Center for Personal Assistance Services University of California, San Francisco  
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A list of links to important information and resources available on the Internet related to Personal Assistance Services.

AARP Research Center: Independent Living
http://research.aarp.org/il/index.html

The American Association of Retired Persons is a nonprofit membership organization dedicated to addressing the needs and interests of persons 50 and older. AARP’s Research Center provides information on Independent Living topics such as housing, transportation, technology, and family relations.

Ability Hub
http://www.abilityhub.com/

This website offers solutions and ideas for people with many kinds of disabilities who find using a computer difficult, maybe even impossible. This website will direct you to adaptive equipment and alternative methods available for using computers.

ABLEDATA
http://www.abledata.com/

This is a website from the government that collects information on assistive technology for people with disabilities

ADA & IT Information Center for the Mid-Atlantic Region
http://www.adainfo.org

Provides training, information, and technical assistance on the Americans with Disabilities Act (ADA) and accessible information technology (IT) to businesses, consumers, schools, and government agencies within the Mid-Atlantic Region (PA, DE, MD, VA, WV, and DC).

TransCen, Inc.
451 Hungerford Drive, Suite 607
Rockville, MD 20850
(301) 217-0124 (V/TTY)
(301) 217-0754 (Fax)
adainfo@transcen.org

AgeSource Worldwide
http://www.aarp.org/research/agesource/

AgeSource Worldwide describes clearinghouses, databases, libraries, directories, statistical resources, bibliographies and reading lists, texts, and Web metasites focused on aging or closely allied subjects. The topics covered range from Alzheimer's disease to wills and estate planning. Almost 300 information resources in 26 countries with the majority based in the United States alone. Most of the information resources are located in North America and Europe.

AgeSource Worldwide
http://research.aarp.org/general/agesource_home.html

AgeSource Worldwide is a website that provides reading lists, other websites and resources on the subject of aging in North American and Europe. It contains almost 300 information sources in 26 countries.

AGS Foundation for Health in Aging
http://http://www.healthinaging.org

This organization’s mission is to be a bridge between consumers and researchers and professionals about aging. The website advocates for seniors and has information on health problems such as diabetes, falls, and geriatrics.

AGS Foundation for Health in Aging (FHA)
http://www.healthinaging.org

The American Geriatrics Society (AGS) Foundation for Health in Aging (FHA) is a national non-profit organization established in 1999 by The American Geriatrics Society. The foundation aims to build a bridge between the research and practice of Geriatrics and the Public, and to advocate on behalf of older adults and their special health care needs. The website has information on common health problems such as diabetes, falls, etc. and educational materials on geriatrics.

American Association of Homes and Services for the Aging (AAHSA)
http://www2.aahsa.org/SiteSearch/SearchResults.asp?SC=Consumers#

This section helps consumers learn about the different types of living arrangements that are available, how to deal with the emotional stresses of caregiving, how to plan for long-term care costs, and how to get involved in aging services.

American Association of People with Disabilities (AAPD)
http://www.aapd-dc.org

AAPD is the largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for the more than 56 million Americans with disabilities.

American Association on Health and Disability
http://www.aahd.us/

One of the missions of the American Association on Health and Disability is to promote health and wellness of people with disabilities. The website has information, resources, and a newsletter for consumers on prevention and wellness.

American Disabled for Attendant Programs Today (ADAPT)
http://www.adapt.org/

ADAPT is an organization at the forefront of activism regarding issues facing people with disabilities such as consumer direction of Personal Assistance Services in the community.

American Public Health Association
http://www.apha.org/

The APHA website represents the association of public health professionals in the US and provides specific information of use to this community including latest health policy research as well as public health announcements. It also provides links to individual state public health websites as well as international websites that addresses the issue.

American Red Cross
http://www.redcross.org/services/disaster/beprepared/disability.html

This website from the Red Cross gives suggestions on how to prepare for emergencies and natural disasters for people who have physical, visual, auditory, or cognitive disabilities.

Arc of the USA
http://www.thearc.org

This website has details of current Arc campaigns and publications on major policy initiatives for people with disabilities. The site includes an online report on the progress towards compliance with the ADA and the Olmstead ruling (2000) (http://www.thearc.org/olmstead_report.htm).

Arc of the USA
http://www.thearc.org

The Arc is a national organization of and for people with mental retardation and related developmental disabilities and their families.

Association of Programs for Rural Independent Living (APRIL)
http://www.april-rural.org/

The Association of Programs for Rural Independent Living (APRIL) is a national network of rural independent living centers and individuals concerned with the unique aspects of rural independent living.

Association on Higher Education and Disability
http://www.ahead.org

This website contains a lot of information for people with disabilities interested in going to school after high school. The web site offers many helpful links to different universities and programs, and to information on a range of specific disabilities.

Bazelon Center for Mental Health Law
http://www.bazelon.org/

This organization advocates for people with mental disabilities and provides legal analysis and explanation of key cases and current legal issues brought under disability-related and mental health law, including Olmstead. The site provides reports about the Olmstead case, including a background to the case, key legal concepts it interpreted and links to other websites.

Bazelon Center for Mental Health Law
http://www.bazelon.org/

The Bazelon Center advocates for people with mental disabilities and writes reports on legal issues facing people with disabilities such as the Olmstead case.

Benefits Check Up: National Council on the Aging
http://www.benefitscheckup.org/

This website helps older adults find out what programs are available to them.

California HealthCare Foundation
http://www.chcf.org

This website provides the latest news, research and policy analysis on California’s health care system and its delivery and financing. Of particular interest for research into home and community based services and long term in California is the Medi-Cal page of the website, http://www.chcf.org/topics/medi-cal/index.cfm, which is a gateway to relevant information about the various Medi-Cal programs that are available in California.

California HealthCare Foundation
http://www.chcf.org

This website provides the latest news about the different health care programs in California. For people with disabilities in California, the website has reports and papers on Medi-Cal and other home and community based services.

California Long Term Care
http://www.calnhs.org

The California HealthCare Foundation and the University of California San Francisco have a free website on long term care services in California that is designed for consumers, caregivers, providers, discharge planners, and advocates. This site provides comprehensive information about the quality of long term care in the state including nursing and intermediate care facilities, home health, hospice, adult day health and other long term care services such as residential care.  The site has information on Nursing Home Alternatives, How to Select a Service, Questions to ask when visiting potential choices, Resident and Family Rights, and Links.

This site does not address intermediate care facilities for the developmentally disabled, senior living communities, or retirement homes but it has extensive resources to guide in finding services.

California Nursing Home Search
http://www.calnhs.org

The California Nursing Home Search website is for residents of California who are looking for information about the quality of nursing and intermediate care facilities in the state.

Career One Stop
http://www.careeronestop.org/

From the Department of Labor, Career One Stop is a collection of tools that can help you find a job, learn more about careers, and find employment services in your area.

Cash and Counseling
http://www.cashandcounseling.org/index.html

This is the website of the national Cash & Counseling program. The program sponsors are The Robert Wood Johnson Foundation (RWJF), the Office of the Assistant Secretary for Planning and Evaluation in the U.S. Department of Health and Human Services (ASPE/DHHS), and the Administration on Aging (AoA). The website gives describes the cash and counseling approach and details of how states can apply for grants to try out the cash and counseling model as well as transcripts of teleconferences with states who are involved.

Center for Assistive Technology & Environmental Access (CATEA) at Georgia Tech
http://www.catea.org

CATEA supports individuals with disabilities of any age within the State of Georgia and beyond through: expert services, research, design and technological development, information dissemination, and educational programs. The application of these resources is intended to promote maximum access to opportunity and environments by enhancing individuals' capabilities through the appropriate use of technology.

Center for Health Care Strategies, Inc.
http://www.hcbs.org/

Site aims to share project information and reports between states about service planning for people with disabilities. It signposts key reports and activities in other organizations relating to community integration. Policy analysis and links to up-to-date reports and policy implications are provided on the site.

Center for Health Care Strategies, Inc.
http://www.hcbs.org/

The Center for Health Care Strategies collects and shares information about home and community-based services (HCBS) for people with disabilities from different states.

Center for PAS - Disability and Business Technical Assistance Centers (DBTAC) by state
http://www.pascenter.org/state_based_stats/local_resources.php#dbtacs

DBTACs are regional centers that provide information, training, and technical assistance to employers, people with disabilities, and others with responsibilities under the ADA.

Center for PAS - State resources for employment of people with disabilities
http://www.pascenter.org/test4/state_based_stats/resources_home.php?title=State%20Resources%20for%20Employment%20of%20Persons%20with%20Disabilities

To find US and state resources for employment of people with disabilities, the Center has a directory of government agencies you can locate by state.

Center for PAS - US and State Agencies Related to PAS
http://www.pascenter.org/state_based_stats/agencies_home.php

To find US and state resources related to Personal Assistances Services, the Center has a directory of government agencies you can locate by state.

Center for PAS Workforce PAS Project
http://pascenter.org/workplace_pas/index.php

 

Center for the Study of Home and Community Life, Boston College Graduate School of Social Work
http://www.bc.edu/schools/gssw/research/researchcenter/

This Center was established early in 2004 and is the national program office for the (expanded) cash and counseling program. The center will provide support for states involved in the program as well as providing comprehensive information and resources about consumer-directed care. The Home and Community-Based Services website (www.hcbs.org) is also included within the responsibilities of this Center.

Center for Workers with Disabilities
http://www.nasmd.org/disabilities/taskforces/pas.asp

The Center, an affiliate of the National Association of State Medicaid Directors (NASMD), is a technical assistance center that is dedicated to helping states enhance employment support programs. One of the Center’s six task forces addresses current rules and regulations for workplace PAS, factors in the work place, and related concerns. Minutes of task force meetings, beginning in January 2003, as well as a small list of publications on workplace PAS are available.

Centers for Medicare & Medicaid Services
http://www.cms.hhs.gov/twwiia/

State-by-state data on the Medicaid Buy-In eligibility rules, enrollment number, program design, and contact information. Federal level information on Medicaid waiver programs. State-by-state Medicaid Infrastructure Grant activities pages describe changes or improvements to states’ PAS programs, if such modifications are covered under the MIG.

Centers for Medicare and Medicaid Services (CMS)
http://www.cms.hhs.gov

Several links within this site related to Home and Community-Based PAS:


http://www.cms.hhs.gov/medicaid/consumerag.asp This site provides information on the Medicaid program, federal grants, initiatives and programs for disabled and aging populations. State-by-state data on federal programs, grants and promising practices (such as HCBS waiver programs) are available from this site. This site links to:
http://www.cms.hhs.gov/newfreedom/ Information on the federal New Freedom Initiative (NFI) which aims to develop community integration of people with disabilities. Includes reports on programs and grants to; develop state long-term care services, improve the direct service community workforce and promote the employment of people with disabilities.
http://www.cms.hhs.gov/olmstead/ Information on the Federal response to Olmstead, state obligations under the ADA and advisory letters to states.
http://www.cms.hhs.gov/medicaid/msis/mstats.aspWebsite of CMS that has Medicaid Program Statistics (MSIS) data dating from 1990. Participant and Expenditure data on most Medicaid programs are retrievable by state and US.
http://www.cms.hhs.gov/manuals/45_smm/
sm_02_2_2700.6_to_2700.6.asp#_toc490132956
This page of the CMS website deals specifically with the federal regulations for federal state Medicaid 1915(c) HCBS waivers. It provides guidelines of why waivers must be administered in certain way and also sets the guidelines of how the expenditure amount and number of participants may be calculated.

Centers for Medicare and Medicaid Services (TWWIIA)
http://www.cms.hhs.gov/twwiia/

State-by-state data on the Medicaid Buy-In eligibility rules, enrollment number, program design, and contact information. Federal level information on Medicaid waiver programs. State-by-state Medicaid Infrastructure Grant activities pages describe changes or improvements to states’ PAS programs, if such modifications are covered under the MIG.

Centers for Medicare and Medicaid Services: Disability and Aging Issues
http://www.cms.hhs.gov/medicaid/consumerag.asp

This site from the Centers for Medicare and Medicaid Services (CMS) lists various programs and agencies that cover disability and aging issues such as information on home and community based services, waiver programs by state, and programs for people with disabilities to work and keep Medicaid.

Clearing House for the Community Living Exchange Collaborative
http://www.hcbs.org/

Site aims to share project information and reports between states about service planning for people with disabilities. It signposts key reports and activities in other organizations relating to community integration. Policy analysis and links to up-to-date reports and policy implications are provided on the site.

Council of State Administrators of Vocational Rehabilitation
http://www.rehabnetwork.org/directors_contact.htm

Vocational Rehabilitation is a program available in each state specifically to help people with disabilities work. The services can range from job training to counseling and transportation services. This website from the Council of State Administrators of Vocational Rehabilitation provides a contact list of each state’s program.

Definition of Workplace PAS
http://pascenter.org/workplace_pas/workplace_definition.php

 

Directory of Centers for Independent Living
http://www.virtualcil.net/cils/

Centers for Independent Living (CILs) are advocacy organizations run by and for people with disabilities. This website from the MetroWest Center for Independent Living has a directory of all CILs by state.

Disability Benefits 101
http://www.disabilitybenefits101.org/

Launched in late 2003, this web site of the World Institute on Disability features a section on workplace PAS. This section presents practical information for employers or consumers, including frequently asked questions, policy updates publications list, and more.

Disability Rights Education and Defense Fund, Inc. - (DREDF)
http://www.dredf.org

DREDF is a national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities.

Disability World
http://www.disabilityworld.org/

Disability World is an online magazine dedicated to advancing an exchange of information and research about the international independent living movement of people with disabilities.

DisabilityInfo.gov
http://www.disabilityinfo.gov/

This web site contains links to the federal government's resources and information that are of interest to people with disabilities, their families, employers, services providers, and other community members.

Disabled People and Disaster Planning
http://www.citycent.com/dp2/index.html

This website gives information for people with disabilities about how to prepare for a disaster such as an earthquake (grade level 12).

Disabled Sports USA
http://www.dsuas.org

Disabled Sports USA is an organization that offers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.

DO-IT Center
http://www.washington.edu/doit/

A project of the University of Washington that promotes success in academics and careers for individuals with disabilities and sponsors programs on assitive technology.

EARN
http://www.earnworks.com

The Employer Assistance & Recruiting Network (EARN) is a free service that connects employers looking for quality employees with skilled job candidates. This web site is a source of disability employment information including:
• recruiting services
• tools and resources
• employer success stories
• business case for hiring people with disabilities

Eldercare Locator: Community Assistance for Seniors
http://www.eldercare.gov/

This organization helps older adults and the people who take care of them find services and support.

Equal Access to Software and Information (EASI)
http://www.easi.cc

EASI provides information and guidance to students with disabilities on adaptive software and technology used in schools.

Families USA
http://www.familiesusa.org/site/PageServer?pagename=Medicaid_Index

This consumer oriented site provides lists of publications from Families USA and other organizations as well as state-by-state data on Medicaid programs. It also provides briefings on key policies and ideas for action to challenge state activity.

Families USA
http://www.familiesusa.org/site/PageServer?pagename=Medicaid_Index

Families USA is a grassroots website for consumers about all kinds of health care coverage. They have several reports on various Medicaid programs and ideas on how to advocate for each state.

Family Caregiver Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp

This multilingual website of the Family Caregiver Alliance, a national community-based non profit organization provides information on a range of policy analysis and research publications on issues relating to informal caregivers.
It also provides useful information, guides and factsheets for caregivers.

Family Caregiver Alliance
http://www.caregiver.org/caregiver/jsp/home.jsp

This website provides information, guides and factsheets for caregivers in English, Spanish, and Chinese.

Federal Emergency Management Administration: Disaster Preparedness for People with Disabilities
http://www.fema.gov/library/disprepf.shtm

The Federal Emergency Management Administration (FEMA) offers these suggestions to keep in mind when making emergency preparations addressing people with disabilities.

Freedom Clearinghouse
http://www.freedomclearinghouse.org/

This is the website of a campaign against the institutionalization of people with disabilities by people with disabilities.

George Washington University, Department of Health Policy
http://www.gwhealthpolicy.org/disabilities.htm

The Center for Health Services Research and Policy has published briefings on the implications of the Olmstead case, with a focus on the legal meaning of the decision and subsequent interpretations of the ruling. This site also provides research reports published from a project analyzing the Olmstead case and subsequent litigation.

Great Lakes ADA and Accessible IT Center
http://www.adagreatlakes.org/

Provides information, materials, technical assistance and training on the Americans with Disabilities Act of 1990 (ADA) and accessible information technology (IT). The ADA addresses all aspects of employment and the obligations of state and local governments and business to ensure that their programs and services are readily accessible to and useable by people with disabilities.

The Great Lakes ADA Center’s service area is Illinois, Indiana, Michigan, Minnesota, Ohio, and Wisconsin. The Center is one of 10 regional centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR).

University of Illinois/Chicago
Department on Disability & Human Development
1640 West Roosevelt Road
Chicago, IL 60608
(312) 413-1407 (V/TTY)
(312) 413-1856 (Fax)
gldbtac@uic.edu

Great Plains ADA/IT Center
http://www.adaproject.org

The Great Plains Americans With Disabilities Act & Accessible Information Technology Center is on e of 10 DBTACS authorized by the National Institute on Disability & Rehabilitation Research (NIDRR) to provide technical assistance, training and materials dissemination related to the Americans with Disabilities Act and Accessible Information Technology to the Great Plains Region (IA, KS, MO, NE).

Great Plains DBTAC
ADA Project
University of Missouri/Columbia
100 Corporate Lake Drive
Columbia, MO 65203
(573) 882-3600 (V/TTY)
(573) 884-4925 (Fax)
hamburgl@missouri.edu

Human Services Research Institute
http://www.hsri.org/index.asp?id=news

Online, periodically updated report on litigation relating to Medicaid HCBS waiver programs.

Institute for Community Inclusion
http://www.communityinclusion.org/index.html

"Flexible funding stories" describe funding approaches used by people with disabilities in order to obtain employment, often involving the hiring of personal assistants or job coaches in the workplace. Publications in the categories of employment policy, finding and keeping a job, and the social security system include papers that address personal assistance topics.
"Policy Briefs" describe current policy developments and key legislation: http://www.communityinclusion.org/publications/policy.html

June Isaacson Kailes: Disaster Preparedness
http://www.jik.com/disaster.html

A disability policy consultant, June Isaacson Kailes’ website has an extensive collection of disaster preparedness and emergency resources for people with disabilities.

Kaiser Commission on Medicaid and the Uninsured
http://www.kff.org/about/kcmu.cfm

A range of information is available from this site regarding Medicaid and long-term care waivers, programs and practices, in the form of briefings, reports and analyses. State by state data on Medicaid waivers, home and community based services and general Medicaid information are also listed by service at
http://207.22.102.105/medicaidbenefits/

National and Statewide Coalitions to Promote Community-Based Care
http://www.olmsteadcommunity.org/index.html

Reports and training materials aimed at supporting State coalitions to develop community-based care for people with mental illness. Includes details of state contacts and programs to develop community based care.

National Association for Home Care and Hospice
http://www.nahc.org

The National Association for Home Care and Hospice website has a section for consumers on how to choose a home care provider and a locator tool to find home care and hospice agencies.

National Association for Home Care and Hospice (NAHC)
http://www.nahc.org

The NAHC is a trade association that represents the home care agencies, hospices, home care aide organizations and medical equipment suppliers. The site provides up to date information about the work that the association does in advocating for home and community based care as well as recent government policies that affect home and community based health care.

National Association for Protection and Advocacy Services, Disability Issue Areas
http://www.napas.org/I-3/Issue%20Areas%20home.htm

Reports and analyses of key disability policy areas including reports on state activity on Olmstead issues. Lists of key resources on issues such as community integration and Medicaid from other organizations are provided. Data on litigation and complaints relating to Olmstead is also provided.

National Association of State Units on Aging
http://www.nasua.org/

This website is the representation of individual state departments that deals with issues for the ages and disabled. It provides links to state reports on home and community based services and Medicaid 1915(c) HCBS waivers. Current government policies regarding care for the aged and disabled are also presented in this website.

National Association of State Units on Aging
http://www.nasua.org/

This website contains links to departments in each state that deals with services for seniors and people with disabilities. It also provides reports on home and community based services and Medicaid waivers. See the Center for Personal Assistance Services’s state data on Medicaid 1915 (c) HCBS waivers.

National Center for Health Statistics (NCHS) - Aging Activities Group
http://www.cdc.gov/nchs/agingact.htm

The Aging Activities Group of the NCHS performs research and analysis and disseminates data on the health and health care utilization of aging Americans.
The link is to a page with a collection of data tables providing information on trends of health and health care use by older Americans and a family of surveys designed to measure changes in health status, health-related behaviors, health care utilization, and the causes and consequences of these changes within and across two cohorts of elderly Americans.

National Center for Learning Disabilities
http://www.ncld.org

The National Center for Learning Disabilities provides information to parents, professionals and people with learning disabilities and supports programs that help people learn more effectively.

National Center on Physical Activity and Disability
http://www.ncpad.org/

The National Center on Physical Activity and Disability believes being physically active is good for everybody. This website has guidelines to consider before starting any kind of exercise program plus factsheets on many activities, games, and sports that have been adapted for people with disabilities.

National Center on Secondary Education and Transition (NCSET)
http://www.ncset.org

The National Center on Secondary Education and Transition (NCSET) gives technical assistance and provides information related to school after high school and other transition issues for youth with disabilities.

National Center on Workforce and Disability/Adult (NCWD)
http://www.onestops.info/subcategory.php?subcat_id=4

The National Center on Workforce and Disability/Adult (NCWD) provides training, technical assistance, policy analysis, and information to improve access for all in the workforce system. This section includes resources for people with disabilities who are seeking jobs.

National Clearinghouse on Postsecondary Education for Individuals with Disabilities, The HEATH Resou
http://www.heath.gwu.edu/

The HEATH Resource Center provides information about educational support services, policies, procedures, adaptations, and opportunities for people with disabilities in the United States.

National Clearinghouse on the Direct Care Workforce
http://www.directcareclearinghouse.org/r_cat_det.jsp?cat_id=4810

The National Clearinghouse on the Direct Care Workforce tracks national and state policies that relate to the PAS workforce. Information for consumers of Personal Assistance Services can be found on their Consumer Direction section of the Direct Care Clearinghouse web site.

National Collaborative on Workforce and Disability/Youth
http://www.ncwd-youth.info/index.html

Summaries of publications on disability and employment can be sorted according to 5 classes of users: Administrators, Employer/Business, Youth Service Practitioners, Policymakers, and Youth or Family. Outlines of disability-related legislation highlight eligibility requirements and services they provide."What’s New" section features briefs on current employment-related topics.

National Conference of State Legislatures
http://www.ncsl.org/programs/health/olmstead-home.htm

Links to publications and policy reports concerning HCBS and the Olmstead case. Includes annual reports on Olmstead planning activity by state and links to other projects. Olmstead was brought under the Americans with Disabilities Act (ADA) Title II and is most relevant for Formal and Informal PAS and Home and Community-Based PAS.

National Consortium for Health Systems Development
http://www.nchsd.org/Workgroups/

The NCHSD supports a working group of state, local and federal administrators who meet regularly to discuss personal assistance services, funding options, policy design, data collection, and the expansion of PAS into the workplace. Participation is open to consumers, employers, and other stakeholders.

National Council on Disability
http://www.ncd.gov

Policy briefs and reports to Government on disability-related issues, including a comprehensive analysis of the impact across the country of the Olmstead case (2003). Information leaflets for people with disabilities (for example on social security benefits, legal rights and housing) and a monthly newsletter are also available.

National Council on Disability
http://www.ncd.gov

The National Council on Disability writes reports about some of the major laws that affect people with disabilities such as benefits, access to housing and the right to live in the community.

National Family Caregivers Association (NFCA)
http://www.thefamilycaregiver.org/index.cfm

For people who have family members as caregivers, this website gives tips and advice for families and caregivers.

National Governor’s Association
http://www.nga.org

Policy reports, networking and information aimed at State Governors covering 5 broad topic areas, which include healthcare. Center for Best Practices also disseminates information on initiatives in different states across the 5 topics. Briefings on Medicaid and disability-related issues such as Olmstead and Ticket to Work are available.

National Health Law Program
http://www.healthlaw.org/

This national public interest law firm focuses on healthcare issues and publishes guides on key areas of law, such as Medicaid. It also provides a ‘Court Watch’ service giving news about key lawsuits, including some cases related to Olmstead and a ‘Waiver Watch’ page which gives news on developments in state’s waiver programs.

National Organization on Disability
http://www.nod.org

The National Organization on Disability (N.O.D.) provides the latest in disability news, information, and resources. The website is organized in categories of community involvement, economic participation, and access to independence for people with disabilities.

National Program Office on Self-Determination
http://www.self-determination.org/

National Program Office on Self-Determination provides links, articles, and message boards on self-determination, as well as articles on personal care assistants.

National Senior Citizen’s Law Center
http://www.nsclc.org/

This Center advocates nationally through litigation and legislative representation, and assists attorneys to promote the independence of older people and people with disabilities. The website has legal news and details of cases relating to Medicaid, waiver programs and nursing facilities.

National Senior Citizen’s Law Center
http://www.nsclc.org

The National Senior Citizen’s Law Center advocates for seniors and has information on cases related to Medicaid, waiver programs and nursing facilities.

New England ADA & Accessible IT Center
http://www.newenglandada.org

One of ten regional disability and business technical assistance centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR). The Center is a project of Adaptive Environments, Inc., a nonprofit organization. The Center's goal is to facilitate voluntary and effective compliance with the Americans with Disabilities Act of 1990.

Adaptive Environments Center, Inc.
374 Congress Street, Suite 301
Boston, MA 02210
(617) 695-0085 (V/TTY)
(617) 482-8099 (Fax)
adainfo@newenglandada.org

New Freedom Initiative’s online resource for people with disabilities
http://www.disabilityinfo.gov/digov/public/DisplayPage.do%3fparentFolderId=500

Federal Government’s informational site for people with disabilities about the New Freedom Initiative. Information is divided by categories such as health, civil rights, independent living and employment.

North Carolina Office on Disability and Health: Publications
http://www.fpg.unc.edu/%7Encodh/pubs.htm

The North Carolina Office on Disability and Health lists several publications available from their website on access to health care for people with disabilities. Women’s health, removing barriers, physical activity, health and wellness are some of the subjects covered in the publications.

Northeast ADA & IT Center
http://www.ilr.cornell.edu/ped/northeastada/?CFID=968895&CFTOKEN;=85578138

We provide training, technical assistance and materials on the Americans with Disabilities Act and Accessible Information Technology throughout New York, New Jersey, Puerto Rico and the US Virgin Islands. Funded by the US Department of Education's, National Institute on Disability and Rehabilitation Research (NIDRR)as one of 10 national DBTACS.

201 ILR Extension Building
Cornell University
Ithaca, NY 14853-3901
Phone: 1-800-949-4232 Voice / TTY / Spanish—New York, New Jersey, Puerto Rico and the US Virgin Islands.
In other areas: 607-255-6686 Voice / TTY / Spanish
Fax: 607-255-2763
Email: northeastada@cornell.edu

Northwest ADA/IT Center - Northwest DBTAC
http://www.nwada.org

The Northwest ADA/IT Center is one of 10 regional Disability and Business Technical Assistance Centers (DBTAC) funded by the National Institute on Disability and Rehabilitation Research (NIDRR) of the U.S. Department of Education. They are located at Oregon Health & Science University in Portland, Oregon. Working together with designated state affiliates and partners in Alaska, Idaho, Oregon and Washington, they provide technical assistance, training and dissemination of information regarding the Americans with Disabilities Act and accessible education-based information technology.

Northwest DBTAC
Northwest ADA/IT Center
P.O. Box 574
Portland, Oregon 97207-0574
(503) 494-4001
nwada@ohsu.edu

Pacific ADA & IT Center - Pacific DBTAC
http://www.pacdbtac.org

The purpose of the Pacific Americans with Disabilities Act and Accessible Information Technology Center is to build a partnership between the disability and business communities and to promote full and unrestricted participation in society for persons with disabilities through education and technical assistance. The Pacific ADA & IT Center is one of 10 NIDRR DBTACs and server Arizona, California, Hawaii, Nevada, and the Pacific Basin (American Samoa, Guam, Northern Mariana Islands, and Palau).

Pacific ADA & IT Center DBTAC
555 12th Street, Suite 1030
Oakland, CA 94607-4046
510-285-5600 V/TTY
510-285-5614
adatech@pdbtac.com

Personal Assistance Services (PAS) in the Workplace - Job Accommodation Network
http://www.jan.wvu.edu/media/PAS.html

 

Promoting Consumer Direction in Aging Services
http://www.consumerdirection.org

This website provides details about a joint project of the National Association of State Units on Aging and the National Council on Aging which aims to help increase opportunities for older people to control their own care. It provides a definition of consumer direction and a toolkit (being piloted in 5 states) for policymakers and service providers to use to evaluate their programs and services. Information on reports and journal articles on this subject are listed, and an online newsletter is accessible. There is also state-by-state information on those states participating in the initiative.

Promoting Consumer Direction in Aging Services
http://www.consumerdirection.org

This website is for seniors interested in having more control over their own care. It gives a definition of consumer direction and a toolkit to helps figure out which state programs support consumer direction.

Proyecto Visión
http://www.proyectovision.net/

Proyecto Visión connects disabled Latinos with employment services and related resources by offering a bilingual website, newsletter and technical assistance hotline plus outreach to employers in the community.

Ready.Gov: Department of Homeland Security
http://www.ready.gov/special_needs_items.html

Ready.gov is the Department of Homeland Security’s public website on emergency preparedness. The section on making an emergency kit includes checklists for special needs items for infants, the elderly, and people with disabilities.

Rehabilitation Research Training Center (RRTC) on Health and Wellness
http://www.healthwellness.org

The Health Information section of the RRTC on Health and Wellness has information for consumers on physical activity, nutrition, well-being, managed care, alternative medicine, and other subjects.

Research and Training Center on Community Living
http://http://rtc.umn.edu/main/

This NIDRR-funded program at the University of Minnesota engages in research, evaluation and technical assistance to programs that support people with developmental disabilities to live in the community. The website provides information including case studies, research reports and links to further information on 6 topics covering; residential supports/Medicaid, disability statistics, self-advocacy, person centered practices, direct support professionals and leisure.

Rocky Mountain ADA/IT Center
http://www.ada-infonet.org/

Provides information on the Americans with Disabilities Act (ADA) and accessible education-based information technology to Colorado, Utah, Montana, Wyoming, North Dakota and South Dakota. One of 10 NIDRR DBTACs in the US.

Meeting the Challenge, Inc.
3630 Sinton Road, Suite 103
Colorado Springs, CO 80907
(719) 444-0268 (V/TTY)
(719) 444-0269 (Fax)
rmdbtac@mtc-inc.com

Social Security Administration
http://www.ssa.gov/policy/docs/quickfacts/state_stats/index.html

Fact sheets provide monthly, individual state statistics that includes total expenditures and number of recipients receiving Disability Income and Supplemental Security Income benefits. This data is approximately one year old when it is posted.

Social Security Administration
http://www.ssa.gov/policy/docs/quickfacts/state_stats/index.html

Fact sheets provide monthly, individual state statistics that includes total expenditures and number of recipients receiving Disability Income and Supplemental Security Income benefits. This data is approximately one year old when it is posted.

Social Security Administration: Work Incentives
http://www.socialsecurity.gov/work/ResourcesToolkit/workincentives.html#work

A description of programs and policies that help SSI and SSDI recipients increase their earnings without losing their benefits. Two such programs are the Program for Achieving Self-Sufficiency (PASS), and the Impairment-Related Work Expenses (IRWE).

Social Security Administration: Work Incentives
http://www.socialsecurity.gov/work/ResourcesToolkit/workincentives.html#work

A description of programs and policies that help SSI and SSDI recipients increase their earnings without losing their benefits. Two such programs are the Program for Achieving Self-Sufficiency (PASS), and the Impairment-Related Work Expenses (IRWE).

Southeast Disability and Business Technical Assistance Center (DBTAC)
http://www.sedbtac.org/index.cfm

One of ten Regional Disability and Business Technical Assistance Centers (DBTACs) funded by the National Institute on Disability and Rehabilitation Research (NIDRR). It supports efforts to strengthen ADA compliance for eight states in the Southeast Region, shares publications and resources on the ADA that are accurate and reliable, provides technical assistance promptly to telephone or written inquiries about the ADA, offers training and distance education on the ADA, disseminates news and ADA in Action articles about implementation and enforcement of the ADA, makes referrals to regional ADA experts for specialized assistance, works with a distinguished ADA Leadership Network to promote coalition building among business, government, education, and disability communities, and develops effective solutions for the challenges in ADA compliance.

Center for Assistive Technology & Environmental Access (CATEA) at Georgia Tech
490 Tenth St.
Atlanta, GA 30318
404-385-0636 (v/tty) 404-385-0641 (fax)
sedbtacproject@catea.org

Southwest DBTAC - Disability Law Resource Project
http://www.dlrp.org/

The Southwest's leading resource on the Americans with Disabilities Act, related laws and making Information Technology accessible to people with disabilities. The DLRP serves a wide range of audiences who are interested in or impacted by these laws, including employers, businesses, government agencies, schools and people with disabilities. Expert staff are available to provide training and publications and to respond to your inquiries via DLRP's toll free hotline 800-949-4232.

The DBTAC’s service area is Texas, Arkansas, New Mexico, Oklahoma and Louisiana. The Center is one of 10 regional centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR).

Independent Living Research Utilization
2323 South Shepherd Boulevard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V/TTY)
(713) 520-5785 (Fax)
dlrp@ilru.org

Steve Gold’s Treasured Nuggets of Information
http://www.stevegoldada.com

Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act.

The website presents short, easy to read bulletins and also give tips on how to use the facts and figures in state and local lobbying. It also presents sources of further information. It is possible to sign-up online to receive new bulletins by email and there is a searchable archive of all previous bulletins.

Steve Gold’s Treasured Nuggets of Information
http://www.stevegoldada.com

Created by a disability rights attorney, Steve Gold’s website gives the latest legal information and research about issues for people with disabilities such as housing, education, nursing homes, health care, and the Americans with Disabilities Act.

TASH
http://www.tash.org

TASH is a civil rights organization that works to include people with disabilities into every aspect of society.

Texas Health & Human Services Commission STAR PLUS Program
http://www.hhsc.state.tx.us/starplus/starplus.htm

This website of the Texas STAR PLUS program which is an innovative waiver combining Medicaid 1915(b) and 1915(c) waiver to serve dual eligible (Medicare and Medicaid ) recipients in Harris County in Texas. This program is one of the largest in the country, serving almost 63,000 recipients by 2004.

The Lewin Group Center for Long-Term Care
http://www.lewin.com/Areas_of_Expertise/Long_Term_Care/default.htm

Part of a national healthcare and human services consulting firm, this website aims to be a central point for research and consulting services related to long term care carried out by the Lewin Group. The site includes a HCBS Population Tool that calculates estimates of the potential demand for HCBS based on data inputted by the user. The report also includes evaluation reports on state long-term care planning activities.

The Urban Institute
http://www.urban.org/

This policy organization analyses key social and economic policy. Some of the reports and data it produces are available online or can be purchased online.

Through the Looking Glass
http://lookingglass.org/index.php

Through the Looking Glass (TLG) is an organization that helps families in which a child, parent or grandparent has a disability by providing information and services on how to help families adapt to various disabilities.

U.S. Department of Health and Human Services (DHHS), Office of Civil Rights
http://www.os.dhhs.gov/ocr/mis.htm

Information and web-links to all Federal healthcare programs relating to the Olmstead decision and community integration, including new announcements made by the Government.

U.S. Department of Justice, Americans with Disabilities Act
http://www.ada.org

This website provides information on the Americans with Disabilities Act that describe the rights of people with disabilities, employers and other public groups and buildings.

U.S. Department of Justice, Americans with Disabilities Act (ADA)
http://www.usdoj.gov/crt/ada/

Provides information on the ADA, the obligations of different groups under this legislation (including public bodies and employers) and cross-Governmental activity to ensure compliance with the ADA.
Also at: http://www.ada.gov

U.S. Department of Labor, ODEP
http://www.dol.gov/odep/pubs/ek97/personal.htm

The following page provides the DOL definition of workplace personal assistance, examples of it, and links to additional resources.

UCLA Center for Health Policy Research
http://www.healthpolicy.ucla.edu/

This website centralizes many policy research briefs and reports that have been published around the nation. It also provides custom data retrieval from the California Health Interview Survey conducted by the Center biannually.

US Dept. of Labor /Office of Disability Employment Policy
http://www.dol.gov/odep/pubs/ek97/personal.htm

The following page provides the DOL definition of workplace personal assistance, examples of it, and links to additional resources.

Worksupport.com
http://www.worksupport.com

Virginia Commonwealth University. Publishes reports and manuals on obtaining or managing workplace personal assistance services. Among them, Personal Assistance in the Workplace: A Customer-Directed Guide, 2003, (http://www.worksupport.com/Main/pass.asp) and Employer View of Workplace Supports (http://www.worksupport.com/Main/rrtcpapers.asp)