Engelberg Center for Health Care Reform at the Brookings Institution. (2010, October). Achieving Better Chronic Care at Lower Costs Across the Health Care Continuum for Older Americans. Washington, DC: Author.

Kaye, H.S. (2010, October). The impact of the 2007–09 recession on workers with disabilities. Monthy Labor Review Online, 133(10)

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2010, October). Workplace Personal Assistance Services (PAS) for People with Disabilities: Making Productive Employment Possible. Journal of Rehabilitation, 76(4), pp.3-8.

Benson, C. (2010, September). Legal Victories, Economic Defeats. CQ Weekly, September, pp.2220-2225.

Carlson, E. & Coffey, G. (2010, September ). 10-Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center.

Carlson, E., & Coffey, G. (2010, September). 10 Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center. Retrieved September 29th, 2010 from http://www.thescanfoundat ion.org/sites/default/fil es/NSCLC_Olmstead.pdf

Langer Ellison, M., Glazier, R.E., O'Connell, E., Norton, G & Himmelstein, J. (2010, September ). Design Features for Employment-Supportive Personal Assistance Services in Medicaid Programs. Journal of Disability Policy Studies, 21(2), pp.90-100. doi: 10.1177/1044207310370682

Wallace, S.P., Padilla-Frausto, D.I. & Smith, S.E. (2010, September). Older Adults Need Twice the Federal Poverty Level to Make Ends Meet in California. (PB2010-8). Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved 15th September, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/elder_ index-brief-0910.pdf

The SCAN Foundation. (2010, August). Federal Health Care Reform and its Potential Impact on California's Long‐Term Care System. (Policy Brief No.3). Long Beach, CA: Author. Retrieved September 27th, 2010 from http://www.thescanfoundat ion.org/sites/default/fil es/TSF Policy Brief No 3 .pdf

Cubanski, J. & Neuman, P. (2010, August). Medicare Doesn't Work As Well For Younger, Disabled Beneficiaries As It Does For Older Enrollees. Health Affairs, 29(9) Retrieved August, 2010 from http://content.healthaffa irs.org/cgi/content/full/ hlthaff.2009.0962v1 . doi: 10.1377/hlthaff.2009.0962

Eiken, S., Burwell, B., Gold, L., & Sredl, K. (2010, August). Medicaid HCBS Waiver Expenditures FY 2004 Through FY 2009. Cambridge, MA.: Thomson Reuters. Retrieved 8th September, 2010 from http://www.hcbs.org/moreI nfo.php/doc/3326

Friedman, E.M. & Seltzer, J.A. (2010, August). Providing for Older Parents: Is It a Family Affair? Los Angeles, CA: California Center for Population Research. Retrieved August 26, 2010 from http://papers.ccpr.ucla.e du/papers/PWP-CCPR-2010-0 12/PWP-CCPR-2010-012.pdf

PHI. (2010, July). State Chart Book On Wages For Personal And Home Care Aides, 1999‐2009. Bronx, NY: Author. Retrieved 8th July, 2010 from http://www.directcareclea ringhouse.org/download/PC A_Wage_Chart_Book_1999_20 09.pdf

Cassidy, A. (2010, July). Extra Federal Support for Medicaid. Princeton, NJ: Health Affairs/Robert Wood Johnson Foundation Health Policy Brief Series. Retrieved July 28, 2010 from http://www.rwjf.org/healt hpolicy/product.jsp?id=65 908

Johnson, K. (2010, June). Managing the "T" in EPSDT Services. Washington, DC: National Academy for State Health Policy. Retrieved 10th June 2010 from http://nashp.org/sites/de fault/files/ManagingTheTi nEPSDT.pdf

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author. Retrieved August, 2010 from http://www.hscfoundation. org/aboutus/publications/ caregivers_brief.pdf

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author.

Engquist, G., Johnson, C. & Courtland Johnson, W. (2010, May). Systems of Care: Environmental Scan of Medicaid-Funded Long-Term Supports and Services. Hamilton, NJ: Center for Health Care Strategies, Inc.. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253866

Engquist, G., Johnson, C. & Courtland Johnson, W. (2010, May). Medicaid-Funded Long-Term Supports and Services: Snapshots of Innovation. Hamilton, NJ: Center for Health Care Strategies, Inc.. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253869

Engquist, G., Johnson, C., Lind, A. & Palmer Barnette, L. (2010, May). Medicaid-Funded Long-Term Care: Toward More Home- and Community-Based Options. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253871

Napoles, A.M., Chadiha, L., Eversley, R. & Moreno-John G. (2010, May). Reviews: Developing culturally sensitive dementia caregiver interventions: are we there yet? American Journal of Alzheimer's Disease and Other Dementias, 25(5), pp.389-406. doi: 10.1177/1533317510370957

Norton, M.C., Smith, K.R., Østbye, T., Tschanz J.T., Corcoran, C., Schwartz, S., Piercy, K.W., Rabins, P.V., Steffens, D.C., Skoog, I., Breitner, J.C.S. & Welsh-Bohmer, K.A. (2010, May). Greater risk of dementia when spouses have dementia? The Cache County Study. Journal of American Geriatrics Society, 58(5), pp.895-900. doi: 10.1111/j.1532-5415.2010.02806.x

Triantafillou, J., Naiditch, M., Repkova, K., Stiehr, K., Carretero, S., Emilsson, T., Di Santo, P., Bednarik, R., Brichtova, L., Ceruzzi, F., Cordero, L., Mastroyiannakis, T., Ferrando, M., Mingot, K., Ritter, J. & Vlantoni, D. (2010, May). Informal care in the long-term care system. European Overview Paper. (Grant agreement no. 223037). Athens/Vienna: Interlinks. Retrieved August, 2010 from http://www.euro.centre.or g/data/1278594816_84909.p df

Tucker, A.M. & Johnson, K.E. (2010, May). Cross-Payer Effects on Medicare Resource Use: Lessons for Medicaid Administrators. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/Cross PayerEffectsOnMedicareRes ourceUse-LessonsForMedica idAdministrators-May2010. pdf

Center for Medicare Advocacy, Inc.. (2010, April). Interim Final Rules to Implement the Mental Health Parity and Addiction Equity Act of 2008 Go Into Effect on April 5, 2010. CMA Weekly Alert. Washington, DC: Author. Retrieved 4-Apr-10 from http://www.medicareadvoca cy.org/InfoByTopic/Mental Health/10_04.01.MHPAEA.ht m

Minnesota Department of Human Services, Disability Services Division. (2010, March). Personal Care Assistance Services - A Report to the 2010 Minnesota Legislature. St. Paul, MN: Author. Retrieved 11-Jun-10 from http://www.dhs.state.mn.u s/main/groups/disabilitie s/documents/pub/dhs16_149 239.pdf

Center for Medicare Advocacy, Inc. (2010, March). CMS Sanctions Missouri Medicaid for Overly Restrictive Home Health Standards. CMS weekly report. Washington, DC: Author. Retrieved 11-Mar-10 from http://www.medicareadvoca cy.org/InfoByTopic/Medica idAndRelatedTopics/Medica idandRT_10_03.11.Medicaid AndHomeHealth.htm

Albert, S.M. & Schulz, R. (2010, February). New Insights and Innovations for Reducing Health Care Costs for Employers. Westport, CT: MetLife Mature Market Institute. Retrieved 21-Feb-10 from http://www.metlife.com/mm i/research/working-caregi ver-employer-health-care- costs.html#findings

Anderson, G. (2010, February). Chronic Care: Making the Case for Ongoing Care Princeton, NJ: Robert Wood Johnson Foundation.

Fields, N.L. & Dabelko-Schoeny, H. (2010, February). Factors Related to a Successful Transition in the Ohio Medicaid Assisted Living Waiver Program: A Provider's Perspective. Columbus, OH: Ohio Department of Aging, Community Long Term Care Division. Retrieved 11-Jun-10 from http://aging.ohio.gov/res ources/publications/Assis tedLivingProviderPerspect ive2010.pdf

Wallace SP, Padilla-Frausto DI, Mendez-Luck CA, Benjamin AE, Durazo E, Pourat N. (2010, February). Budget Proposals Turn Back Clock 30 Years in Long-Term Care Services for California Seniors. Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved June 10th, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/Budget Proposals_2010_PB_021610. pdf

National Council on Disability. (2010, January). The State of Housing in America in the 21st Century: A Disability Perspective. Washington, DC: Author. Retrieved July 6, 2010 from http://www.ncd.gov/newsro om/publications/2010/A_Di sability_Perspective.html

Minnesota Department of Human Services, Disability Services Division. (2010, January). Annual Report on the Use and Availability of Home and Community-Based Services Waivers for Persons with Disabilities. St. Paul, MN: Author. Retrieved 11-Jun-10 from http://www.dhs.state.mn.u s/main/groups/disabilitie s/documents/pub/dhs16_148 067.pdf

LaPlante, M.P. (2010, January). The classic measure of disability in activities of daily living is biased by age but an expanded IADL/ADL measure is not. Journal of Gerontology: Social Sciences, 65B(1). doi: 10.1093/geronb/gbp129

Steenhausen, S. (2010, January). California's Proposed 2010-2011 Budget: Senior-Related Program Reductions. (Fact sheet, No.1.). Long Beach, CA: The SCAN Foundation.

Tucker, A.M., Johnson, K.E., Huang, Y. & Brewer, T. (2010, January). Examining the Medicare Resource Use of Dually Eligible Medicaid Recipients. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/Exami ningtheMedicareResourceUs eofDuals-January2010.pdf

Mendelsohn, S., Morris, M. & Myhill, W. (2010). State Household and Dependent Care Tax Credits to Support Personal Assistant Services. New York: The Burton Blatt Institute, Syracuse University.

Robert B. Hudson (Ed.) (2010, Winter/Spring). Advancing Home and Community-Based Services: Transforming Policies, Programs, and Service Delivery in Long-Term Care Boston, MA: Public Policy & Aging Report. Retrieved August, 2010 from http://www.hcbs.org/files /193/9616/PP&AR.pdf;

San Francisco. (2010). Health Care Reform and Family Caregivers. Family Caregiver Alliance: Author. Retrieved July 28, 2010 from http://www.caregiver.org/ caregiver/jsp/content_nod e.jsp?nodeid=2397

Family Caregiver Alliance. (2010). Health Care Reform and Family Caregivers. San Francisco: Author. Retrieved July 11, 2010 from http://caregiver.org/care giver/jsp/content_node.js p?nodeid=2397

Kaiser Family Foundation. (2010). Focus on Health: Summary of New Health Reform Law. (#8061). Menlo Park, CA: Author. Retrieved 28-Mar-10 from http://www.kff.org/health reform/upload/finalhcr.pd f

Chen, Y.M. & Thompson, E.A. (2010). Understanding factors that influence success of home- and community-based services in keeping older adults in community settings. Journal of Aging and Health, 23(3), pp.267-291.

Coughlin J. (2010). Estimating the Impact of Caregiving and Employment on Well-Being. Outcomes & Insights in Health Management , 2(1), pp.1-7.

Harrington, C., & Kang, T. (2010). Personal Care Services Utilization By Individuals with Developmental Disabilities. Family Relations, 59(April), pp.136-151.

Kaye, H.S., Harrington, C. & LaPlante, M.P. (2010). Long-term care: Who gets it, who provides it, who pays, and how much? Health Affairs, 29(1), pp.11-21.

LaPlante, M.P. & Kaye, H.S. (2010). Demographics and trends in wheeled mobility equipment use and accessibility in the community. Assistive Technology, 22(1), pp.3-17.

Marziali, E., McCleary, L. & Streiner, D.L. (2010). Evaluation of an Assessment Battery for Estimating Dementia Caregiver Needs for Health and Social Care Services. American Journal of Alzheimer's Disease and Other Dementias, 25(5), pp.446-445.

Misra, S., Orslene, L.E. & Walls, R.T. (2010). Personal assistance services (PAS) for workers with disabilities: Views and experiences of employers. Journal of Rehabilitation, 76(1), pp.22-27.

Neri, M., Wong, A., & Harrington C. (2010). Draft. Barriers to Use of Personal Assistance Services (PAS) in Workplace Settings. San Francisco, CA: Center for Personal Assistance Services, University of California.. Retrieved 15th May, 2010 from http://www.pascenter.org/ documents/IHSS_FINAL_Repo rt_043010.pdf

Ng, T., Harrington, C., Kitchener, M. (2010). Medicare and Medicaid in long-term care. Health Affairs, 29(1), pp.22-28.

Nyberg, J.P. (2010, Spring). Community College and Caregiver Training: Implications for Policymakers. (Caregiving Brief). New York, NY: International Longevity Center USA. Retrieved 25-Mar-10 from http://www.ilcusa.org/pag es/publications/caregivin g/community-colleges-and- caregiver-training-implic ations-for-policymakers.p hp

Schwalb, E. (2010). Makin v. Hawaii: The right of Medicaid beneficiaries to home-based services as an alternative to institutionalization. Georgia State University Law Review, 26(3), pp.803-854.

Solovieva, T.I, Walls, R.T. & Dowler D.L. (2010). Personal Assistance Services (PAS) for Individuals with Disabilities: Self-Care at the Workplace. WORK: A Journal of Prevention, Assessment & Rehabilitation, 36(3), pp.339-343. doi: 10.3233/WOR-2010-1035

Wadensten, B. & Ahlström, G. (2010). Ethical values in personal assistance: Narratives of people with disabilities. Nursing Ethics, 16(6), pp.759-774.

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: The Older Adults Waiver. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-OlderAdultsW aiver-December2009.pdf

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: The Living at Home Waiver. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-LivingAtHome Waiver-December2009.pdf

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: The Autism Waiver. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-AutismWaiver -December2009.pdf

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: Nursing Facilities. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-NursingFacil ities-December2009.pdf

Center for Medicare Advocacy, Inc. (2009, December). Medicare and Discharge Planning: Think Through Your Needs. CMA Weekly Alert. Washington, DC: Author. Retrieved 4-Dec-09 from http://www.medicareadvoca cy.org/Discharge_09_12.03 .CHecklist.ThinkThroughNe eds.htm

Bornstein, S. & Rathmell, R.J. (2009, December). Caregivers as a Protected Class?: The Growth of State and Local Laws Prohibiting Family Responsibilities Discrimination. San Francisco, CA: University of California, Hastings College of Law. Retrieved 17-Dec-09 from http://www.worklifelaw.or g/pubs/LocalFRDLawsReport .pdf

Okumura, M.J., Van Cleave, J., Gnanasekaran, S., & Houtrow, A. (2009, December). Understanding Factors Associated with Work Loss for Families Caring for CSHCN. Pediatrics, 124. doi: 10.1542/peds.2009-1255J

National Association of State Units on Aging. (2009, November). The Economic Crisis and Its Impact on State Aging Programs. Washington, DC: Author. Retrieved 17-Dec-09 from http://www.nasua.org/docu ments/TheEconomicCrisisan dItsImpactonStateAgingPro grams11.2009.pdf

National Alliance for Caregiving. (2009, November). Caregiving in the U.S. 2009: Executive Summary. Bethesda, MD: Author. Retrieved 17-Dec-09 from http://www.caregiving.org /data/CaregivingUSAllAges ExecSum.pdf

Denny-Brown, N. & Lipson, D.J. (2009, November). Early Implementation Experiences of State MFP Programs. Washington, DC: Mathematica Policy Research, Inc..

Ng, T., Harrington, C. & O'Malley, M. (2009, November). Medicaid Home and Community-Based Service Programs: Data Update. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved 8-Dec-09 from http://www.kff.org/medica id/7720.cfm

National Association of State Units on Aging. (2009, October). State of Aging: 2009 State Perspectives on the State Units on Aging Policies and Practices. Washington, DC: Author. Retrieved 17-Dec-09 from http://www.nasua.org/docu ments/StatePerspective200 9_000.pdf

MetLife Mature Market Institute. (2009, October). The 2009 MetLife Market Survey of Nursing Home, Assisted Living, Adult Day Services and Home Care Costs. Westport, CT: Author.

Paraprofessional Healthcare Institute. (2009, October). New York City's Home Care Workforce: State Facts. Bronx, NY: Author.

Paraprofessional Healthcare Institute. (2009, October). Pennsylvania's Direct-Care Workforce: State Facts. Bronx, NY: Author.

Gimm, G., Andrews, K.L., Schimmel, J., Ireys, H.T. & Liu, S. (2009, October). Analysis of Medical Expenditures and Service Use of Medicaid Buy-In Participants, 2002-2005: Final Report. Washington, DC: Mathematica Policy Research, Inc..

Kronick, R.G., Bella, M. & Gilmer, T.P. (2009, October). The Faces of Medicaid III: Refining the Portrait of People with Multiple Chronic Conditions. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved 40108 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1058416

O'Malley Watts, M. (2009, October). The Community Living Assistance Services and Supports (CLASS) Act. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved 28-Oct-09 from http://www.kff.org/health reform/7996.cfm

Shriver, M. & Center for American Progress. (2009, October). The Shriver Report: A Woman's Nation Changes Everything. Washington, D.C.: Center for American Progress.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2009, October). Cost of workplace accommodations for individuals with disabilities: With or without personal assistance services. Disability and Health Journal, 2(4), pp.196-205.

Wallace, S.P., Benjamin, A.E., Villa, V.M. & Pourat, N. (2009, October). California Budget Cuts Fray the Long-Term Safety Net. Los Angeles, CA: UCLA Center for Health Policy Research.

Wallace, S.P., Villa, V.M. Smith, B.A., Satter, D.E., Pourat, N, Padilla-Frausto, D.I., Leos, R., Durazo, E., Benjamin, A.E. (2009, October). Community-Based Long-Term Care: Potential Consequences of California's 2009 Budget Cuts. Los Angeles, CA: UCLA Center for Health Policy Research.

National Disability Rights Network. (2009, September). Decade of "Little Progress" Implementing Olmstead: Evaluating Federal Agency Impact After 10 Years Washington, DC: Author. Retrieved July 11, 2010 from http://www.ndrn.org/Decad e_of_Little_Progress_Impl ementing_Olmstead.pdf

The Southwest Pennsylvania Partnership for Aging. (2009, September ). Principles of the Ideal Long Term Living System for Pennsylvania's Older Adults. Warrendale, PA: Author.

Paraprofessional Healthcare Institute. (2009, September). Massachusetts' Direct-Care Workforce: State Facts. Bronx, NY: Author.

Paraprofessional Healthcare Institute. (2009, September). Iowa's Direct-Care Workforce: State Facts. Bronx, NY: Author.

PHI, PolicyWorks. (2009, September). Illinois's Direct-Care Workforce - State Facts. Bronx, NY: Author.

PHI, PolicyWorks. (2009, September). Iowa's Direct-Care Workforce - State Facts. Bronx, NY: Author.

PHI, PolicyWorks. (2009, September). Massachusetts's Direct-Care Workforce - State Facts. Bronx, NY: Author.

Kaiser Commission on Medicaid and the Uninsured. (2009, September). Advancing Access to Medicaid Home and Community-Based Services: Key Issues Based on a Working Group Discussion with Medicaid Experts. Washington, DC: Author. Retrieved 22-Sep-09 from http://www.kff.org/medica id/7970.cfm

Mollica, R.L. (2009, September). State Medicaid Reimbursement Policies and Practices in Assisted Living. Washington, D.C.: National Center for Assisted Living. Retrieved 22-Oct-09 from http://www.ahcancal.org/n cal/news/releases/Pages/S tateMedicaidRateSettingMe thods.aspx

Summer, L. (2009, September). Efforts in States to Promote Medicaid Community-Based Services and Supports. Washington, DC: Kaiser Family Foundation. Retrieved 22-Sep-09 from http://www.kff.org/medica id/7969.cfm

Uscher-Pines, L., Hausman, A.J., Powell, S ., DeMara, P., Heake, G., Hagen, M.G. (2009, September). Disaster preparedness of households with special needs in southeastern Pennsylvania. American Journal of Preventive Medicine, 37(3), pp.227-230.

National Council on Disability. (2009, August). Effective Emergency Management: Making Improvements for Communities and People with Disabilities. Washington, DC: Author.

Marin, B., Leichsenring, K., Rodrigues, R. & Huber, M. (2009, August). Who Cares? Care Coordination and Cooperation to Enhance Quality in Elderly Care in the European Union. Vienna, Austria: European Centre for Social Welfare Policy and Research.

Wells, S., Hedt, A., Chapman, S., Bakerjian, D., Fagin, C.M., Bryant, N., Toten, A., Goldbert, L. & Ruff, A. (2009, August). Perspectives On: Investing in California's Direct Care Workforce by Increasing Geriatric Training Opportunities. Long Beach, CA: The SCAN Foundation.

Paraprofessional Healthcare Institute. (2009, July). Illinois' Direct-Care Workforce: State Facts. Bronx, NY: Author.

Department of Banking, Insurance, Securities and Health Care Administration. (2009, July). Chapter 5: Long Term Care Services. 2009 The Health Resource Allocation Plan. Montpelier, VT: Author.

Paraprofessional Healthcare Institute. (2009, July). State chart book on wages from personal and home care aides, 1999-2008. Bronx, NY: Author.

Kaye, H.S., Neri, M. & Wong, A. (2009, July). Telecommunication needs of Californians with disabilities: Final Report. San Francisco, CA: UCSF Disability Statistics Center.

Komisar, H.L., Tumlinson, A., Feder, J. & Burke, S. (2009, July). Long term care in health care reform: Policy options to improve both. Long Beach, CA: The SCAN Foundation.

Tucker, A.M., & Johnson, K.E. (2009, July). Examining Rate Setting for Medicaid Managed Long-Term Care. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/A%20F ramework%20for%20State-Le vel%20Analysis%20of%20Dua ls_September%205%202008.p df

Bazelon Center for Mental Health Law. (2009, June). Still waiting...the unfulfilled promise of Olmstead: A call to action on the 10th anniversary of the Supreme Court's decision. Washington, DC: Bazelon Center for Mental Health Law.

Gleckman, H. (2009, June). The Future of Long-Term Care: What Is Its Place in the Health Reform Debate? Los Angeles, CA: Urban Institute.

Wallace, S.P., Padilla-Frausto, D.I. & Peter, S.E. (2009, June). Elder Economic Security Standard Index: Supplemental Home- and Community-Based Long erm Care Service Package Costs, California 2007. Los Angeles, CA: UCLA Center for Health Policy Research.

Clinton, B., DeGaetano, E., Foster, A., Lautz, C.A., Ryan, L.A., Sullivan, C., Wasserman, K. & Reynolds, L. (2009, May). When no one cares: Why we need to save Connecticut's direct care workforce. Norwich, CT.: Senior Resources Agency on Aging.

Gibson, B.E., Brooks, D., DeMatteo, D. & King, A. (2009, May). Consumer-directed personal assistance and 'care': Perspectives of workers and ventilator users. Disability & Society, 24(3), pp.317-330.

Guterman, S. & Drake, H. (2009, May). The long wait: The impact of delaying Medicare coverage for people with disabilities. (Volume 3). New York, NY: The Commonwealth Fund: The Commonwealth Fund. Retrieved 20-May-09 from http://www.commonwealthfu nd.org/Content/Publicatio ns/Perspectives-on-Health -Reform-Briefs/2009/May/T he-Long-Wait.aspx

Livermore, G., Stapleton, D. & Claypool, H. (2009, May). Health insurance and health care access before and after SSDI entry. New York, NY: The Commonwealth Fund. Retrieved 20-May-09 from http://www.commonwealthfu nd.org/Content/Publicatio ns/Fund-Reports/2009/May/ Health-Insurance-and-Heal th-Care-Access-Before-and -After.aspx

Newacheck, P.W., Houtrow A.J., Romm, D.L., Kuhlthau, K.A., Bloom, S.R., Van Cleave, J.M., & Perrin J.M. (2009, May). The Future of Health Insurance for Children With Special Health Care Needs. Pediatrics, 123(5), pp.e940-e947. doi: 10.1542/peds.2008-2921

National Alliance for Caregiving. (2009, April). The Evercare® Survey of the Economic Downturn and its Impact on Family Caregiving. Bethesda, MD: Author. Retrieved 17-Dec-09 from http://www.caregiving.org /data/EVC_Caregivers_Econ omy_Report%20FINAL_4-28-0 9.pdf

Genworth Financial, Inc. (2009, April). Genworth 2009 Cost of Care Survey: Home Care Providers, Adult Day Health Care Facilities, Assisted Living Facilities and Nursing Homes. Richmond, VA: Author.

Harrington, C., Kang, T. & Chang, J. (2009, April). Factors Associated With Living in Developmental Centers in California. Intellectual and Developmental Disabilities, 47(2), pp.108-124.

Hartnett, J.T., Morris, M. & Stengel, J. (2009, April). Creating a roadmap out of poverty for Americans with disabilities: A report on the relationship of the Employment and Training Administration's workforce development system and local asset-building coalitions. Washington, DC: U.S. Department of Labor.

Wiener, J.M. (2009, April). Long-Term Care: Options In An Era Of Health Reform. Washington, DC: The SCAN Foundation. Retrieved June 15th, 2009 from http://www.pascenter.org/ documents/Wiener_2009.ppt

Wiener, J.M. (2009, April). Long-term care: Options in an era of health reform. Washington, DC: The SCAN Foundation.

Paraprofessional Healthcare Institute. (2009, march). Vermont's Direct-Care Workforce: State Facts. Bronx, NY: Author.

PHI Northern New England. (2009, March). Vermont's Direct-Care Workforce - State Facts. Vermont: Author.

Eisenman, D.P., Zhoe, Q., Ong, M., Asch, S., Glik, D., Long, A. (2009, March). Variations in disaster preparedness by mental health, perceived general health, and disability status. Disaster Medicine and Public Health Preparedness [Disaster Med Public Health Prep], 3(1), pp.33-41.

Mollica, R.L., Kassner, E., Walker, L. & Houser, A.N. (2009, March). Taking the long view: Investing in Medicaid home and community-based services is cost-effective. Washington, D.C.: AARP Public Knowledge Management.

Toleos, A. (2009, March). Report Offers Workforce Data Collection Recommendations for Long-Term Care [press release]. Retrieved 23rd June, 2010 from http://phinational.org/ar chives/report-offers-work force-data-collection-rec ommendations-for-ltc/

Cardin, D. (2009, February). Report Offers Complete Look at Issues Facing Direct-Care Workforce. Retrieved 23rd June, 2010 from http://phinational.org/ar chives/report-offers-comp lete-look-at-issues-facin g-direct-care-workforce/

Paraprofessional Healthcare Institute. (2009, January). Who Are Direct Care Workers? Bronx, NY: Author.

Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (2009, January). Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality. San Francisco, CA: Center for Personal Assistant Services.

Houser, A.N., Fox-Grage, W., Gibson, M. (2009). Across the States 2009: Profiles of Long-Term Care and Independent Living. Washington, D.C.: AARP. Retrieved 39884 from http://www.aarp.org/home- garden/livable-communitie s/info-03-2009/across_the _states_2009__profiles_of _long-term_care_and_indep endent_living.html

Center for Medicare Advocacy, Inc. (2009). Medicare for People with Chronic Conditions. CMA Weekly Alert Washington, DC: Author. Retrieved 17-Dec-09 from http://www.medicareadvoca cy.org/InfoByTopic/Chroni cConditions/09_12.17.Impr ovement.htm

Vermont Department of Banking, Insurance, Securities and Health Care Administration. (2009). 2009 Vermont Health Resource Allocation Plan. (Chapter 5). Montpelier, VT: Author.

Carers New South Wales. (2009). Invisible carers come into focus: A summary of the National Health and Hospitals Reform Commission Final Report 2009. Sydney, Australia: Author.

National People with Disabilities and Carer Council. (2009). Shut out: The experience of people with disabilities and their families in Australia. Sydney, Australia: Author.

Kaiser Family Foundation. (2009). Medicaid and Long-Term Care Services and Supports. Fact Sheet. Washington, DC: Author. Retrieved 22-Feb-09 from http://www.kff.org/medica id/2186.cfm

Minnesota Office of the Legislative Auditor, Program Evaluation Division. (2009). Evaluation Report: Personal Care Assistance. St. Paul, MN: Author. Retrieved 10-Feb-09 from http://www.auditor.leg.st ate.mn.us/ped/2009/pca.ht m

Brennan, J. (2009). The Disability Law Handbook. Houston, TX: DBTAC Southwest ADA Center. Retrieved 5-Mar-10 from http://www.southwestada.o rg/html/publications/dlh/ index.html

Campbell, V., Gilyard, J., Sinclair, L., Sternberg, T. and Kailes, J. (2009). Preparing for and Responding to Pandemic Influenza: Implications for People With Disabilities. American Journal of Public Health, 99(S2), pp.S294-S300.

D'Souza, J.C., James, M.L., Szafara, K.L., Fries, B.E. (2009). Hard times: The effects of financial strain on home care services use and participant outcomes in Michigan. Gerontologist, 49(2), pp.154-165.

D'Souza, J.C., James, M.L., Szafara, K.L., Fries, B.E. (2009). Hard Times: The Effects of Financial Strain on Home Care Services Use and Participant Outcomes in Michigan. The Gerontologist, 49(2), pp.154-165.

DeJonge, K.E., Taler, G. & Boling, P.A. (2009). Independence at home: Community-based care for older adults with severe chronic illness. Clinics in Geriatric Medicine, 25(1), pp.155-169.

Diefenbach, G.J., Tolin, D.F., Meunier, S.A. & Gilliam, C.M. (2009). Assessment of anxiety in older home care recipients. Gerontologist, 49(2), pp.141-153.

Disability and Business Technical Assistance Center-Southwest ADA Center. (2009). Disability Law Handbook. Houston, TX: Disability and Business Technical Assistance Centers Southwest ADA Center. Retrieved 28-Apr-09 from http://www.swdbtac.org/ht ml/publications/dlh/index .html

Gray, D.B., Dashner, J.L., Morgan, K.A., Lyles, M., Scheller, M.D., Morris, C.L. & Hollingsworth, H.H. (2009). Influence of a consumer-directed personal assistance services program on the lives of persons with mobility impairments. Disability and Health Journal, 2(4), pp.188-195.

Greene Burger, S., Kantor, B., Mezey, M., Mitty, E., Kluger, M., Algase, D., Anderson, K., Beck, C., Mueller, C. & Rader, J. (2009). Professional nurses involvement in nursing home culture change: Overcoming barriers, advancing opportunities. New York, NY: Hartford Institute for Geriatric Nursing.

Gure, T.R., Kabeto, M.U. & Langa, K.M. (2009). The influence of long-term care insurance on the likelihood of nursing home admission. Journal of the American Geriatrics Society, 59(9), pp.1862-1867.

Harrington, C. & Ng, T. (2009). Medicaid Home and Community-Based Services Data, 2005. San Francisco, CA: Center for Personal Assistance Services. Retrieved September, 2009 from http://pascenter.org/medi caid/index.php

Harrington, C., Ng., T., Kaye, H.S. & Newcomer, R.J. (2009). Medicaid home and community based services: Proposed policies to improve access, costs, and quality. Public Policy & Aging Report, 19(2), pp.13-18.

Hayashi, J., DeCherrie, L., Ratner, E. & Boling, P.A. (2009). Workforce development in geriatric home care. Clinics in Geriatric Medicine, 25(1), pp.109-120.

Hilgeman, M.M., Durkin, D.W., Sun, F., DeCoster, J., Allen, R.S., Gallagher, D. & Burgio, L.D. (2009). Testing a theoretical model of stress process in Alzheimer's caregivers with race as a moderator. Gerontologist, 49(2), pp.248-261.

Holahan, J., Miller, D.M. & Roussea, D. (2009). Rethinking Medicaid's Financing Role for Medicare Enrollees. Washington, DC: Kaiser Family Foundation. Retrieved 22-Feb-09 from http://www.kff.org/medica id/7862.cfm

Kailes, J. (2009). Functional Needs Focused Care and Shelter Checklist. Playa del Rey, CA: Kailes-Publications. Retrieved June 22nd, 2010 from http://www.jik.com/disast er.html

Kailes, J. (2009). Standard, Accessible, and Medical Cots. Playa del Rey, CA: Kailes-Publications. Retrieved June 22nd, 2010 from http://www.jik.com/disast er.html

Kailes, J., & George, S. (2009). Disaster Planning For Technology-Dependent Patients Preparation must be ongoing. Retrieved March, from http://respiratory-care-s leep-medicine.advanceweb. com/Features/Article-1/Di saster-Planning-For-Techn ology-Dependent-Patients. aspx

Kaye, H.S. (2009). Stuck at the bottom rung: Occupational characteristics of workers with disabilities. Journal of Occupational Rehabilitation, 19(2), pp.115-128.

Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009). Do Non-institutional Long-Term Care Services Reduce Medicaid Spending? Health Affairs, 28(1), pp.262-272.

Kaye, H.S., Yeager, P., & Reed, M. (2009). Disparities in usage of assistive technology among people with disabilities. Assistive Technology, 20(4), pp.194-203.

Kemp, C.L., Ball, M.M., Perkins, M.M., Collingsworth, C. & Lepore, M.J. (2009). I get along with most of them: Direct care workers' relationships with residents' families in assisted living. Gerontologist, 49(2), pp.224-235.

Mittal, V., Rosen, J. & Leana, C. (2009). A dual-driver model of retention and turnover in the direct care workforce. Gerontologist, 49(5), pp.623-634.

Morris, L. (2009). Quits and job changes among home care workers in Maine: The role of wages, hours, and benefits. Gerontologist, 49(5), pp.635-650.

Mullan, J.T., Grossman, B.R., Hernandez, M., Wong, A., Eversley, R. & Harrington, C. (2009). Focus Group Study of Ethnically Diverse Low Income- Users of Paid Personal Assistance Services. Home Health Care Services Quarterly, 28(1), pp.24-44.

Prideaux, S., Roulstone, A., Harris, J. & Barnes, C. (2009). Disabled people and the self-directed support schemes: Reconceptualising work and welfare in the 21st century. Disability & Society, 24(5), pp.557-569.

Rhee, Y., Degenholtz, H.B., Lo Sasso, A.T. & Emanuel, L.L. (2009). Estimating the quantity and economic value of family caregiving for community-dwelling older persons in the last year of life. Journal of the American Geriatrics Society, 57(9), pp.1654-1659.

Saxton, M. (Ed.) (2009). Sticks and stones: Disabled people's stories of abuse, defiance and resilience. Oakland, CA: World Institute on Disability.

Seekins, T., Katz, M., Liston, R., Oxford, M., Altom, B., White, G., Petty, G., & Kafka, B. (2009). Nursing home emancipation: A preliminary study of efforts by Centers for Independent Living in urban and rural areas Missoula, MT: The University of Montana Rural Institute.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2009). Cost of workplace accommodations for individuals with disabilities. Disability and Health Journal, 2(4), pp.196-205.

Squillace, M.R., Remsburg, R.E., Harris-Kojetin, L.D., Bercovitz, A., Rosenoff, E. & Han, B. (2009). The National Nursing Assistant Survey: Improving the evidence base for policy initiatives to strengthen the certified nursing assistant workforce. Gerontologist, 49(2), pp.185-197. doi: 10.1093/geront/gnp024

Stone, R. & Newcomer, R. (2009). Advances and issues in personal care. Clinics in Geriatric Medicine, 25(1), pp.35-45.

Street, D., Burge, S. & Quadango, J. (2009). The effect of licensure type on the policies, practices, and resident composition of Florida assisted living facilities. Gerontologist, 49(2), pp.211-223.

Wadensten, B. & Ahlström, G. (2009). The struggle for dignity by people with severe functional disabilities. Nursing Ethics, 16(4), pp.453-465.

Wiener, J.M., Squillace, M.R., Anderson, W.L. & Khatutsky, G. (2009). Why do they stay? Job tenure among certified nursing assistants in nursing homes. Gerontologist, 49(2), pp.198-210.

Wiener, J.M., Squillace, M.R., Anderson, W.L., & Khatusky, G. (2009). Why do they stay? Job tenure among certified nursing assistants in nursing homes. Gerontologist, 49(2), pp.198-210.

Zuckerman, S., Miller, D.M. & Pape, E.M. (2009). Missouri's 2005 Medicaid cuts: How did they affect enrollees and providers? Health Affairs, 28(2), pp.335-345.

Paraprofessional Healthcare Institute. (2008, December). Michigan's Direct-Care Workforce: State Facts. Bronx, NY: Author.

Bridges, K. (2008, December). AARP Member Opinions on Supportive Services in Georgia. Washington, D.C.: AARP Public Knowledge Management.

Feret, B., Bratberg, J. (2008, November). Pharmacist-based intervention to prepare residents of assisted-living facilities for emergencies. Journal of The American Pharmacists Association: Japha, 48(6), pp.780-783.

Schubert, C.C., Boustani, M., Callahan, C.M., Perkins, A.J., Hui, S. and Hendrie, H.C. (2008, November). Acute Care Utilization by Dementia Caregivers Within Urban Primary Care Practices. Journal of General Internal Medicine, 23(11), pp.1736-1740. doi: 10.1007/s11606-008-0711-0

Harrington, C. and Kang, T. (2008, October). Disparities in service utilization and expenditures for individuals with developmental disabilities. Disability and Health Journal, 1(4)

MetLife Mature Market Institute in conjunction with LifePlans, Inc.. (2008, September). The MetLife Market Survey of Adult Day Services and Home Care Costs. Westport, CT: Author.

Friedman, D.B., Tanwar, M., Richter, J.V. (2008, September). Evaluation of online disaster and emergency preparedness resources. Pre-Hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with The Acute Care Foundation, 23(5), pp.438-546.

Tucker, A.M., Johnson, K.E., Rubin, A,& Fogler, S. (2008, September). A Framework for State-Level Analysis of Duals: Interleaving Medicare and Medicaid Data. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/A%20F ramework%20for%20State-Le vel%20Analysis%20of%20Dua ls_September%205%202008.p df

Center for Medicare Advocacy, Inc. (2008, August). Medicare Coverage For Working People With Disabilities. Weekly Alert. Washington, DC: Author.

Massachusetts Department of Public Health and the Center for Survey Research. (2008, July). Studying the Unmet Needs of Adults with Disabilities in Massachusetts, 2007. Boston, MA.: Author. Retrieved September 15, 2010 from http://www.mass.gov/Eeohh s2/docs/dph/behavioral_ri sk/caregiver_report_2008. pdf

Center for Personal Assistance Services (PHI). (2008, July). State Chart Book On Wages For Personal And Home Care Aides, 1999‐2006. San Francisco, CA: Author.

Harrington, C., Granda, B., Carrillo, H., Chang, J., Woleslagle, B., Swan, J., Dreyer, K., Woodford, B., Orakpo, W. & Gill, J. (2008, June). State Data Book On Long Term Care, 2007 Program And Market Characteristics. San Francisco, CA: Department of Social and Behavioral Science, University of California, San Francisco.

Johnson, R.W. (2008, June). The strains and drains of long-term care. American Medical Association Journal of Ethics, 10(6), pp.397-400. Retrieved 25-Jul-08 from http://www.urban.org/publ ications/1001188.html

IFF Research Ltd. (2008, May). Employment Aspects of Workforce Implications of Direct Payments. London, Great Britain: Author.

Studnek, J.R., Fernandez, A.R. (2008, May). Organizational description and emergency preparedness of Nationally Registered First Responders. Pre-Hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with the Acute Care Foundation, 23(3), pp.250-255.

Institute of Medicine. (2008, April). Retooling for an aging America: Building the health care workforce. Washington, DC: Author.

Seavey, D. (2008, April). Occupational Projections for Direct-Care Workers 2006-2016. Bronx, NY: Paraprofessional Healthcare Institute (PHI), fact sheet.

Research and Training Center on Disability in Rural Communities, University of Montana Rural Institute.. (2008, March). Nursing Home Emancipation: Accomplishments of Urban and Rural Centers for Independent Living. (Rural Disability and Rehabilitation Research Progress Report #39). Missoula, MT: Author.

Aldrich, N., Benson, W.F. (2008, January). Disaster preparedness and the chronic disease needs of vulnerable older adults. Preventing Chronic Disease [Pre Chronic Dis], 5(1), pp.27.

Rudowitz R. (2008, January). Medicaid: Overview and Impact of New Regulations. (#7739). Washington, DC: Kaiser Commission on Medicaid and Uninsured.

Scherzer, T. & Wolfe, N. (2008, January). Barriers to workers' compensation and medical care for injured Personal Assistance Services workers. Home Health Care Services Quarterly, 27(1), pp.37. doi: 10.1300/J027v27n01_03

Center for Personal Assistance Services. (2008). How to employ a personal assistant: Disaster preparedness. San Francisco, CA: Author. Retrieved June 22nd, 2010 from http://pascenter.org/pas_ users/health5.php

Center for Personal Assistance Services. (2008). How to employ a personal assistant: Emergency care. Berkeley, CA: Author. Retrieved January, 2009 from http://pascenter.org/pas_ users/health1.php

National Association of State Units on Aging. (2008). The Economic Crisis and Its Impact on State Aging Programs: Results of All-State Survey. Washington, DC: Author. Retrieved 10-Feb-09 from http://www.nasua.org/docu ments/EconomicSurveyRepor t.pdf

Agency for Healthcare Research and Quality. (2008). Integrating Chronic Care and Business Strategies in the Safety Net. (AHRQ Publication No. 08-0104-EF). Rockville, MD: Author. Retrieved 10-Feb-09 from http://www.improvingchron iccare.org/index.php?p=To olkit&s;=244

Department of Labor's Office of Disability Employment Policy. (2008). Disclosure Resources for Youth. Fact sheets. Washington, DC: Author.

HCBS Strategies, Inc. (2008). Recommendations for the Alaska Long Term Care Plan. Baltimore, MD: Author. Retrieved 16-Nov-08 from http://hcbsstrategies.com /Alaska%20Project%20Docs/ Final%20Report/AK%20Long Term%20Care%20Plan%20-%20 Final%20Report%20-%20HCBS %20Strategies-10-23-08.pd f

Texas State Auditor's Office. (2008). An Audit Report on State Mental Retardation Facilities, the Department of Aging and Disability Services, and the Department of Family and Protective Services. (Report Number 08-039). Austin, Texas: Author. Retrieved 19-Jul-08 from http://www.sao.state.tx.u s/Reports/report.cfm/repo rt/08-039

Paraprofessional Healthcare Institute. (2008). Occupational projections for direct-care workers 2006-2016. Bronx, NY: Author.

Genworth Financial. (2008). Genworth Financial 2008 Cost of Care Study: Home care providers, adult day health care facilities, assisted living facilities and nursing homes. Richmond, VA: Author.

Centers for Disease Control and Prevention. (2008). Assuring Healthy Caregivers, A Public Health Approach to Translating Research into Practice: The RE-AIM Framework. Atlanta, GA: Author.

National Association of the State Units on Aging (NASUA). (2008). More can be done: Involvement of older consumers in the design, implementation and oversight of home and community based services. Washington, DC: Author. Retrieved 22-Mar-08 from http://nasua.org/NASUA_Rp t_(3).pdf

Acosta, P. and Hendrickson, L. (2008). Advancing Medicaid HCBS policy: From capped consumer to consumer-directed. New Brunswick, NJ: Rutgers Center for State Health Policy.

Becker, F. & Becker, S. (2008). Young Adult Carers in the UK: Experiences, Needs and Services for Carers aged 16-24. London, UK: The Princess Royal Trust for Carers. Retrieved 10-Feb-09 from http://static.carers.org/ files/yac20report-final-2 41008-3787.pdf

Binette, J. (2008). Long-term care in Tennessee: A survey of self-identified registered likely voters age 18+. Washington, D.C.: AARP Knowledge Management. Retrieved 22-Mar-08 from http://www.aarp.org/resea rch/longtermcare/programf unding/tn_ltc_08.html

Binette, J. & Dinger, E.L. (2008). The 2008 Hawaii health and long-term care survey. Washington, D.C.: AARP Knowledge Management. Retrieved 22-Mar-08 from http://aarp.org/research/ longtermcare/costs/hi_ltc _08.html

Bridges, K. (2008). Opinions of AARP Nebraska members on long-term care. Washington, D.C.: AARP Public Knowledge Management. Retrieved 17-Nov-08 from http://aarp.org/research/ longtermcare/trends/ne_lt c_08.html

Claypool, H. & O'Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: A review of four state programs. Washington, D.C.: Kaiser Family Foundation. Retrieved 24-Mar-08 from http://kff.org/medicaid/7 757.cfm

Collier, E. & Harrington, C. (2008). Staffing characteristics, turnover rates and quality of resident care in nursing facilities. Research in Gerontological Nursing, 1(3), pp.157-170.

Crowley, J.S. & O'Malley, M. (2008). Vermont's Choices for Care Medicaid Long-Term Services Waiver: Progress and Challenges As the Program Concluded its Third Year. Washington, D.C.: Kaiser Family Foundation.

Dinger, E.L. & Binette, J. (2008). Health care reform and long-term care: A survey of AARP members in New Mexico. Washington, D.C.: AARP Knowledge Management. Retrieved 22-Mar-08 from http://www.aarp.org/resea rch/longtermcare/programf unding/nm_hcr_ltc_08.html

Dobell, G. & Newcomer, R. (2008). Integrated care: Incentives, approaches and future considerations. Social Work in Public Health, 23(4), pp.25-47.

Doty, M., Koren, M.J. & Davis, K. (2008). Health care opinion leaders views on the future of long-term care. (# 1157, Vol. 10.). New York, NY: The Commonwealth Fund. Retrieved 23-Jul-08 from http://www.commonwealthfu nd.org/publications/publi cations_show.htm?doc_id=6 95883

Dulio, A., Perry, M., Claypool, H. & O'Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: Insights from enrollees in four states. Washington, D.C.: Kaiser Family Foundation. Retrieved 24-Mar-08 from http://kff.org/medicaid/7 756.cfm

Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer's disease during the transition to institutionalization? Results from the New York University Caregiver Intervention Study. Journal of the American Geriatrics Society, 56(3), pp.421-428.

Gershon, R.M., Canton, A.N., Raveis, V.H., Silver, A., Chen, C.C., Qureshi, K.A., Sherman, M.F. & Stone, P.W. (2008). Household-related hazardous conditions with implications for patient safety in the home health care sector. Journal of Patient Safety, 4(4), pp.227-234.

Guengerich, T. (2008). 2008 Survey of AARP Members in Maryland on Caregiving. Washington, D.C.: AARP Public Knowledge Management. Retrieved 10-Feb-09 from http://www.aarp.org/resea rch/housing-mobility/care giving/md_caregiving_08.h tml

Haley, W.E., Bergman, E.J., Roth, D.L., McVie, T., Gaugler, J.E. & Mittelman, M.S. (2008). Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms. Gerontologist, 48(6), pp.732-740.

Harrington, C., O'Meara, J., Collier, E., Kang, T., Stephens, C. & Chang, J. (2008). Impact of California's Medi-Cal Long Term Care Reimbursement Act On Access, Quality and Costs. San Francisco, CA: Center for Personal Assistance Services.

Harrington, C., Tsoukalas, T., Rudder, C., Mollot, R.J., and Carrillo, H. (2008). Variation in the use of federal and state civil money penalties for nursing homes. Gerontologist, 48(5), pp.679-691.

Hendrix, C.C., Heflin, M.T., Twersky, J., Knight, C., Payne, J., Bradford, J.Y. & Schmader, K.E. (2008). Post-hospital clinic for older patients and their family caregivers. Annals of Long-Term Care, 16(5), pp.20-24.

Hewitt, A., Larson, S., Edelstein, S., Seavey, D., Hoge, M.A. & Morris, J. (2008). A synthesis of direct service workforce demographics and challenges across intellectual/developmental disabilities, aging, physical disabilities and behavioral health. Washington, DC: National Direct Service Workforce Resource Center. Retrieved 22-Feb-09 from http://www.dswresourcecen ter.org/index.php/dsw/rep orts

Hochstein, C., Arnesen, C., Goshorn, J., Szczur, M. (2008). Selected resources for emergency and disaster preparedness and response from the United States National Library of Medicine. Medical Reference Services Quarterly 2008 Spring, 27(1), pp.1-20.

Houser, A.,N. & Gibson M.,J. (2008). Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update. Washington, DC: AARP Public Policy Institute. Retrieved 16th June, 2010 from http://assets.aarp.org/rg center/il/i13_caregiving. pdf

Kang, T., & Harrington, C. (2008). Variation in types of service use and expenditures for individuals with developmental disabilities. Disability and Health Journal
Disability and Health Journal, 1, pp.30-41.

Kassner, E., Reinhard, S., Fox-Grage, W., Houser, A.N., Accius, J.C., Coleman, B. & Milne, D. (2008). A balancing act: State long-term care reform. Washington, D.C.: AARP Public Policy Institute. Retrieved 19-Jul-08 from http://aarp.org/research/ longtermcare/programfundi ng/2008_10_ltc.html

Kitchener, M., Ng, T., Lee, H.Y. and Harrington, H. (2008). Assistive Technology in Medicaid Home-and Community-Based Waiver Programs. The Gerontologist, 48, pp.181-189.

Kitchener, M., Willmott, M., Alameida, M., Wong, A. and Harrington, C. (2008). Introduction to Olmstead Lawsuits and Olmstead Plans. San Francisco, CA: Center for Personal Assistance Services. Retrieved March, 2009 from http://pascenter.org/olms tead/index.php

Laditka, S.B., Laditka, J.N., Cornman, C.B., Davis C.B., Changdlee, M.J. (2008). Disaster preparedness for vulnerable persons receiving in-home, long-term care in South Carolina. Pre-Hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with the Acute Care Foundation, 23(2), pp.133-142.

Lamura, G., Mnich, E., Nolan, M., Wojszel, B., Krevers, B., Mestheneos, L. & Döhner, H. (2008). Family carers' experiences using support services in Europe: Empirical evidence from the EUROFAMCARE Study. Gerontologist, 48(6), pp.752-771.

Luke, E.L. (2008). Stakeholder recommendations to improve recruitment, retention, and the perceived status of paraprofessional direct service workers in Texas. Austin, Texas: Texas Department of Aging and Disability Services. Retrieved 25-Jul-08 from http://www.dads.state.tx. us/news_info/publications /studies/DSW-june2008.pdf

Miller, N.A., Elder, K.T., Kitchener, M., Kang, Y and Harrington, C. (2008). Medicaid 1915(c) Waiver Use and Expenditures for Persons Living With HIV/AIDS. Medical Care Research and Review, 65(3), pp.338-355.

Muraki, I., Yamagishi, K., Ito, Y., Fujieda, T., Ishikawa, Y., Miyagawa, Y., Okada, K., Sato, S., Kitamura, A., Shimamoto, T., Tanigawa, T. & Iso, H. (2008). Caregiver burden for impaired elderly Japanese with prevalent stroke and dementia under long-term care insurance system. Cerebrovascular Diseases, 25(3), pp.225-233.

Neufeld, A., Harrison, M.J., Stewart, M. & Hughes, K. (2008). Advocacy of women family caregivers: Response to nonsupportive interactions with professionals. Qualitative Health Research, 18(3), pp.301-310.

Ng, T., Harrington, C., and O'Malley, M. (2008). Medicaid Home and Community Based Service Programs: Data Update. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Nicols, L. O., Chang, C., Lummus, A., Burns, R., Martindale-Adams, J., Graney, M. J., et al. (2008). The cost-effectiveness of a behavior intervention with caregivers of patients with Alzheimer's disease. Journal of the American Geriatrics Society, 56(3), pp.413-420.

Nijland, N., van Gemert-Pijnen, J., Boer, H., Steehouder, M. F., & Seydel, E. R. (2008). Evaluation of internet-based technology for supporting self-care: problems encountered by patients and caregivers when using self-care applications. Journal of Medical Internet Research, 10(2), pp.E13.

Parent, W., Foley, S., Balcazar, F., Ely, C., Bremer, C. & Gaylord, V. (Eds.). (2008). Employment and Women With Disabilities. Impact, 21(1) Summer/Fall

Rivera, P. A., Elliott, T. R., Berry, J. W., & Grant, J. S. (2008). Problem-solving training for family caregivers of persons with traumatic brain injuries: a randomized controlled trial. Archives of Physical Medicine and Rehabilitation, 89(5), pp.931-941.

Rozario, P.A. & DeRienzis, D. (2008). Familism beliefs and psycholoigcal distress among African American women caregivers. Gerontologist, 48(6), pp.772-780.

Ryan, P., Howell, V., Jones, J., & Hardy, E. (2008). Lung cancer, caring for the caregivers. A qualitative study of providing pro-active social support targeted to the carers of patients with lung cancer. Palliative Medicine, 22(3), pp.233-238.

Scala, E., Hendrickson, L., & Regan, C. (2008). A compendium of three discussion papers: Strategies for promoting and improving the direct service workforce. Applications to Home and Community-Based Services, Community, Community Living Exchange Collaborative. New Brunswick, NJ: Rutgers Center for State Health Policy.

Scharlach, A. E., Giunta, N., Chow, J. C., & Lehning, A. (2008). Racial and Ethnic Variations in Caregiver Service Use. Journal of Aging and Health, 20(3), pp.326-346.

Sherman, M.F., Gershon, R.M. Samar, S., Pearson, J.M., Canton, A.N., Damsky, M.R. (2008). Safety factors predictive of job satisfaction and job retention among home healthcare aides. Journal of Occupational and Environmental Medicine, 50(12), pp.1430-1441.

Stajduhar, K. I., Martin, W. L., Barwich, D. & Fyles, G. (2008). Factors influencing family caregivers' ability to cope with providing end-of-life cancer care at home. Cancer Nursing, 31(1), pp.77-85.

Stowell-Ritter, A. (2008). 2007 Virginia member survey. Washington, D.C.: AARP Knowledge Management. Retrieved 22-Mar-08 from http://www.aarp.org/resea rch/longtermcare/trends/v a_member_07.html

Wallace, S.P., Lee, J.H. & Aydin, M. J. (2008). Trends in the health of older Californians: Data from the 2001, 2003 and 2005 California Health Interview Surveys. Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved 20-Nov-08 from http://healthpolicy.ucla. edu/pubs/files/Trends_Old er_CAs_RT_111708.pdf

Waxman, H.,A. (2008). The Administration's Medicaid Regulations: State-By-State Impacts. Washington, DC: Committee on Oversight and Government Reform. Retrieved June 22nd, 2010 from http://oversight.house.go v/index.php?option=com_co ntent&view;=article&id;=357 4

Jans., L. (2007, November). Personal Assistance Services (PAS) Cooperatives: Final Report. San Francisco, CA: Center for Personal Assistance Services.

Lakin, K.C., Prouty, R. & Coucouvanis, K. (2007, October). HCBS Recipients Are Increasingly Likely to Live With Parents or Other Relatives. Intellectual and Developmental Disabilities, 45(5), pp.359-361.

Cranford, C. (2007, August). Security without Flexibility: Personal Care Workers and People with Disabilities in Ontario. Paper presented at the 99th Annual Meeting of the American Sociological Association.

Turner, E. & McDonough, J. (Ed.) (2007, August). Augmenting workplace PAS through the use of Assistive Technology. (PAS Facts, vol 4). Richmond, VA: VA Commonwealth University.

Barrett, J. (2007, July). Leadership Stories from Maine: The Voices of Direct-Care Workers in Culture Change. Bronx, NY: National Clearinghouse on the Direct Care Workforce, Northern New England LEADS Institute. Retrieved Dec. 9, 2007 from http://www.directcareclea ringhouse.org/l_art_det.j sp?res_id=265110

Wong, A., Kaye, H.S. and Newcomer, R. (2007, July). State legislation regarding wages and benefits of home care workers: Thirteen promising practices. San Francisco: Center for Personal Assistance Services.

Wisconsin Grantee. (2007, June). Wisconsin's Guardian Mentor Program [Brochure]. Wisconsin: Author.

Louisiana Department of Health and Hospitals, Division of Long Term Supports and Services. (2007, June). Transition Guide to Community Living with a Self Assessment Tool. Baton Rouge, LA: Author.

Montana RCSC Grantee. (2007, June). Relax. Take a Break: A Family Guide to Respite for Children [Brochure]. Michigan: Author.

Montana RCSC Grantee produced, New York & Self-Advocacy Association of New York State, Inc. (2007, June). Real Choice Mentor Training Manual. Montana: Author.

Montana RCSC Grantee. (2007, June). Curriculum for Empowering Self-Advocates [Brochure]. Montana: Author.

Montana RCSC Grantee. (2007, June). Curriculum for Empowering Parents [Brochure]. Montana: Author.

Montana RCSC Grantee. (2007, June). Curriculum for Empowering Advocates [Brochure]. Montana: Author.

Greene, J. (2007, June). State approaches to consumer direction in Medicaid. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved 1-Aug-07 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=507381

Hawley, S.R., Hawley, G.C., Ablah, E., St Romain, T., Molgaard, C.A., Orr, S.A. (2007, May). Mental Health Emergency Preparedness: the need for training and coordination at the state level. Pre-Hospital and Disaster Medicine, 22(3), pp.199-204.

Hayes, R.M., Beebe, D. and Kreamer, H. (2007, April). Too Sick to Work, Too Soon for Medicare: The Human Cost of the Two-Year Medicare Waiting Period for Americans with Disabilities. : The Commonwealth Fund.

Houser, A.N. (2007, April). Women & Long-Term Care. Fact sheet. (FFS: 77R). Washington, DC: AARP Public Policy Institute. Retrieved 21-Jun-10 from http://assets.aarp.org/rg center/il/fs77r_ltc.pdf

McDonald, I.J. (2007, April). Respectful relationships: The heart of Better Jobs Better Care. Washington, DC: Institute for the Future of Aging Services. Retrieved 14-May-07 from http://www.bjbc.org/Page. asp?PgID=27

Blume. R. (2007, March). Money Follows the Person Toolbox: Services for Individuals with Developmental Disabilities. New Brunswick, NJ: Rutgers Center for State Health Policy.

Squillace, M.R., Remsburg, R.E., Bercovitz, A., Rosenoff, E., & Branden, L. (2007, March). An introduction to the National Nursing Assistant Survey. (Vital Health Stat 1, 44). Washington, DC: National Center for Health Statistics. Retrieved 30-Apr-07 from http://www.cdc.gov/nchs/d ata/series/sr_01/sr01_044 .pdf

Kitchener, M., Wong, A., Willmott, M. & and Harrington, C. (2007, February). Home & Community-Based Services: State-Only Funded Programs. San Francisco, CA: Center for Personal Assistance Services. Retrieved Mar-07 from http://pascenter.org/stat e_funded/index.php

Laditka, S.B., Laditka, J.N., Xirasagar, S., Cornman, C.B., Davis, C.B., Richter, J.V. (2007, February). Protecting nursing home residents during emergencies or disasters: an exploratory study from South Carolina. The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with the Acute Care Foundation, 22(1), pp.42-48.

McDonald, I. (2007, January). Emerging strategies for providing health coverage to the frontline workforce in long term care. Bronx, NY: Paraprofessional Healthcare Institute. Retrieved 14-May-07 from http://www.dswresourcecen ter.org/

Coogle, C.L., Parham, I.A., Jablonski, R. & Rachel, J.A. (2007). The Value of Geriatric Care Enhancement Training for Direct Service Workers. Gerontology & Geriatrics Education, 28(2), pp.109-121.

Jans, L. & Kraus, L. (2007). Personal Assistance Services (PAS) Cooperatives: An Annotated Bibliography. Retrieved November 17th, 2008 from http://www.pascenter.org/ documents/Annotat_Biblio_ PAS_Coops.php

Ludecke, D., Kohler, S. (2007). Chapter 9: The Service Providers' Survey. Services for Supporting Family Carers of Older Dependent People in Europe: Characteristics, Coverage and Usage. The National Survey Report for Germany. In Dohner H, Kofahl C, Ludecke D, Mnich E (Eds.), Hamburg: Hamburg: University Medical Centre of Hamburg Eppendorf. Retrieved 39425 from http://uke.uni-hamburg.de /extern/eurofamcare/publi kationen.php?abs=7

International Federation of Red Cross and Red Crescent Societies. (2007). World Disasters Report, Focus on Discrimination in Disasters. Geneva 19, Switzerland: Author.

American Public Health Services Association. (2007). State Perspectives on Emerging Medicaid Long-Term Care Policies and Practices. Washington, DC: Author. Retrieved Dec. 10, 2007 from http://www.nasmd.org/reso urces/docs/LongTermCareRp t1007.pdf

United Cerebral Palsy. (2007). The case for inclusion 2007: An analysis of Medicaid for Americans with intellectual and developmental disabilities. Washington, DC: Author. Retrieved 14-May-07 from http://ucp.org/medicaid/

Maine Department of Health and Human Services.. (2007). Study of Maine's direct care workforce: Wages, health coverage, and a worker registry. Report to the 123rd Maine legislature. Maine: Author. Retrieved 30-Apr-07 from http://maine.gov/dhhs/bea s/Maine_Direct_Care_Workf orce_Report_2007.pdf

Kaiser Family Foundation. (2007). The basics of Medicare and Medicaid. Washington, D.C.: Author. Retrieved 30-Apr-07 from http://kff.org/medicare/m ed031907pkg.cfm

Georgetown University Long-Term Care Financing Project. (2007). Medicaid's spousal impoverishment protections: Fact sheet. Washington, DC: Author. Retrieved 5-Feb-07 from http://ltc.georgetown.edu /papers.html

Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet (updated). Washington, DC: Author. Retrieved 5-Feb-07 from http://ltc.georgetown.edu /papers.html

Georgetown University Long-Term Care Financing Project. (2007). Medicaid and long term care: Fact sheet. Washington, DC: Author. Retrieved 16-Jan-07 from http://ltc.georgetown.edu /papers.html

Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet. Washington, DC: Author. Retrieved 16-Jan-07 from http://ltc.georgetown.edu /papers.html

Blessman, J., Skupski, J., Jamil, M., Jamil, H., Bassett, D., Wabeke, R., Arnetz, B. (2007). Barriers to at-home-preparedness in public health employees: implications for disaster preparedness training. Journal of Occupational and Enviromental Medicine/American College of Occupational and Environmental Medicine, 49(3), pp.318-326.

Bowes, A. (2007). Research on the Costs of Long-Term Care for Older People-Current and Emerging Issues. Social Policy and Society, 6(3), pp.447-459.

Bowes, A. & Bell, D. (2007). Free Personal Care for Older People in Scotland: Issues and Implications. Social Policy and Society, 6(3), pp.435-445.

Brannon, D., Barry, T., Kemper, P., Schreiner, A. & Vasey, J. (2007). Job perceptions and intent to leave among direct care workers: Evidence from the Better Jobs Better Care demonstrations. Gerontologist, 47(6), pp.820-829.

Brown, R., Lepidus Carlson, B., Dale, S., Foster, L., Phillips, B. & Schore, J. (2007). Cash and Counseling: Improving the Lives of Medicaid Beneficiaries Who Need Personal Care or Home- and Community-Based Services. Princteon, NJ: Mathematica Policy Research, Inc. Retrieved Dec. 9, 2007 from http://www.mathematica-mp r.com/publications/

Burton, C. & Bridges, K. (2007). Long-term care: An AARP survey of New York residents age 50+. Washington, D.C.: AARP Public Policy Institute. Retrieved 30-Apr-07 from http://www.aarp.org/resea rch/longtermcare/costs/ny _ltc_2007.html

Cameron, C. & Moss, P. (2007). Care work in Europe: Current understandings and future directions. Oxford, UK: Routledge.

Carlson, B.L., Foster, L., Dale, S.B. and Brown, R. (2007). Effects of Cash and Counseling on personal care and well-being. Health Services Research, 42(1), pp.467-487.

Casper, E. S.; Carloni, C. (2007). Assessing the Underutilization of Supported Employment Services. Psychiatric Rehabilitation Journal, 30(3), pp.182-188.

Castro, C. M., King, A. C., Housemann, R., Bacak, S. J., McMullen, K. M., & Brownson, R. C. (2007). Rural family caregivers and health behaviors: results from an epidemiologic survey. Journal of Aging and Health, 19(1), pp.87-105.

Chiu, W.K. & Newcomer, R. (2007). A systematic review of nurse-assisted case management to improve hospital discharge transition outcomes for the elderly. Professional Case Management, 12(6), pp.330-336.

Craft Morgan, J., Haviland, S.B., Allyson Woodside, M. & Konrad, T.R. (2007). Fostering Supportive Learning Environments in Long-Term Care: The Case of WIN A STEP UP. Gerontology & Geriatrics Education, 28(2), pp.55-75.

Feder, J., Komisar, H.L. & Friedland, R.B. (2007). Long-term care financing: Policy options for the future. Washington, DC: Georgetown University Long-Term Care Financing Project. Retrieved 25-Jun-07 from http://ltc.georgetown.edu /forum/ltcfinalpaper06110 7.pdf

Foster, L., Dale, S.B. and Brown, R. (2007). How caregivers and workers fared in Cash and Counseling. Health Services Research, 42(1), pp.510-532.

Garcia-Iriarte, E.; Balcazar, F.; Taylor-Ritzler, T. (2007). Analysis of case managers' support of youth with disabilities transitioning from school to work. Journal of Vocational Rehabilitation, 3, pp.129-140.

Gaugler, J.E., Kane, R.L. & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. Journal of Gerontology: Psychological Sciences, 62(1), pp.38-44.

Geiger-Brown, J., Muntaner, C., McPhaul, K., Lipscomb, J. & Trinkoff, A. (2007). Abuse and violence during home care work as predictor of worker depression. Home Health Care Services Quarterly, 26(1), pp.59-77.

Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the state estimates of the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved 26-Jun-07 from http://aarp.org/research/ longtermcare/programfundi ng/dd158_caregiving.html

Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved 26-Jun-07 from http://aarp.org/research/ housing-mobility/caregivi ng/ib82_caregiving.html

Gibson, M.J. & Redfoot, D.L. (2007). Comparing Long-Term Care in Germany and the United States: What Can We Learn from Each Other? Washington, D.C.: AARP Public Policy Institute. Retrieved Dec. 9, 2007 from http://aarp.org/research/ longtermcare/trends/2007_ 19_usgerman_ltc.html

Glendinning, C. (2007). Improving Equity and Sustainability in UK Funding for Long-Term Care: Lessons from Germany. Social Policy and Society, 6(3), pp.411-422.

Grossman, B., M. Kitchener, J. Mullan, and C. Harrington. (2007). Paid Personal Assistance Services: An Exploratory Study of Working Age Consumers' Perspectives. Journal of Aging and Social Policy, 19(3), pp.27-45.

Hall, A. C.; Butterworth, J.; Winsor, J.; Gilmore, D.; Metzel, D. (2007). Pushing the employment agenda: Case study research of high performing states in integrated employment. Intellectual and Developmental Disabilities, 45(3), pp.182-198.

Hancock, H., Juarez-Garcia, A., Comas-Herrera, A., King, D., Malley, J., Pickard, L. & Wittenberg, R. (2007). Winners and Losers: Assessing the Distributional Effects of Long-Term Care Funding Regimes. Social Policy and Society, 6(3), pp.379-395.

Harrington, C., & O'Meara, J. (2007). Snapshot: The Changing Face of California's Nursing Home Industry. Oakland, CA: California HealthCare Foundation.

Harrington, C., O'Meara, J., Tsoukalas, T., & Ng, T. (2007). Snapshot: Long Term Care, Facts and Figures. Oakland, CA: California HealthCare Foundation. Retrieved June 18th, 2010 from http://www.chcf.org/publi cations/2009/11/long-term -care-facts-and-figures

Harrington, C., Swan, J.H., and Carrillo, H. (2007). Nursing Staffing and Medicaid Reimbursement Rates. Health Services Research, 42(3), pp.1105-1129.

Hegeman, C., Hoskinson, D, Munro, H., Maiden P. & Pillemer, K. (2007). Peer Mentoring in Long-Term Care: Rationale, Design and Retention. Gerontology & Geriatrics Education, 28(2), pp.77-90.

Henn, J.; Henn, M. (2007). Facilitating integrated employment outcomes for individuals with significant disabilities: Parents' perspective. Journal of Vocational Rehabilitation, 26(1), pp.1-3.

Hernandez, M. & Newcomer, R. (2007). Assisted living and special populations: What do we know about differences in use and potential access barriers? Gerontologist, 47(3), pp.110-117.

Hewitt, A., Edelstein, S., Seavey, D., Morris, J. & Hoge, M. (2007). Direct Support Professional Work Group Report. Raleigh, NC: North Carolina Commission for Mental Health, Developmental Disabilities and Substance Abuse. Retrieved Dec. 9, 2007 from http://directcareclearing house.org/l_art_det.jsp?r es_id=265010

Houser, A.N. (2007). Women & Long-Term Care. Washington, D.C.: AARP Public Policy Institute. Retrieved June 23rd, 2010 from http://assets.aarp.org/rg center/il/fs77r_ltc.pdf

Houser, A.N. and Gibson, M.J. (2007). Valuing the Invaluable: A New Look at State Estimates of the Economic Value of Family Caregiving. Washington, D.C.: AARP Public Policy Institute.

Hutchinson, D.; Anthony, W.; Massaro, J.; Rogers, E. S. (2007). Evaluation of a Combined Supported Computer Education and Employment Training Program for Persons with Psychiatric Disabilities. Psychiatric Rehabilitation Journal, 30(3), pp.189-197.

Ikegami, N. (2007). Rationale, Design and Sustainability of Long-Term Care Insurance in Japan-In Retrospect. Social Policy and Society, 6(3), pp.423-434.

Johnson, R.W. (2007). The burden of caring for frail parents: Statement before the Joint Economic Committee, United States Congress. Retrieved 26-Jun-07 from http://www.urban.org/Uplo adedPDF/901078_johnson_te stimony.pdf

Johnson, R.W., Toohey, D. & Wiener, J.M. (2007). Meeting the long-term care needs of the baby boomers: How changing families will affect paid helpers and institutions. Washington, DC: Urban Institute. Retrieved 26-Jun-07 from http://www.urban.org/Uplo adedPDF/311451_Meeting_Ca re.pdf

Keeslar, K. (2007). Governor's FY 07-08 State Budget Proposal on IHSS (memo). Sacramento, CA: California Association of Public Authorities for IHSS.

Kitchener, M., Ng, T. and Harrington, C. (2007). State Medicaid Home Care Policies: Inside the Black Box. Home Health Care Quarterly, 26(3), pp.23-38.

Kitchener, M., Ng, T., and Harrington, C. (2007). Medicaid Home and Community-Based Services for the Elderly: Trends in Programs and Policies. Journal of Applied Gerontology, 26(3), pp.303-324.

Kitchener, M., Ng, T., and Harrington, C. (2007). Medicaid State Plan Personal Care Services: Trends in Programs and Policies. Journal of Health and Social Policy, 19(3), pp.9-26.

Kitchener, M., Ng, T., Carrillo, H. and Harrington, C. (2007). A Longitudinal Analysis of State Variation in the Provision of Personal Care Services. Inquiry, In

Kitchener, M., Ng, T., Carrillo, H., Miller, N., and Harrington, C. (2007). Developing personal care programs: National trends and interstate variation, 1992-2002. Inquiry, 44, pp.69-87.

Kitchener, M., O'Meara, J., Brody, A., Lee, H.Y., Harrington, C. (2007). Shareholder Value and the Performance of a Large Nursing Home Chain. Health Services Research, 43(3), pp.1062-84.

Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (2007). Home and Community-Based Services: Federal Funding to States. San Francisco: Center for Personal Assistance Services. Retrieved September, 2007 from http://www.pascenter.org/ federal_funding_to_states

LaPlante, M.P., Kaye, H.S. and Harrington, C. (2007). Estimating the Expense of a Mandatory Home- and Community-Based Personal Assistance Services Benefit Under Medicaid. Journal of Health and Social Policy, 19(3), pp.47-64.

Larson, J. E.; Barr, L. K.; Corrigan, P. W.; Kuwabara, S. A.; Boyle, M. G.; Glenn, T. L. (2007). Perspectives on benefits and costs of work from individuals with psychiatric disabilities. Journal of Vocational Rehabilitation, 26(2), pp.71-77.

Lynch, M., Estes, C. & Hernandez, M. (2007). Long-term care policy option proposal: Consumer controlled chronic, home and community care for the elderly and disabled. Washington, DC: Georgetown University Long-Term Care Financing Project. Retrieved 25-Jun-07 from http://ltc.georgetown.edu /forum/4lynch061107.pdf

Maxwell, J., Belser, J.W. and David, D. (2007). A health handbook for women with disabilities. Berkeley, CA: Hesperian Foundation.

McDonald, I.J. (2007). Comprehensive health coverage for consumer-directed home care workers: Washington State case study. New York: Paraprofessional Healthcare Institute. Retrieved 30-Apr-07 from http://www.paraprofession al.org/Sections/documents /CaseStudy-WA-1.pdf

McDonald, I.J. & Davis, G.S. (2007). The SEIU 775 long-term care training, support ad career development network: A blueprint for the future. New York: Paraprofessional Healthcare Institute. Retrieved 30-Apr-07 from http://www.paraprofession al.org/Sections/documents /BlueprintSEIU775.pdf

Menne, H.L., Ejaz, F.K., Noelker, L.S. & Jones, J.A. (2007). Direct Care Workers' Recommendations for Training and Continuing Education. Gerontology & Geriatrics Education, 28(2), pp.91-108.

Metzel, D. S.; Boeltzig, H.; Butterworth, J.; Sulewski, J. S.; Gilmore, D. S. (2007). Achieving community membership through community rehabilitation provider services: Are we there yet? Intellectual and Developmental Disabilities, 45(3), pp.149-160.

Meyer, M., Donelly, M. & Weerakoon, P. (2007). "They're taking the place of my hands": Perspectives of people using personal care. Disability & Society, 22(6), pp.595-608.

Migliore, A.; Mank, D.; Grossi, T.; Rogan, P. (2007). Integrated employment or sheltered workshops: Preferences of adults with intellectual disabilities, their families, and staff. Journal of Vocational Rehabilitation, 26(1), pp.5-19.

Miller, B., Ranji, U., Hisey, H. & Salganicoff, A. (2007). KaiserEDU.org issue module: Financing long-term care. Washington, DC: Kaiser Family Foundation. Retrieved 30-Apr-07 from http://www.kaiseredu.org/ topics_im.asp?id=680&imID; =1&parentID;=65

Miller, N.A. and Weinstein, M. (2007). Participation and Knowledge Related to a Nursing Home Admission Decision among a Working Age Population. Social Science & Medicine, 64(2), pp.303-313.

Misra, S., Orslene, L.E., & Walls, R.T. (2007). Personal Assistance Services for Workers with Disabilities: Views and Experiences of Rehabilitation Service Providers. Disability Studies Quarterly, 27(3)

Netten, A. & Forer, J. (2007). The Costs of What? Measuring Services and Quality of Care. Social Policy and Society, 6(3), pp.397-409.

Newcomer, R., T. Kang, C. Graham. (2007). Outcomes in a nursing home transition case management program targeting new admissions. Gerontologist, 46, pp.385-390.

Nugent, L.S. (2007). Can't they get anything better? Home support workers call for change. Home Health Care Services Quarterly, 26(2), pp.21-39.

Parker, V.A. & Miyake, S. (2007). Cultural Competence in Nursing Homes: Issues and Implications for Education. Gerontology & Geriatrics Education, 28(2), pp.37-54.

Pavelcheck, D. and Mann, C. (2007). Evaluation of interventions to improve recruitment and retention: Summary of results. Olympia, WA: Social & Economic Sciences Research Center, Washington State University.

Pickard, L., Wittenberg, R., Comas-Herrera, A., King, D. & Malley, J. (2007). Care by spouses, care by children: Projections of informal care for older people in England to 2031. Social Policy and Society, 6(3), pp.353-366.

Plumb, M., Weitz, T., Hernandez, M., Estes, C.L. & Goldberg, S. (2007). Improving care and assistance security for vulnerable older women in California. Los Angeles: The California Endowment. Retrieved 27-Jun-07 from http://www.calendow.org/r eference/publications/pdf /cultural/WomenHealthAgin g.pdf

Rabinowitz, Y., Mausbach, B.T., Thompson, L.W., Gallagher-Thompson, D. (2007). The relationship between self-efficacy and cumulative health risk associated with health behavior patterns in female caregivers of elderly relatives with Alzheimer's dementia. Journal of Aging and Health, 19(6), pp.946-964.

Rabren, K., Curtis, R. S., Martin Jr., E. D. (Ed.) (2007). Principles and practices of case management in rehabilitation counseling. (2nd ed., pp.33-77). Springfield, IL: Charles C. Thomas Publisher.

Reiss, J., Gibson, R. W., Betz, C. L. (Ed.), Nehring, W. M. (Ed.) (2007). Developing transition health care plans. Promoting health care transitions for adolescents with special health care needs and disabilities. (xiii ed., pp.137-154). Baltimore, MD: Paul H Brookes Publishing.

Roth, D.L., Haley, W.E., Wadley, V.G., Clay, O.J. & Howard, G. (2007). Race and gender differences in perceived caregiver availability for community-dwelling middle-aged older adults. Gerontologist, 47(6), pp.721-729.

Scharlach, A.E., Gustavson, K., Dal Santo, T.S. (2007). Assistance received by employed caregivers and their care recipients: Who helps care recipients when caregivers work full time? Gerontologist, 47(6), pp.752-762.

Scherzer, T., & Newcomer, R. (2007). Barriers to documenting occupational injuries among personal assistance services workers. American Journal of Industrial Medicine, 50(7), pp.536-544.

Scherzer, T., Wong, A. and Newcomer, R. (2007). Financial management services in consumer-directed programs. Home Health Care Services Quarterly, 26(1), pp.29-42.

Schopp, L. H.; Clark, M. J.; Hagglund, K. J.; Sherman, A. K.; Stout, B. J.; Gray, D. B.; Boninger, M. L. (2007). Life Activities Among Individuals With Spinal Cord Injury Living in the Community: Perceived Choice and Perceived Barriers. Rehabilitation Psychology, 52(1), pp.82-88.

Schopp, L. H.; Clark, M. J.; Hagglund, K. J.; Sherman, A. K.; Stout, B. J.; Gray, D. B.; Boninger, M. L. (2007). Life Activities Among Individuals With Spinal Cord Injury Living in the Community: Perceived Choice and Perceived Barriers. Rehabilitation Psychology, 52(1), pp.82-88.

Shirk, C. (2007). Trading Places: Real Choice Systems Change Grants and the Movement to Community-Based Long-Term Care Supports. (Issue brief No. 822). Washington, DC: The National Health Policy Forum.

Ski, C. & O'Connell, B. (2007). Stroke: The increasing complexity of carer needs. Journal of Neuroscience Nursing, 39(3), pp.172-179.

Spillman, B.C. & Long, S.K. (2007). Does High Caregiver Stress Lead to Nursing Home Entry? Washington, D.C.: U.S. Department of Health and Human Services, Assistant Secretary for Planning and Evaluation. Retrieved 9-Dec-07 from http://aspe.hhs.gov/daltc p/reports.htm

Spillman, B.C., Black, K.J. & Ormond, B.A. (2007). Beyond Cash and Counseling: The second generation of individual budget-based community long term care programs for the elderly. Washington, D.C.: Kaiser Family Foundation. Retrieved 30-Apr-07 from http://www.kff.org/medica id/7579.cfm

Sterarns, S.C., Norton, E.C. & Yang Z. (2007). How Age and Disability Affect Long-Term Care Expenditures in the United States. Social Policy and Society, 6(3), pp.367-378.

Stone, R. (2007). Introduction: The Role of Training and Education in Solving the Direct Care Workforce Crisis. Gerontology & Geriatrics Education, 28(2), pp.5-16.

Storey, K. (2007). Review of research on self-management interventions in supported employment settings for employees with disabilities. Career Development for Exceptional Individuals, 30(1), pp.27-34.

Stott, A.L., Brannon, S.D., Vasey, J., Dansky, K.H. & Kemper, P. (2007). Baseline Management Practices at Providers in Better Jobs Better Care. Gerontology & Geriatrics Education, 28(2), pp.17-36.

Stowell-Ritter, A. (2007). Long-term care preferences: An survey of Alabama residents age 35+. Washington, D.C.: AARP Public Policy Institute. Retrieved 30-Apr-07 from http://www.aarp.org/resea rch/longtermcare/costs/al _ltc_2007.html

Summer, L. (2007). Community-based long-term services financed by Medicaid: Managing resources to provide appropriate Medicaid services. Washington, DC: Georgetown University Long-Term Care Financing Project. Retrieved 25-Jun-07 from http://ltc.georgetown.edu /pdfs/summer0607.pdf

Swan, J.H. & Harrington, C. (2007). California nursing facility quality and union environments. Journal of Aging & Health, 19(2), pp.183-199.

Swan, J.H., Harrington, C., Dryer, K., Pickard, R.B., Covert, J.M. & Gulur, P. (2007). Medicaid Nursing Facility Payment in the Face of State Fiscal Meltdown. Long Term Care Interface, 8(5), pp.28-31.

Wachino, V. (2007). The new Medicaid Integrity Program: Issues and challenges in ensuring program integrity in Medicaid. Washington, D.C.: Kaiser Family Foundation. Retrieved 25-Jun-07 from http://www.kff.org/medica id/7650.cfm

White, G.W., Fox, M.H. & Rooney, C. (2007). Assessing the impact of Hurricane Katrina on persons with disabilities. Lawrence, KS: The University of Kansas, The Research and Training Center on Independence Living. Retrieved 30-Apr-07 from http://rtcil.org/products /NIDRR_FinalKatrinaReport .pdf

Wiener, J.M., Anderson, W.L. & Khatutsky, G. (2007). Are consumer-directed home care beneficiaries satisfied? Evidence from Washington state, 47(6), pp.763-774.

Wiener, J.M., Tilly, J., Howe, A., Doyle, C., Cuellar, A.E., Campbell, J. & Ikegami, N. (2007). Quality assurance for long-term care: The experiences of England, Australia, Germany and Japan. Washington, D.C.: AARP Public Policy Institute. Retrieved 6-Mar-07 from http://www.aarp.org/resea rch/longtermcare/quality/ 2007_05_ltc.html

Williams, B., & Tolbert, J. (2007). Aging Out of Early and Periodic Screening, Diagnostic and Treatment (EPSDT): Issues for Young Adults with Disabilities. Retrieved June 18th, 2010 from http://www.kff.org/medica id/upload/7491.pdf

Wong, A. & Newcomer, R. (2007). Health promotion and disease prevention for people with disabilities: An annotated bibliography. San Francisco: Center for Personal Assistance Services.

Wood, E.F. and Klem, E.M. (2007). Protections in Medicaid estate recovery: Findings, promising practices, and model notices. Washington, D.C.: AARP Public Policy Institute. Retrieved 21-May-07 from http://aarp.org/research/ longtermcare/programfundi ng/2007_07_medicaid.html

Wright, B. (2007). Assisted living in unlicensed housing: The regulatory experience of four states. Washington, D.C.: AARP Public Policy Institute. Retrieved 21-May-07 from http://www.aarp.org/resea rch/housing-mobility/assi stedliving/2007_08_housin g.html

Yeager, P., Kaye, H.S., Reed, M., & Doe, T.M. (2007). Assistive Technology and Employment: Experiences of Californians with Disabilities. Work, 27(4), pp.333-344.

Research and Training Center on Community Living, University of Minnesota. (2006, December). CMS Direct Service Workforce Demonstration Promising Practices in Marketing, Recruitment and Selection Interventions. Minneapolis, MN: Author. Retrieved 14-May-07 from http://rtc.umn.edu/public ations/

Kitchener, M., Willmott, M., Wong, A., & Harrington, C. (2006, December). Medicaid Managed Long-Term Care: An Introduction. UCSF San Francisco, CA: Center for Personal Assistance Services. Retrieved May 4th, 2008 from http://www.pascenter.org/ documents/Medicaid_Manage d_LTC.doc

Health Workforce Solutions LLC.. (2006, November). Workers who care: A graphical profile of the frontline health and health care workforce. San Francisco, CA: Author. Retrieved 8-Aug-07 from http://rwjf.org/pr/produc t.jsp?id=15943

Adini, B., Goldberg, A., Laor, D., Cohen, R., Zadok, R., Bar-Dayan, Y. (2006, November). Assessing levels of hospital emergency preparedness. Pre-hospital and Disaster Medicine: The Official Journal of The National Association of EMS Physicians and The World Association for Emergency and Disaster Medicine in Association with The Acute Care Foundation, 21(6), pp.451-457.

Anderson, W.L., Wiener, J.M. & Khatutsky, G. (2006, November). Workforce issues and consumer satisfaction in Medicaid personal assistance services. Health Care Financing Review, 28(1), pp.87-101.

Khatutsky, G., Anderson, W.L. & Wiener, J.M. (2006, November). Personal care satisfaction among aged and physically disabled Medicaid beneficiaries. Health Care Financing Review, 28(1), pp.69-86. Retrieved 21-Nov-06 from http://www.cms.hhs.gov/He althCareFinancingReview/0 9_2006%20Edition.asp#TopO fPage

Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (2006, November). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. USCF, San Francisco: Center for Personal Assistance Services. Retrieved July 29th, 2007 from http://http://pascenter.o rg/demo_waivers/demoWaive rReport_2006.php

Sommers, A., Cohen, M. & O'Malley, M. (2006, November). Medicaid's long-term care beneficiaries: An analysis of spending patterns. (#7576). Washington, DC: Kaiser Family Foundation. Retrieved 16-Jan-07 from http://www.kff.org/medica id/upload/7576.pdf

Black, W.E., Liu, S., & Ireys, H.T. (2006, May). How much are Medicaid Buy-In participants earning? (Working with Disability Issue Brief, 1). Princeton, NJ: Mathematica Policy Research. Retrieved 5-Jul-06 from http://www.mathematica-mp r.com/publications/PDFs/h owmuchmedicaid

Lida, K. (2006, May). Highlights of fourth quarter MIG activities. Center for Workers with Disabilities. Retrieved 10-Aug-06 from http://www.aphsa.org/disa bilities/home/index.htm

Liu, S., & Ireys, H.T. (2006, May). Participation in the Medicaid Buy-in program: A statistical profile from integrated data. Final report. (500-00-0047). Washington, DC: Mathematica Policy Research, Inc.. Retrieved 27-Feb-07 from http://www.mathematica-mp r.com/publications/PDFs/m edbuyinstatprof.pdf

Zabin, C. (2006, March). Quality services and quality jobs for supporting Californians with developmental disabilities. California Policy Research Center Author's Report. Berkeley, CA: University of California. Retrieved 26-Jul-06 from http://laborcenter.berkel ey.edu/disabilities/disab ilities_brief06.pdf

National Academy for State Health Policy. (2006, January). Deficit Reduction Omnibus Reconciliation Act conference committee report offers states new options on home and community based services [News brief]. Portland, ME: Author. Retrieved 11-Dec-06 from http://www.nashp.org/File s/LTC_issue_brief_1.9.06. pdf

McMillan, S.C., Small, B.J., Weitzner, M., Schonwetter, R., Tittle, M., Moody,L. & Haley, W.E. (2006, January). Impact of coping skills intervention with family caregivers of hospice patients with cancer. Cancer, 106(1), pp.214-222.

Bank, A.L., Argüelles, S., Rubet, M., Eisdorfer, C. & Czaja, S.J. (2006). The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist, 46(1), pp.134-138.

Bruyère, S. M.; Erickson, W. A.; VanLooy, S. A. (2006). The Impact of Business Size on Employer ADA Response. Rehabilitation Counseling Bulletin, 49(4), pp.194-206.

Burack-Weiss, A. (2006). The caregiver's tale: Loss and renewal in memoirs of family life. New York: Columbia University Press.

Larsson, K., Thorsulnd, M. & Kareholt, I. (2006). Are public care and services for older people targeted according to need? Applying the Behavioural Model on longitudinal data of a Swedish urban older population. European Journal of Ageing, 3(1), pp.22-33.

Mains, D., Fairchild, T.J. & René, A.A. (2006). Cultural attitudes and caregivers service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47(1/2), pp.159-175.

U.S. Department of Health and Human Services, Assistant Secretary for Planning and Evaluation. (2006). Final Report on the "Own Your Future" Consumer Survey. Washington, D.C.: Author. Retrieved 9-Dec-07 from http://aspe.hhs.gov/daltc p/reports.htm

Paraprofessional Healthcare Institute, Health Care for Health Care Workers. (2006). Caregivers without health care: Pennsylvania fact sheet. New York, NY: Author. Retrieved 30-Apr-07 from http://www.hchcw.org/docs /HCHCW_Fact_Sheet-PA.pdf

Paraprofessional Healthcare Institute, Health Care for Health Care Workers. (2006). Caregivers without health care: Michigan fact sheet. New York, NY: Author. Retrieved 30-Apr-07 from http://hchcw.org/docs/HCH CW_Fact_Sheet-MI.pdf

Paraprofessional Healthcare Institute. (2006). Caregivers without health care: Maine fact sheet. New York: Author. Retrieved 30-Apr-07 from http://www.hchcw.org/docs /HCHCW_ME_FactSheet.Final .pdf

AARP Public Policy Institute. (2006). European experiences with long-term care: France, the Netherlands, Norway and the United Kingdom. Washington, D.C.: Author. Retrieved 13-Jan-07 from http://www.aarp.org/resea rch/international/report/ leadershipstudy_reports.h tml

Kaiser Family Foundation. (2006). Medicaid 1915(c) home and community-based services program: Data update. Washington, DC: Author. Retrieved 16-Jan-07 from http://www.kff.org/medica id/7575.cfm

Robert Wood Johnson Foundation. (2006). Workgroup's recommendations help HMOs identify and care for high-risk chronically ill older patients. Princeton, NJ: Author. Retrieved 7-Dec-06 from http://rwjf.org/portfolio s/resources/grantsreport. jsp?

Paraprofessional Healthcare Institute.. (2006). Reimbursement practices and issues in Vermont's long-term care programs. A report prepared by the Paraprofessional Healthcare Institute for the Long-Term Care Workforce Policy Committee of the Community of Vermont Elders. Bronx, NY: Author. Retrieved 20-Nov-06 from http://www.directcareclea ringhouse.org/download/VT %20Reimbursement %20White %20Paper%20Final%20Nov%20 06.pdf

OECD Economics Department. (2006). Projecting OECD health and long-term care expenditures. What are the main drivers? Working Papers (No. 477). Paris, France: Author. Retrieved 19-Jul-06 from http://www.oecd.org/datao ecd/57/7/36085940.pdf

National Alliance for Caregiving. (2006). The MetLife caregiving cost study: Productivity losses to U.S. business. Bethesda, MD: Author. Retrieved 21-Jul-06 from http://www.caregiving.org /pubs/data.htm

Older Women's League. (2006). Women and long-term care: Where will I live and who will take care of me? Arlington, VA: Author. Retrieved 23-Jun-06 from http://www.owl-national.o rg/owlreports/index.html