Library

Feinberg, L & Houser, A. (2012, July). Assessing family caregiver needs: Policy and Practice Considerations. Washington, DC: AARP Public Policy Institute.

Lindquist L.A., Cameron K.A., Messerges-Bernstein J., Friesema E., Zickuhr L., Baker D.W. & Wolf M., (2012, July). Hiring and Screening Practices of Agencies Supplying Paid Caregivers to Older Adults. Journal of the American Geriatrics Society, Volume 60, Issue 7, pp.1253–1259. doi: 10.1111/j.1532-5415.2012.04047.x

Lipson, D., Libersky, J. & Machta, R. (2012, July). Keeping Watch: Building State Capacity to Oversee Medicaid Managed Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

Naylor, M.D., Kurtzman, E.T., Grabowski, D.C., Harrington, C., McClellan, M. & Reinhard, S.C.rn (2012, July). Unintended Consequences Of Steps To Cut Readmissions And Reform Payment May Threaten Care Of Vulnerable Older Adults. Health Affairs, Vol. 31 No. 7, pp.1623-1632. doi: 10.1377/hlthaff.2012.0110

Saucier, P., Kasten, J., Burwell, B. & Gold, L. (2012, July). The Growth of Managed Long-Term Services and Supports (MLTSS) Programs: A 2012 Update. Washington, DC: Centers for Medicare and Medicaid Services & Truven Health Analytics.

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in California (Updated). Long Beach, CA: Author.

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in the U.S. (Updated). Long Beach, CA: Author.

The SCAN Foundation. (2012, June). Recipients of Home- and Community-Based Services in California. Long Beach, CA: Author.

FEMA. (2012, June). Personal Assistance Services Contract - Frequently Asked Questions Washington, DC: Author.

Kaye, H.S. (2012, June). Gradual Rebalancing Of Medicaid Long-Term Services And Supports Saves Money And Serves More People, Statistical Model Shows. Health Affairs, 31(6), pp.1195-1203.

Newcomer, R.J., Harrington, C., Stone, J., Chattopadhyay, A., Lee, S.J., Kang, T., Chu, P., Kao, C., Bindman, A.B. (2012, June). Recipients of Home and Community-Based Services in California Long Beach, CA: The SCAN Foundation & the California Department of Health Care Services.

Reinhard, S., Kassner, E., Hendrickson, L. & Mollica, R. (2012, May). State Long-Term Services and Supports Scorecard. What Distinguishes High- from Low-Ranking States? Overview of Three Case Studies. Washington, DC: AARP Public Policy Institute.

The SCAN Foundation. (2012, April). Who Needs and Uses Long-Term Care in California? Long Beach, CA: Author.

Department of Health and Human Services, Office of Inspector General. (2012, April). Gaps Continue To Exist In Nursing Home Emergency Preparedness And Response During Disasters. (OEI-06-09-00270). Washington, DC: Author.

Boushey, H. & Glynn. S.J. (2012, April). The Effects of Paid Family and Medical Leave on Employment Stability and Economic Security. Washington, DC: Center for American Progress.

Hoffman, G.J. & Wallace, S.P. (2012, April). Hidden in Plain Sight: California’s Paid Medi-Cal Caregivers Are Vulnerable. Los Angeles, CA: UCLA Center for Health Policy Research.

Hoffman, G.J. & Wallace, S.P. (2012, April). Hidden in Plain Sight: California's Paid Medi-Cal Caregivers Are Vulnerable Los Angeles, CA: UCLA Center for Health Policy Research.

Jacobson, G., Neuman, T. & Damico, A. (2012, April). Medicare's Role for Dual Eligible Beneficiaries. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

O’Leary, A. (2012, April). Protecting Workers and Their Families with Paid Family Leave and Caregiving Credits Washington, DC: Center for American Progress.

National Alliance for Caregiving. (2012, March). Multiple Sclerosis Caregivers 2012. Bethesda, MD: Author.

Legislative Analyst's Office. (2012, March). The 2012-13 Budget: In-Home Supportive Services Budget Update. Sacramento, CA: Author.

Department of Homeland Security. (2012, March). 2012 National Preparedness Report. Washington, DC: Author.

Boris, E. & Klein, J. (2012, March). Caring for America: Home Health Workers in the Shadow of the Welfare State. New York, NY: Oxford University Press.

Feinberg, L. (2012, March). Moving Toward Person- and Family-Centered Care. Washington, DC: AARP Public Policy Institute.

Ryan, E., Dale, E., Fox-Grage, W., Ari, H., Farmer, A., Cooper, L. (2012, March). Consumer-Focused, Cost Effective Long Term Care for an Age-Friendly Michigan Lansing, MI: AARP.

Seavey, D. (2012, March). Private-Duty Industry Association Studies of DOL's Proposal to Revise FLSA's Companionship Exemption: What Do They Tell Us? Bronx, NY.: Paraprofessional Healthcare Institute.

Seavey, D. (2012, March 20th). Statement for the Record by the Paraprofessional Healthcare Institute (PHI) For the Hearing on Ensuring Regulations Protect Access to Affordable and Quality Companion Care Before the Subcommittee on Workforce Protections, Education and the Workforce Committee, U.S. House of Representatives. Bronx, NY.: Paraprofessional Healthcare Institute.

Shugarman, L.R. (2012, March). Testimony for Lisa R. Shugarman, Ph.D. Senate Human Services Hearing: In-Home Supportive Services (IHSS) Integration into Medi-Cal Managed Care: Policy Considerations. Long Beach, CA: The SCAN Foundation.

Snyder, L., Stephens, J. & Rudowitz, R. (2012, March). Governors' Budgets for 2013 - What is Proposed for Medicaid? Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Legislative Analyst’s Office. (2012, February 17). The 2012-13 Budget: Integrating Care for Seniors and Persons with Disabilities. Sacramento, CA: Author.

Cheek, M., Roherty, M., Finnan, L, Cho, E., Walls, J., Gifford, K., Fox-Grange, W. & Ujvari, K. (2012, February). On the Verge: The Transformation of Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

Connolly, J. & Paradise, J. (2012, February). People with Disabilities and Medicaid Managed Care: Key Issues to Consider. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Feder, J. & Komisar, H. (2012, February). The Importance of Federal Financing to the Nation’s Long-Term Care Safety Net. Long Beach, CA: The SCAN Foundation.

Neri, M.T., Wong, A. & Harrington, C. (2012, February). Barriers to Use of Workplace Personal Assistance Services to Support Employment in California. Journal of Disability Policy Studies. Published online before print February 14, 2012. doi: 10.1177/1044207311433205

Sammis, S., Detty, A. & Birnbaum, M. (2012, February). Implementing Long-Term Care Reform in New York's Medicaid Program. (Fact sheet No. 23). New York, NY: United Hospital Fund.

Smith, V., Gifford, K., Nardone, M., Rudowitz, R. & Snyder, L. (2012, February). Mid-Year State Medicaid Budget Update for FY 2012 and A Look Forward to 2013. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

The SCAN Foundation. (2012, January). Medicaid Managed Care and Long-Term Services and Supports Spending. (DataBrief No. 27). Long Beach, CA: Author.

The SCAN Foundation. (2012, January). California's Proposed 2012-13 Budget: Impact on California's Seniors and People with Disabilities. (Fact sheet No. 23. ). Long Beach, CA: Author.

National Association of States United for Aging and Disabilities. (2012, January). State of the States Survey 2011: State Aging and Disability Agencies in Times of Change. Washington, DC: Author.

The SCAN Foundation. (2012, January). Long-Term Care Fundamentals: Nursing Facilities in California. (Technical Brief Series. No 10). Long Beach, CA: Author.

Office of Program Policy Analysis and Government Accountability. (2012, January). Profile of Florida’s Medicaid Home and Community-Based Services Waivers. (Report No. 12-03). Tallahassee, FL: Author.

Heberlein, M., Brooks, T., Guyer, J., Artiga, S. & Stephens, J. (2012, January). Performing Under Pressure: Annual Findings of a 50-State Survey of Eligibility, Enrollment, Renewal, and Cost-Sharing Policies in Medicaid and CHIP, 2011-2012. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Hendrickson, L. & Mildred, L. (2012, January). Flexible Accounting for Long-Term Care Services: State Budgeting Practices that Increase Access to Home- and Community-Based Services. Recommendations for California. Long Beach, CA: The SCAN Foundation.

King, J., Yourman, L., Ahalt, C., Eng, C., Knight, S.J., Pérez-Stable, E.J. & Smith, A.K. (2012, January). Quality of life in late-life disability: "I don't feel bitter because I am in a wheelchair." Journal of the American Geriatrics Society. doi: 10.1111/j.1532-5415.2011.03844.x

Summer, L. & Alker, J. (2012, January). Proposed Medicaid Long-Term Care Changes Raise Host of Questions About Impact. Washington, DC: Georgetown University Health Policy Institute.

Family Caregiver Alliance. (2012). Fact Sheet. Hiring In-Home Help. San Francisco, CA: Author.

Adelman, T., Kitchener, M., Ng, T. & Harrington, C. (2012). Changes and inertia in the New York State Medicaid Personal Care Services Program: An Institutional Case Study. Journal of Aging & Social Policy, 24, 3, pp.309-327.

Grabowski, D.C. (2012). Care Coordination for Dually Eligible Medicare–Medicaid Beneficiaries Under the Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.221-232.

Harrington, C., Ng, T., LaPlante, M. & Kaye, H.S. (2012). Medicaid Home- and Community-Based Services: Impact of the Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.169-187.

Hawes, C., Moudouni, D.M., Edwards, R.B. & Phillips, C.D. (2012). Nursing Homes and the Affordable Care Act: A Cease Fire in the Ongoing Struggle Over Quality Reform. Journal of Aging & Social Policy, 24, 2, pp.206-220. doi: 10.1080/08959420.2012.660046

Meiners, M.R. (2012). Partnership Long-Term Care Insurance: Lessons for CLASS Program Development. Journal of Aging & Social Policy, 24, 2, pp.152-168.

Mendelsohn, S., Myhill, W.N., & Morris, M. (2012). Tax Subsidizations of Personal Assistance Services. Disability and Health Journal, 5, pp.75-86.

Miler, E.A. (2012). The Affordable Care Act and Long-Term Care: Comprehensive Reform or Just Tinkering Around the Edges?, 24, 2, pp.101-117.

Newcomer, R., Kang, T. & Doty, P. (2012). Allowing spouses to be paid personal care providers: Spouse availability and the effects of Medicaid-funded service use and expenditures. Gerontologist, 52, 4, pp.517-530.

Seavey, D. & Olins, A. (2012). Can Home Care Companies Manage Overtime Hours? Three Successful Models. Bronx, NY.: Paraprofessional Healthcare Institute.

Stone, R.I. & Bryant, N. (2012). The Impact of Health Care Reform on the Workforce Caring for Older Adults. Journal of Aging & Social Policy, 24, 2, pp.188-205.

Weissert, W.G. (2012). A 10-Foot Rope for a 50-Yard Drop: The CLASS Act in the Patient Protection and Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.136-151.

Wiener, J.M. (2012). The CLASS Act: Is It Dead or Just Sleeping? Journal of Aging & Social Policy, 24, 2, pp.118-135.

Halfon N., Houtrow A., Larson K., & Newacheck P. (2012, Spring). The Changing Landscape of Disability in Childhood. The Future of Children, 22, 1 Retrieved May, 2012 from http://http://futureofchi ldren.org/futureofchildre n/publications/journals/a rticle/index.xml?journali d=77&articleid;=559

Kaiser Commission on Medicaid and the Uninsured. (2011, December). Georgia's Money Follows the Person Program: Helping People Move Back Home Washington, DC: Author.

Kaiser Commission on Medicaid and the Uninsured. (2011, December). Georgia's Money Follows the Person Demonstration. Washington, DC: Author.

FEMA. (2011, December). A Whole Community Approach to Emergency Management: Principles, Themes, and Pathways for Action. Washington, DC: Author.

FEMA. (2011, December). CERT Basic Training Participant Manual (Braille and Screen Reader Versions). Washington, DC: Author.

Kaiser Commission on Medicaid and the Uninsured. (2011, December). California and Texas: Section 1115 Medicaid Demonstration Waivers Compared. Washington, DC: Author.

Barth, S., Klebonis, J. & Archibald, N. (2011, December). Long-Term Services and Supports Opportunities in the Affordable Care Act. Technical Assistance Brief. Hamilton, NJ: Center for Health Care Strategies, Inc..

De Nardi, M., French, E., Jones, J.B. & Gooptu, A. (2011, December). Medicaid and the Elderly. (NBER Working Paper No. 17689). Cambridge, MA: National Bureau of Economic Research.

Howard, J., Ng, T. & Harrington, C. (2011, December). Medicaid Home and Community-Based Service Programs: Data Update Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Kietzman, K.G., Durazo, E.M., Torres, J.M., Soon Choi, A. & Wallace, S.P. (2011, December). Independence at Risk: Older Californians with Disabilities Struggle to Remain at Home as Public Supports Shrink. Los Angeles, CA: UCLA Center for Health Policy Research.

Mendelsohn, S., Morris, M. & Myhill, W. (2011, December). State Household and Dependent Care Tax Credits to Support Personal Assistant Services. San Francisco, CA: Center on Personal Assistance Services.

O'Malley Watts, M. (2011, December). Money Follows the Person: A 2011 Survey of Transitions, Services and Costs. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

O'Malley Watts, M. (2011, December). Case Study: Georgia's Money Follows the Person Demonstration. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

O'Malley Watts, M. (2011, December). Money Follows the Person: A 2011 Survey of Transitions, Services and Costs. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Park-Lee, E., Caffrey, C., Sengupta, M., Moss, A.J., Rosenoff, E. & Harris-Kojetin, L.D. (2011, December). Residential Care Facilities: A Key Sector in the Spectrum of Long-term Care Providers in the United States. (NCHS Data Brief, Number 78). Hyattsville, MD: National Center for Health Statistics.

Schoenbach, S. & Warren, L.B. (2011, December). Time to Care: How North Carolina Can Promote Health, Support Workers, and Strengthen Families. (DataBrief No. 20. ). Raleigh, NC: North Carolina Justice Center.

Seavey, D. & Marquand, A. (2011, December). Caring in America. A Comprehensive Analysis of the Nation’s Fastest-Growing Jobs: Home Health and Personal Care Aides. Bronx, NY.: Paraprofessional Healthcare Institute.

The SCAN Foundation. (2011, November, 28th). Proceedings Report: Inaugural Summit on Transforming California’s Long-Term Services and Supports Systems. Long Beach, CA: Author.

Houtrow, A.J., Okumura, M.J., Hilton. J.F., & Rehm, R.S. (2011, Nov/Dec). Profiling health and health-related services for children with special health care needs with and without disabilities. Academic Pediatric Association, 11(6), pp.508-16.

Kafka, B., Nerney, T., Mahoney, K.J., McGaffigan, E., Henry, M.K., Adams, K., Frane, L. & Oxford, M. (2011, November). Guiding Principles: For Partnerships with Unions and Emerging Worker Organizations When Individuals Direct Their Own Services and Supports.

Stone, J., Newcomer, R.J., Chattopadhyay, A., Gilmer, T.P., Chu, P., Kao, C., & Bindman, A.B. (2011, November,). Studying Recipients of Long-Term Care Services and Supports: A Case Study in Assembling Medicaid and Medicare Claims and Assessment Data in California San Francisco: California Medicaid Research Institute, University of California.

The SCAN Foundation. (2011, October). Seniors with Chronic Conditions and Functional Impairment. (DataBrief No. 20). Long Beach, CA: Author.

The SCAN Foundation. (2011, October). Dual Eligibles, Chronic Conditions and Functional Impairment. (DataBrief No. 21). Long Beach, CA: Author.

U.S. Department of Health and Human Services. (2011, October). A Report on the Actuarial, Marketing and Legal Analyses of the CLASS Program. Washington, DC: Author.

Courtot, B., Lawton, E., Artiga, S. (2011, October). Medicaid Enrollment and Expenditures by Federal Core Requirements and State Options. (Issue brief #8239). Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Dowler, D.L., Solovieva, T.I. & Walls, R.T. (2011, October). Personal assistance services in the workplace: A literature review. Disability and Health Journal, 4, pp.201-208. doi: 10.1016/j.dhjo.2011.04.003

Feinberg, L. & Reamy, A.M. (2011, October). Health Reform Law Creates New Opportunities to Better Recognize and Support Family Caregivers. (Fact sheet 239). Washington, DC: AARP Public Policy Institute.

Gershon, R.R., Magda, L.A., Riley, H.E., Merrill, J.A. (2011, October). Mass Fatality Preparedness in the Death Care Sector. Journal of Occupational & Environmental Medicine, Volume, pp.1179–1186. doi: 10.1097/JOM.0b013e31822cfe76

Kim, K. & Antonopoulos, R. (2011, October). Unpaid and Paid Care: The Effects of Child Care and Elder Care on the Standard of Living. (Working Paper No. 691). Annandale-on-Hudson, NY: Levy Economics Institute of Bard College.

Komisar, H.L. & Feder, J. (2011, October). Transforming Care for Medicare Beneficiaries with Chronic Conditions and Long-Term Care Needs: Coordinating Care Across All Services. Washington, DC: Georgetown University.

Lipson, D.J., Stone Valenzano, C. & Williams, S.R. (2011, October). What Determines Progress in State MFP Transition Programs. (#8). Washington, DC: Center for Studying Disability Policy.

Mendelsohn, S. (2011, October). State Tax Law and People with Disabilities: Opportunities for Supporting Fuller Participation in Community and Society. New York: Burton Blatt Institute, Syracuse University.

Newcomer, R.J., Kang, T. & Doty, P. (2011, October). Allowing Spouses to Be Paid Personal Care Providers: Spouse Availability and Effects on Medicaid-Funded Service Use and Expenditures. The Gerontologist. doi: 10.1093/geront/gnr102

Ng, T., Harrington, C. & Musumeci, M. (2011, October). State Options That Expand Access to Medicaid Home and Community-Based Services. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Patniak, A., Elliott, T.R., Moudouni, D.M., Fournier, C.J., Naiser, E., Miller, T.R., Dyer, J.A., Hawes, C. & Phillips, C.D. (2011, October 3). Severity of children’s intellectual disabilities and Medicaid personal care services. Rehabilitation Psychology. doi: 10.1037/a0025619

Seekins, T., Ravesloot, C., Katz, M., Liston, B., Oxford, M., Altom, B., White, G., Petty, R. & Kafka, B. (2011, October). Nursing home emancipation: A preliminary study of efforts by centers for independent living in urban and rural areas. Disability and Health Journal, 4, pp.245-253. doi: 10.1016/j.dhjo.2011.06.004

Smith, V.K., Gifford, K., Ellis, E., Rudowitz, R. & Snyder, L. (2011, October). Moving Ahead Amid Fiscal Challenges: A Look at Medicaid Spending, Coverage and Policy Trends. Results from a 50-State Medicaid Budget Survey for State Fiscal Years 2011 and 2012. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Summer, L. (2011, October). Examining Medicaid Managed Long-Term Service and Support Programs: Key Issues to Consider. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Vladeck, B.C. (2011, October). The continuing paradoxes of nursing home policy. The Journal of the American Medical Association. doi: 10.1001/jama.2011.1527

The SCAN Foundation. (2011, September). Raising expectations: California’s long-term services and supports scorecard results. (Fact sheet No. 22). Long Beach, CA: Author.

Gifford, K., Smith, V.K., Snipes, D. and Paradise, J. (2011, September). A profile of Medicaid Managed Care programs in 2010: Findings from a 50-state survey. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Reinhard, S.C., Kassner, E., Houser, A. and Mollica, R. (2011, September). Raising expectations: A state scorecard on long-term services and supports for older adults, people with physical disabilities and family caregivers. Washington, DC: AARP.