Library

Feinberg, L & Houser, A. (2012, July). Assessing family caregiver needs: Policy and Practice Considerations. Washington, DC: AARP Public Policy Institute.

Lindquist L.A., Cameron K.A., Messerges-Bernstein J., Friesema E., Zickuhr L., Baker D.W. & Wolf M., (2012, July). Hiring and Screening Practices of Agencies Supplying Paid Caregivers to Older Adults. Journal of the American Geriatrics Society, Volume 60, Issue 7, pp.1253–1259. doi: 10.1111/j.1532-5415.2012.04047.x

Lipson, D., Libersky, J. & Machta, R. (2012, July). Keeping Watch: Building State Capacity to Oversee Medicaid Managed Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

Naylor, M.D., Kurtzman, E.T., Grabowski, D.C., Harrington, C., McClellan, M. & Reinhard, S.C.rn (2012, July). Unintended Consequences Of Steps To Cut Readmissions And Reform Payment May Threaten Care Of Vulnerable Older Adults. Health Affairs, Vol. 31 No. 7, pp.1623-1632. doi: 10.1377/hlthaff.2012.0110

Saucier, P., Kasten, J., Burwell, B. & Gold, L. (2012, July). The Growth of Managed Long-Term Services and Supports (MLTSS) Programs: A 2012 Update. Washington, DC: Centers for Medicare and Medicaid Services & Truven Health Analytics.

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in California (Updated). Long Beach, CA: Author.

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in the U.S. (Updated). Long Beach, CA: Author.

The SCAN Foundation. (2012, June). Recipients of Home- and Community-Based Services in California. Long Beach, CA: Author.

FEMA. (2012, June). Personal Assistance Services Contract - Frequently Asked Questions Washington, DC: Author.

Kaye, H.S. (2012, June). Gradual Rebalancing Of Medicaid Long-Term Services And Supports Saves Money And Serves More People, Statistical Model Shows. Health Affairs, 31(6), pp.1195-1203.

Newcomer, R.J., Harrington, C., Stone, J., Chattopadhyay, A., Lee, S.J., Kang, T., Chu, P., Kao, C., Bindman, A.B. (2012, June). Recipients of Home and Community-Based Services in California Long Beach, CA: The SCAN Foundation & the California Department of Health Care Services.

Reinhard, S., Kassner, E., Hendrickson, L. & Mollica, R. (2012, May). State Long-Term Services and Supports Scorecard. What Distinguishes High- from Low-Ranking States? Overview of Three Case Studies. Washington, DC: AARP Public Policy Institute.

The SCAN Foundation. (2012, April). Who Needs and Uses Long-Term Care in California? Long Beach, CA: Author.

Department of Health and Human Services, Office of Inspector General. (2012, April). Gaps Continue To Exist In Nursing Home Emergency Preparedness And Response During Disasters. (OEI-06-09-00270). Washington, DC: Author.

Boushey, H. & Glynn. S.J. (2012, April). The Effects of Paid Family and Medical Leave on Employment Stability and Economic Security. Washington, DC: Center for American Progress.

Hoffman, G.J. & Wallace, S.P. (2012, April). Hidden in Plain Sight: California’s Paid Medi-Cal Caregivers Are Vulnerable. Los Angeles, CA: UCLA Center for Health Policy Research.

Hoffman, G.J. & Wallace, S.P. (2012, April). Hidden in Plain Sight: California's Paid Medi-Cal Caregivers Are Vulnerable Los Angeles, CA: UCLA Center for Health Policy Research.

Jacobson, G., Neuman, T. & Damico, A. (2012, April). Medicare's Role for Dual Eligible Beneficiaries. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

O’Leary, A. (2012, April). Protecting Workers and Their Families with Paid Family Leave and Caregiving Credits Washington, DC: Center for American Progress.

National Alliance for Caregiving. (2012, March). Multiple Sclerosis Caregivers 2012. Bethesda, MD: Author.

Legislative Analyst's Office. (2012, March). The 2012-13 Budget: In-Home Supportive Services Budget Update. Sacramento, CA: Author.

Department of Homeland Security. (2012, March). 2012 National Preparedness Report. Washington, DC: Author.

Boris, E. & Klein, J. (2012, March). Caring for America: Home Health Workers in the Shadow of the Welfare State. New York, NY: Oxford University Press.

Feinberg, L. (2012, March). Moving Toward Person- and Family-Centered Care. Washington, DC: AARP Public Policy Institute.

Ryan, E., Dale, E., Fox-Grage, W., Ari, H., Farmer, A., Cooper, L. (2012, March). Consumer-Focused, Cost Effective Long Term Care for an Age-Friendly Michigan Lansing, MI: AARP.

Seavey, D. (2012, March). Private-Duty Industry Association Studies of DOL's Proposal to Revise FLSA's Companionship Exemption: What Do They Tell Us? Bronx, NY.: Paraprofessional Healthcare Institute.

Seavey, D. (2012, March 20th). Statement for the Record by the Paraprofessional Healthcare Institute (PHI) For the Hearing on Ensuring Regulations Protect Access to Affordable and Quality Companion Care Before the Subcommittee on Workforce Protections, Education and the Workforce Committee, U.S. House of Representatives. Bronx, NY.: Paraprofessional Healthcare Institute.

Shugarman, L.R. (2012, March). Testimony for Lisa R. Shugarman, Ph.D. Senate Human Services Hearing: In-Home Supportive Services (IHSS) Integration into Medi-Cal Managed Care: Policy Considerations. Long Beach, CA: The SCAN Foundation.

Snyder, L., Stephens, J. & Rudowitz, R. (2012, March). Governors' Budgets for 2013 - What is Proposed for Medicaid? Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Legislative Analyst’s Office. (2012, February 17). The 2012-13 Budget: Integrating Care for Seniors and Persons with Disabilities. Sacramento, CA: Author.

Cheek, M., Roherty, M., Finnan, L, Cho, E., Walls, J., Gifford, K., Fox-Grange, W. & Ujvari, K. (2012, February). On the Verge: The Transformation of Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

Connolly, J. & Paradise, J. (2012, February). People with Disabilities and Medicaid Managed Care: Key Issues to Consider. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Feder, J. & Komisar, H. (2012, February). The Importance of Federal Financing to the Nation’s Long-Term Care Safety Net. Long Beach, CA: The SCAN Foundation.

Neri, M.T., Wong, A. & Harrington, C. (2012, February). Barriers to Use of Workplace Personal Assistance Services to Support Employment in California. Journal of Disability Policy Studies. Published online before print February 14, 2012. doi: 10.1177/1044207311433205

Sammis, S., Detty, A. & Birnbaum, M. (2012, February). Implementing Long-Term Care Reform in New York's Medicaid Program. (Fact sheet No. 23). New York, NY: United Hospital Fund.

Smith, V., Gifford, K., Nardone, M., Rudowitz, R. & Snyder, L. (2012, February). Mid-Year State Medicaid Budget Update for FY 2012 and A Look Forward to 2013. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

The SCAN Foundation. (2012, January). Medicaid Managed Care and Long-Term Services and Supports Spending. (DataBrief No. 27). Long Beach, CA: Author.

The SCAN Foundation. (2012, January). California's Proposed 2012-13 Budget: Impact on California's Seniors and People with Disabilities. (Fact sheet No. 23. ). Long Beach, CA: Author.

National Association of States United for Aging and Disabilities. (2012, January). State of the States Survey 2011: State Aging and Disability Agencies in Times of Change. Washington, DC: Author.

The SCAN Foundation. (2012, January). Long-Term Care Fundamentals: Nursing Facilities in California. (Technical Brief Series. No 10). Long Beach, CA: Author.

Office of Program Policy Analysis and Government Accountability. (2012, January). Profile of Florida’s Medicaid Home and Community-Based Services Waivers. (Report No. 12-03). Tallahassee, FL: Author.

Heberlein, M., Brooks, T., Guyer, J., Artiga, S. & Stephens, J. (2012, January). Performing Under Pressure: Annual Findings of a 50-State Survey of Eligibility, Enrollment, Renewal, and Cost-Sharing Policies in Medicaid and CHIP, 2011-2012. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Hendrickson, L. & Mildred, L. (2012, January). Flexible Accounting for Long-Term Care Services: State Budgeting Practices that Increase Access to Home- and Community-Based Services. Recommendations for California. Long Beach, CA: The SCAN Foundation.

King, J., Yourman, L., Ahalt, C., Eng, C., Knight, S.J., Pérez-Stable, E.J. & Smith, A.K. (2012, January). Quality of life in late-life disability: "I don't feel bitter because I am in a wheelchair." Journal of the American Geriatrics Society. doi: 10.1111/j.1532-5415.2011.03844.x

Summer, L. & Alker, J. (2012, January). Proposed Medicaid Long-Term Care Changes Raise Host of Questions About Impact. Washington, DC: Georgetown University Health Policy Institute.

Family Caregiver Alliance. (2012). Fact Sheet. Hiring In-Home Help. San Francisco, CA: Author.

Adelman, T., Kitchener, M., Ng, T. & Harrington, C. (2012). Changes and inertia in the New York State Medicaid Personal Care Services Program: An Institutional Case Study. Journal of Aging & Social Policy, 24, 3, pp.309-327.

Grabowski, D.C. (2012). Care Coordination for Dually Eligible Medicare–Medicaid Beneficiaries Under the Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.221-232.

Harrington, C., Ng, T., LaPlante, M. & Kaye, H.S. (2012). Medicaid Home- and Community-Based Services: Impact of the Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.169-187.

Hawes, C., Moudouni, D.M., Edwards, R.B. & Phillips, C.D. (2012). Nursing Homes and the Affordable Care Act: A Cease Fire in the Ongoing Struggle Over Quality Reform. Journal of Aging & Social Policy, 24, 2, pp.206-220. doi: 10.1080/08959420.2012.660046

Meiners, M.R. (2012). Partnership Long-Term Care Insurance: Lessons for CLASS Program Development. Journal of Aging & Social Policy, 24, 2, pp.152-168.

Mendelsohn, S., Myhill, W.N., & Morris, M. (2012). Tax Subsidizations of Personal Assistance Services. Disability and Health Journal, 5, pp.75-86.

Miler, E.A. (2012). The Affordable Care Act and Long-Term Care: Comprehensive Reform or Just Tinkering Around the Edges?, 24, 2, pp.101-117.

Newcomer, R., Kang, T. & Doty, P. (2012). Allowing spouses to be paid personal care providers: Spouse availability and the effects of Medicaid-funded service use and expenditures. Gerontologist, 52, 4, pp.517-530.

Seavey, D. & Olins, A. (2012). Can Home Care Companies Manage Overtime Hours? Three Successful Models. Bronx, NY.: Paraprofessional Healthcare Institute.

Stone, R.I. & Bryant, N. (2012). The Impact of Health Care Reform on the Workforce Caring for Older Adults. Journal of Aging & Social Policy, 24, 2, pp.188-205.

Weissert, W.G. (2012). A 10-Foot Rope for a 50-Yard Drop: The CLASS Act in the Patient Protection and Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.136-151.

Wiener, J.M. (2012). The CLASS Act: Is It Dead or Just Sleeping? Journal of Aging & Social Policy, 24, 2, pp.118-135.

Halfon N., Houtrow A., Larson K., & Newacheck P. (2012, Spring). The Changing Landscape of Disability in Childhood. The Future of Children, 22, 1 Retrieved May, 2012 from http://http://futureofchi ldren.org/futureofchildre n/publications/journals/a rticle/index.xml?journali d=77&articleid;=559

Kaiser Commission on Medicaid and the Uninsured. (2011, December). Georgia's Money Follows the Person Program: Helping People Move Back Home Washington, DC: Author.

Kaiser Commission on Medicaid and the Uninsured. (2011, December). Georgia's Money Follows the Person Demonstration. Washington, DC: Author.

FEMA. (2011, December). A Whole Community Approach to Emergency Management: Principles, Themes, and Pathways for Action. Washington, DC: Author.

FEMA. (2011, December). CERT Basic Training Participant Manual (Braille and Screen Reader Versions). Washington, DC: Author.

Kaiser Commission on Medicaid and the Uninsured. (2011, December). California and Texas: Section 1115 Medicaid Demonstration Waivers Compared. Washington, DC: Author.

Barth, S., Klebonis, J. & Archibald, N. (2011, December). Long-Term Services and Supports Opportunities in the Affordable Care Act. Technical Assistance Brief. Hamilton, NJ: Center for Health Care Strategies, Inc..

De Nardi, M., French, E., Jones, J.B. & Gooptu, A. (2011, December). Medicaid and the Elderly. (NBER Working Paper No. 17689). Cambridge, MA: National Bureau of Economic Research.

Howard, J., Ng, T. & Harrington, C. (2011, December). Medicaid Home and Community-Based Service Programs: Data Update Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Kietzman, K.G., Durazo, E.M., Torres, J.M., Soon Choi, A. & Wallace, S.P. (2011, December). Independence at Risk: Older Californians with Disabilities Struggle to Remain at Home as Public Supports Shrink. Los Angeles, CA: UCLA Center for Health Policy Research.

Mendelsohn, S., Morris, M. & Myhill, W. (2011, December). State Household and Dependent Care Tax Credits to Support Personal Assistant Services. San Francisco, CA: Center on Personal Assistance Services.

O'Malley Watts, M. (2011, December). Money Follows the Person: A 2011 Survey of Transitions, Services and Costs. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

O'Malley Watts, M. (2011, December). Case Study: Georgia's Money Follows the Person Demonstration. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

O'Malley Watts, M. (2011, December). Money Follows the Person: A 2011 Survey of Transitions, Services and Costs. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Park-Lee, E., Caffrey, C., Sengupta, M., Moss, A.J., Rosenoff, E. & Harris-Kojetin, L.D. (2011, December). Residential Care Facilities: A Key Sector in the Spectrum of Long-term Care Providers in the United States. (NCHS Data Brief, Number 78). Hyattsville, MD: National Center for Health Statistics.

Schoenbach, S. & Warren, L.B. (2011, December). Time to Care: How North Carolina Can Promote Health, Support Workers, and Strengthen Families. (DataBrief No. 20. ). Raleigh, NC: North Carolina Justice Center.

Seavey, D. & Marquand, A. (2011, December). Caring in America. A Comprehensive Analysis of the Nation’s Fastest-Growing Jobs: Home Health and Personal Care Aides. Bronx, NY.: Paraprofessional Healthcare Institute.

The SCAN Foundation. (2011, November, 28th). Proceedings Report: Inaugural Summit on Transforming California’s Long-Term Services and Supports Systems. Long Beach, CA: Author.

Houtrow, A.J., Okumura, M.J., Hilton. J.F., & Rehm, R.S. (2011, Nov/Dec). Profiling health and health-related services for children with special health care needs with and without disabilities. Academic Pediatric Association, 11(6), pp.508-16.

Kafka, B., Nerney, T., Mahoney, K.J., McGaffigan, E., Henry, M.K., Adams, K., Frane, L. & Oxford, M. (2011, November). Guiding Principles: For Partnerships with Unions and Emerging Worker Organizations When Individuals Direct Their Own Services and Supports.

Stone, J., Newcomer, R.J., Chattopadhyay, A., Gilmer, T.P., Chu, P., Kao, C., & Bindman, A.B. (2011, November,). Studying Recipients of Long-Term Care Services and Supports: A Case Study in Assembling Medicaid and Medicare Claims and Assessment Data in California San Francisco: California Medicaid Research Institute, University of California.

The SCAN Foundation. (2011, October). Seniors with Chronic Conditions and Functional Impairment. (DataBrief No. 20). Long Beach, CA: Author.

The SCAN Foundation. (2011, October). Dual Eligibles, Chronic Conditions and Functional Impairment. (DataBrief No. 21). Long Beach, CA: Author.

U.S. Department of Health and Human Services. (2011, October). A Report on the Actuarial, Marketing and Legal Analyses of the CLASS Program. Washington, DC: Author.

Courtot, B., Lawton, E., Artiga, S. (2011, October). Medicaid Enrollment and Expenditures by Federal Core Requirements and State Options. (Issue brief #8239). Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Dowler, D.L., Solovieva, T.I. & Walls, R.T. (2011, October). Personal assistance services in the workplace: A literature review. Disability and Health Journal, 4, pp.201-208. doi: 10.1016/j.dhjo.2011.04.003

Feinberg, L. & Reamy, A.M. (2011, October). Health Reform Law Creates New Opportunities to Better Recognize and Support Family Caregivers. (Fact sheet 239). Washington, DC: AARP Public Policy Institute.

Gershon, R.R., Magda, L.A., Riley, H.E., Merrill, J.A. (2011, October). Mass Fatality Preparedness in the Death Care Sector. Journal of Occupational & Environmental Medicine, Volume, pp.1179–1186. doi: 10.1097/JOM.0b013e31822cfe76

Kim, K. & Antonopoulos, R. (2011, October). Unpaid and Paid Care: The Effects of Child Care and Elder Care on the Standard of Living. (Working Paper No. 691). Annandale-on-Hudson, NY: Levy Economics Institute of Bard College.

Komisar, H.L. & Feder, J. (2011, October). Transforming Care for Medicare Beneficiaries with Chronic Conditions and Long-Term Care Needs: Coordinating Care Across All Services. Washington, DC: Georgetown University.

Lipson, D.J., Stone Valenzano, C. & Williams, S.R. (2011, October). What Determines Progress in State MFP Transition Programs. (#8). Washington, DC: Center for Studying Disability Policy.

Mendelsohn, S. (2011, October). State Tax Law and People with Disabilities: Opportunities for Supporting Fuller Participation in Community and Society. New York: Burton Blatt Institute, Syracuse University.

Newcomer, R.J., Kang, T. & Doty, P. (2011, October). Allowing Spouses to Be Paid Personal Care Providers: Spouse Availability and Effects on Medicaid-Funded Service Use and Expenditures. The Gerontologist. doi: 10.1093/geront/gnr102

Ng, T., Harrington, C. & Musumeci, M. (2011, October). State Options That Expand Access to Medicaid Home and Community-Based Services. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Patniak, A., Elliott, T.R., Moudouni, D.M., Fournier, C.J., Naiser, E., Miller, T.R., Dyer, J.A., Hawes, C. & Phillips, C.D. (2011, October 3). Severity of children’s intellectual disabilities and Medicaid personal care services. Rehabilitation Psychology. doi: 10.1037/a0025619

Seekins, T., Ravesloot, C., Katz, M., Liston, B., Oxford, M., Altom, B., White, G., Petty, R. & Kafka, B. (2011, October). Nursing home emancipation: A preliminary study of efforts by centers for independent living in urban and rural areas. Disability and Health Journal, 4, pp.245-253. doi: 10.1016/j.dhjo.2011.06.004

Smith, V.K., Gifford, K., Ellis, E., Rudowitz, R. & Snyder, L. (2011, October). Moving Ahead Amid Fiscal Challenges: A Look at Medicaid Spending, Coverage and Policy Trends. Results from a 50-State Medicaid Budget Survey for State Fiscal Years 2011 and 2012. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Summer, L. (2011, October). Examining Medicaid Managed Long-Term Service and Support Programs: Key Issues to Consider. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Vladeck, B.C. (2011, October). The continuing paradoxes of nursing home policy. The Journal of the American Medical Association. doi: 10.1001/jama.2011.1527

The SCAN Foundation. (2011, September). Raising expectations: California’s long-term services and supports scorecard results. (Fact sheet No. 22). Long Beach, CA: Author.

Gifford, K., Smith, V.K., Snipes, D. and Paradise, J. (2011, September). A profile of Medicaid Managed Care programs in 2010: Findings from a 50-state survey. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Reinhard, S.C., Kassner, E., Houser, A. and Mollica, R. (2011, September). Raising expectations: A state scorecard on long-term services and supports for older adults, people with physical disabilities and family caregivers. Washington, DC: AARP.

Stapleton, D. and Livermore, G. (2011, September). Costs, cuts and consequences: Charting a new course for working-age people with disabilities. (Issue Brief Number 11-03). Washington, DC: Center for Studying Disability Policy.

The SCAN Foundation. (2011, August). Medicaid Home and Community-Based Services. (Long-Term Care Fundamentals No. 9). Long Beach, CA: Author.

PHI. (2011, August). State Chart Book On Wages For Personal And Home Care Aides, 2000 - 2010. Bronx, NY: Author.

Harrington, C., Olney, B., Carrillo, H. & Kang, T. (2011, August). Nurse staffing and deficiences in the largest for-profit nursing chains and chains owned by private equity companies. Health Services Research, 46. doi: 10.1111/j.1475-6773.2011.01311.x

Cynkar, P. & Mendes, E. (2011, July). More than one in six American workers also act as caregivers. Washington, DC: Gallup.com.

Feinberg, L., Reinhard, S.C., Houser, A. and Choula, R. (2011, July). Valuing the invaluable: 2011 update - the growing contributions and costs of family caregiving. Washington, DC: AARP Public Policy Institute.

Fox-Grage, W. & Flowers, L. (2011, July). Health Reform Law Creates New Opportunities for States to Save Medicaid Dollars. (Insight on the Issues, 52). Washington, DC: AARP Public Policy Institute.

Holly, C. Felix, H.C., Mays, G.P., Stewart, K.M., Cottoms, N. and Olson, M. (2011, July). Medicaid Savings Resulted When Community Health Workers Matched Those With Needs To Home And Community Care. Health Affairs, Vol. 30 No. 7, pp.1366-1374. doi: 10.1377/hlthaff.2011.0150

Mendes, E. (2011, July). Most caregivers look after elderly parent; invest a lot of time. Washington, DC: Gallup.com.

Miller, V., Schneider, A. & Rudowitz, R. (2011, July). An Overview of Changes in the Federal Medical Assistance Percentage (FMAPs) for Medicaid. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved July, 2011 from http://http://www.kff.org /medicaid/8210.cfm

Schurrer, J. and Wenzlow, A. (2011, July). The national evaluation of the Money Follows the Person (MFP) demonstration grant program: Reports from the field. (Number 7.). Washington, DC: Center for Studying Disability Policy.

Stone, J. (2011, July 19). Home and Community-Based Services Under Medicaid. (R41600). Washington, DC: Congressional Research Service.

Witters, D. (2011, July). Caregiving costs U.S. economy $25.2 billion in lost productivity. Washington, DC: Gallup.com.

The Arc. (2011, June). Still in the shadows with their future uncertain: A report on family and individual needs for disability supports. Summary of key findings and a call to action. Washington, DC: Author.

U.S. Department of Justice. (2011, June). Statement of the Department of Justice on enforcement of the integration mandate of Title II of the Americans with Disabilities Act and Olmstead v. L.C. Washington, DC: Author.

MetLife Mature Market Institute. (2011, June). The MetLife study of caregiving costs to working caregivers: Double jeopardy for baby boomers caring for their parents. New York, NY: Author.

United States Government Accountability Office. (2011, June). Nursing homes: Private investment homes sometimes differed from others in deficiencies, staffing, and financial performance. (GAO-11-571). Washington, DC: Author.

Stone, J. (2011, June 28). Medicaid Eligibility for Persons Age 65+ and Individuals with Disabilities: 2009 State Profiles. (R41899). Washington, DC: Congressional Research Service.

Woodcock, C., Stockwell, I., Tripp, A., & Milligan, C. (2011, June 14). Rebalancing long-term services and supports: Progress to date and a research agenda for the future. Baltimore, MD: The Hilltop Institute, UMBC.

Zarit, S.H., Kim K., Elia E. Femia, E.E., Almeida, D.M., Savla, J. and Molenaar, P.C.M. (2011, June). Effects of Adult Day Care on Daily Stress of Caregivers: A Within-Person Approach. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences. . doi: 10.1093/geronb/gbr030

The SCAN Foundation. (2011, May). Opportunities for transforming California’s system of home and community-based services. Background paper prepared for the Assembly Committee on Aging and Long-Term Care. Long Beach, CA: Author. Retrieved May, 2011 from http://www.thescanfoundat ion.org/foundation-public ations/scan-foundation-ba ckground-paper-may-17-cal ifornia-assembly-committe e-aging-

The SCAN Foundation. (2011, May). Transforming California's system of care for older adults and people with disabilities: A look at the state's administrative and fiscal organization. (Policy Brief #5). Long Beach, CA: Author. Retrieved May, 2011 from http://www.thescanfoundat ion.org/foundation-public ations/policy-brief-5-tra nsforming-california’s- system-care-older-adults- and-people

Anderson, L., Larson, S.A. and Wuorio, A. (2011, May). 2010 FINDS national survey technical report part 1: Family caregiver survey. Minneapolis, MN: University of Minnesota, Research and Training Center on Community Living.

Fox-Grage, W and Redfoot, D. (2011, May). Medicaid: A program of last resort for people who need long-term services and supports. Washington, DC: AARP Public Policy Institute.

Kassner, E. (2011, May). Home and community-based long-term services and supports for older people. Washington, DC: AARP Public Policy Institute.

Kenen, J. (2011, May). Health Policy Brief: The CLASS Act Washington, DC: Health Affairs.

Simon, S.E. and Hodges, M.R. (2011, May). Money Follows the Person (MFP): Change in participant experience during the first year of community living. (Number 6.). Washington, DC: Center for Studying Disability Policy.

The SCAN Foundation. (2011, April). California's 2011-2012 Budget: Reductions to Aging and Long-Term Care Programs (Fact sheet No. 19). Long Beach, CA: Author.

National Senior Citizens Law Center. (2011, April). Medicaid Block Grants: Attacking the Safety Net for Low-Income Older Adults. Washington, DC: Author. Retrieved April, 2011 from http://www.nsclc.org/abou t-us/nsclc-in-the-news/ns clcnews.2011-04-26.907258 4672

National Senior Citizens Law Center. (2011, April). LGBT Older Adults in Long-Term Care Facilities: Stories from the Field. Washington, DC: Author. Retrieved April, 2011 from http://www.nsclc.org/abou t-us/nsclc-in-the-news/ns clcnews.2011-04-26.907258 4672

National Center for Assisted Living. (2011, March). Assisted Living State Regulatory Review 2011. Washington, DC: Author. Retrieved March, 2011 from http://www.ahcancal.org/n cal/resources/Pages/Assis tedLivingRegulations.aspx

National Consumer Voice for Quality Long-Term Care. (2011, March). Piecing Together Quality Long-Term Care: A Consumer’s Guide to Choices and Advocacy. Washington, DC: Author. Retrieved March, 2011 from http://www.theconsumervoi ce.org/piecing-together-q uality-long-term-care

PHI. (2011, March). Health Care Coverage for Direct-Care Workers: 2009 Data Update Bronx, New York: Author.

Kaye, H.S., Jans, L.H. & Jones, E.C. (2011, March). Why don't employers hire and retain workers with disabilities? Journal of Occupational Rehabilitation, March. doi: 10.1007/s10926-011-9302-8

Khatutsky, G., Wiener, J., Anderson, W., Akhmerova, V., Jessup, E.A. & Squillace, M.R. (2011, March). Understanding direct care workers: A snapshot of two of America’s most important jobs certified nursing assistants and home health aides. Washington, DC: Office of the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services. Retrieved May, 2011 from http://aspe.hhs.gov/daltc p/reports/2011/CNAchart.h tm

Powers, E.T. (2011, March). Should Government Subsidize Caregiver Wages? Some Evidence on Worker Turnover and the Cost of Long-Term Care in Group Homes for Persons With Developmental Disabilities. Journal of Disability Policy Studies, vol., pp.195-209. doi: 10.1177/1044207310389176

Kaiser Commission on Medicaid and the Uninsured. (2011, February). Money Follows the Person Transitions Individuals from Nursing Homes to the Community. Washington, DC: Author. Retrieved March, 2011 from http://www.kff.org/medica id/8141.cfm

PHI. (2011, February). Fact sheet: Who are direct-care workers? Bronx, New York: Author. Retrieved March, 2011 from http://www.directcareclea ringhouse.org/l_art_det.j sp?res_id=306110

Ng, T., Harrington, C. & Howard, J. (2011, February). Medicaid Home and Community-Based Service Programs: Data Update. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved February, 2011 from http://www.kff.org/medica id/7720.cfm

O'Malley Watts, M. (2011, February). Money Follows the Person: A 2010 Snapshot. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved March, 2011 from http://www.kff.org/medica id/8142.cfm

O'Malley Watts, M. (2011, February). Case Study: Ohio's Money Follows the Person Demonstration (HOME Choice). Washington, DC: Kaiser Commission on Medicaid and the Uninsured.. Retrieved March, 2011 from http://www.kff.org/medica id/8143.cfm

Summer, L. & Howard, J. (2011, February). A Challenge for States: Assuring Timely Access to Long-Term Services and Supports in the Community. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved February, 2011 from http://www.kff.org/medica id/8144.cfm

Summer, L. & Howard, J. (2011, February). Helping Consumers Manage Long-Term Services and Supports in the Community: State Medicaid Program Activities. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.. Retrieved March, 2011 from http://www.kff.org/medica id/8145.cfm

Legislative Budget Board Staff. (2011, January). Transform State Residential Services for Persons with Intellectual and Developmental Disabilities. Austin, TX: Author.

National Alliance for Caregiving. (2011, January). e-Connected Family Caregiver: Bringing Caregiving into the 21st Century. Washington, DC: Author.

Kaiser Commission on Medicaid and the Uninsured. (2011, January). Medicaid's New "Health Home" Option. Washington, DC: Author.

National Alliance for Caregiving. (2011, January). e-Connected Family Caregiver: Bringing Caregiving into the 21st Century. Washington, DC: Author.

Bryan, M.L. (2011, January). Access to Flexible Working and Informal Care. Essex, UK: University of Essex, Institute for Social and Economic Research.

Davis, P.A., Hahn, J., Morgan, P.C., Stone, J. & Tilson, S. (2011, January 24th). Medicare Provisions in the Patient Protection and Affordable Care Act (PPACA). (R41196). Washington, DC: Congressional Research Service.

Kietzman, K.G., Wallace, S.P., Durazo, E., Torres, J., Soon Choi, A., Benjamin, A.E. & Mendez-Luck, C.A. (2011, January). Holding On: Older Californians with Disabilities Rely on Public Services to Remain Independent. Los Angeles, CA: UCLA Center for Health Policy Research.

Lipson, D.J. and Williams, S.R. (2011, January). Money Follows the Person demonstration program: A profile of participants. (Number 6). Washington, DC: Center for Studying Disability Policy.

Morris, J. (2011, January). Survey on Use of Social Media for Emergencies by People with Disabilities - Summary Report. Retrieved September, 2011 from http://http://www.wireles srerc.org/publications/em ergency-communications-an d-people-with-disabilitie s/Survey%20Results-Social %20Media%20and%20EC.doc

Walls, J., Gifford, K., Rudd, C., O’Rourke, R., Roherty, M., Copeland, L. & Fox-Grage, W. (2011, January). Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

World Health Organization. (2011). World report on disability. Geneva, Switzerland: Author.

Centers for Disease Control and Prevention. (2011). Emergency Preparedness and You Atlanta, GA: Author.

Elliott, T.R., Phillips, C.D., Patnaik, A., Naiser, E., Booth, E.A., Fournier, C.J., Miller, T.R., Moudouni, D.M., Hawes, C. & Dyer, J.A. (2011). Medicaid personal care services and caregivers’ reports of children’s health: The dynamics of a relationship. Health Services Research, 46, 4, pp.1803-1821.

Harrington, C., Hauser, C., Olney, B. & Vaillancourt Rosenau, P. (2011). Ownership, financing, and management strategies of the ten largest for-profit nursing home chains in the United States. International Journal of Health Services, 41, 4, pp.725-746.

Henry, A.D., Long-Bellil, L. Zhang, J. & Himmelstein, J. (2011). Unmet need for disability-related health care services and employment status among adults with disabilities in the Massachusetts Medicaid program. Disability and Health Journal, 4, 4, pp.209-218.

Kusano, C.T., Bouldin, E.D., Anderson, L.A., McGuire, L.C., Salvail, F.R., Wynkoop Simmons, K. & Andresen, E. (2011). Adult informal caregivers reporting financial burden in Hawaii, Kansas and Washington: Results from the 2007 Behavioral Risk Factor Surveillance System. Disability and Health Journal, 4, 4, pp.229-237.

Miller, N.A. (2011). Relations among home- and-community based services investment and nursing home rates of use for working-age and older adults: A state-level analysis. American Journal of Public Health, 101,, pp.1735-1741.

Mitra, M., Bogen, K., Long-Bellil, L. & Heaphy, D. (2011). Unmet need for home and community-based services among persons with disabilities in Massachusetts. Disability and Health Journal, 4, 4, pp.219-228.

Newcomer, R., Kang, T. & Faucett, J. (2011). Consumer-directed personal care: Comparing aged and non-aged adult recipient health-related outcomes among those with paid family versus non-relative providers. Home Health Care Services Quarterly, 30, 4, pp.178-197.

Ogg, M. (2011). Running out of time, money and independence? Health Affairs, 30(1), pp.173-176.

Phillips, C.D., Patnaik, A., Dyer, J.A., Naiser, E., Hawes, C., Fournier, C.J. and Elliott, T.R. (2011). Reliability and the measurement of activity limitations (ADLs) for children with special health care needs (CSHCN) living in the community. Disability and Rehabilitation.

Reinhard, S.C., Kassner, E. and Houser, A. (2011). How the Affordable Care Act can help move states toward a high-performing system of long-term services and supports. Health Affairs , 20, pp.3447-3453.

Seavey, D. & Marquand, A. (2011, Spring). Building Infrastructure to Support CLASS: The Potential of Matching Service Registries (CLASS Technical Assistance Brief Series. No 16). Long Beach, CA: The SCAN Foundation.

Seavey, D. (2010-2011, Winter). Caregivers on the front line: Building a better direct-care workforce. Generations, 34(4), pp.27-35.

Seavey, D. (2010-2011, Winter). Caregivers on the front line: Building a better direct-care workforce. GENERATIONS – Journal of the American Society on Aging, 34(4), pp.27-35.

Health Policy Research Center, State University of New York. (2010, December). Paying for Long-Term Care: Families or Taxpayers? Albany, NY: Author.

Kaiser Family Foundation. (2010, December). Comparison of Medicaid Provisions in Deficit-Reduction Proposals. Washington, DC: Author.

Kaiser Family Foundation. (2010, December). Dual Eligibles: Medicaid's Role for Low-Income Medicare Beneficiaries. Washington, DC: Author.

Harrington, C. (2010, December). Nursing home staffing standards in state statutes and regulations. San Francisco, CA: Department of Social and Behavioral Sciences, University of California.

McNichol, E., Oliff, P. & Johnson, N. (2010, December). States Continue to Feel Recession's Impact. Washington, DC: Center on Budget and Policy Priorities.

Rousseau, D., Clemans-Cope, L., Lawton, E., Langston, J., Connolly, J. & Howard, J. (2010, December). Dual Eligibles: Medicaid's Enrollment and Spending for Medicare Beneficiaries in 2007. Washington, DC: Kaiser Family Foundation.

FEMA. (2010, November). Guidance on Planning for Integration of Functional Needs Support Services in General Population Shelters Washington, DC: Author.

Federal Emergency Management Agency. (2010, November). People with Disabilities and Other Access and Functional Needs: Preparing and Planning for an Emergency Washington, DC: Author.

Bachrach, D. (2010, November). Medicaid Payment Reform: What Policymakers Need to Know About Federal Law. Hamilton, NJ: Center for Health Care Strategies, Inc.

Berthoud, R. (2010, November). The Take-Up of Carer's Allowance: A Feasibility Study. Essex, UK: University of Essex, Institute for Social and Economic Research.

Johnson, N. Oliff, P. & Williams, E. (2010, November). An Update on State Budget Cuts: At Least 46 States Have Imposed Cuts That Hurt Vulnerable Residents and Cause Job Loss. Washington, DC: Center on Budget and Policy Priorities.

Engelberg Center for Health Care Reform at the Brookings Institution. (2010, October). Achieving Better Chronic Care at Lower Costs Across the Health Care Continuum for Older Americans. Washington, DC: Author.

United States Government Accountability Office. (2010, October). Recovery Act: Increased Medicaid Funds Aided Enrollment Growth and Most States Reported Taking Steps to Sustain Their Programs. (Report #GAO-11-58). Washington, DC: Author.

U.S. Department of Labor, Bureau of Labor Statistics. (2010, October). Workplace Injury and Illness Summary 2010. Washington, DC: Author.

Jacobson, G., Neuman, T. & Damico, A. (2010, October). Medicare Spending and Use of Medical Services for Beneficiaries in Nursing Homes ad Other Long-Term Care Facilities: A Potential for Achieving Medicare Savings and Improving the Quality of Care. Washington, DC: Kaiser Family Foundation.

Kaye, H.S. (2010, October). The impact of the 2007–09 recession on workers with disabilities. Monthy Labor Review, 133(10), pp.19-30.

Perry, M., Cummings, J., Jacobson, G., Neuman, T. & Cubanski, J. (2010, October). To Hospitalize or Not to Hospitalize? Medical Care for Long-Term Care Facility Residents. Washington, DC: Kaiser Family Foundation.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2010, October). Workplace Personal Assistance Services (PAS) for People with Disabilities: Making Productive Employment Possible. Journal of Rehabilitation, 76(4), pp.3-8.

Benson, C. (2010, September). Legal Victories, Economic Defeats. CQ Weekly, September, pp.2220-2225.

Carlson, E. & Coffey, G. (2010, September ). 10-Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center.

Carlson, E., & Coffey, G. (2010, September). 10 Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center. Retrieved September 29th, 2010 from http://www.thescanfoundat ion.org/sites/default/fil es/NSCLC_Olmstead.pdf

Langer Ellison, M., Glazier, R.E., O'Connell, E., Norton, G & Himmelstein, J. (2010, September ). Design Features for Employment-Supportive Personal Assistance Services in Medicaid Programs. Journal of Disability Policy Studies, 21(2), pp.90-100. doi: 10.1177/1044207310370682

Mendelsohn, S. (2010, September). State Tax Law and People with Disabilities: Opportunities for Supporting Fuller Participation in Community and Society New York, NY: Burton Blatt Institute, Syracuse University.

Stone, J. & Hoffman, G.J. (2010, September 21st). Medicare Hospital Readmissions: Issues, Policy Options and PPACA. (R40972). Washington, DC: Congressional Research Service.

Wallace, S.P., Padilla-Frausto, D.I. & Smith, S.E. (2010, September). Older Adults Need Twice the Federal Poverty Level to Make Ends Meet in California. (PB2010-8). Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved 15th September, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/elder_ index-brief-0910.pdf

The SCAN Foundation. (2010, August). Federal Health Care Reform and its Potential Impact on California's Long‐Term Care System. (Policy Brief No.3). Long Beach, CA: Author. Retrieved September 27th, 2010 from http://www.thescanfoundat ion.org/sites/default/fil es/TSF Policy Brief No 3 .pdf

Cubanski, J. & Neuman, P. (2010, August). Medicare Doesn't Work As Well For Younger, Disabled Beneficiaries As It Does For Older Enrollees. Health Affairs, 29(9) Retrieved August, 2010 from http://content.healthaffa irs.org/cgi/content/full/ hlthaff.2009.0962v1 . doi: 10.1377/hlthaff.2009.0962

Eiken, S., Burwell, B., Gold, L., & Sredl, K. (2010, August). Medicaid HCBS Waiver Expenditures FY 2004 Through FY 2009. Cambridge, MA.: Thomson Reuters. Retrieved 8th September, 2010 from http://www.hcbs.org/moreI nfo.php/doc/3326

Fosset, J.W. and Burke, C.E. (2010, August). Medicaid Policy and Long-Term Care Spending: An Interactive View. Albany, NY: Health Policy Research Center, State University of New York.

Friedman, E.M. & Seltzer, J.A. (2010, August). Providing for Older Parents: Is It a Family Affair? Los Angeles, CA: California Center for Population Research. Retrieved 40416 from http://papers.ccpr.ucla.e du/papers/PWP-CCPR-2010-0 12/PWP-CCPR-2010-012.pdf

Stone, J., Baumrucker, E.P., Binder, C., Herz, E.J., Heisler, E.J. & Rothenburger, A.J. (2010, August). Medicaid and the State Children’s Health Insurance Program (CHIP) Provisions in PPACA: Summary and Timeline. (R41210). Washington, DC: Congressional Research Service.

PHI. (2010, July). State Chart Book On Wages For Personal And Home Care Aides, 1999 - 2009. Bronx, NY: Author. Retrieved 8th July, 2010 from http://www.directcareclea ringhouse.org/download/PC A_Wage_Chart_Book_1999_20 09.pdf