Library

Stapleton, D. and Livermore, G. (2011, September). Costs, cuts and consequences: Charting a new course for working-age people with disabilities. (Issue Brief Number 11-03). Washington, DC: Center for Studying Disability Policy.

The SCAN Foundation. (2011, August). Medicaid Home and Community-Based Services. (Long-Term Care Fundamentals No. 9). Long Beach, CA: Author.

PHI. (2011, August). State Chart Book On Wages For Personal And Home Care Aides, 2000 - 2010. Bronx, NY: Author.

Harrington, C., Olney, B., Carrillo, H. & Kang, T. (2011, August). Nurse staffing and deficiences in the largest for-profit nursing chains and chains owned by private equity companies. Health Services Research, 46. doi: 10.1111/j.1475-6773.2011.01311.x

Cynkar, P. & Mendes, E. (2011, July). More than one in six American workers also act as caregivers. Washington, DC: Gallup.com.

Feinberg, L., Reinhard, S.C., Houser, A. and Choula, R. (2011, July). Valuing the invaluable: 2011 update - the growing contributions and costs of family caregiving. Washington, DC: AARP Public Policy Institute.

Fox-Grage, W. & Flowers, L. (2011, July). Health Reform Law Creates New Opportunities for States to Save Medicaid Dollars. (Insight on the Issues, 52). Washington, DC: AARP Public Policy Institute.

Holly, C. Felix, H.C., Mays, G.P., Stewart, K.M., Cottoms, N. and Olson, M. (2011, July). Medicaid Savings Resulted When Community Health Workers Matched Those With Needs To Home And Community Care. Health Affairs, Vol. 30 No. 7, pp.1366-1374. doi: 10.1377/hlthaff.2011.0150

Mendes, E. (2011, July). Most caregivers look after elderly parent; invest a lot of time. Washington, DC: Gallup.com.

Miller, V., Schneider, A. & Rudowitz, R. (2011, July). An Overview of Changes in the Federal Medical Assistance Percentage (FMAPs) for Medicaid. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved July, 2011 from http://http://www.kff.org /medicaid/8210.cfm

Schurrer, J. and Wenzlow, A. (2011, July). The national evaluation of the Money Follows the Person (MFP) demonstration grant program: Reports from the field. (Number 7.). Washington, DC: Center for Studying Disability Policy.

Stone, J. (2011, July 19). Home and Community-Based Services Under Medicaid. (R41600). Washington, DC: Congressional Research Service.

Witters, D. (2011, July). Caregiving costs U.S. economy $25.2 billion in lost productivity. Washington, DC: Gallup.com.

The Arc. (2011, June). Still in the shadows with their future uncertain: A report on family and individual needs for disability supports. Summary of key findings and a call to action. Washington, DC: Author.

U.S. Department of Justice. (2011, June). Statement of the Department of Justice on enforcement of the integration mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C. Washington, DC: Author.

MetLife Mature Market Institute. (2011, June). The MetLife study of caregiving costs to working caregivers: Double jeopardy for baby boomers caring for their parents. New York, NY: Author.

United States Government Accountability Office. (2011, June). Nursing homes: Private investment homes sometimes differed from others in deficiencies, staffing, and financial performance. (GAO-11-571). Washington, DC: Author.

Stone, J. (2011, June 28). Medicaid Eligibility for Persons Age 65+ and Individuals with Disabilities: 2009 State Profiles. (R41899). Washington, DC: Congressional Research Service.

Woodcock, C., Stockwell, I., Tripp, A., & Milligan, C. (2011, June 14). Rebalancing long-term services and supports: Progress to date and a research agenda for the future. Baltimore, MD: The Hilltop Institute, UMBC.

Zarit, S.H., Kim K., Elia E. Femia, E.E., Almeida, D.M., Savla, J. and Molenaar, P.C.M. (2011, June). Effects of Adult Day Care on Daily Stress of Caregivers: A Within-Person Approach. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences. . doi: 10.1093/geronb/gbr030

The SCAN Foundation. (2011, May). Opportunities for transforming California’s system of home and community-based services. Background paper prepared for the Assembly Committee on Aging and Long-Term Care. Long Beach, CA: Author. Retrieved May, 2011 from http://www.thescanfoundat ion.org/foundation-public ations/scan-foundation-ba ckground-paper-may-17-cal ifornia-assembly-committe e-aging-

The SCAN Foundation. (2011, May). Transforming California's system of care for older adults and people with disabilities: A look at the state's administrative and fiscal organization. (Policy Brief #5). Long Beach, CA: Author. Retrieved May, 2011 from http://www.thescanfoundat ion.org/foundation-public ations/policy-brief-5-tra nsforming-california’s- system-care-older-adults- and-people

Anderson, L., Larson, S.A. and Wuorio, A. (2011, May). 2010 FINDS national survey technical report part 1: Family caregiver survey. Minneapolis, MN: University of Minnesota, Research and Training Center on Community Living.

Fox-Grage, W and Redfoot, D. (2011, May). Medicaid: A program of last resort for people who need long-term services and supports. Washington, DC: AARP Public Policy Institute.

Kassner, E. (2011, May). Home and community-based long-term services and supports for older people. Washington, DC: AARP Public Policy Institute.

Kenen, J. (2011, May). Health Policy Brief: The CLASS Act Washington, DC: Health Affairs.

Simon, S.E. and Hodges, M.R. (2011, May). Money Follows the Person (MFP): Change in participant experience during the first year of community living. (Number 6.). Washington, DC: Center for Studying Disability Policy.

The SCAN Foundation. (2011, April). California's 2011-2012 Budget: Reductions to Aging and Long-Term Care Programs (Fact sheet No. 19). Long Beach, CA: Author.

National Senior Citizens Law Center. (2011, April). Medicaid Block Grants: Attacking the Safety Net for Low-Income Older Adults. Washington, DC: Author. Retrieved April, 2011 from http://www.nsclc.org/abou t-us/nsclc-in-the-news/ns clcnews.2011-04-26.907258 4672

National Senior Citizens Law Center. (2011, April). LGBT Older Adults in Long-Term Care Facilities: Stories from the Field. Washington, DC: Author. Retrieved April, 2011 from http://www.nsclc.org/abou t-us/nsclc-in-the-news/ns clcnews.2011-04-26.907258 4672

National Center for Assisted Living. (2011, March). Assisted Living State Regulatory Review 2011. Washington, DC: Author. Retrieved March, 2011 from http://www.ahcancal.org/n cal/resources/Pages/Assis tedLivingRegulations.aspx

National Consumer Voice for Quality Long-Term Care. (2011, March). Piecing Together Quality Long-Term Care: A Consumer’s Guide to Choices and Advocacy. Washington, DC: Author. Retrieved March, 2011 from http://www.theconsumervoi ce.org/piecing-together-q uality-long-term-care

PHI. (2011, March). Health Care Coverage for Direct-Care Workers: 2009 Data Update Bronx, New York: Author.

Kaye, H.S., Jans, L.H. & Jones, E.C. (2011, March). Why don't employers hire and retain workers with disabilities? Journal of Occupational Rehabilitation, March. doi: 10.1007/s10926-011-9302-8

Khatutsky, G., Wiener, J., Anderson, W., Akhmerova, V., Jessup, E.A. & Squillace, M.R. (2011, March). Understanding direct care workers: A snapshot of two of America’s most important jobs certified nursing assistants and home health aides. Washington, DC: Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services. Retrieved May, 2011 from http://aspe.hhs.gov/daltc p/reports/2011/CNAchart.h tm

Powers, E.T. (2011, March). Should Government Subsidize Caregiver Wages? Some Evidence on Worker Turnover and the Cost of Long-Term Care in Group Homes for Persons With Developmental Disabilities. Journal of Disability Policy Studies, vol., pp.195-209. doi: 10.1177/1044207310389176

Kaiser Commission on Medicaid and the Uninsured. (2011, February). Money Follows the Person Transitions Individuals from Nursing Homes to the Community. Washington, DC: Author. Retrieved March, 2011 from http://www.kff.org/medica id/8141.cfm

PHI. (2011, February). Fact sheet: Who are direct-care workers? Bronx, New York: Author. Retrieved March, 2011 from http://www.directcareclea ringhouse.org/l_art_det.j sp?res_id=306110

Ng, T., Harrington, C. & Howard, J. (2011, February). Medicaid Home and Community-Based Service Programs: Data Update. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved February, 2011 from http://www.kff.org/medica id/7720.cfm

O'Malley Watts, M. (2011, February). Money Follows the Person: A 2010 Snapshot. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved March, 2011 from http://www.kff.org/medica id/8142.cfm

O'Malley Watts, M. (2011, February). Case Study: Ohio's Money Follows the Person Demonstration (HOME Choice). Washington, DC: Kaiser Commission on Medicaid and the Uninsured.. Retrieved March, 2011 from http://www.kff.org/medica id/8143.cfm

Summer, L. & Howard, J. (2011, February). A Challenge for States: Assuring Timely Access to Long-Term Services and Supports in the Community. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved February, 2011 from http://www.kff.org/medica id/8144.cfm

Summer, L. & Howard, J. (2011, February). Helping Consumers Manage Long-Term Services and Supports in the Community: State Medicaid Program Activities. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.. Retrieved March, 2011 from http://www.kff.org/medica id/8145.cfm

Legislative Budget Board Staff. (2011, January). Transform State Residential Services for Persons with Intellectual and Developmental Disabilities. Austin, TX: Author.

National Alliance for Caregiving. (2011, January). e-Connected Family Caregiver: Bringing Caregiving into the 21st Century. Washington, DC: Author.

Kaiser Commission on Medicaid and the Uninsured. (2011, January). Medicaid's New "Health Home" Option. Washington, DC: Author.

National Alliance for Caregiving. (2011, January). e-Connected Family Caregiver: Bringing Caregiving into the 21st Century. Washington, DC: Author.

Bryan, M.L. (2011, January). Access to Flexible Working and Informal Care. Essex, UK: University of Essex, Institute for Social and Economic Research.

Davis, P.A., Hahn, J., Morgan, P.C., Stone, J. & Tilson, S. (2011, January 24th). Medicare Provisions in the Patient Protection and Affordable Care Act (PPACA). (R41196). Washington, DC: Congressional Research Service.

Kietzman, K.G., Wallace, S.P., Durazo, E., Torres, J., Soon Choi, A., Benjamin, A.E. & Mendez-Luck, C.A. (2011, January). Holding On: Older Californians with Disabilities Rely on Public Services to Remain Independent. Los Angeles, CA: UCLA Center for Health Policy Research.

Lipson, D.J. and Williams, S.R. (2011, January). Money Follows the Person demonstration program: A profile of participants. (Number 6). Washington, DC: Center for Studying Disability Policy.

Morris, J. (2011, January). Survey on Use of Social Media for Emergencies by People with Disabilities - Summary Report. Retrieved September, 2011 from http://http://www.wireles srerc.org/publications/em ergency-communications-an d-people-with-disabilitie s/Survey%20Results-Social %20Media%20and%20EC.doc

Walls, J., Gifford, K., Rudd, C., O’Rourke, R., Roherty, M., Copeland, L. & Fox-Grage, W. (2011, January). Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

World Health Organization. (2011). World report on disability. Geneva, Switzerland: Author.

Centers for Disease Control and Prevention. (2011). Emergency Preparedness and You Atlanta, GA: Author.

Elliott, T.R., Phillips, C.D., Patnaik, A., Naiser, E., Booth, E.A., Fournier, C.J., Miller, T.R., Moudouni, D.M., Hawes, C. & Dyer, J.A. (2011). Medicaid personal care services and caregivers’ reports of children’s health: The dynamics of a relationship. Health Services Research, 46, 4, pp.1803-1821.

Harrington, C., Hauser, C., Olney, B. & Vaillancourt Rosenau, P. (2011). Ownership, financing, and management strategies of the ten largest for-profit nursing home chains in the United States. International Journal of Health Services, 41, 4, pp.725-746.

Henry, A.D., Long-Bellil, L. Zhang, J. & Himmelstein, J. (2011). Unmet need for disability-related health care services and employment status among adults with disabilities in the Massachusetts Medicaid program. Disability and Health Journal, 4, 4, pp.209-218.

Kusano, C.T., Bouldin, E.D., Anderson, L.A., McGuire, L.C., Salvail, F.R., Wynkoop Simmons, K. & Andresen, E. (2011). Adult informal caregivers reporting financial burden in Hawaii, Kansas and Washington: Results from the 2007 Behavioral Risk Factor Surveillance System. Disability and Health Journal, 4, 4, pp.229-237.

Miller, N.A. (2011). Relations among home- and-community based services investment and nursing home rates of use for working-age and older adults: A state-level analysis. American Journal of Public Health, 101,, pp.1735-1741.

Mitra, M., Bogen, K., Long-Bellil, L. & Heaphy, D. (2011). Unmet need for home and community-based services among persons with disabilities in Massachusetts. Disability and Health Journal, 4, 4, pp.219-228.

Newcomer, R., Kang, T. & Faucett, J. (2011). Consumer-directed personal care: Comparing aged and non-aged adult recipient health-related outcomes among those with paid family versus non-relative providers. Home Health Care Services Quarterly, 30, 4, pp.178-197.

Ogg, M. (2011). Running out of time, money and independence? Health Affairs, 30(1), pp.173-176.

Phillips, C.D., Patnaik, A., Dyer, J.A., Naiser, E., Hawes, C., Fournier, C.J. and Elliott, T.R. (2011). Reliability and the measurement of activity limitations (ADLs) for children with special health care needs (CSHCN) living in the community. Disability and Rehabilitation.

Reinhard, S.C., Kassner, E. and Houser, A. (2011). How the Affordable Care Act can help move states toward a high-performing system of long-term services and supports. Health Affairs , 20, pp.3447-3453.

Seavey, D. & Marquand, A. (2011, Spring). Building Infrastructure to Support CLASS: The Potential of Matching Service Registries (CLASS Technical Assistance Brief Series. No 16). Long Beach, CA: The SCAN Foundation.

Seavey, D. (2010-2011, Winter). Caregivers on the front line: Building a better direct-care workforce. Generations, 34(4), pp.27-35.

Seavey, D. (2010-2011, Winter). Caregivers on the front line: Building a better direct-care workforce. GENERATIONS – Journal of the American Society on Aging, 34(4), pp.27-35.

Health Policy Research Center, State University of New York. (2010, December). Paying for Long-Term Care: Families or Taxpayers? Albany, NY: Author.

Kaiser Family Foundation. (2010, December). Comparison of Medicaid Provisions in Deficit-Reduction Proposals. Washington, DC: Author.

Kaiser Family Foundation. (2010, December). Dual Eligibles: Medicaid's Role for Low-Income Medicare Beneficiaries. Washington, DC: Author.

Harrington, C. (2010, December). Nursing home staffing standards in state statutes and regulations. San Francisco, CA: Department of Social and Behavioral Sciences, University of California.

McNichol, E., Oliff, P. & Johnson, N. (2010, December). States Continue to Feel Recession's Impact. Washington, DC: Center on Budget and Policy Priorities.

Rousseau, D., Clemans-Cope, L., Lawton, E., Langston, J., Connolly, J. & Howard, J. (2010, December). Dual Eligibles: Medicaid's Enrollment and Spending for Medicare Beneficiaries in 2007. Washington, DC: Kaiser Family Foundation.

FEMA. (2010, November). Guidance on Planning for Integration of Functional Needs Support Services in General Population Shelters Washington, DC: Author.

Federal Emergency Management Agency. (2010, November). People with Disabilities and Other Access and Functional Needs: Preparing and Planning for an Emergency Washington, DC: Author.

Bachrach, D. (2010, November). Medicaid Payment Reform: What Policymakers Need to Know About Federal Law. Hamilton, NJ: Center for Health Care Strategies, Inc.

Berthoud, R. (2010, November). The Take-Up of Carer's Allowance: A Feasibility Study. Essex, UK: University of Essex, Institute for Social and Economic Research.

Johnson, N. Oliff, P. & Williams, E. (2010, November). An Update on State Budget Cuts: At Least 46 States Have Imposed Cuts That Hurt Vulnerable Residents and Cause Job Loss. Washington, DC: Center on Budget and Policy Priorities.

Engelberg Center for Health Care Reform at the Brookings Institution. (2010, October). Achieving Better Chronic Care at Lower Costs Across the Health Care Continuum for Older Americans. Washington, DC: Author.

United States Government Accountability Office. (2010, October). Recovery Act: Increased Medicaid Funds Aided Enrollment Growth and Most States Reported Taking Steps to Sustain Their Programs. (Report #GAO-11-58). Washington, DC: Author.

U.S. Department of Labor, Bureau of Labor Statistics. (2010, October). Workplace Injury and Illness Summary 2010. Washington, DC: Author.

Jacobson, G., Neuman, T. & Damico, A. (2010, October). Medicare Spending and Use of Medical Services for Beneficiaries in Nursing Homes ad Other Long-Term Care Facilities: A Potential for Achieving Medicare Savings and Improving the Quality of Care. Washington, DC: Kaiser Family Foundation.

Kaye, H.S. (2010, October). The impact of the 2007–09 recession on workers with disabilities. Monthy Labor Review, 133(10), pp.19-30.

Perry, M., Cummings, J., Jacobson, G., Neuman, T. & Cubanski, J. (2010, October). To Hospitalize or Not to Hospitalize? Medical Care for Long-Term Care Facility Residents. Washington, DC: Kaiser Family Foundation.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2010, October). Workplace Personal Assistance Services (PAS) for People with Disabilities: Making Productive Employment Possible. Journal of Rehabilitation, 76(4), pp.3-8.

Benson, C. (2010, September). Legal Victories, Economic Defeats. CQ Weekly, September, pp.2220-2225.

Carlson, E. & Coffey, G. (2010, September ). 10-Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center.

Carlson, E., & Coffey, G. (2010, September). 10 Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center. Retrieved September 29th, 2010 from http://www.thescanfoundat ion.org/sites/default/fil es/NSCLC_Olmstead.pdf

Langer Ellison, M., Glazier, R.E., O'Connell, E., Norton, G & Himmelstein, J. (2010, September ). Design Features for Employment-Supportive Personal Assistance Services in Medicaid Programs. Journal of Disability Policy Studies, 21(2), pp.90-100. doi: 10.1177/1044207310370682

Mendelsohn, S. (2010, September). State Tax Law and People with Disabilities: Opportunities for Supporting Fuller Participation in Community and Society New York, NY: Burton Blatt Institute, Syracuse University.

Stone, J. & Hoffman, G.J. (2010, September 21st). Medicare Hospital Readmissions: Issues, Policy Options and PPACA. (R40972). Washington, DC: Congressional Research Service.

Wallace, S.P., Padilla-Frausto, D.I. & Smith, S.E. (2010, September). Older Adults Need Twice the Federal Poverty Level to Make Ends Meet in California. (PB2010-8). Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved 15th September, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/elder_ index-brief-0910.pdf

The SCAN Foundation. (2010, August). Federal Health Care Reform and its Potential Impact on California's Long‐Term Care System. (Policy Brief No.3). Long Beach, CA: Author. Retrieved September 27th, 2010 from http://www.thescanfoundat ion.org/sites/default/fil es/TSF Policy Brief No 3 .pdf

Cubanski, J. & Neuman, P. (2010, August). Medicare Doesn't Work As Well For Younger, Disabled Beneficiaries As It Does For Older Enrollees. Health Affairs, 29(9) Retrieved August, 2010 from http://content.healthaffa irs.org/cgi/content/full/ hlthaff.2009.0962v1 . doi: 10.1377/hlthaff.2009.0962

Eiken, S., Burwell, B., Gold, L., & Sredl, K. (2010, August). Medicaid HCBS Waiver Expenditures FY 2004 Through FY 2009. Cambridge, MA.: Thomson Reuters. Retrieved 8th September, 2010 from http://www.hcbs.org/moreI nfo.php/doc/3326

Fosset, J.W. and Burke, C.E. (2010, August). Medicaid Policy and Long-Term Care Spending: An Interactive View. Albany, NY: Health Policy Research Center, State University of New York.

Friedman, E.M. & Seltzer, J.A. (2010, August). Providing for Older Parents: Is It a Family Affair? Los Angeles, CA: California Center for Population Research. Retrieved 40416 from http://papers.ccpr.ucla.e du/papers/PWP-CCPR-2010-0 12/PWP-CCPR-2010-012.pdf

Stone, J., Baumrucker, E.P., Binder, C., Herz, E.J., Heisler, E.J. & Rothenburger, A.J. (2010, August). Medicaid and the State Children’s Health Insurance Program (CHIP) Provisions in PPACA: Summary and Timeline. (R41210). Washington, DC: Congressional Research Service.

PHI. (2010, July). State Chart Book On Wages For Personal And Home Care Aides, 1999 - 2009. Bronx, NY: Author. Retrieved 8th July, 2010 from http://www.directcareclea ringhouse.org/download/PC A_Wage_Chart_Book_1999_20 09.pdf