nursing Homes: Despite increased oversight, challenges remain in ensuring high-quality care and resident safety. Washington DC: General Accounting Office. GAO-06-117.
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Genworth Financial (2008). Genworth Financial 2008 Cost of Care Study: Home care providers, adult day health care facilities, assisted living facilities and nursing homes. Richmond, VA: Rutgers Center for State Health Policy.
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Genworth Financial (April 2009) Genworth 2009 Cost of Care Survey: Home Care Providers, Adult Day Health Care Facilities, Assisted Living Facilities and Nursing Homes.. Richmond, VA: Genworth Financial, Inc..
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Georgetown University Long-Term Care Financing Project. (2007). Medicaid and long term care: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved January 16, 2007, from:
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Georgetown University Long-Term Care Financing Project. (2007). Medicaid's spousal impoverishment protections: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. February 5, 2007, from: http://ltc.georgetown.edu/papers.html
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Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet (updated). Washington, D.C.: Georgetown University Long-Term Care Financing Project. February 5, 2007, from: http://ltc.georgetown.edu/papers.html
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Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved January 16, 2007, from: http://ltc.georgetown.edu/papers.html
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Gershon, R.M., Canton, A.N., Raveis, V.H., Silver, A., Chen, C.C., Qureshi, K.A., Sherman, M.F. & Stone, P.W. (2008). Household-related hazardous conditions with implications for patient safety in the home health care sector. Journal of Patient Safety, 4, 4, 227-234.
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Gershon, R.R.M., Sherman, M., Rosen, J., Qureshi, K., Barrera, M., Gebbie, & Brandt-Rauf, P. (2005, December 12). Bloodborne pathogen exposure in non-hospital based nurses. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Gervey, R. (2006). "Staff Presence in Job Interviews Is Still Suspect": Reply. Psychiatric Rehabilitation Journal. 30(1) 10
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Gervey, R.; Kowal, H.(2005). The Job Developer's Presence in the Job Interview: Is It Helpful or Harmful to Persons with Psychiatric Disabilities Seeking Employment? Psychiatric Rehabilitation Journal. 29(2) 128-131
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Getzel, E. E., Gugerty, J. J.; McManus, S.(2006). Applications for Youth with Learning Disabilities. Wehman, P. Life beyond the classroom: Transition strategies for young people with disabilities (4th ed.). (pp. 475-504). Baltimore, MD, US: Paul H Brookes Publishing xxx, 719 pp.
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Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved June 26, 2007 from:
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Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the state estimates of the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved June 26, 2007 from:
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Gibson, M.J. (2006). A growing crisis in health and long-term services and supports for older persons with disabilities: Changes from 2002-2005. Washington, D.C.: AARP Public Policy Institute. Retrieved February 11, 2007 from:
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Gibson, M.J. and Verma, S. (2006). Just getting by: Unmet need for personal assistance services among persons 50 or older with disabilities. Washington, D.C.: AARP Public Policy Institute. Retrieved February 11, 2007 from: http://www.aarp.org/research/housing-mobility/homecare/2006_25_disability.html
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Gibson, M.J., Gregory, S.R., Houser, A.N., & Fox-Grage, W. (2004). Across the states: Profiles of Long-Term Care 2004. AARP Public Policy Institute, Washington, D.C. Retrieved from
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Gilbride, D. Stensrud, R., Ehlers, C., Evans, E., & Peterson, C. (2000). Employers' attitudes toward hiring persons with disabilities and vocational rehabilitation services. Journal of Rehabilitation, 66 (4), 17-23.
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Gilbride, D., Stensrud, R., Vandergoot, D., & Golden, K. (2003). Identification of the characteristics of work environments and employers open to hiring and accommodating people with disabilities. Rehabilitation Counseling Bulletin, 46 3, 130-139. Available at http://www.worksupport.com/Main/proed_Identification.asp.
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Gillespie, Jennifer. (2003). Direct care worker associations and public authorities. Portland, ME: National Academy for State Health Policy. Retrieved June 20, 2005, from
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Gillespie, Jennifer. (2005). Assessment instruments in 12 states. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
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Gimm, G., Andrews, K.L., Schimmel, J., Ireys, H.T. & Liu, S. (Octber 2009). Analysis of Medical Expenditures and Service Use of Medicaid Buy-In Participants, 2002-2005: Final Report. Washington, DC: Mathematica Policy Research, Inc.
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Gitlin, L.N., Reever, K., Dennis, M.P., Mathieu, E. & Hauck, W.W. (2006). Enhancing quality of life of families who use adult day services: Short- and long-term effects of the Adult Day Services Plus Program. Gerontologist, 46, 5, 630-639.
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Gitlin, L.N., Winter, L., Corcoran, M., Dennis, M.P., Schinfeld, S. & Hauck, W.W. (2003). Effects of the Home Environmental Skill-Building Program on the caregiver-care recipient dyad: 6-Month outcomes from the Philadelphia REACH Initiative. Gerontologist, 43, 4, 532-546.
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Glass, A.P., Teaster, P.B., Roberto, K.A. & Brossoie, N. (2005). Elderly and disabled waiver services: Important dimensions of personal care from the client's perspective. Home Health Care Services Quarterly, 24, 3, 59-77.
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Glazier, R. E. (2001). The "reinvention" of personal assistance services. Disability Studies Quarterly, 12 (Spring). Retrieved November 29, 2006 from http://www.dsq-sds.org/_articles_pdf/2001/Spring/dsq_2001_Spring_12.pdf
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Gleckman, H. (June 2009). The Future of Long-Term Care: What Is Its Place in the Health Reform Debate? Los Angeles, CA: Urban Institute.
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Golub, D. B. (2006). A model of successful work experience for employees who are visually impaired: The results of a study. Journal of Visual Impairment & Blindness. 100(12) 715-725
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Gonyea, J.G., O’Connor, M.K. & Boyle, P.A. (2006). Project CARE: A randomized controlled trial of a behavioral intervention group for Alzheimer’s disease caregivers. Gerontologist, 46, 6, 827-832.
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Goodman, N., & Livermore, G. (2004).The effectiveness of Medicaid Buy-In programs in promoting the employment of people with disabilities: Briefing paper prepared for the: Ticket to Work and Work Incentives Advisory Panel. Washington, DC: Cornell University Institute for Policy Research.
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Gran, J. (2003) Olmstead: reclaiming institutionalized lives. Public Interest Law Center of Philadelphia for the National Council on Disability.
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Grasso, E., Jitendra, A. K., Browder, D. M., Harp, T. (2004). Effects of Ecological and Standardized Vocational Assessments on Office of Vocational Rehabilitation Counselors' Perceptions Regarding Individuals With Developmental Disabilities. Journal of Developmental and Physical Disabilities. 16(1) 17-31
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Gray, D.B., Dashner, J.L., Morgan, K.A., Lyles, M., Scheller, M.D., Morris, C.L. & Hollingsworth, H.H. (2009). Influence of a consumer-directed personal assistance services program on the lives of persons with mobility impairments. Disability and Health Journal, 2, 4, 188-195.
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Gray, L. & Feinberg, L.F.. (2003, March). Survey of Californians about in-home care services. Report, Family Caregiver Alliance, San Francisco, CA.
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Greene Burger, S., Kantor, B., Mezey, M., Mitty, E., Kluger, M., Algase, D., Anderson, K., Beck, C., Mueller, C. & Rader, J. (2009). Professional nurses involvement in nursing home culture change: Overcoming barriers, advancing opportunities. New York, NY: Hartford Institute for Geriatric Nursing.
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Greene, J. (2007, June). State approaches to consumer direction in Medicaid. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved August 1, 2007 from:
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Grossman, B., M. Kitchener, J. Mullan, and C. Harrington. 2007. Paid Personal Assistance Services: An Exploratory Study of Working Age Consumers' Perspectives. Journal of Aging and Social Policy, 19 (3): 27-45.
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Gure, T.R., Kabeto, M.U. & Langa, K.M. (2009). The influence of long-term care insurance on the likelihood of nursing home admission. Journal of the American Geriatrics Society, 57, 9, 1862-1867.
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Gustavson, K.A. & Scharlach, A.E. (2005, November 19). Impact of employment on caregiver and care recipient service use. Presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Guterman, S. & Drake, H. (May 2009). The long wait: The impact of delaying Medicare coverage for people with disabilities. New York, NY: The Commonwealth Fund. Retrieved May 20, 2009 from:
http://www.commonwealthfund.org/Content/Publications/Perspectives-on-Health-Reform-Briefs/2009/May/The-Long-Wait.aspx
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Hagglund, K. J. Clark, M. J. Mokelke, E. K. Stout, B. J. (2004). The current state of personal assistance services: Implications for policy and future research. NeuroRehabilitation. 19(2) 115-120
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Haley, W.E., Bergman, E.J., Roth, D.L., McVie, T., Gaugler, J.E. & Mittelman, M.S. (2008). Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms. Gerontologist, 48, 6, 732-740.
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Hall, A. C.; Butterworth, J.; Winsor, J.; Gilmore, D.; Metzel, D. (2007). Pushing the employment agenda: Case study research of high performing states in integrated employment. Intellectual and Developmental Disabilities. 45(3) 182-198
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Hams, M., Herold, N., Lee, M. & Worters, A. (2002). Health insurance access survey of direct-care workers in nursing homes and home-based care agencies in Boston, New Bedford/Fall River, including surveys of employees and of employers. (Final report). New York: Direct Care Workers Initiative and Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Han, B. & Remsburg, R.E. (2006). Impact of the Medicare interim payment system on length of use in home care among patients with Medicare-only payment source.Home Health Care Services Quarterly, 24, 4, 65-79.
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Hanley, E. (2004). The role of home care in palliative care services. Care Management Journals, 5, 3, 151-157.
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Harmuth, S. & Dyson, S. (2005). Results of the 2005 national survey of state initiatives on the long-term care workforce. Bronx, NY: National Clearinghouse on the Direct Care Workforce and the Direct Care Workers Association of North Carolina. Retrieved on May 9, 2006, from
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Harrington, C. (2005). Nursing staffing in nursing homes in the United States: Part I. Journal of Gerontological Nursing, 31, 2, 18-23.
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Harrington, C. (2005). Nursing staffing in nursing homes in the United States: Part II. Journal of Gerontological Nursing, 31, 3, 9-15.
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Harrington, C. & Ng, T. (March 2009). Medicaid Home and Community-Based Services Data, 2005. Published on the Center for PAS website: http://pascenter.org/medicaid/index.php
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Harrington, C. (2005). Long Term Care Staff and Quality of Care. Published on the Center for PAS website.
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Harrington, C., & O'Meara, J. (2007) Snapshot: The Changing Face of California's Nursing Home Industry. California HealthCare Foundation, Oakland, CA.
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Harrington, C., Anzaldo, S., Burdin, A., Kitchener, M. and Miller, M. 2005. Trends in State Certificate of Need and Moratoria Programs for Long Term Care Providers. Journal of Health and Social Policy, 19 (2):31-58.
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Harrington, C., Beverly, C.J., Maas, M.L., Buckwalter, K.C., Bennett, J.A., Young, H.M., Sochalski, J., and Naylor, M. (2006). Influencing health policy for older adults: Initiatives by the John A. Hartford Centers of Geriatric Nursing Excellence. Nursing Outlook, 54, 4, 236-242.
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Harrington, C., Carrillo, H., & LaCava, C. (2006). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 1999 through 2005. University of California, San Francisco.
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Harrington, C., Carrillo, H., & Mercado-Scott, C. (2005). Nursing facilities, staffing, residents, and facility deficiencies, 1998 through 2004. University of California, San Francisco.
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Harrington, C., Chapman, S., Miller, E., Miller, N., and Newcomer, R. (2005). Trends in the supply of long-term-care facilities and beds in the United States. Journal of Applied Gerontology 24(4) 265-282.
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Harrington, C., Kang, T. & Chang, J. (April 2009). Factors Associated With Living in Developmental Centers in California. Intellectual and Developmental Disabilities: Vol. 47, No. 2, pp. 108–124.
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Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (January 2009). Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality. University of California, San Francisco. Published on the Center for PAS website.
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Harrington, C., Ng., T., Kaye, H.S. & Newcomer, R.J. (2009). Medicaid home and community based services: Proposed policies to improve access, costs, and quality. Public Policy & Aging Report, 19, 2, 13-18.
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Harrington, C., O'Meara, J., Tsoukalas, T., & Ng, T. (2007) Snapshot: Long Term Care, Facts and Figures. California HealthCare Foundation, Oakland, CA.
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Harrington, C., O’Meara, J. (2004). Report on California's Nursing Homes, Home Health Agencies, and Hospice Programs Prepared for the California HealthCare Foundation for California Nursing Home Search - www.calnhs.org. Retrieved from the Center for PAS website http://pascenter.org/documents/CCIS_Overview.pdf
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Harrington, C., Swan, J.H., and Carrillo, H. 2007. Nursing Staffing and Medicaid Reimbursement Rates. Health Services Research, 42 (3): 1105-1129.
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Harrington, C., Tsoukalas, T., Rudder, C., Mollot, R.J., and Carrillo, H. (2008). Variation in the use of federal and state civil money penalties for nursing homes. Gerontologist, 48, 5, 679-691.
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Harris-Kojetin, L., Lipson, D., Fielding, J., Kiefer, K. & Stone, R.I. (2004). Recent findings on frontline long-term care workers: A research synthesis 1999-2003. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/insight.htm
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Hartnett, J.T., Morris, M. & Stengel, J. (April 2009). Creating a roadmap out of poverty for Americans with disabilities: A report on the relationship of the Employment and Training Administration’s workforce development system and local asset-building coalitions. Washington, DC: U.S. Department of Labor.
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Hash, K. (2006). Caregiving and post-caregiving experiences of midlife and older gay men and lesbians.Journal of Gerontological Social Work, 47, 3/ 4, 123-138.
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Hawley, S.R., Hawley, G.C., Ablah, E., St Romain, T., Molgaard, C.A., Orr, S.A. (2007). Mental Health Emergency Preparedness: the need for training and coordination at the state level. Pre-Hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with the Acute Care Foundation [Pre-hosp Disaster Med] 2007 May-Jun; Vol.22 (3), pp.199-204; discussion 205-5.
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Hayashi, J., DeCherrie, L., Ratner, E. & Boling, P.A. (2009). Workforce development in geriatric home care. Clinics in Geriatric Medicine, 25, 1, 109-20.
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Hayes, R.M., Beebe, D. and Kreamer, H. Too Sick to Work, Too Soon for Medicare: The Human Cost of the Two-Year Medicare Waiting Period for Americans with Disabilities. The Commonwealth Fund, April 2007.
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HCBS Strategies, Inc. (2008). Recommendations for the Alaska Long Term Care Plan.. Baltimore, MD: HCBS Strategies, Inc. Retrieved November 16, 2008 from:
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Health Care for Health Care Workers. (2006). Caregivers without coverage: The facts about a critical gap in long-term care (Policy Brief no. 1). New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Health Care for Health Care Workers. (2006). Caregivers without health care: Maine fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
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Health Care for Health Care Workers. (2006). Caregivers without health care: Michigan fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
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Health Care for Health Care Workers. (2006). Caregivers without health care: Pennsylvania fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
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Health Workforce Solutions LLC. (2006, November). Workers who care: A graphical profile of the frontline health and health care workforce. Retrieved August 8, 2007, from http://www.rwjf.org/pr/product.jsp?id=15943
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Hegeman, C., Hoskinson, D, Munro, H., Maiden P. & Pillemer, K. (2007). Peer Mentoring in Long-Term Care: Rationale, Design and Retention. Gerontology & Geriatrics Education, 28, 2, 77-90.
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Hendricks, D.J., Batiste, L.C., Hirsh, A.E., Schartz, H.,A Blanck, P. 2005. Cost and Effectiveness of Accommodations in the Workplace: Preliminary Results of a Nationwide Study. Disability Studies Quarterly, 25(4), http://www.dsq-sds.org/2005_fall_toc.html
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Hendrix, C.C., Heflin, M.T., Twersky, J., Knight, C., Payne, J., Bradford, J.Y. & Schmader, K.E. (2008). Post-hospital clinic for older patients and their family caregivers. Annals of Long-Term Care, 16, 5, 20-24.
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Henn, J.; Henn, M. (2007). Facilitating integrated employment outcomes for individuals with significant disabilities: Parents' perspective. Journal of Vocational Rehabilitation. 26(1) 1-3
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Hepburn, K.W., Lewis, M., Wexler Sherman, C. & Tornatore, J. (2003). The Savvy Caregiver Program: Developing and testing a transportable dementia family caregiver training program. Gerontologist, 43, 6, 908-915.
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Hernandez, B., Keys, C., & Balcazar, F. (2000). Employer attitudes toward workers with disabilities and their ADA employment rights: A literature review. Journal of Rehabilitation, 66 (4). Retrieved April 11, 2004, from http://www.findarticles.com/p/articles/mi_m0825/is_4_66/ai_68865430/print.html
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Hernandez, M. & Newcomer, R. (2007). Assisted living and special populations: What do we know about differences in use and potential access barriers? Gerontologist, 47, Special Issue 3, 110-117.
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Hershorn, M. (1993). The elusive population: Characteristics of attenders versus non-attenders for community mental health center intakes. Community Mental Health Journal. 29(1) 49-57.
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Hewitt, A. & Lakin, K. C. (2001). Issues in the direct support workforce and their connections to the growth, sustainability and quality of community supports. Research and Training Center on Community Living, University of Minnesota.
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Hewitt, A., & Lakin, K.C. (2001). Issues in the direct support workforce and their connections to the growth, sustainability and quality of community supports. Minneapolis, MN: Research and Training Center on Community Living, University of Minnesota. Retrieved on June 18, 2006, from:
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Hewitt, A., Edelstein, S., Seavey, D., Morris, J. & Hoge, M. (2007). Direct Support Professional Work Group Report. Raleigh, NC: North Carolina Commission for Mental Health, Developmental Disabilities and Substance Abuse. Retrieved Dec. 9, 2007 from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=265010
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Hewitt, A., Larson, S., Edelstein, S., Seavey, D., Hoge, M.A. & Morris, J. (2008). A synthesis of direct service workforce demographics and challenges across intellectual/developmental disabilities, aging, physical disabilities and behavioral health. Washington, D.C.: National Direct Service Workforce Resource Center. Retrieved February 22, 2009, from: http://www.dswresourcecenter.org/index.php/dsw/reports
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Hilgeman, M.M., Durkin, D.W., Sun, F., DeCoster, J., Allen, R.S., Gallagher, D. & Burgio, L.D. (2009). Testing a theoretical model of stress process in Alzheimer’s caregivers with race as a moderator. Gerontologist, 49, 2, 248-261.
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Hill, M. A. (1989). Work status outcomes of vocational rehabilitation clients who are blind or visually impaired. Rehabilitation Counseling Bulletin. 32(3) 219-230
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Hochstein, C., Arnesen, C., Goshorn, J., Szczur, M. (2008). Selected resources for emergency and disaster preparedness and response from the United States National Library of Medicine. Medical Reference Services Quarterly [Med Ref Serv Q] 2008 Spring; Vol. 27 (1), pp.1-20.
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Hoff, D., Dreilinger, D., Fesko, S., Fichera, K., Jordan, M., Marrone, J. et. al. (2001). Access for all: A resource manual for meeting the needs of One-Stop customers with disabilities. Boston: University of Massachusetts, Institute for Community Inclusion.
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Holahan, J., Miller, D.M. & Roussea, D. (2009). Rethinking Medicaid\'s Financing Role for Medicare Enrollees. Washington, D.C.: Kaiser Family Foundation. Retrieved February 22, 2009, from:
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Holcomb, P., & Barnow, B. (2004). Serving people with disabilities through the Workforce Investment Act's One-Stop Career Centers. Washington, D.C.: Urban Institute.
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Holland, S.K., Greenberg, J., Tidwell, L., Malone, J., Mullan, J. & Newcomer, R. (2005). Community based health coaching and its effect on exercise and health service utilization. Journal of Aging & Health, 17, 6, 697-716.
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Holley, L.M., Montgomery, R.J.V., & Kosloski, K.D. (2004, November 19). Innovations in 33 states that address the respite worker crisis: Lessons from the ADDGS program. Poster presentation presented at the 57th Annual Scientific Meeting of the Gerontological Society of America.
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Holt, J. M.; Chambless, C. E.; Christensen, H. (2006) Work Ability and PAR: A guide for implementing full participation in complex systems change initiatives. Journal of Vocational Rehabilitation. 24(1) 23-31.
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Holt, J.M., Chambless, C.E., & Hammond, M. (2006). Employment personal assistance services (EPAS): A Medicaid work support. Journal of Vocational Rehabilitation, 24(3) 165-175.
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Hood, E. L., Test, D. W., Spooner, F., Steele, R. (1996). Paid co-worker support for individuals with severe and multiple disabilities. Education & Training in Mental Retardation & Developmental Disabilities. 31(3) 251-265
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Horowitz, A., Goodman, C.R. & Reinhardt, J.P. (2004, August) Congruence between disabled elders and their primary caregivers. Gerontologist, 44 (4): 532-542.
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Houser, A.,N. & Gibson M.,J. (2008) Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update. AARP Public Policy Institute.
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Houser, A.N. (2007). Women & Long-Term Care. Washington, D.C.: AARP Public Policy Institute. Retrieved May 21, 2007 from: http://www.aarp.org/research/longtermcare/trends/fs77r_ltc.html
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Houser, A.N. (2007). Women & Long-Term Care. Washington, D.C.: AARP Public Policy Institute. Retrieved Dec. 9, 2007 from: http://www.aarp.org/research/longtermcare/trends/fs77r_ltc.html
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Houser, A.N. and Gibson, M.J. (2007). Valuing the Invaluable: A New Look at State Estimates of the Economic Value of Family Caregiving. Washington, D.C.: AARP Public Policy Institute.
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Houser, A.N., Fox-Grage, W. & Gibson, M.J. (2006). Across the states: Profiles of long-term care and independent living. Washington, D.C.: AARP Public Policy Institute. Retrieved January 13, 2007 from: http://www.aarp.org/research/longtermcare/trends/d18763_2006_ats.html
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Houser, A.N., Fox-Grage, W., Gibson, M. (2009). Across the States 2009: Profiles of Long-Term Care and Independent Living. Washington, D.C.: AARP. Retrieved March 12, 2009 from:
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Howartha, E., Mann, J. R., Zhou, H., McDermott, S., Butkus, S. (2006). What predicts re-employment after job loss for individuals with mental retardation? Journal of Vocational Rehabilitation. 24(3) 183-189
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HRSA/Bureau of Health Professions/National Center for Health Workforce Analyses. (2004,February). Nursing Aides, Home Health Aides, and Related Health Care Occupations -- National and Local Workforce Shortages and Associated Data Needs. Health Resources and Services Administration.
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Hunt, G., Levine, C. & Naiditch, L. (2005, September). Young caregivers in the U.S.: Findings from national survey. Bethesda, MD: National Alliance for Caregiving in collaboration with United Hospital Fund.
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Hutchinson, D.; Anthony, W.; Massaro, J.; Rogers, E. S. (2007). Evaluation of a Combined Supported Computer Education and Employment Training Program for Persons with Psychiatric Disabilities. Psychiatric Rehabilitation Journal. l 30(3) 189-197
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Infield, Donna Lind. (2004). State's experiences implementing consumer-directed home and community services: Results of the 2004 survey of state administrators, opinion survey and telephone interviews. Washington, D.C.: National Association of State Units on Aging and The National Council on the Aging. Retrieved June 20, 2005, from http://www.consumerdirection.org/news.php
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InfoUse. (2003). Consumer direction in personal assistance services: How to work together [CD Rom & Video]. United States: Program Development Associates.
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Inge, K. J.; Wehman, P.; Strobel, W.; Powell, D.; Todd, J. (1998). Supported employment and assistive technology for persons with spinal cord injury: Three illustrations of successful work supports. Journal of Vocational Rehabilitation. 10(2) 141-152
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Institute of Medicine. (2008). Retooling for an aging America: Building the health care workforce. Washington, D.C.: Institute of Medicine.
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Ireys, H., White, J., & Thornton, C. (2003). The Medicaid Buy-In Program: Quantitative measures of enrollment trends and participant characteristics in 2002. Washington, D.C.: Mathematica Policy Research, Inc.
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Ireys, H.T., Davis, S.R. & Andres, K.L. (May 2007). The interaction of policy and enrollment in the Medicaid Buy-In Program, 2005. Mathematica Policy Research, Inc.: Washington, D.C. Retrieved May 14, 2007 from: http://www.mathematica-mpr.com/publications/
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Jacobs, A. E.,Hendricks, D. J. (1992) Job accommodations for adults with learning disabilities: Brilliantly disguised opportunities.Learning Disability Quarterly. 15(4) 274-285.
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Jacoby, D. (2006). Caring about caring labor: An introduction. Politics & Society, 34, 1, 5-10.
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Jang, Y., Clay, O.J., Roth, D.L., Haley, W.E. & Mittelman, M.S. (2004). Neuroticism and longitudinal change in caregiver depression: Impact of a spouse-caregiver intervention program. Gerontologist, 44, 3, 793-801.
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Jans, L. & Kraus, L. 2007. Personal Assistance Services (PAS) Cooperatives: An Annotated Bibliography.
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Jans, L., & Scherer, M. (2006). Assistive technology training: Diverse audiences and multidisciplinary content. Disability and Rehabilitation: Assistive Technology, 1(1-2), 69-77.
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Jans., L. (November, 2007). Personal Assistance Services (PAS) Cooperatives: Final Report. Center for Personal Assistance Services.
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Jensen, A., & Silverstein, B. (2002). SSDI state work incentive policy demonstration projects: Purposes, principles, and issues. University of Iowa, Rehabilitation Research and Training Center on Workforce Investment and Employment Policy.
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Jensen, A., Silverstein, R., Folkemer, D. & Straw, T. (2002). Policy Frameworks for Designing Medicaid Buy-In Programs and Related State Work Incentive Initiatives. Washington, D.C.: U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and George Washington University
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Job Accommodation Network, Center for Personal Assistance Services (2004). Personal Assistance Services (PAS) in the Workplace. Retrieved July 7, 2004 from http://www.jan.wvu.edu/media/PAS.html.
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Johantgen, M., Trinkoff, A., Gray-Siracusa, K., Muntaner, C. & Nielsen, K. (2004). Using state administrative data to study nonfatal worker injuries: Challenges and opportunities. Journal of Safety Research, 35 (3), 30-315.
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Johnson, R.W. (2007). The burden of caring for frail parents: Statement before the Joint Economic Committee, United States Congress. Washington, D.C.: Urban Institute. Retrieved June 26, 2007, from: http://www.urban.org/UploadedPDF/901078_johnson_testimony.pdf
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Johnson, R.W. (2008). The strains and drains of long-term care. Washington, D.C.: The Urban Institute. Retrieved July 25, 2008 from: http://www.urban.org/publications/1001188.html
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Johnson, R.W., Toohey, D. & Wiener, J.M. (2007). Meeting the long-term care needs of the baby boomers: How changing families will affect paid helpers and institutions. Washington, D.C.: Urban Institute. Retrieved June 26, 2007, from:
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Johnson, S.; Hafer, M. (1985). Employment status of severely visually impaired men and women. Journal of Visual Impairment & Blindness. 79(6) 241-244
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Kadushin, G. & Egan, M. (2006). Unmet patient need in home care under managed care. Journal of Gerontological Social Work, 47, 3/ 4, 103-120.
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Kahn, K. (2003). Multi-stakeholder coalitions: Promoting improvements in the long-term care workforce. Better jobs, better care. Issue brief, 1 (1). Retrieved February 16, 2007 from http://www.paraprofessional.org/publications/BJBCIssueBriefv1n1.pdf
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Kailes, J. (2009) Functional Needs Focused Care and Shelter Checklist. Kailes-Publications, http://www.jik.com/disaster.html.
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Kailes, J. (2009) Standard, Accessible, and Medical Cots. Kailes-Publications, http://www.jik.com/disaster.html.
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Kailes, J., & George, S. (2010) Disaster Planning For Technology-Dependent Patients Preparation must be ongoing. Advance for Reparatory Care and & Sleep Medicine.
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Kaiser Commission on Medicaid and the Uninsured. (September 2009). Advancing Access to Medicaid Home and Community-Based Services: Key Issues Based on a Working Group Discussion with Medicaid Experts. Washington, D.C.: Kaiser Family Foundation. Retrieved September 22, 2009, from: http://www.kff.org/medicaid/7970.cfm
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Kaiser Commission on Medicaid Facts. (2009). Medicaid and Long-Term Care Services and Supports. Washington, D.C.: Kaiser Family Foundation. Retrieved February 22, 2009, from:
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Kaiser Family Foundation Issue Paper. (2006). Medicaid 1915(c) home and community-based services program: Data update. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7575.cfm
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Kaiser Family Foundation. (2007). The basics of Medicare and Medicaid. Washington, D.C.: Kaiser Family Foundation. Retrieved April 30, 2007, from:
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Kassner, E. (2006). Home and community-based long-term services and supports for older people. AARP Public Policy Institute Fact Sheet: Washington, D.C.
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Kassner, E., Reinhard, S., Fox-Grage, W., Houser, A.N., Accius, J.C., Coleman, B. & Milne, D. (2008). A balancing act: State long-term care reform. Washington, D.C.: AARP Public Policy Institute. Retrieved July 19, 2008 from:
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Kauff, J., Kirby, G. & Pavetti, L. (2005). Linking TANF recipients with paraprofessional long-term care jobs (Issue Brief No. 8). Princeton, NJ: Mathematica Policy Research, Inc. Retrieved March 13, 2006, from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=171210
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Kaye, H.S. (2009). Stuck at the bottom rung: Occupational characteristics of workers with disabilities. Journal of Occupational Rehabilitation, 19, 2, 115-128.
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Kaye, H.S., Chapman, S., Newcomer, R.J. & Harrington, C. (2006). The personal assistance workforce: Trends in supply and demand. Health Affairs, 25, 4, 1113-1120.
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Kaye, H.S., Harrington, C. & LaPlante, M.P. (2010). Long-term care: Who gets it, who provides it, who pays, and how much? Health Affairs, 29, 1, 11-21.
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Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009) Do Non-institutional Long-Term Care Services Reduce Medicaid Spending? Health Affairs 28, no. 1 (2009): 262–272.
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Kaye, H.S., Neri, M. & Wong, A. (July 2009). Telecommunication needs of Californians with disabilities: Final Report. San Francisco, CA: UCSF Disability Statistics Center.
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Kaye, H.S., Yeager, P., & Reed, M. 2009. Disparities in usage of assistive technology among people with disabilities. Assistive Technology, 20(4), 194-203.
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Keefe, J., Légaré, J. & Y. Carrière. (2005, November). Developing new strategies to support future caregivers of the aged in Canada: Projections of need and their policy implications. Research Paper No. 140. Hamilton, Ontario: SEDAP (Program for Research on Social and Economic Dimensions of an Aging Population).
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Keeslar, K. (2007). Governor's FY 07-08 State Budget Proposal on IHSS (memo). Sacramento, CA: California Association of Public Authorities for IHSS.
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Keilson, J. (2004). Recruiting direct service professionals/personal assistants in a competitive environment. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/itemdetail.asp?
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Keller, P. (2000). Pre-employment intentions of home care aides. Caring 19:26-31.
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Kemp, C.L., Ball, M.M., Perkins, M.M., Collingsworth, C. & Lepore, M.J. (2009). “I get along with most of them”: Direct care workers’ relationships with residents’ families in assisted living. Gerontologist, 49, 2, 224-235.
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Kemper, P., Komisar, H.L. & Alecxih, L. (2006). Long-term care over an uncertain future: What can current retirees expect? Inquiry, 42, 4, 335-350.
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Khatutsky, G., Anderson, W.L. & Wiener, J.M. (2006). Personal care satisfaction among aged and physically disabled Medicaid beneficiaries. Health Care Financing Review, 28, 1, 69-86. Retrieved November 21, 2006 from:
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Kiernan, W.E., Halliday, J.F., & Boeltzig, H. (2004). Economic engagement: An avenue to employment for individuals with disabilities. Boston: University of Massachusetts, Institute for Community Inclusion.
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Kirchner, C., Smith, B. (2005). Transition to What? Education and Employment Outcomes for Visually Impaired Youths after High School. Journal of Visual Impairment & Blindness. 99(8) 499-504.
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Kitchener M., Beynon, M., & Harrington, C. (2004). Explaining the Diffusion of Medicaid Home Care Waiver Programs Using VPRS Decision Rules. Healthcare Management Science 7/3: 237-244.
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Kitchener, M, Hernandez, M, Ng, T, & Harrington, C (2006). Residential Care Provision in Medicaid Home and Community Based Waivers: A National Suty of Program Trends. The Gerontologist, 46, 165-172.
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Kitchener, M. and Harrington, C. 2004. The U.S. Long Term Care Field: A Dialectic Analysis of Institution Dynamics. Journal of Health and Social Behavior, 45 (Supplement 1): 87-101.
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Kitchener, M., Carrillo. H., & Harrington, C. (2004). Medicaid Community-Based Programs: A Longitudinal Analysis of State Variation in Expenditures and Utilization. Inquiry, 40, 375-389.
Press release
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Kitchener, M., Ng, T. and Harrington, C. 2007. State Medicaid Home Care Policies: Inside the Black Box. Home Health Care Quarterly, 26 (3): 23-38.
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Kitchener, M., Ng, T., Lee, H.Y. and Harrington, H. (2008) Assistive Technology in Medicaid Home-and Community-Based Waiver Programs. The Gerontologist 48:181-189 (2008).
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Kitchener, M., Ng, T., & Harrington, C. (2004) Medicaid 1915(c) Home and Community Based Services Waivers: A National Survey of Eligibility Criteria, Caps and Waiting Lists. Home Health Care Services Quarterly 23/2: 55-69.
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Kitchener, M., Ng, T., and Harrington, C. 2007. Medicaid State Plan Personal Care Services: Trends in Programs and Policies. Journal of Health and Social Policy, 19 (3): 9-26.
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Kitchener, M., Ng, T., and Harrington, C. 2007. Medicaid Home and Community-Based Services for the Elderly: Trends in Programs and Policies. Journal of Applied Gerontology, 26 (3): 303-324.
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Kitchener, M., Ng, T., Carrillo, H. and Harrington, C. 2007. A Longitudinal Analysis of State Variation in the Provision of Personal Care Services. Inquiry. In press.
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Kitchener, M., Ng, T., Carrillo, H., Miller, N., and Harrington, C. (2007). Developing personal care programs: National trends and interstate variation, 1992-2002. Inquiry 44, 69-87.
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Kitchener, M., Ng, T., Grossman, B., & Harrington, C. (2005) Medicaid Waiver Programs for Traumatic Brain and Spinal Cord Injury. Journal of Health and Social Policy 20/3: 51-66
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Kitchener, M., Ng, T., Miller, N. & Harrington C. (2006). Institutional and community-based long-term care: A comparative estimate of public costs. Journal of Health & Social Policy, Vol. 22(2): 31-50. 2006.
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Kitchener, M., Ng, T., Miller, N., & Harrington, C. (2005). Medicaid Home And Community-Based Services: National Program Trends. Health Affairs. 24(1) 206-212.
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Kitchener, M., O’Meara, J., Brody, A., Lee, H.Y., Harrington, C. (2007). Shareholder Value and the Performance of a Large Nursing Home Chain. Health Services Research. In press.
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Kitchener, M., Willmott, M. & Harrington, C. (11/2004). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. Published on the Center for PAS website: http://pascenter.org/demo_waivers/demoWaiverReport_2004.php
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Kitchener, M., Willmott, M., & Harrington, C. (11/2004). Home and Community-Based Service Programs: Selected Robert Wood Johnson Foundation Grants to States. Published on the Center for PAS website: http://www.pascenter.org/foundation_grants/index.php
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Kitchener, M., Willmott, M., Alameida, M., Wong, A. and Harrington, C. (2008). Introduction to Olmstead Lawsuits and Olmstead Plans. Retrieved from http://pascenter.org/olmstead/index.php
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Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (11/2006). Federal Systems Change Grants to States and Territories: 2001-2005. Retrieved from http://pascenter.org/systemschange/index.php
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Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (11/2006). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. Published on the Center for PAS website. http://pascenter.org/demo_waivers/demoWaiverReport_2006.php
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Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (4/2007). Home and Community-Based Services: Federal Funding to States. Published on the Center for PAS Website: http://www.pascenter.org/federal_funding_to_states/
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Kitchener, M., Willmott, M., Wong, A., & Harrington, C. (December 2006) Medicaid Managed Long-Term Care: An Introduction.
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Kitchener, M., Wong, A., Willmott, M. & and Harrington, C. (2/2007). Home & Community-Based Services: State-Only Funded Programs. Published on the Center for PAS website: http://pascenter.org/state_funded/index.php
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Koehler, M., Rabinowitz, T., Hirdes, J., Stones, M., Carpenter, G.I., Fries, B.E., Morris, J.N., Jones, R.N. (2005). Measuring depression in nursing home residents with the MDS and GDS: An observational psychometric study. BMC Geriatrics.
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Komisar, H.L., Tumlinson, A., Feder, J. & Burke, S. (July 2009). Long term care in health care reform: Policy options to improve both. Long Beach, CA: The SCAN Foundation.
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Kregel, J., O'Mara, S., & West, M. (2003). Consumer advocacy in the implementation of the Ticket to Work Act. Richmond, VA: Virginia Commonwealth University, Rehabilitation Research and Training Center on Workplace Supports.
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Kronick, R.G., Bella, M. & Gilmer, T.P. (October 2009). The Faces of Medicaid III: Refining the Portrait of People with Multiple Chronic Conditions. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved October 22, 2009, from:
http://www.chcs.org/publications3960/publications_show.htm?doc_id=1058416
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Kuster, P.A. & Badr, L.K. (2006). Mental health of mothers caring for ventilator-assisted children at home. Issues in Mental Health Nursing, 27, 8, 817-835.
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Laditka, S.B., Laditka, J.N., Cornman, C.B., Davis C.B., Changdlee, M.J. (2008). Disaster preparedness for vulnerable persons receiving in-home, long-term care in South Carolina. Pre-Hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with the Acute Care Foundation [Pre-hosp disaster Med] 2008 Mar-Apr; Vol.23 (2), pp.133-42; discussion 143.
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Laditka, S.B., Laditka, J.N., Xirasagar, S., Cornman, C.B., Davis, C.B., Richter, J.V. (2007). Protecting nursing home residents during emergencies or disasters: an exploratory study from South Carolina. Pre-Hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with the Acute Care Foundation [Pre-hosp disaster Med] 2007 Jan-Feb; Vol.22 (1), pp.42-8.
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Lakin, K.C., Prouty, R. & Coucouvanis, K. (October 2007). HCBS Recipients Are Increasingly Likely to Live With Parents or Other Relatives. Intellectual and Developmental Disabilities, Volume 45, Number 5: 359–361.
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Langton, A. J., Ramseur, H. (2001). Enhancing employment outcomes through job accommodation and assistive technology resources and services. Journal of Vocational Rehabilitation. 16(1) 27-37
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LaPlante, M., Kaye, H.S., Kang, T., and Harrington, C. (2004). Unmet need for personal assistance services: Estimating the shortfall in hours of help and adverse consequences. J. Gerontol. B. Psychol. Sci. Soc. Sci. 2004 59: S98-S108.
View press release from: Accessible Society or UCSF.
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LaPlante, M.P. & Kaye, H.S. (2010). Demographics and trends in wheeled mobility equipment use and accessibility in the community. Assistive Technology, 22, 1, 3-17.
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LaPlante, M.P. (2010). The classic measure of disability in activities of daily living is biased by age but an expanded IADL/ADL measure is not. Journal of Gerontology: Social Sciences, 10.1093/geronb/gbp129
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LaPlante, M.P., Harrington, C., & Kang, T. (2002). Estimating paid and unpaid hours of personal assistance services in activities of daily living provided to adults living at home. Health Services Research, 37(2): 397-415.
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LaPlante, M.P., Kaye, H.S. and Harrington, C. 2007. Estimating the Expense of a Mandatory Home- and Community-Based Personal Assistance Services Benefit Under Medicaid. Journal of Health and Social Policy, 19 (3): 47-64.
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Larson, J. E.; Barr, L. K.; Corrigan, P. W.; Kuwabara, S. A.; Boyle, M. G.; Glenn, T. L. (2007). Perspectives on benefits and costs of work from individuals with psychiatric disabilities.
Journal of Vocational Rehabilitation. 26(2) 71-77
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Lauren, D.,Harris-Kojetin, L., Kiefer, K., Brannon, D., Barry, T., Vasey, J. & Lepore, M. (2005). Measuring long-term care work: A guide to selected instruments to examine direct care worker experiences and outcomes. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services. Retrieved on May 9, 2006, from
http://aspe.hhs.gov/daltcp/reports/dcwguide-file.htm
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Leavitt, J. & Lingafelter, T. (2005). Low wage workers and high housing costs. Labor Studies Journal, 30, 2, 41-60.
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Leonard, R., D'Allura, T., Horowitz, A. (1999). Factors associated with employment among persons who have a vision impairment: A follow-up of vocational placement referrals. Journal of Vocational Rehabilitation. 12(1) 33-43.
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Levine, C. Hunt, G.G., Harper, D., Hart, A.Y., Lautz, J., Gould, D.A. (2005). Young adult caregivers: A first look at an unstudied population. American Journal of Public Health, 95 (9): 2071-2075.
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Li, L.W. (2005). Longitudinal changes in the amount of informal care among publicly paid home care recipients. Gerontologist, 45, 4, 465-473.
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Li, L.W. and Fries, B.E. 2005. Elder Disability as an Explanation of Racial Differences in Informal Home Care. Gerontologist, 45(2): 206-215.
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Lida, K. (2006, May). Highlights of fourth quarter MIG activities. Center for Workers with Disabilities. Retrieved August 10, 2006 from http://www.aphsa.org/disabilities/home/index.htm
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Lieberman, L.A. (2005). A "stranger" among us: Hiring in-home support for a child with autism spectrum disorders or other neurological differences. Shawnee Mission, KS: Autism Asperger Publishing Company.
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Lin, C.J. & Meit, M. (2005). Changes in Medicare home health care use and practices in rural communities. Journal of Aging and Health, 17, 3, 351-362.
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Lipson, D. (2005, November 19). Stand up and tell them: Views from the frontline of long-term care. Media presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Lipson, D. & Regan, C. (2004, March). Health insurance coverage for direct care workers: Riding out the storm. Better Jobs Better Care Issue Brief, No. 3.
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Lipson, D.J. (2004). Current findings and future directions in research on homecare work issues. Healthcare & Aging, 12, 3, 2-3, 6.
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Litt, J. (2004). Women's carework in low-income households: The special case of children with Attention Deficit Hyperactivity Disorder. Gender & Society, 18, 5, 625-644.
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Liu, S., & Ireys, H.T. (2006, May). Participation in the Medicaid Buy-in program: A statistical profile from integrated data. Final report. Mathematica Policy Research, Inc. Retrieved February 27, 2007 from: http://www.mathematica-mpr.com/publications/PDFs/medbuyinstatprof.pdf
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Livermore, G., Nowak, M., & Stapleton, D. (2001). The role of health insurance in successful labor force entry and employment retention. Falls Church, VA: The Lewin Group.
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Livermore, G., Stapleton, D. & Claypool, H. (May 2009). Health insurance and health care access before and after SSDI entry. New York, NY: The Commonwealth Fund. Retrieved May 20, 2009 from:
http://www.commonwealthfund.org/Content/Publications/Fund-Reports/2009/May/Health-Insurance-and-Health-Care-Access-Before-and-After.aspx
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Livermore, G.A. (2003). Proceedings of the Employment Network (EN) summit: Summary of work group recommendations. Washington, D.C.: Cornell Center for Policy Research.
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Long Term Care Group, Inc. & LifePlans, Inc. (2006). Final Report on the "Own Your Future" Consumer Survey. Washington, D.C.: U.S. Department of Health and Human Services, Assistant Secretary for Planning and Evaluation. Retrieved December 9, 2007 from: http://aspe.hhs.gov/daltcp/reports.htm
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Lopez, S.H. (2006). Culture change management in long-term care: A shop-floor view. Politics & Society, 34, 1, 55-80.
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Loprest, P., & Maag, E. (2001). Barriers to and supports for work among adults with disabilities: Results from the NHIS-D. Washington, D.C.: Urban Institute.
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Loughlin, D.M., Simon-Rusinowitz, L., Mahoney, K.J., Desmond, S.M., Squillace, M.R. & Powers, L.E. (2004). Preference for a cash option versus traditional services for Florida children and adolescents with developmental disabilities. Journal of Disability Policy Studies, 14, 4, 229-240.
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Louisiana Grantee produced (June, 2007). Transition Guide to Community Living with a Self Assessment Tool.
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Loy, B., Hirsh, A., Batiste, L. C. (2006) Including employees with disabilities in emergency evacuation plans: 9/11's Effect on the demand for information. Work: Journal of Prevention, Assessment & Rehabilitation. 27(4) 407-411
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Luecking, D. M.; Luecking, R. G. (2006). A Descriptive Study of Customizing the Employment Process for Job Seekers with Significant Disabilities. Journal of Applied Rehabilitation Counseling. 37(4) 14-21.
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Luecking, R.G. (2003) Doing it the company way: Employer perspectives on workplace supports. Washington, D.C.: George Washington University, HEATH Resource Center.
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Luke, E.L. (2008). Stakeholder recommendations to improve recruitment, retention, and the perceived status of paraprofessional direct service workers in Texas. Report Number 08-039. Austin, Texas: Texas Department of Aging and Disability Services. Retrieved July 25, 2008 from:
http://www.dads.state.tx.us/news_info/publications/studies/DSW-june2008.pdf
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Lum, T.Y. (2005). Understanding the racial and ethnic differences in caregiving arrangements. Journal of Gerontological Social Work, 45, 4, 3-21.
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Lundsgaard, J. (2005). Consumer direction and choice in long-term care for older persons, including payments for informal care: How can it help improve care outcomes, employment and fiscal sustainability? Health Working Papers, No. 20. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from:
http://www.oecd.org/dataoecd/53/62/34897775.pdf
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Lynch, M., Estes, C. & Hernandez, M. (2007). Long-term care policy option proposal: Consumer controlled chronic, home and community care for the elderly and disabled. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved June 25, 2007, from:
http://ltc.georgetown.edu/forum/4lynch061107.pdf
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MacDonald-Wilson, K.L., Rogers, E.S., Massaro, J. M., Lyass, A., Crean, T. (2002). An investigation of reasonable workplace accommodations for people with psychiatric disabilities: Quantitative findings from a multi-site study. Community Mental Health Journal, 38, 35-50.
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Maine Department of Health and Human Services. (2007). Study of Maine's direct care workforce: Wages, health coverage, and a worker registry. Report to the 123rd Maine legislature. Retrieved April 30, 2007 from: http://www.maine.gov/dhhs/beas/Maine_Direct_Care_Workforce_Report_2007.pdf
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Mains, D., Fairchild, T.J. & René, A.A. (2006). Cultural attitudes and caregivers service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47, 1/ 2, 159-175.
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Malone, J. (2003). Back-up support when a person's attendant is absent. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/itemdetail.asp?
filterType=none&filterByDID;=-99&sortByDID;=1&sortOrder;=ascending&itemID;=CMS040649
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Mareschal, P. (2006). Innovation and adaptation: Contrasting efforts to organize home care workers in four states. Labor Studies Journal, 31, 1, 25-49.
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Master, R.J. & Eng, C. (2001). Integrating acute and long-term care for high-cost populations. Health Affairs, 20, 6, 161-172.
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Matthias, R.E. & Benjamin, A.E. (2005). "Intent to stay" among paid home care workers in California. Home Health Care Services Quarterly, 24, 3,39-57.
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Matthias, R.E. & Benjamin, A.E. (2003). Abuse and neglect of clients in agency-based and consumer-directed home care. Health Social Work, 28, 3, 174-184.
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Maxwell, J., Belser, J.W. and David, D. (2007). A health handbook for women with disabilities. Hesperian Foundation: Berkeley, CA.
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McDonald, I. (January 2007). Emerging strategies for providing health coverage to the frontline workforce in long term care. Paraprofessional Healthcare Institute.: Bronx, NY. Retrieved May 14, 2007 from: http://www.dswresourcecenter.org/
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McDonald, I.J. (April 2007). Respectful relationships: The heart of Better Jobs Better Care. BJBC Issue Brief No. 7. Institute for the Future of Aging Services: Washington, D.C. Retrieved May 14, 2007 from: http://www.bjbc.org/Page.asp?PgID=27
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McDonald, I.J. & Davis, G.S. (2007). The SEIU 775 long-term care training, support ad career development network: A blueprint for the future. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.paraprofessional.org/Sections/documents/BlueprintSEIU775.pdf
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McDonald, I.J. (2007). Comprehensive health coverage for consumer-directed home care workers: Washington State case study. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from: http://www.paraprofessional.org/Sections/documents/CaseStudy-WA-1.pdf
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McDowell, R.W. All 50 states' and D.C.'s home pages and Workers' Compensation agencies. Retrieved November 2, 2005, from http://www.comp.state.nc.us/ncic/pages/all50.htm. Date last updated: October 28, 2005.
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McGinnis, K.A., Schulz, R., Stone, R.A., Klinger, J. & Mercurio, R. (2006). Concordance of race or ethnicity of interventionists and caregivers of dementia patients: Relationship to attrition and treatment outcomes in the REACH study. Gerontologist, 46, 4, 449-455.
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McKinley, W., Tewksbury, M. A., Sitter, P.; Reed, J., Floyd, S. (2004). Assistive technology and computer adaptations for individuals with spinal cord injury. NeuroRehabilitation. 19(2) 141-146.
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McMillan, S.C., Small, B.J., Weitzner, M., Schonwetter, R., Tittle, M., Moody,L. & Haley, W.E. (2006, January). Impact of coping skills intervention with family caregivers of hospice patients with cancer. Cancer, 106 (1), 214-222.
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McMullin, J. A.; Shuey, K. M. (2006. Ageing, disability and workplace accommodations. Ageing & Society. 26(6) 831-847
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McPhaul, K. (2004, September). Home care security: Nurses can take simple precautions to ensure safety during home visits. American Journal of Nursing, 104 (9), 96.
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McPhaul, K., Zanoni, J., Glassman, M., Kaufman, K., Lipscomb, J., Nickels, L., Vega, L., Johnson, J., Sokas, R. & Vasireddy, L. (2005, December 12). Focus groups of union home care workers and blood exposure. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Meagher, G. (2006). What can we expect from paid carers? Politics & Society, 34, 1, 33-54.
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Medicare Coverage For Working People With Disabilities. August, 2008. Weekly Alert. Center for Medicare Advocacy, Inc.
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Menne, H.L., Ejaz, F.K., Noelker, L.S. & Jones, J.A. (2007). Direct Care Workers' Recommendations for Training and Continuing Education. Gerontology & Geriatrics Education, 28, 2, 91-108.
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MetLife Mature Market Institute and National Alliance for Caregiving. (2006). The MetLife caregiving cost study: Productivity losses to U.S. business. Bethesda, MD: National Alliance for Caregiving. Retrieved on July 21, 2006 from: http://www.caregiving.org/pubs/data.htm
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MetLife Mature Market Institute in conjunction with LifePlans, Inc. The MetLife Market Survey of Adult Day Services and Home Care Costs. September 2008.
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MetLife Mature Market Institute. (October 2009). The 2009 MetLife Market Survey of Nursing Home, Assisted Living, Adult Day Services and Home Care Costs. Westport, CT: MetLife Mature Market Institute. Retrieved October 29, 2009, from: http://www.metlife.com/assets/cao/mmi/publications/studies/mmi-market-survey-nursing-home-assisted-living.pdf
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Meyer, J.D. & Muntaner, C. (1999). Injuries in home health care workers: An analysis of occupational morbidity from a state compensation database. American Journal of Industrial Medicine, 35 (3),295-301.
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Miller, B., Ranji, U., Hisey, H. & Salganicoff, A. (2007). KaiserEDU.org issue module: Financing long-term care. Washington, D.C.: Kaiser Family Foundation. Retrieved April 30, 2007, from:
http://www.kaiseredu.org/topics_im.asp?id=680&imID;=1&parentID;=65
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Miller, E.A. & Mor, V. (2006). Out of the shadows: Envisioning a brighter future for long-term care in America. Brown University Report for the National Commission for Quality Long Term Care. Retrieved on November 14, 2006 from: http://www.chcr.brown.edu/PDFS/BROWN_UNIVERSITY_LTC_REPORT_FINAL.PDF
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Miller, N.A. 2005. State Strategies to Support Community Based Long Term Care, Journal of Health and Social Policy, 20 (4): 1-30.
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Miller, N.A. and Weinstein, M. 2007. Participation and Knowledge Related to a Nursing Home Admission Decision among a Working Age Population. Social Science & Medicine, 64 (2):303-313.
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Miller, N.A., Elder, K.T., Kitchener, M., Kang, Y and Harrington, C. (2008). Medicaid 1915(c) Waiver Use and Expenditures for Persons Living With HIV/AIDS. Medical Care Research and Review, Vol. 65, No. 3, 338-355 (2008)
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Miller, NA, Elder, KT, Rubin, A, Kitchener, M, & Harrington, C (2006). Strengthening Home and Community Based Care Through Medicaid Waivers. Journal of Aging & Social Policy, 18, 1-16.
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Miller, NA, Kitchener, M, Elder, KT, Kang, Y, Rubin, A, & Harrington, C (2005). Variation by Disability in State Predictors of Medicaid 1915c Waiver Use and Expenditures. The Gerontologist, 45, 764-772.
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Miller, S. M., Rosenthal, D. A. (2006) Applications of meta-analysis in rehabilitation research education. Rehabilitation Education. 20(2) 79-89
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Millington, M. J., Miller, D. J., Asner-Self, K. K., Linkowski, D., Szymanski, E. M. (Ed), Parker, R. M. (Ed). (2003). The business perspective on employers, disability, and vocational rehabilitation. Work and disability: Issues and strategies in career development and job placement (2nd ed.). (pp. 317-342). Austin, TX, US: PRO-ED vii, 480 pp.
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Milne, D., Chang, D., Mollica, R. (2004, January). State perspectives on Medicaid long-term care: Report from a July 2003 state forum. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from: http://www.nashp.org/Files/LTC_16_final.pdf
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Minnesota Office of the Legislative Auditor. (2009). Evaluation Report: Personal Care Assistance. St. Paul, MN: Minnesota Office of the Legislative Auditor, Program Evaluation Division. Retrieved February 10, 2009 from: http://www.auditor.leg.state.mn.us/ped/2009/pca.htm
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Misiorski, S. & Kahn, K. (2006). Changing the Culture of Long-Term Care Moving Beyond Programmatic Change. Journal of Social Work in Long-Term Care, 3, 3/4, 137-146.
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Misra, S., Orslene, L.E. & Walls, R.T. (2010). Personal assistance services (PAS) for workers with disabilities: Views and experiences of employers. Journal of Rehabilitation, 76, 1, 22-27.
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Misra, S., Orslene, L.E., & Walls, R.T. 2007. Personal Assistance Services for Workers with Disabilities: Views and Experiences of Rehabilitation Service Providers. Disability Studies Quarterly, 27(3), http://www.dsq-sds.org/2007_summer_toc.html
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Mitchell, P. J.; Zampitella-Freese, C. (2003). Using the Workforce Investment Act of 1998 to Benefit Youth With Blindness and Visual Impairment. RE:view. 35(3) 109-119
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Mitchell, S.L., Morris, J.N., Park, P.S. & Fries, B.E. (2004). Terminal care for persons with advanced dementia in the nursing home and home care settings. Journal of Palliative Medicine, 7, 6, 808-816.
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Mittal, V., Rosen, J. & Leana, C. (2009). A dual-driver model of retention and turnover in the direct care workforce. Gerontologist, 49, 5, 623-634.
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Mollica, R.L. & Gillespie, J. (2003, August). Single entry point systems: State survey results. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
http://www.nashp.org/Files/SEPReport11.7.03.pdf
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Mollica, R.L. (2003). Sustaining nursing home transition programs: Covering case management services. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from: http://www.nashp.org/Files/NFT_call_summary_final_11.10.doc
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Mollica, R.L. (2003, November). Building nursing home transition into a balanced long term care systems: The Washington model. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from: http://www.nashp.org/Files/WA_site_visit_summary_final.doc
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Mollica, R.L. (September 2009). State Medicaid Reimbursement Policies and Practices in Assisted Living. Washington, D.C.: National Center for Assisted Living. Retrieved October 22, 2009, from:
http://www.ahcancal.org/ncal/news/releases/Pages/StateMedicaidRateSettingMethods.aspx
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Mollica, R.L., Kassner, E., Walker, L. & Houser, A.N. (March 2009). Taking the long view: Investing in Medicaid home and community-based services is cost-effective. Washington, D.C.: AARP Public Knowledge Management. Retrieved June 1, 2009 from: http://www.aarp.org/research/assistance/medicaid/i26_hcbs.html
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Montana RCSC Grantee produced (June, 2007). Curriculum for Empowering Parents.
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Montana RCSC Grantee produced (June, 2007). Curriculum for Empowering Self-Advocates.
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Montana RCSC Grantee produced (June, 2007). Curriculum for Empowering Advocates.
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Montana RCSC Grantee produced (June, 2007). Relax. Take a Break: A Family Guide to Respite for Children.
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Montana RCSC Grantee produced, New York & Self-Advocacy Association of New York State, Inc. (June, 2007). Real Choice Mentor Training Manual.
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Montgomery, R.J.V., Holley, L., Deichert, J. & Kosloski, K. (2005). A profile of home care workers from the 2005 Census: How it changes what we know. Gerontologist, 45 (5), 593-600.
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Morris, J.N., Jones, R.N., Fries, B.E., Hirdes, J.P. (2004). Convergent validity of minimum data set-based performance quality indicators in postacute care settings. American Journal of Medical Quality, 19, 6, 242-247.
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Morris, L. (2009). Quits and job changes among home care workers in Maine: The role of wages, hours, and benefits. Gerontologist, 49, 5, 635-650.
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Moss, H. (August 13, 2004). Bridging the gap between the needs of clients and the skills of the workforce in Oregon. Paper presented at Carework Conference, San Francisco, CA.
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Mullan, J.T., Grossman, B.R., Hernandez, M., Wong, A., Eversley, R. & Harrington, C. (2009). Focus Group Study of Ethnically Diverse Low Income- Users of Paid Personal Assistance Services. Home Health Care Services Quarterly, 28, 1, 24-44.
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Muntaner, C., Li, Y., Xue, X., O’Campo, P., Chung, H.J. & Eaton, W.W. (2004). Work organization, area labor-market characteristics, and depression among U.S. nursing home workers: a cross-classified multilevel analysis. International Journal of Occupational and Environmental Health, 10 (4), 392-400.
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Nallamouthu, B.K., Rogers, M.A.M., Saint, S., McMahon, L.J., Fries, B.E., Kaufman, S.R. & Langa, K.M. (2005). Skilled care requirements for elderly patients following coronary artery bypass grafting. Journal of the American Geriatrics Society, 53, 7, 1133-1137.
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NASUA. (2008). More can be done: Involvement of older consumers in the design, implementation and oversight of home and community based services. Washington, D.C.: National Association of the State Units on Aging (NASUA). Retrieved March 22, 2008 from:
http://www.nasua.org/NASUA_Rpt_(3).pdf
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National Academy for State Health Policy. (2006, January). Deficit Reduction Omnibus Reconciliation Act conference committee report offers states new options on home and community based services. Portland, ME: National Academy for State Health Policy News Brief. Retrieved December 11, 2006 from:
http://www.nashp.org/Files/LTC_issue_brief_1.9.06.pdf
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National Academy for State Health Policy. Best practices and trade secrets: How to recruit and retain quality staff.Portland, ME: National Academy for State Health Policy. Retrieved June 18, 2006, from:
http://www.nashp.org/_docdisp_page.cfm?
LID=AFF9D26A-8784-4138-A81023587341EA73
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National Alliance for Caregiving. (April 2009). The Evercare® Survey of the Economic Downturn and its Impact on Family Caregiving. Bethesda, MD: National Alliance for Caregiving. Retrieved December 17, 2009 from:
http://www.caregiving.org/data/EVC_Caregivers_Economy_Report%20FINAL_4-28-09.pdf
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National Alliance for Caregiving. (November 2009). Caregiving in the U.S. 2009: Executive Summary. Bethesda, MD: National Alliance for Caregiving. Retrieved December 17, 2009 from: http://www.caregiving.org/data/CaregivingUSAllAgesExecSum.pdf
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National Association of State Medicaid Directors. (2007). State Perspectives on Emerging Medicaid Long-Term Care Policies and Practices. Washington, D.C.: American Public Health Services Association. Retrieved Dec. 10, 2007 from: http://www.nasmd.org/resources/docs/LongTermCareRpt1007.pdf
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National Association of State Units on Aging. (November 2009). The Economic Crisis and Its Impact on State Aging Programs. Washington, DC: National Association of State Units on Aging. Retrieved December 17, 2009 from:
http://www.nasua.org/documents/TheEconomicCrisisandItsImpactonStateAgingPrograms11.2009.pdf
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National Association of State Units on Aging. (October 2009). State of Aging: 2009 State Perspectives on the State Units on Aging Policies and Practices. Washington, DC: National Association of State Units on Aging. Retrieved December 17, 2009 from: http://www.nasua.org/documents/StatePerspective2009_000.pdf
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National Association of State Units on Aging. (2008). The Economic Crisis and Its Impact on State Aging Programs: Results of All-State Survey. Washington, D.C.: National Association of State Units on Aging. Retrieved February 10, 2009 from: http://www.nasua.org/documents/EconomicSurveyReport.pdf
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National Council on Disability (2004). Consumer directed health care: How well does it work? National Council on Disability, Washington, D.C. (207 pages)
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National Council on Disability. (2005, December). The state of 21st century long-term services and supports: Financing and systems reform for Americans with disabilities. Washington: National Council on Disability.
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National Council on Disability. (2004, October 26). Consumer-directed health care: How well does it work? Washington, D.C.: National Council on Disability. Retrieved August 5, 2005, from http://www.ncd.gov/newsroom/publications/2004/publications.htm
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National Council on Disability. (August 2009). Effective Emergency Management: Making Improvements for Communities and People with Disabilities. Washington, D.C.: National Council on Disability.
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Navaie-Waliser, M., Feldman, P.H., Gould, D.A., Levine, C. Kuerbis, A.N. & Donelan, K. (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92 (3), 409-413.
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Navaie-Waliser, M., Feldman, P.H., Gould, D.A., Levine, C., Kuerbis, A.N. & Donelan, K. (2001). The experiences and challenges of informal caregivers: Common themes and differences among whites, blacks and Hispanics. Gerontologist, 41 (6), 733-741.
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Navaie-Waliser, M., Spriggs, A., & Feldman P.H. (2002). Informal caregiving - Differential experiences by gender. Medical Care, 40 (12), 1249-1259.
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Neufeld, A., Harrison, M.J., Stewart, M. & Hughes, K. (2008). Advocacy of women family caregivers: Response to nonsupportive interactions with professionals. Qualitative Health Research, 18, 3, 301-310.
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Newacheck, P.W., Houtrow A.J., Romm, D.L., Kuhlthau, K.A., Bloom, S.R., Van Cleave, J.M., & Perrin J.M, (2009). The Future of Health Insurance for Children With Special Health Care Needs
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Newcomer, R. T. Clay, K. Yaffe, K. Covinsky. 2005. Medicare Expenditures at the End of Life for Persons with Dementia. Journal of the American Geriatric Society, 53 (11): 2001-2006.
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Newcomer, R., Graham, C.G., Sotelo, E., Anderson, L. (2004) Nursing Home Transition: Implementing the Program Providing Assistance to Caregivers in Transition (PACT) Published on the Center for PAS website.
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Newcomer, R., Kang, T., LaPlante, M., and Kaye, S. (2005). Living quarters and unmet need for personal care assistance among adults with disabilities. Journal of Gerontology: Social Sciences, 60B(4): S205-S213.
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Newcomer, R., T. Kang, C. Graham. 2007. Outcomes in a nursing home transition case management program targeting new admissions. Gerontologist, 46: 385-390.
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Newcomer, R.J., Covinsky, T., Clay, K., and Yaffe, K. 2003. Predicting 12-Month Mortality for Persons with Dementia. Journal of Gerontology: Social Sciences, 58(3):S187-S198.
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Ng, T., Harrington, C. & O’Malley, M. (November 2009). Medicaid Home and Community-Based Service Programs: Data Update. Washington, D.C.: Kaiser Commission on Medicaid and the Uninsured. Retrieved December 8, 2009, from:
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Ng, T., Harrington, C., and O’Malley, M. 2008. Medicaid Home and Community Based Service Programs: Data Update. December.Washington, DC: Kaiser Commission on Medicaid and the Uninsured.
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Ng, T., Harrington, C., Kitchener, M. (2010). Medicare and Medicaid in long-term care. Health Affairs, 29 1, 22-28.
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Ng, T., Kitchener, M., and Harrington, C. (2005). Medicaid Home Care Waivers for Persons with HIV/AIDS: Program Expenditures, Participants and Policies. AIDS and Public Policy Journal 19/3,4: 95-109
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Nicholas, R. B.; Luecking, R. G.; Luecking, D. M. (2006) Customized Employment: From Practice to Policy. Journal of Applied Rehabilitation Counseling. 37(4) 36-42
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Nicols, L. O., Chang, C., Lummus, A., Burns, R., Martindale-Adams, J., Graney, M. J., et al. (2008). The cost-effectiveness of a behavior intervention with caregivers of patients with Alzheimer's disease. Journal of the American Geriatrics Society, 56, 3, 413-420.
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Nijland, N., van Gemert-Pijnen, J., Boer, H., Steehouder, M. F., & Seydel, E. R. (2008). Evaluation of internet-based technology for supporting self-care: problems encountered by patients and caregivers when using self-care applications. Journal of Medical Internet Research, 10, 2, e13.
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Nyberg, J.P. (Spring 2010). Community College and Caregiver Training: Implications for Policymakers. New York, NY: International Longevity Center USA. Retrieved on March 25, 2010 from:
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O'Brien, D., Revell, G., & West, M. (2003). The impact of the current employment policy environment on the self-determination of individuals with disabilities. Journal of Vocational Rehabilitation, 19 (2), 105-118.
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OECD. (2005). Ensuring quality long-term care for older people. OECD Policy Brief. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from:
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OECD. (2006). Projecting OECD health and long-term care expenditures. What are the main drivers? Economics Department Working Papers, No. 477. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from:
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Office Of The Legislative Auditor State Of Minnesota, Program Evaluation Division. Evaluation report: Personal Care Assistance. January 2009.
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Oktay, J.S. & Tompkins, C.J. (2004). Personal assistance providers' mistreatment of disabled adults. Health and Social Work, 29, 3, 177-188.
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Okumura, M.J., Van Cleave, J., Gnanasekaran, S., & Houtrow, A. Understanding Factors Associated with Work Loss for Families Caring for CSHCN. PEDIATRICS Vol. 124 Supplement December 2009.
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Older Women’s League. (2006). Women and long-term care: Where will I live and who will take care of me? Arlington, VA: Older Women’s League. Retrieved on June 23, 2006 from:
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Olsheski, J., Schelat, R., Moxley, D. P. (Ed); Finch, J. R. (Ed). Reasonable job accommodations for people with psychiatric disabilities. Sourcebook of rehabilitation and mental health practice. (pp. 61-76). Plenum series in rehabilitation and health. New York, NY, US: Kluwer Academic/Plenum Publishers (2003) xv, 490 pp.
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O’Malley Watts, M. (Octber 2009). The Community Living Assistance Services and Supports (CLASS) Act. Washington, D.C.: Kaiser Commission on Medicaid and the Uninsured. Retrieved October 28, 2009, from: http://www.kff.org/healthreform/7996.cfm
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O’Meara, J., Kitchener, M., Collier, E., Lyons, M., Billwiller-Kiss, A., Simon, L.P. & Harrington, C. (2005). Development of and stakeholder responses to a nursing home consumer information system. American Journal of Medical Quality, 20, 1, 40-50.
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Pandya, S.M. (2005). Racial and ethnic differences among older adults in long-term care service use. AARP Public Policy Institute Fact Sheet: Washington, D.C.
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Paraprofessional Healthcare Institute (2004). Direct care worker associations: Empowering workers to improve the quality of home- and community-based care. (Workforce Tools, No. 3). Bronx, NY: Paraprofessional Healthcare Institute. Retrieved on May 9, 2006, from
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Paraprofessional Healthcare Institute & The Institute for the Future of Aging Services. (2005). The role of training in improving the recruitment and retention of direct-care workers in long-term care. (Workforce Strategies No. 3) New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=150710
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Paraprofessional Healthcare Institute. (2003). Personal assistance services and direct-support workforce: A literature review. New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Paraprofessional Healthcare Institute. (2004). Employing, supporting, and retaining your personal assistant: An orientation workshop for people with disabilities. New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=262610
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Paraprofessional Healthcare Institute. (2006). Reimbursement practices and issues in Vermont's long-term care programs. A report prepared by the Paraprofessional Healthcare Institute for the Long-Term Care Workforce Policy Committee of the Community of Vermont Elders. Accessed November 20, 2006 from:
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Paraprofessional Healthcare Institute. (2008). Occupational projections for direct-care workers 2006-2016. Bronx, NY: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (December 2008). Michigan’s Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (January 2009) Who Are Direct Care Workers? Bronx, NY: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (March 2009). Vermont’s Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (October 2009). New York City’s Home Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (October 2009). Pennsylvania’s Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (September 2009). Iowa’s Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (September 2009). Massachusetts’ Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (2005, January). The role of training in improving the recruitment and retention of direct-care workers in long-term care. Workforce Strategies, No. 3. Paraprofessional Healthcare Institute, New York.
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Paraprofessional Healthcare Institute. (2006). Peer mentoring: A workshop series for direct-care workers in home and residential care. Paraprofessional Healthcare Institute Teaching Tool: Bronx, NY.
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Paraprofessional Healthcare Institute. (July 2009). Illinois’ Direct-Care Workforce: State Facts. Bronx, NY.: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. (July 2009). State chart book on wages from personal and home care aides, 1999-2008. Bronx, NY: Paraprofessional Healthcare Institute.
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Paraprofessional Healthcare Institute. Wages and Benefits Return of Investment Calculator.
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Parker, M. & Bergmark, E. (2004). Reforming the system for workers providing homecare. Healthcare & Aging, 11, 4, 3-7.
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Parker, V.A. & Miyake, S. (2007). Cultural Competence in Nursing Homes: Issues and Implications for Education. Gerontology & Geriatrics Education, 28, 2, 37-54.
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Parsons, M. B., Reid, D. H., Green, C. W., Browning, L. B. (2001). Reducing job coach assistance for supported workers with severe multiple disabilities: An alternative off-site/on-site model. Research in Developmental Disabilities. 22(2) 151-164
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Parsons, M. B., Reid, D. H.; Green, C. W.; Browning, L. B.; Hensley, M. B. (2002). Evaluation of a shared-work program for reducing assistance provided to supported workers with severe multiple disabilities. Research in Developmental Disabilities. 23(1) 1-16
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Pavelcheck, D. and Mann, C. (2007). Evaluation of interventions to improve recruitment and retention: Summary of results. Olympia, WA.: Social & Economic Sciences Research Center, Washington State University.
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PHI (2008). State Chart Book On Wages For Personal And Home Care Aides, 1999‐2006. (July 2008) Prepared for the Center for Personal Assistance Services by PHI.
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Phillips, B. & Schneider, B.. (2004). Changing to consumer-directed care: The implementation of the Cash and Counseling Demonstration in Florida. Princeton, NJ: Mathematica Policy Research, Inc. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/flchange.htm
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Piercy, K.W. & Dunkley, G.J. (2004). What quality paid home care means to family caregivers. Journal of Applied Gerontology, 23, 3, 175-192.
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Pillemer, K. & Suitor, J.J. (2006). Making choices: A within-family study of caregiver selection. Gerontologist, 26, 4, 439-448.
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Pillemer, K., Czaja, S., Schulz, R. & Stahl, S.M. (2003). Finding the best ways to help: Opportunities and challenges of intervention research on aging. Gerontologist, 43, Suppl 1, 5-8.
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Pillemer, K., Suitor, J. & Wethington, E. (2003). Integrating theory, basic research and intervention: Two case studies from caregiving research. Gerontologist, 43, Suppl 1, 19-28.
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Pita, D.D., Ellison, M.L., Farkas, M., & Bleecker, T. (2001). Exploring personal assistance services for people with psychiatric disabilities. Journal of Disability Policy Studies, 12 (1), 2-9.
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Plumb, M., Weitz, T., Hernandez, M., Estes, C.L. & Goldberg, S. (2007). Improving care and assistance security for vulnerable older women in California. Los Angeles: The California Endowment. Retrieved June 27, 2007 from:
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Porter, E.J. & Lasiter, S. (2004). Marker of older widows' trust of nonprofessional home-care helpers. Care Management Journals, 5, 3, 145-150.
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Porter, E.J., Ganong, L.H., Drew, N. & Lane, T.I. (2004). A new typology of home-care helpers. Gerontologist, 44 (6): 750-759.
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Powers, L.E., Sowers, J. & Singer, G.H.S. (2006). A Cross-Disability Analysis of Person-Directed, Long-Term Services. Journal of Disability Policy Studies. Vol 17(2) 66-76.
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President of the United States (2004). New Freedom Initiative: A progress report. Washington, DC: Author.
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President's Committee on Employment of People with Disabilities, Washington, DC (1994). Operation People First: Toward a national disability policy. Journal of Disability Policy Studies. 5(2) 81-106
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Presidential Task Force on Employment of People with Disabilities (2002). People with disabilities: Strengthening the 21st century workforce. Washington, DC: Author.
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Priester, R. & Reinardy, J. R. (2003). Recruiting immigrants for long-term care nursing positions. Journal of Aging and Social Policy, 15(4), 1-19.
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Prince, H. (2006). Creating careers, improving care: A win-win economic advancement strategy for certified nursing assistants in long-term care. Boston, MA: Jobs for the Future. Retrieved on August 3, 2006 from:
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Punch, R., Hyde, M., & Creed, P.A. (2004). Issues in the School-to-Work Transition of Hard of Hearing Adolescents. American Annals of the Deaf. Vol 149(1) 28-38.
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Purdin, L., Liese, H., & Lehmann, S. (2003). Employer perception of need when hiring and retaining people with disabilities, Salt Lake City, UT: Utah Governor’s Committee on Employment of People with Disabilities.
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Rabinowitz, Y., Mausbach, B.T., Thompson, L.W., Gallagher-Thompson, D. (2007). The relationship between self-efficacy and cumulative health risk associated with health behavior patterns in female caregivers of elderly relatives with Alzheimer's dementia. Journal of Aging and Health, 19, 6, 946-964.
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Rabren, K.; Curtis, R. S.,Martin Jr., E. D. (Ed). (2007) Principles and practices of case management in rehabilitation counseling (2nd Ed.). (pp. 33-70). Springfield, IL, US: Charles C. Thomas Publisher xxix, 349 pp.
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Radtke, J. (1998). Achieving successful employment outcomes with the use of assistive technology. Twenty-fourth Institute on Rehabilitation Issues. Menomonie, WI: University of Wisconsin-Stout, Stout Vocational Rehabilitation Institute.
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Ranney, M. (2005). The cultures of caregiving: Conflict and common ground among families, health, professionals, and policy makers. (Book review). Journal of Women & Aging, 17, 3, 109.
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Redfoot, D.L. & Houser, A.N. (2005). "We shall travel on": Quality of care, economic development, and the international migration of long-term workers. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Reiss, J; Gibson, R. W. Betz, C. L. (Ed); Nehring, W. M. (Ed). Developing transition health care plans. Promoting health care transitions for adolescents with special health care needs and disabilities. (pp. 137-154). Baltimore, MD, US: Paul H Brookes Publishing (2007) xiii, 311 pp
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Research and Training Center on Community Living. (December 2006). CMS Direct Service Workforce Demonstration Promising Practices in Marketing, Recruitment and Selection Interventions. University of Minnesota.: Minneapolis, MN. Retrieved May 14, 2007 from: http://rtc.umn.edu/publications/
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Research and Training Center on Disability in Rural Communities, University of Montana Rural Institute (March 2008). Nursing Home Emancipation: Accomplishments of Urban and Rural Centers for Independent Living. Rural Disability and Rehabilitation Research Progress Report #39
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Rhee, Y., Degenholtz, H.B., Lo Sasso, A.T. & Emanuel, L.L. (2009). Estimating the quantity and economic value of family caregiving for community-dwelling older persons in the last year of life. Journal of the American Geriatrics Society, 57, 9, 1654-1659.
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Ridley, J., Hunter, S. (2006). The development of supported employment in Scotland. Journal of Vocational Rehabilitation. 25(1) 57-68
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Rivera, P. A., Elliott, T. R., Berry, J. W., & Grant, J. S. (2008). Problem-solving training for family caregivers of persons with traumatic brain injuries: a randomized controlled trial. Archives of Physical Medicine and Rehabilitation, 89, 5, 931-941.
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Robert Wood Johnson Foundation. (2006). Workgroup's recommendations help HMOs identify and care for high-risk chronically ill older patients. Princeton, NJ: Robert Wood Johnson Foundation. Retrieved on December 7, 2006 from:
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Roper Public Affairs and Media. (2006). The costs of long-term care: Public perceptions versus reality in 2006. Washington, D.C.: AARP Public Policy Institute. Retrieved January 13, 2007 from:
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Rosenbaum, S & Teitelbaum, J. (2004). Olmstead at five: Assessing the impact Kaiser Commission on Medicaid and the Uninsured.The Kaiser Family Foundation, Washington D.C. (34 pages)
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Rosenbaum, S, Burke, T & Teitelbaum, J. (2003) The Americans with Disabilities Act and community integration: An update on "Fundamental Alteration" litigation. Center for Health Care Strategies, Inc.
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Roth, D.L., Haley, W.E., Wadley, V.G., Clay, O.J. & Howard, G. (2007). Race and gender differences in perceived caregiver availability for community-dwelling middle-aged older adults. Gerontologist, 47, 6, 721-729.
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Roy, A. W. N.; Dimigen, G.; Taylor, M. (1998). The relationship between social networks and the employment of visually impaired college graduates. Journal of Visual Impairment & Blindness. 92(7) 423-432
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Rozario, P.A. & DeRienzis, D. (2008). Familism beliefs and psycholoigcal distress among African American women caregivers. Gerontologist, 48, 6, 772-780.
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Rudowitz R. (January 2008). Medicaid: Overview and Impact of New Regulations. Kaiser Commission on Medicaid and Uninsured.
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Ryan, P., Howell, V., Jones, J., & Hardy, E. (2008). Lung cancer, caring for the caregivers. A qualitative study of providing pro-active social support targeted to the carers of patients with lung cancer. Palliative Medicine, 22, 3, 233-238.
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Sabata, D.; Bruce, C.; Sanford, J. 2006. Preparing Home Health Clients for Work Opportunities With Workplace Accommodation. Home Health Care Management & Practice. 19(1) 12-18.
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Salomone, P. R., Paige, R. E. (1984). Employment problems and solutions: Perceptions of blind and visually impaired adults. Vocational Guidance Quarterly. 33(2) 147-156
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Salter, V. & Wilner, M.A. (2006). Conversations about the future of direct-care workforce research. Bronx, NY: National Clearinghouse on the Direct Care Workforce and the Direct Care Workers. Retrieved January 13, 2007 from:
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San Antonio, P.M., Eckert, J.K. & Simon-Rusinowitz, L. (2006). The importance of relationship: Elders and their paid family caregivers in the Arkansas Cash and Counseling Qualitative Study. Journal of Applied Gerontology, 25, 1, 31-48.
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Sanders, S. & Adams, K.B. (2005). Grief reactions and depression in caregivers of individuals with Alzheimer's disease: Results from a pilot study in an urban setting. Health and Social Work, 30, 4, 287-295.
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Saxton, M. (Ed.). (2009). Sticks and stones: Disabled people’s stories of abuse, defiance and resilience. Oakland, CA: World Institute on Disability.
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Scala, E., Hendrickson, L., & Regan, C. (2008). A compendium of three discussion papers: Strategies for promoting and improving the direct service workforce. Applications to Home and Community-Based Services, Community, Community Living Exchange Collaborative. New Brunswick, NJ: Rutgers Center for State Health Policy.
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Scala, Elise. (2005). The illustrated history of Maine PASA: Establishing an association for direct care and direct support workers in Maine. Portland, ME: University of Southern Maine, Edmund S. Muskie School of Public Service, Institute for Health Policy. Retrieved June 18, 2006, from:
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Scharlach, A. E., Giunta, N., Chow, J. C., & Lehning, A. (2008). Racial and Ethnic Variations in Caregiver Service Use. Journal of Aging and Health, 20, 3, 326-346.
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Scharlach, A., Sirotnik, B., Bockman, S., Neiman, M., Ruiz, C. & Dal Santo, T. (2003, February) A profile of family caregivers: Results of the California statewide survey of caregivers. Center for the Advanced Study of Aging Services, University of California Berkeley, Berkeley, CA
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Scharlach, A.E., Gustavson, K., Dal Santo, T.S. (2007). Assistance received by employed caregivers and their care recipients: Who helps care recipients when caregivers work full time? Gerontologist, 47, 6, 752-762.
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Scharlach, A.E., Kellam, R., Ong, N., Baski, A., Goldstein, C. & Fox, P.J. (2006). Cultural attitudes and caregivers service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47, 1/ 2, 135-158.
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Schartz, H., Hendricks, D.J., & Blanck, P. (2006). Workplace accommodations: Evidence-based outcomes. Work, 27, 4, 345-354.
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Scherzer, T. (2005, December 13). Homecare workers experiences of and responses to occupational injury: Preliminary results from a qualitative study. Presented at the 2005 American Public Health Association 133rd Annual Meeting.
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Scherzer, T. & Wolfe, N. (2008). Barriers to workers' compensation and medical care for injured Personal Assistance Services workers. Home Health Care Services Quarterly, vol. 27 (1), 2008.
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Scherzer, T., & Newcomer, R. (2007). Barriers to documenting occupational injuries among personal assistance services workers. American Journal of Industrial Medicine, 50, 7, 536-44.
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Scherzer, T., Chapman, S. & N. Newcomer. (2006). Integrating occupational health and safety into the United States' personal assistance services workforce agenda. In S. Kunkel and V. Wellin (Eds.), Consumer voice and choice in long-term care. (Chapter 6). New York, NY: Springer Publishing.
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Scherzer, T., Chapman, S., & Newcomer, R. ( June, 2004 ) Lost-worktime injuries and illnesses of Nursing Aides, Orderlies, and Attendants. Published on the Center for PAS website.
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Scherzer, T., Chapman, S., Newcomer, R. (2004). Workforce Development Projects in Personal Assistance Services. Published on the Center for PAS website http://pascenter.org/state_based_stats/workforce_projects_inventory_home.php
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Scherzer, T., Wong, A. and Newcomer, R. (2007). Financial management services in consumer-directed programs. Home Health Care Services Quarterly, 26, 1, 29-42.
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Schneider, M. (1999). Achieving greater independence through assistive technology, job accommodation and supported employment. Journal of Vocational Rehabilitation. 12(3) 159-164
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Schopp, L. H.; Clark, M. J.; Hagglund, K. J.; Sherman, A. K.; Stout, B. J.; Gray, D. B.; Boninger, M. L. (2007). Life Activities Among Individuals With Spinal Cord Injury Living in the Community: Perceived Choice and Perceived Barriers. Rehabilitation Psychology. 52(1) 82-88
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Schopp, L. H.; Clark, M. J.; Hagglund, K. J.; Sherman, A. K.; Stout, B. J.; Gray, D. B.; Boninger, M. L. (2007). Life Activities Among Individuals With Spinal Cord Injury Living in the Community: Perceived Choice and Perceived Barriers. Rehabilitation Psychology. 52(1) 82-88
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Schore, Jennifer, and Barbara Phillips. (2004). Consumer and Counselor Experiences in the Arkansas Independent Choices Program. Princeton, NJ: Mathematica Policy Research, Inc. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/arkexp.htm
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Schubert, C.C., Boustani, M., Callahan, C.M., Perkins, A.J., Hui, S. and Hendrie, H.C. (2008). Acute Care Utilization by Dementia Caregivers Within Urban Primary Care Practices. Journal of General Internal Medicine. Volume 23, number 11, November 2008.
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Schwanke, T. D., Smith, R. O. (2005). Assistive technology outcomes in work settings. Work: Journal of Prevention, Assessment & Rehabilitation. 24(2) 195-204
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Sciegaj, M., Capitman, J.A. & Kyriacou, C.K. (2004, August). Consumer-directed community care: Race/ethnicity and individual differences in preferences for control. Gerontologist, 44 (4): 489-499.
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Seavey, D. (2004, October). The cost of frontline turnover in long-term care. Better Jobs Better Care Practice & Policy Report: 1-3.
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Seavey, D. & Nakhnikian, E. (2005). Family care and paid care: Separate worlds or common ground? (Better Jobs Better Care Issue Brief No. 5). Washington, D.C.: Institute for the Future of Aging Services. Retrieved March 13, 2006, from:
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Seavey, D. & Salter, V. (2006). Bridging the gaps: State and local strategies for ensuring backup personal care services. Washington, D.C.: AARP Public Policy Institute. Retrieved on October 8, 2006 from:
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Spandler, H. & Vick, N. (2006). Opportunities for independent living using direct payments in mental health. Health and Social Care in the Community, 14, 2, 107-115.
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Squillace, M.R., Remsburg, R.E., Harris-Kojetin, L.D., Bercovitz, A., Rosenoff, E. & Han, B. (2009). The National Nursing Assistant Survey: Improving the evidence base for policy initiatives to strengthen the certified nursing assistant workforce. Gerontologist, 49, 2, 185-197.
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Stacey, C.L. (2005). Finding dignity in dirty work: The constraints and rewards of low-wage home care labour. Sociology of Health & Illness, 27 (6), 831-854.
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Stapleton, D., Nowak, M., & Livermore, G. (2001). The role of supports in successful labor force entry for youth with disabilities. Falls Church, VA: The Lewin Group.
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Stoddard, S. & Kraus, L. (2006). Arranging for personal assistance services and assistive technology at work. A report of the Rehabilitation Research and Training Center on Personal Assistance Services. Disability and Rehabilitation: Assistive Technology, 1(1-2), 89-95.
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Stoddard, S. (2006). Personal assistance services as a workplace accommodation. Work: A Journal of Prevention, Assessment and Rehabilitation, 27(4), 363-369.
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Stone, D. (2006). Providing personal assistance services through a Medicaid State Plan Option. Center for Workers with Disabilities. Retrieved August 24, 2006 from http://www.aphsa.org/disabilities/home/docs/PAS%20as%20a%20State%20Plan%20Option-%20Doug%20Stone.pdf
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Summer, L. (2007). Community-based long-term services financed by Medicaid: Managing resources to provide appropriate Medicaid services. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved June 25, 2007, from: http://ltc.georgetown.edu/pdfs/summer0607.pdf
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Summer, L., Friedland, R., Mack, K. & Mathieu, S. (2004, August). Measuring the years: State aging trends and indicators. Center on an Aging Society Health Policy Institute, Georgetown University, For the National Governors Association Center for Best Practices, Washington, D.C.
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Swan, J.H. & Harrington, C. (2007). California nursing facility quality and union environments. Journal of Aging & Health, 19, 2, 183-199.
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Swan, J.H., Harrington, C., Dryer, K., Pickard, R.B., Covert, J.M. & Gulur, P. (2007) Medicaid Nursing Facility Payment in the Face of State Fiscal Meltdown. Long Term Care Interface. In Press.
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Various authors. Promising practices: Home and community-based services for the elderly and people with disabilities. National Conference of State Legislators, 2002
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Wallace SP, Padilla-Frausto DI, Mendez-Luck CA, Benjamin AE, Durazo E, Pourat N. (February 2010). Budget Proposals Turn Back Clock 30 Years in Long-Term Care Services for California Seniors. Los Angeles, CA: UCLA Center for Health Policy Research.
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Wallace, S.P., Benjamin, A.E., Villa, V.M. & Pourat, N. (October 2009). California Budget Cuts Fray the Long-Term Safety Net. Los Angeles, CA: UCLA Center for Health Policy Research.
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Waterstone, D., Kang, T., Flores, C., Howes, C., Harrington, C. & Newcomer, R. (2004) California's In-Home Supportive Services program: Who is served? Published on the Center for PAS website http://www.pascenter.org/documents/IHSS_Final_Report.pdf
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Wehman, P.; Revell, G.(2005). Lessons Learned From the Provision and Funding of Employment Services for the MR/DD Population: Implications for Assessing the Adequacy of the SSA Ticket to Work. Journal of Disability Policy Studies. 16(2) 84-101
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Wehmeyer, M. L., Palmer, S. B., Smith, S. J., Parent, W., Davies, D. K., Stock, S. (2006). Technology use by people with intellectual and developmental disabilities to support employment activities: A single-subject design meta analysis. Journal of Vocational Rehabilitation. 24(2) 81-86
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Weiner, J. (2003). Medicaid and Work Incentives for People with Disabilities: Background and Issues. The Urban Institute, Washington, DC.
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Weissert, W.G., Cready, C.M. & Pawelak, J.E. (2005). The past and future of home- and community-based long-term care. The Milbank Quarterly, 83, 4, Online-only.
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Wells, S., Hedt, A., Chapman, S., Bakerjian, D., Fagin, C.M., Bryant, N., Toten, A., Goldbert, L. & Ruff, A. (August 2009). Perspectives On: Investing in California’s Direct Care Workforce by Increasing Geriatric Training Opportunities. Long Beach, CA: The SCAN Foundation.
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Wewiorski, N J., Fabian, E. S. (2004). Association between demographic and diagnostic factors and employment outcomes for people with psychiatric disabilities: A synthesis of recent research. Mental Health Services Research. 6(1) 9-21
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Wheeler-Scruggs, K. (2002) Assessing the employment and independence of people who are deaf and low functioning. American Annals of the Deaf. Oct Vol 147(4) 11-17
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White, G.W., Fox, M.H. & Rooney, C. (2007). Assessing the impact of Hurricane Katrina on persons with disabilities. Lawrence, KS: The University of Kansas, The Research and Training Center on Independence Living. Retrieved April 30, 2007 from: http://www.rtcil.org/products/NIDRR_FinalKatrinaReport.pdf
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Whittier, S., Scharlach, A.E. & Dal Santo, T.S. (2005). Availability of caregiver support services: Implications of the National family Caregiver Support Program. Journal of Aging & Social Policy, 17 (1), 45-62.
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Wiener, J.M. (March 2009) Long-term care: Options in an era of health reform. Washington, DC: The SCAN Foundation.
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Wiener, J.M. Long-Term Care: Options In An Era Of Health Reform. Washington, DC: The SCAN Foundation. Expanded Edition April 2009.
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Wiener, J.M., Anderson, W.L. & Khatutsky, G. (2007). Are consumer-directed home care beneficiaries satisfied? Evidence from Washington state. Gerontologist, 47, 6, 763-774.
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Wiener, J.M., Squillace, M.R., Anderson, W.L. & Khatutsky, G. (2009). Why do they stay? Job tenure among certified nursing assistants in nursing homes. Gerontologist, 49, 2, 198-210.
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Wiener, J.M., Squillace, M.R., Anderson, W.L., & Khatusky, G. (2009). Why do they stay? Job tenure among certified nursing assistants in nursing homes. Gerontologist, 49, 2, 198-210.
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Willette-Murphy, K., Todero, C. & Yeaworth, R. (2006). Mental health and sleep of older wife caregivers for spouses with Alzheimer's disease and related disorders. Issues in Mental Health Nursing, 27, 8, 837-852.
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Williams, B., & Tolbert , J. (2007). Aging Out of Early and Periodic Screening, Diagnostic and Treatment (EPSDT): Issues for Young Adults with Disabilities. Association of University Centers on Disabilities and the Kaiser Commission on Medicaid and the Uninsured.
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Williams, B., Dulio, A., Claypool, H., Perry, M.J., and Cooper, B.S. Waiting for Medicare: Experiences of Uninsured People with Disabilities. The Commonwealth Fund, October 2004.
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Wisconsin Grantee produced (June, 2007). Wisconsin's Guardian Mentor Program.
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Wolffe, K. E., Candela, T., Johnson, G. (2003). Wired to work: A qualitative analysis of assistive technology training for people with visual impairments. Journal of Visual Impairment & Blindness. 97(11) 677-694
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Yamada, Y. & Sekiya, M. (2003). Licensing and training requirements for direct care workers in Japan: what can the United States and Japan learn from each other? Journal of Aging and Social Policy, 15 (4), 113-29.
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Yeager, P., Kaye, H.S., Reed, M., & Doe, T.M. 2007. Assistive Technology and Employment: Experiences of Californians with Disabilities. Work, 27 (4), 333-344.
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Yip, J.Y., Myrtle, R.C., Wilber, K.H. & Grazman, D.N. (2002). The networks and resource exchanges in community-based systems of care. Journal of Health and Human Services Administration, 25, 1/2, 219-259.
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Yoshida, K., Willi, V., Parker, I. & Locker, D. (2004). The emergence of self-managed attendant services in Ontario: Direct funding pilot project. An independent living model for Canadians requiring attendant services. Research in the Sociology of Health Care, 22, 177-204.
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Young, A.J. (2003). The evolution of personal assistance services as a workplace support. Journal of Vocational Rehabilitation, 18(2), 73-80.
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Young, L. & Newman, S. (2003, December). Caregiving and retirement planning: What happens to family caregivers who leave the workforce (Policy Brief). San Francisco, CA: Family Caregiver Alliance.
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Zabin, C. (2006). Quality services and quality jobs for supporting Californians with developmental disabilities. California Policy Research Center Author’s Report. Berkeley, CA: University of California. Retrieved on July 26, 2006 from: http://laborcenter.berkeley.edu/healthcare/index.shtml
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Zacharias, Lee. (June 2004). Cash and counseling demonstration and evaluation report on Florida paid worker focus groups.
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Zacharias, Lee. (June 2004). Cash and counseling demonstration and evaluation report on New Jersey paid worker focus groups.
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Zimmerman, M.K., Litt, J.S. & Bose, C.E. (2006). Global dimensions of gender and carework. Palo Alto, CA: Stanford University Press.
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Zola, I.K. (2005). Toward the necessary universalizing of a disability policy. The Milbank Quarterly, 83, 4, Online-only.
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Zuckerman, S., Miller, D.M. & Pape, E.M. (2009). Missouri’s 2005 Medicaid cuts: How did they affect enrollees and providers? Health Affairs, 28, 2, w335-w345.
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