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Wallace SP, Padilla-Frausto DI, Mendez-Luck CA, Benjamin AE, Durazo E, Pourat N. (2010, February). Budget Proposals Turn Back Clock 30 Years in Long-Term Care Services for California Seniors. Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved June 10th, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/Budget Proposals_2010_PB_021610. pdf

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Dulio, A., Perry, M., Claypool, H. & O'Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: Insights from enrollees in four states. Washington, D.C.: Kaiser Family Foundation. Retrieved 24-Mar-08 from http://kff.org/medicaid/7 756.cfm

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Scharlach, A.E., Gustavson, K., Dal Santo, T.S. (2007). Assistance received by employed caregivers and their care recipients: Who helps care recipients when caregivers work full time? Gerontologist, 47(6), pp.752-762.

Yeager, P., Kaye, H.S., Reed, M., & Doe, T.M. (2007). Assistive Technology and Employment: Experiences of Californians with Disabilities. Work, 27(4), pp.333-344.

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Zabin, C. (2006, March). Quality services and quality jobs for supporting Californians with developmental disabilities. California Policy Research Center Author's Report. Berkeley, CA: University of California. Retrieved 26-Jul-06 from http://laborcenter.berkel ey.edu/disabilities/disab ilities_brief06.pdf

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Stone, D. (2006). Providing personal assistance services through a Medicaid State Plan Option. Center for Workers with Disabilities. Retrieved 24-Aug-06 from http://www.aphsa.org/disa bilities/home/docs/PAS%20 as%20a%20State%20Plan%20O ption-%20Doug%20Stone.pdf

Mareschal, P. (2006). Innovation and adaptation: Contrasting efforts to organize home care workers in four states. Labor Studies Journal, 31(1), pp.25-49.

Boris, E. & Klein, J. (2006). Organizing home care: Low-waged workers in the welfare state. Politics & Society, 34(1), pp.81-108.

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Dal Santo, T., Scharlach, A. & Fox, P. (2005, November). Implementation of the National Family Caregiver Support Program: How has caregiver service use changed in California? Presented at the Gerontological Society of America 58th Annual Scientific Meeting.

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Holland, S.K., Greenberg, J., Tidwell, L., Malone, J., Mullan, J. & Newcomer, R. (2005). Community based health coaching and its effect on exercise and health service utilization. Journal of Aging & Health, 17(6), pp.697-716.

Leavitt, J. & Lingafelter, T. (2005). Low wage workers and high housing costs. Labor Studies Journal, 30(2), pp.41-60.

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Friss Feinberg, L. & Newman, S.L. (2004). A study of 10 states since the passage of the National Family Caregiver Support Program: Policies, perceptions, and program development. Gerontologist, 44(6), pp.760-769.

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Kitchener, M., Bostrom, A., & Harrington, C. (2004). Smoke Without Fire: Nursing Facility Closures, 1997-2001. Inquiry, 41/2, pp.189-202.

Waterstone, D., Kang, T., Flores, C., Howes, C., Harrington, C. & Newcomer, R. (2004). In-Home Supportive Services program: Who is served? San Francisco, CA: Center for Personal Assistance Services. Retrieved October, 2005 from http://www.pascenter.org/ documents/IHSS_Final_Repo rt.pdf

Holle, M. (2004). California can save over a hundred million a year by amending the State Plan to cover domestic and related services under the Medi-Cal personal care services program. San Francisco, CA: Center for Personal Assistant Services. Retrieved 23rd June, 2010 from http://pascenter.org/pas_ workforce/memo.php

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University of Nebraska Public Policy Center. (2003, June). Intermediary service organizations providing personal assistance services: Implementing lessons. Lincoln, NE: Author. Retrieved June 16th, 2010 from http://ppc.unl.edu/public ations/documents/price_pa siso_report.pdf

Gray, L. & Feinberg, L.F. (2003, March). Survey of Californians about in-home care services. San Francisco, CA: Report, Family Caregiver Alliance.

Scharlach, A., Sirotnik, B., Bockman, S., Neiman, M., Ruiz, C. & Dal Santo, T. (2003, February). A profile of family caregivers: Results of the California statewide survey of caregivers. Berkeley, CA: Center for the Advanced Study of Aging Services.

Malone, J. (2003). Back-up support when a person's attendant is absent. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved 9-May-06 from http://www.cms.hhs.gov/Pr omisingPractices/HCBSPPR/ itemdetail.asp?filterType =none&filterByDID;=-99&sor; tByDID=1&sortOrder;=ascend ing&itemID;=CMS040649

Jee, J. & Menges, J. (2003). The California Working Disabled Program: Lessons learned, looking ahead. Oakland, CA: Lewin Group, for the Medical Policy Institute.

Delp, L. & Quan, K. (2002). Homecare worker organizing in California: An analysis of a successful strategy. Labor Studies Journal, 27(1), pp.1-23.

Fishman, E., & Cooper, B. (2002). Medicaid Buy-In options: Helping persons with severe disabilities and chronic conditions to work. New York: Mount Sinai School of Medicine.

Howes, C. (2002). The impact of a large wage increase on the workforce stability of IHSS homecare workers in San Francisco County. University of California Institute for Labor and Employment, and the University of California Center for Labor Research and Education, Berkeley

The Lewin Group, Inc. (2001). Research on employment supports for people with disabilities: Summary of the focus group findings. Washington, D.C.: Author.

Cousineau, M.R. (2000). Providing health insurance to IHSS providers (home care workers) in Los Angeles County. Los Angeles, CA: University of Southern California.

Engelberg Center for Health Care Reform at the Brookings Institution. (2010, October). Achieving Better Chronic Care at Lower Costs Across the Health Care Continuum for Older Americans. Washington, DC: Author.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2010, October). Workplace Personal Assistance Services (PAS) for People with Disabilities: Making Productive Employment Possible. Journal of Rehabilitation, 76(4), pp.3-8.

Kaye, H.S. (2010, October). The impact of the 2007–09 recession on workers with disabilities. Monthy Labor Review Online, 133(10)

Benson, C. (2010, September). Legal Victories, Economic Defeats. CQ Weekly, September, pp.2220-2225.

Langer Ellison, M., Glazier, R.E., O'Connell, E., Norton, G & Himmelstein, J. (2010, September ). Design Features for Employment-Supportive Personal Assistance Services in Medicaid Programs. Journal of Disability Policy Studies, 21(2), pp.90-100. doi: 10.1177/1044207310370682

Carlson, E., & Coffey, G. (2010, September). 10 Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center. Retrieved September 29th, 2010 from http://www.thescanfoundat ion.org/sites/default/fil es/NSCLC_Olmstead.pdf

Carlson, E. & Coffey, G. (2010, September ). 10-Plus Years After the Olmstead Ruling: Progress, Problems and Opportunities. Washington, DC: National Senior Citizens Law Center.

Eiken, S., Burwell, B., Gold, L., & Sredl, K. (2010, August). Medicaid HCBS Waiver Expenditures FY 2004 Through FY 2009. Cambridge, MA.: Thomson Reuters. Retrieved 8th September, 2010 from http://www.hcbs.org/moreI nfo.php/doc/3326

Friedman, E.M. & Seltzer, J.A. (2010, August). Providing for Older Parents: Is It a Family Affair? Los Angeles, CA: California Center for Population Research. Retrieved August 26, 2010 from http://papers.ccpr.ucla.e du/papers/PWP-CCPR-2010-0 12/PWP-CCPR-2010-012.pdf

Cubanski, J. & Neuman, P. (2010, August). Medicare Doesn't Work As Well For Younger, Disabled Beneficiaries As It Does For Older Enrollees. Health Affairs, 29(9) Retrieved August, 2010 from http://content.healthaffa irs.org/cgi/content/full/ hlthaff.2009.0962v1 . doi: 10.1377/hlthaff.2009.0962

Cassidy, A. (2010, July). Extra Federal Support for Medicaid. Princeton, NJ: Health Affairs/Robert Wood Johnson Foundation Health Policy Brief Series. Retrieved July 28, 2010 from http://www.rwjf.org/healt hpolicy/product.jsp?id=65 908

PHI. (2010, July). State Chart Book On Wages For Personal And Home Care Aides, 1999‐2009. Bronx, NY: Author. Retrieved 8th July, 2010 from http://www.directcareclea ringhouse.org/download/PC A_Wage_Chart_Book_1999_20 09.pdf

Johnson, K. (2010, June). Managing the "T" in EPSDT Services. Washington, DC: National Academy for State Health Policy. Retrieved 10th June 2010 from http://nashp.org/sites/de fault/files/ManagingTheTi nEPSDT.pdf

Napoles, A.M., Chadiha, L., Eversley, R. & Moreno-John G. (2010, May). Reviews: Developing culturally sensitive dementia caregiver interventions: are we there yet? American Journal of Alzheimer's Disease and Other Dementias, 25(5), pp.389-406. doi: 10.1177/1533317510370957

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author. Retrieved August, 2010 from http://www.hscfoundation. org/aboutus/publications/ caregivers_brief.pdf

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author.

Norton, M.C., Smith, K.R., Østbye, T., Tschanz J.T., Corcoran, C., Schwartz, S., Piercy, K.W., Rabins, P.V., Steffens, D.C., Skoog, I., Breitner, J.C.S. & Welsh-Bohmer, K.A. (2010, May). Greater risk of dementia when spouses have dementia? The Cache County Study. Journal of American Geriatrics Society, 58(5), pp.895-900. doi: 10.1111/j.1532-5415.2010.02806.x

Engquist, G., Johnson, C. & Courtland Johnson, W. (2010, May). Systems of Care: Environmental Scan of Medicaid-Funded Long-Term Supports and Services. Hamilton, NJ: Center for Health Care Strategies, Inc.. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253866

Engquist, G., Johnson, C. & Courtland Johnson, W. (2010, May). Medicaid-Funded Long-Term Supports and Services: Snapshots of Innovation. Hamilton, NJ: Center for Health Care Strategies, Inc.. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253869

Engquist, G., Johnson, C., Lind, A. & Palmer Barnette, L. (2010, May). Medicaid-Funded Long-Term Care: Toward More Home- and Community-Based Options. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253871

Tucker, A.M. & Johnson, K.E. (2010, May). Cross-Payer Effects on Medicare Resource Use: Lessons for Medicaid Administrators. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/Cross PayerEffectsOnMedicareRes ourceUse-LessonsForMedica idAdministrators-May2010. pdf

Center for Medicare Advocacy, Inc.. (2010, April). Interim Final Rules to Implement the Mental Health Parity and Addiction Equity Act of 2008 Go Into Effect on April 5, 2010. CMA Weekly Alert. Washington, DC: Author. Retrieved 4-Apr-10 from http://www.medicareadvoca cy.org/InfoByTopic/Mental Health/10_04.01.MHPAEA.ht m

Minnesota Department of Human Services, Disability Services Division. (2010, March). Personal Care Assistance Services - A Report to the 2010 Minnesota Legislature. St. Paul, MN: Author. Retrieved 11-Jun-10 from http://www.dhs.state.mn.u s/main/groups/disabilitie s/documents/pub/dhs16_149 239.pdf

Center for Medicare Advocacy, Inc. (2010, March). CMS Sanctions Missouri Medicaid for Overly Restrictive Home Health Standards. CMS weekly report. Washington, DC: Author. Retrieved 11-Mar-10 from http://www.medicareadvoca cy.org/InfoByTopic/Medica idAndRelatedTopics/Medica idandRT_10_03.11.Medicaid AndHomeHealth.htm

Fields, N.L. & Dabelko-Schoeny, H. (2010, February). Factors Related to a Successful Transition in the Ohio Medicaid Assisted Living Waiver Program: A Provider's Perspective. Columbus, OH: Ohio Department of Aging, Community Long Term Care Division. Retrieved 11-Jun-10 from http://aging.ohio.gov/res ources/publications/Assis tedLivingProviderPerspect ive2010.pdf

Anderson, G. (2010, February). Chronic Care: Making the Case for Ongoing Care Princeton, NJ: Robert Wood Johnson Foundation.

Wallace SP, Padilla-Frausto DI, Mendez-Luck CA, Benjamin AE, Durazo E, Pourat N. (2010, February). Budget Proposals Turn Back Clock 30 Years in Long-Term Care Services for California Seniors. Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved June 10th, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/Budget Proposals_2010_PB_021610. pdf

Albert, S.M. & Schulz, R. (2010, February). New Insights and Innovations for Reducing Health Care Costs for Employers. Westport, CT: MetLife Mature Market Institute. Retrieved 21-Feb-10 from http://www.metlife.com/mm i/research/working-caregi ver-employer-health-care- costs.html#findings

National Council on Disability. (2010, January). The State of Housing in America in the 21st Century: A Disability Perspective. Washington, DC: Author. Retrieved July 6, 2010 from http://www.ncd.gov/newsro om/publications/2010/A_Di sability_Perspective.html

Minnesota Department of Human Services, Disability Services Division. (2010, January). Annual Report on the Use and Availability of Home and Community-Based Services Waivers for Persons with Disabilities. St. Paul, MN: Author. Retrieved 11-Jun-10 from http://www.dhs.state.mn.u s/main/groups/disabilitie s/documents/pub/dhs16_148 067.pdf

Tucker, A.M., Johnson, K.E., Huang, Y. & Brewer, T. (2010, January). Examining the Medicare Resource Use of Dually Eligible Medicaid Recipients. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/Exami ningtheMedicareResourceUs eofDuals-January2010.pdf

Steenhausen, S. (2010, January). California's Proposed 2010-2011 Budget: Senior-Related Program Reductions. (Fact sheet, No.1.). Long Beach, CA: The SCAN Foundation.

LaPlante, M.P. (2010, January). The classic measure of disability in activities of daily living is biased by age but an expanded IADL/ADL measure is not. Journal of Gerontology: Social Sciences, 65B(1). doi: 10.1093/geronb/gbp129

Mendelsohn, S., Morris, M. & Myhill, W. (2010). State Household and Dependent Care Tax Credits to Support Personal Assistant Services. New York: The Burton Blatt Institute, Syracuse University.

Marziali, E., McCleary, L. & Streiner, D.L. (2010). Evaluation of an Assessment Battery for Estimating Dementia Caregiver Needs for Health and Social Care Services. American Journal of Alzheimer's Disease and Other Dementias, 25(5), pp.446-445.

Solovieva, T.I, Walls, R.T. & Dowler D.L. (2010). Personal Assistance Services (PAS) for Individuals with Disabilities: Self-Care at the Workplace. WORK: A Journal of Prevention, Assessment & Rehabilitation, 36(3), pp.339-343. doi: 10.3233/WOR-2010-1035

Robert B. Hudson (Ed.) (2010, Winter/Spring). Advancing Home and Community-Based Services: Transforming Policies, Programs, and Service Delivery in Long-Term Care Boston, MA: Public Policy & Aging Report. Retrieved August, 2010 from http://www.hcbs.org/files /193/9616/PP&AR.pdf;

Coughlin J. (2010). Estimating the Impact of Caregiving and Employment on Well-Being. Outcomes & Insights in Health Management , 2(1), pp.1-7.

San Francisco. (2010). Health Care Reform and Family Caregivers. Family Caregiver Alliance: Author. Retrieved July 28, 2010 from http://www.caregiver.org/ caregiver/jsp/content_nod e.jsp?nodeid=2397

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Neri, M., Wong, A., & Harrington C. (2010). Draft. Barriers to Use of Personal Assistance Services (PAS) in Workplace Settings. San Francisco, CA: Center for Personal Assistance Services, University of California.. Retrieved 15th May, 2010 from http://www.pascenter.org/ documents/IHSS_FINAL_Repo rt_043010.pdf

Chen, Y.M. & Thompson, E.A. (2010). Understanding factors that influence success of home- and community-based services in keeping older adults in community settings. Journal of Aging and Health, 23(3), pp.267-291.

Kaiser Family Foundation. (2010). Focus on Health: Summary of New Health Reform Law. (#8061). Menlo Park, CA: Author. Retrieved 28-Mar-10 from http://www.kff.org/health reform/upload/finalhcr.pd f

Nyberg, J.P. (2010, Spring). Community College and Caregiver Training: Implications for Policymakers. (Caregiving Brief). New York, NY: International Longevity Center USA. Retrieved 25-Mar-10 from http://www.ilcusa.org/pag es/publications/caregivin g/community-colleges-and- caregiver-training-implic ations-for-policymakers.p hp

LaPlante, M.P. & Kaye, H.S. (2010). Demographics and trends in wheeled mobility equipment use and accessibility in the community. Assistive Technology, 22(1), pp.3-17.

Misra, S., Orslene, L.E. & Walls, R.T. (2010). Personal assistance services (PAS) for workers with disabilities: Views and experiences of employers. Journal of Rehabilitation, 76(1), pp.22-27.

Ng, T., Harrington, C., Kitchener, M. (2010). Medicare and Medicaid in long-term care. Health Affairs, 29(1), pp.22-28.

Kaye, H.S., Harrington, C. & LaPlante, M.P. (2010). Long-term care: Who gets it, who provides it, who pays, and how much? Health Affairs, 29(1), pp.11-21.

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: The Older Adults Waiver. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-OlderAdultsW aiver-December2009.pdf

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: The Living at Home Waiver. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-LivingAtHome Waiver-December2009.pdf

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: The Autism Waiver. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-AutismWaiver -December2009.pdf

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Bornstein, S. & Rathmell, R.J. (2009, December). Caregivers as a Protected Class?: The Growth of State and Local Laws Prohibiting Family Responsibilities Discrimination. San Francisco, CA: University of California, Hastings College of Law. Retrieved 17-Dec-09 from http://www.worklifelaw.or g/pubs/LocalFRDLawsReport .pdf

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Okumura, M.J., Van Cleave, J., Gnanasekaran, S., & Houtrow, A. (2009, December). Understanding Factors Associated with Work Loss for Families Caring for CSHCN. Pediatrics, 124. doi: 10.1542/peds.2009-1255J

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Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2009, October). Cost of workplace accommodations for individuals with disabilities: With or without personal assistance services. Disability and Health Journal, 2(4), pp.196-205.

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Department of Banking, Insurance, Securities and Health Care Administration. (2009, July). Chapter 5: Long Term Care Services. 2009 The Health Resource Allocation Plan. Montpelier, VT: Author.

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Clinton, B., DeGaetano, E., Foster, A., Lautz, C.A., Ryan, L.A., Sullivan, C., Wasserman, K. & Reynolds, L. (2009, May). When no one cares: Why we need to save Connecticut's direct care workforce. Norwich, CT.: Senior Resources Agency on Aging.

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Newacheck, P.W., Houtrow A.J., Romm, D.L., Kuhlthau, K.A., Bloom, S.R., Van Cleave, J.M., & Perrin J.M. (2009, May). The Future of Health Insurance for Children With Special Health Care Needs. Pediatrics, 123(5), pp.e940-e947. doi: 10.1542/peds.2008-2921

National Alliance for Caregiving. (2009, April). The Evercare® Survey of the Economic Downturn and its Impact on Family Caregiving. Bethesda, MD: Author. Retrieved 17-Dec-09 from http://www.caregiving.org /data/EVC_Caregivers_Econ omy_Report%20FINAL_4-28-0 9.pdf

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Hartnett, J.T., Morris, M. & Stengel, J. (2009, April). Creating a roadmap out of poverty for Americans with disabilities: A report on the relationship of the Employment and Training Administration's workforce development system and local asset-building coalitions. Washington, DC: U.S. Department of Labor.

Harrington, C., Kang, T. & Chang, J. (2009, April). Factors Associated With Living in Developmental Centers in California. Intellectual and Developmental Disabilities, 47(2), pp.108-124.

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Campbell, V., Gilyard, J., Sinclair, L., Sternberg, T. and Kailes, J. (2009). Preparing for and Responding to Pandemic Influenza: Implications for People With Disabilities. American Journal of Public Health, 99(S2), pp.S294-S300.

Kailes, J. (2009). Functional Needs Focused Care and Shelter Checklist. Playa del Rey, CA: Kailes-Publications. Retrieved June 22nd, 2010 from http://www.jik.com/disast er.html

Kailes, J. (2009). Standard, Accessible, and Medical Cots. Playa del Rey, CA: Kailes-Publications. Retrieved June 22nd, 2010 from http://www.jik.com/disast er.html

Brennan, J. (2009). The Disability Law Handbook. Houston, TX: DBTAC Southwest ADA Center. Retrieved 5-Mar-10 from http://www.southwestada.o rg/html/publications/dlh/ index.html

Center for Medicare Advocacy, Inc. (2009). Medicare for People with Chronic Conditions. CMA Weekly Alert Washington, DC: Author. Retrieved 17-Dec-09 from http://www.medicareadvoca cy.org/InfoByTopic/Chroni cConditions/09_12.17.Impr ovement.htm

Morris, L. (2009). Quits and job changes among home care workers in Maine: The role of wages, hours, and benefits. Gerontologist, 49(5), pp.635-650.

Mittal, V., Rosen, J. & Leana, C. (2009). A dual-driver model of retention and turnover in the direct care workforce. Gerontologist, 49(5), pp.623-634.

Wiener, J.M., Squillace, M.R., Anderson, W.L. & Khatutsky, G. (2009). Why do they stay? Job tenure among certified nursing assistants in nursing homes. Gerontologist, 49(2), pp.198-210.

Street, D., Burge, S. & Quadango, J. (2009). The effect of licensure type on the policies, practices, and resident composition of Florida assisted living facilities. Gerontologist, 49(2), pp.211-223.

Vermont Department of Banking, Insurance, Securities and Health Care Administration. (2009). 2009 Vermont Health Resource Allocation Plan. (Chapter 5). Montpelier, VT: Author.

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Gray, D.B., Dashner, J.L., Morgan, K.A., Lyles, M., Scheller, M.D., Morris, C.L. & Hollingsworth, H.H. (2009). Influence of a consumer-directed personal assistance services program on the lives of persons with mobility impairments. Disability and Health Journal, 2(4), pp.188-195.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2009). Cost of workplace accommodations for individuals with disabilities. Disability and Health Journal, 2(4), pp.196-205.

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Saxton, M. (Ed.) (2009). Sticks and stones: Disabled people's stories of abuse, defiance and resilience. Oakland, CA: World Institute on Disability.

Seekins, T., Katz, M., Liston, R., Oxford, M., Altom, B., White, G., Petty, G., & Kafka, B. (2009). Nursing home emancipation: A preliminary study of efforts by Centers for Independent Living in urban and rural areas Missoula, MT: The University of Montana Rural Institute.

Greene Burger, S., Kantor, B., Mezey, M., Mitty, E., Kluger, M., Algase, D., Anderson, K., Beck, C., Mueller, C. & Rader, J. (2009). Professional nurses involvement in nursing home culture change: Overcoming barriers, advancing opportunities. New York, NY: Hartford Institute for Geriatric Nursing.

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Kemp, C.L., Ball, M.M., Perkins, M.M., Collingsworth, C. & Lepore, M.J. (2009). I get along with most of them: Direct care workers' relationships with residents' families in assisted living. Gerontologist, 49(2), pp.224-235.

Hilgeman, M.M., Durkin, D.W., Sun, F., DeCoster, J., Allen, R.S., Gallagher, D. & Burgio, L.D. (2009). Testing a theoretical model of stress process in Alzheimer's caregivers with race as a moderator. Gerontologist, 49(2), pp.248-261.

Diefenbach, G.J., Tolin, D.F., Meunier, S.A. & Gilliam, C.M. (2009). Assessment of anxiety in older home care recipients. Gerontologist, 49(2), pp.141-153.

D'Souza, J.C., James, M.L., Szafara, K.L., Fries, B.E. (2009). Hard times: The effects of financial strain on home care services use and participant outcomes in Michigan. Gerontologist, 49(2), pp.154-165.

Kaye, H.S., Yeager, P., & Reed, M. (2009). Disparities in usage of assistive technology among people with disabilities. Assistive Technology, 20(4), pp.194-203.

Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009). Do Non-institutional Long-Term Care Services Reduce Medicaid Spending? Health Affairs, 28(1), pp.262-272.

Disability and Business Technical Assistance Center-Southwest ADA Center. (2009). Disability Law Handbook. Houston, TX: Disability and Business Technical Assistance Centers Southwest ADA Center. Retrieved 28-Apr-09 from http://www.swdbtac.org/ht ml/publications/dlh/index .html

Kaye, H.S. (2009). Stuck at the bottom rung: Occupational characteristics of workers with disabilities. Journal of Occupational Rehabilitation, 19(2), pp.115-128.

Mullan, J.T., Grossman, B.R., Hernandez, M., Wong, A., Eversley, R. & Harrington, C. (2009). Focus Group Study of Ethnically Diverse Low Income- Users of Paid Personal Assistance Services. Home Health Care Services Quarterly, 28(1), pp.24-44.

Zuckerman, S., Miller, D.M. & Pape, E.M. (2009). Missouri's 2005 Medicaid cuts: How did they affect enrollees and providers? Health Affairs, 28(2), pp.335-345.

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Holahan, J., Miller, D.M. & Roussea, D. (2009). Rethinking Medicaid's Financing Role for Medicare Enrollees. Washington, DC: Kaiser Family Foundation. Retrieved 22-Feb-09 from http://www.kff.org/medica id/7862.cfm

DeJonge, K.E., Taler, G. & Boling, P.A. (2009). Independence at home: Community-based care for older adults with severe chronic illness. Clinics in Geriatric Medicine, 25(1), pp.155-169.

Minnesota Office of the Legislative Auditor, Program Evaluation Division. (2009). Evaluation Report: Personal Care Assistance. St. Paul, MN: Author. Retrieved 10-Feb-09 from http://www.auditor.leg.st ate.mn.us/ped/2009/pca.ht m

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Bridges, K. (2008, December). AARP Member Opinions on Supportive Services in Georgia. Washington, D.C.: AARP Public Knowledge Management.

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Research and Training Center on Disability in Rural Communities, University of Montana Rural Institute.. (2008, March). Nursing Home Emancipation: Accomplishments of Urban and Rural Centers for Independent Living. (Rural Disability and Rehabilitation Research Progress Report #39). Missoula, MT: Author.

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Hewitt, A., Larson, S., Edelstein, S., Seavey, D., Hoge, M.A. & Morris, J. (2008). A synthesis of direct service workforce demographics and challenges across intellectual/developmental disabilities, aging, physical disabilities and behavioral health. Washington, DC: National Direct Service Workforce Resource Center. Retrieved 22-Feb-09 from http://www.dswresourcecen ter.org/index.php/dsw/rep orts

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Hendrix, C.C., Heflin, M.T., Twersky, J., Knight, C., Payne, J., Bradford, J.Y. & Schmader, K.E. (2008). Post-hospital clinic for older patients and their family caregivers. Annals of Long-Term Care, 16(5), pp.20-24.

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Hawley, S.R., Hawley, G.C., Ablah, E., St Romain, T., Molgaard, C.A., Orr, S.A. (2007, May). Mental Health Emergency Preparedness: the need for training and coordination at the state level. Pre-Hospital and Disaster Medicine, 22(3), pp.199-204.

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Blessman, J., Skupski, J., Jamil, M., Jamil, H., Bassett, D., Wabeke, R., Arnetz, B. (2007). Barriers to at-home-preparedness in public health employees: implications for disaster preparedness training. Journal of Occupational and Enviromental Medicine/American College of Occupational and Environmental Medicine, 49(3), pp.318-326.

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Hernandez, M. & Newcomer, R. (2007). Assisted living and special populations: What do we know about differences in use and potential access barriers? Gerontologist, 47(3), pp.110-117.

Gaugler, J.E., Kane, R.L. & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. Journal of Gerontology: Psychological Sciences, 62(1), pp.38-44.

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Sterarns, S.C., Norton, E.C. & Yang Z. (2007). How Age and Disability Affect Long-Term Care Expenditures in the United States. Social Policy and Society, 6(3), pp.367-378.

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Castro, C. M., King, A. C., Housemann, R., Bacak, S. J., McMullen, K. M., & Brownson, R. C. (2007). Rural family caregivers and health behaviors: results from an epidemiologic survey. Journal of Aging and Health, 19(1), pp.87-105.

Roth, D.L., Haley, W.E., Wadley, V.G., Clay, O.J. & Howard, G. (2007). Race and gender differences in perceived caregiver availability for community-dwelling middle-aged older adults. Gerontologist, 47(6), pp.721-729.

Wiener, J.M., Anderson, W.L. & Khatutsky, G. (2007). Are consumer-directed home care beneficiaries satisfied? Evidence from Washington state, 47(6), pp.763-774.

Scharlach, A.E., Gustavson, K., Dal Santo, T.S. (2007). Assistance received by employed caregivers and their care recipients: Who helps care recipients when caregivers work full time? Gerontologist, 47(6), pp.752-762.

Rabinowitz, Y., Mausbach, B.T., Thompson, L.W., Gallagher-Thompson, D. (2007). The relationship between self-efficacy and cumulative health risk associated with health behavior patterns in female caregivers of elderly relatives with Alzheimer's dementia. Journal of Aging and Health, 19(6), pp.946-964.

Brannon, D., Barry, T., Kemper, P., Schreiner, A. & Vasey, J. (2007). Job perceptions and intent to leave among direct care workers: Evidence from the Better Jobs Better Care demonstrations. Gerontologist, 47(6), pp.820-829.

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Hutchinson, D.; Anthony, W.; Massaro, J.; Rogers, E. S. (2007). Evaluation of a Combined Supported Computer Education and Employment Training Program for Persons with Psychiatric Disabilities. Psychiatric Rehabilitation Journal, 30(3), pp.189-197.

Casper, E. S.; Carloni, C. (2007). Assessing the Underutilization of Supported Employment Services. Psychiatric Rehabilitation Journal, 30(3), pp.182-188.

Storey, K. (2007). Review of research on self-management interventions in supported employment settings for employees with disabilities. Career Development for Exceptional Individuals, 30(1), pp.27-34.

Hall, A. C.; Butterworth, J.; Winsor, J.; Gilmore, D.; Metzel, D. (2007). Pushing the employment agenda: Case study research of high performing states in integrated employment. Intellectual and Developmental Disabilities, 45(3), pp.182-198.

Larson, J. E.; Barr, L. K.; Corrigan, P. W.; Kuwabara, S. A.; Boyle, M. G.; Glenn, T. L. (2007). Perspectives on benefits and costs of work from individuals with psychiatric disabilities. Journal of Vocational Rehabilitation, 26(2), pp.71-77.

Henn, J.; Henn, M. (2007). Facilitating integrated employment outcomes for individuals with significant disabilities: Parents' perspective. Journal of Vocational Rehabilitation, 26(1), pp.1-3.

Garcia-Iriarte, E.; Balcazar, F.; Taylor-Ritzler, T. (2007). Analysis of case managers' support of youth with disabilities transitioning from school to work. Journal of Vocational Rehabilitation, 3, pp.129-140.

Schopp, L. H.; Clark, M. J.; Hagglund, K. J.; Sherman, A. K.; Stout, B. J.; Gray, D. B.; Boninger, M. L. (2007). Life Activities Among Individuals With Spinal Cord Injury Living in the Community: Perceived Choice and Perceived Barriers. Rehabilitation Psychology, 52(1), pp.82-88.

Schopp, L. H.; Clark, M. J.; Hagglund, K. J.; Sherman, A. K.; Stout, B. J.; Gray, D. B.; Boninger, M. L. (2007). Life Activities Among Individuals With Spinal Cord Injury Living in the Community: Perceived Choice and Perceived Barriers. Rehabilitation Psychology, 52(1), pp.82-88.

Yeager, P., Kaye, H.S., Reed, M., & Doe, T.M. (2007). Assistive Technology and Employment: Experiences of Californians with Disabilities. Work, 27(4), pp.333-344.

Stott, A.L., Brannon, S.D., Vasey, J., Dansky, K.H. & Kemper, P. (2007). Baseline Management Practices at Providers in Better Jobs Better Care. Gerontology & Geriatrics Education, 28(2), pp.17-36.

Stone, R. (2007). Introduction: The Role of Training and Education in Solving the Direct Care Workforce Crisis. Gerontology & Geriatrics Education, 28(2), pp.5-16.

Spillman, B.C. & Long, S.K. (2007). Does High Caregiver Stress Lead to Nursing Home Entry? Washington, D.C.: U.S. Department of Health and Human Services, Assistant Secretary for Planning and Evaluation. Retrieved 9-Dec-07 from http://aspe.hhs.gov/daltc p/reports.htm

Hewitt, A., Edelstein, S., Seavey, D., Morris, J. & Hoge, M. (2007). Direct Support Professional Work Group Report. Raleigh, NC: North Carolina Commission for Mental Health, Developmental Disabilities and Substance Abuse. Retrieved Dec. 9, 2007 from http://directcareclearing house.org/l_art_det.jsp?r es_id=265010

Parker, V.A. & Miyake, S. (2007). Cultural Competence in Nursing Homes: Issues and Implications for Education. Gerontology & Geriatrics Education, 28(2), pp.37-54.

American Public Health Services Association. (2007). State Perspectives on Emerging Medicaid Long-Term Care Policies and Practices. Washington, DC: Author. Retrieved Dec. 10, 2007 from http://www.nasmd.org/reso urces/docs/LongTermCareRp t1007.pdf

Craft Morgan, J., Haviland, S.B., Allyson Woodside, M. & Konrad, T.R. (2007). Fostering Supportive Learning Environments in Long-Term Care: The Case of WIN A STEP UP. Gerontology & Geriatrics Education, 28(2), pp.55-75.

Menne, H.L., Ejaz, F.K., Noelker, L.S. & Jones, J.A. (2007). Direct Care Workers' Recommendations for Training and Continuing Education. Gerontology & Geriatrics Education, 28(2), pp.91-108.

Brown, R., Lepidus Carlson, B., Dale, S., Foster, L., Phillips, B. & Schore, J. (2007). Cash and Counseling: Improving the Lives of Medicaid Beneficiaries Who Need Personal Care or Home- and Community-Based Services. Princteon, NJ: Mathematica Policy Research, Inc. Retrieved Dec. 9, 2007 from http://www.mathematica-mp r.com/publications/

Hegeman, C., Hoskinson, D, Munro, H., Maiden P. & Pillemer, K. (2007). Peer Mentoring in Long-Term Care: Rationale, Design and Retention. Gerontology & Geriatrics Education, 28(2), pp.77-90.

Reiss, J., Gibson, R. W., Betz, C. L. (Ed.), Nehring, W. M. (Ed.) (2007). Developing transition health care plans. Promoting health care transitions for adolescents with special health care needs and disabilities. (xiii ed., pp.137-154). Baltimore, MD: Paul H Brookes Publishing.

Rabren, K., Curtis, R. S., Martin Jr., E. D. (Ed.) (2007). Principles and practices of case management in rehabilitation counseling. (2nd ed., pp.33-77). Springfield, IL: Charles C. Thomas Publisher.

Swan, J.H., Harrington, C., Dryer, K., Pickard, R.B., Covert, J.M. & Gulur, P. (2007). Medicaid Nursing Facility Payment in the Face of State Fiscal Meltdown. Long Term Care Interface, 8(5), pp.28-31.

Kitchener, M., O'Meara, J., Brody, A., Lee, H.Y., Harrington, C. (2007). Shareholder Value and the Performance of a Large Nursing Home Chain. Health Services Research, 43(3), pp.1062-84.

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Misra, S., Orslene, L.E., & Walls, R.T. (2007). Personal Assistance Services for Workers with Disabilities: Views and Experiences of Rehabilitation Service Providers. Disability Studies Quarterly, 27(3)

Miller, N.A. and Weinstein, M. (2007). Participation and Knowledge Related to a Nursing Home Admission Decision among a Working Age Population. Social Science & Medicine, 64(2), pp.303-313.

LaPlante, M.P., Kaye, H.S. and Harrington, C. (2007). Estimating the Expense of a Mandatory Home- and Community-Based Personal Assistance Services Benefit Under Medicaid. Journal of Health and Social Policy, 19(3), pp.47-64.

Kitchener, M., Ng, T., and Harrington, C. (2007). Medicaid Home and Community-Based Services for the Elderly: Trends in Programs and Policies. Journal of Applied Gerontology, 26(3), pp.303-324.

Kitchener, M., Ng, T., Carrillo, H. and Harrington, C. (2007). A Longitudinal Analysis of State Variation in the Provision of Personal Care Services. Inquiry, In

Kitchener, M., Ng, T. and Harrington, C. (2007). State Medicaid Home Care Policies: Inside the Black Box. Home Health Care Quarterly, 26(3), pp.23-38.

Kitchener, M., Ng, T., and Harrington, C. (2007). Medicaid State Plan Personal Care Services: Trends in Programs and Policies. Journal of Health and Social Policy, 19(3), pp.9-26.

Harrington, C., Swan, J.H., and Carrillo, H. (2007). Nursing Staffing and Medicaid Reimbursement Rates. Health Services Research, 42(3), pp.1105-1129.

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Shirk, C. (2007). Trading Places: Real Choice Systems Change Grants and the Movement to Community-Based Long-Term Care Supports. (Issue brief No. 822). Washington, DC: The National Health Policy Forum.

Houser, A.N. and Gibson, M.J. (2007). Valuing the Invaluable: A New Look at State Estimates of the Economic Value of Family Caregiving. Washington, D.C.: AARP Public Policy Institute.

Wong, A. & Newcomer, R. (2007). Health promotion and disease prevention for people with disabilities: An annotated bibliography. San Francisco: Center for Personal Assistance Services.

Kitchener, M., Ng, T., Carrillo, H., Miller, N., and Harrington, C. (2007). Developing personal care programs: National trends and interstate variation, 1992-2002. Inquiry, 44, pp.69-87.

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Johnson, R.W., Toohey, D. & Wiener, J.M. (2007). Meeting the long-term care needs of the baby boomers: How changing families will affect paid helpers and institutions. Washington, DC: Urban Institute. Retrieved 26-Jun-07 from http://www.urban.org/Uplo adedPDF/311451_Meeting_Ca re.pdf

Scherzer, T., & Newcomer, R. (2007). Barriers to documenting occupational injuries among personal assistance services workers. American Journal of Industrial Medicine, 50(7), pp.536-544.

Lynch, M., Estes, C. & Hernandez, M. (2007). Long-term care policy option proposal: Consumer controlled chronic, home and community care for the elderly and disabled. Washington, DC: Georgetown University Long-Term Care Financing Project. Retrieved 25-Jun-07 from http://ltc.georgetown.edu /forum/4lynch061107.pdf

Feder, J., Komisar, H.L. & Friedland, R.B. (2007). Long-term care financing: Policy options for the future. Washington, DC: Georgetown University Long-Term Care Financing Project. Retrieved 25-Jun-07 from http://ltc.georgetown.edu /forum/ltcfinalpaper06110 7.pdf

Summer, L. (2007). Community-based long-term services financed by Medicaid: Managing resources to provide appropriate Medicaid services. Washington, DC: Georgetown University Long-Term Care Financing Project. Retrieved 25-Jun-07 from http://ltc.georgetown.edu /pdfs/summer0607.pdf

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Harrington, C. (2005). Nursing staffing in nursing homes in the United States: Part I. Journal of Gerontological Nursing, 31(2), pp.18-23.

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Gervey, R.; Kowal, H. (2005). The Job Developer's Presence in the Job Interview: Is It Helpful or Harmful to Persons with Psychiatric Disabilities Seeking Employment? Psychiatric Rehabilitation Journal, 29(2), pp.128-131.

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Harrington, C., Anzaldo, S., Burdin, A., Kitchener, M. and Miller, M. (2005). Trends in State Certificate of Need and Moratoria Programs for Long Term Care Providers. Journal of Health and Social Policy, 19(2), pp.31-58.

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Leavitt, J. & Lingafelter, T. (2005). Low wage workers and high housing costs. Labor Studies Journal, 30(2), pp.41-60.

Miller, NA, Kitchener, M, Elder, KT, Kang, Y, Rubin, A, & Harrington, C. (2005). Variation by Disability in State Predictors of Medicaid 1915c Waiver Use and Expenditures. The Gerontologist, 45, pp.764-772.

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Lauren, D.,Harris-Kojetin, L., Kiefer, K., Brannon, D., Barry, T., Vasey, J. & Lepore, M. (2005). Measuring long-term care work: A guide to selected instruments to examine direct care worker experiences and outcomes. Washington, DC: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services. Retrieved 9-May-06 from http://aspe.hhs.gov/daltc p/reports/dcwguide-file.h tm

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Agree, E.M., Freedman, V.A., Cornman, J.C., Wolf, D.A. & Marcotte, J.E. (2005). Reconsidering substitution in long-term care: When does assistive technology take the place of personal care? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 60B(5), pp.S272-S280.

Barrett, E. (2005). Family-directed support network for families of people with disabilities. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved 9-May-06 from http://www.cms.hhs.gov/Pr omisingPractices/HCBSPPR/ itemdetail.asp?filterTyp e=none& filterByDID=-99&s; ortByDID=1&sortOrder;=asce nding&itemID;=CMS030406

Spillman, B.C. & Black, K.J. (2005). Staying the course: Trends in family caregiving. Washington, DC: AARP Public Policy Institute Issue Paper.

Redfoot, D.L. & Houser, A.N. (2005). "We shall travel on": Quality of care, economic development, and the international migration of long-term workers. Washington, D.C.: AARP Public Policy Institute Issue Paper.

Pandya, S.M. (2005). Racial and ethnic differences among older adults in long-term care service use. Washington, DC: AARP Public Policy Institute Fact Sheet.

Cohen, A., Timmons, J.C. & Fesko, S.L. (2005). The Workforce Investment Act: How policy conflict and policy ambiguity affect implementation.. Journal of Disability Policy Studies, 15(4), pp.221-230.

Braun, K.L., Cheang, M. & Shigeta, (2005). Increasing knowledge, skills, and empathy among direct care workers in elder care: A preliminary study of an active-learning model. Gerontologist, 45(1), pp.118-124.

Ng, T., Kitchener, M., and Harrington, C. (2005). Medicaid Home Care Waivers for Persons with HIV/AIDS: Program Expenditures, Participants and Policies. AIDS and Public Policy Journal , 19(3/4), pp.95-109.

Seavey, D. & Nakhnikian, E. (2005). Family care and paid care: Separate worlds or common ground? (Better Jobs Better Care Issue Brief No. 5). (IB 5). Washington, DC: Institute for the Future of Aging Services. Retrieved 13-Mar-06 from http://www.bjbc.org/Page. asp?PgID=27#Issue_Briefs

Kauff, J., Kirby, G. & Pavetti, L. (2005). Linking TANF recipients with paraprofessional long-term care jobs. (Issue Brief No. 8). Princeton, NJ: Mathematica Policy Research, Inc. Retrieved 13-Mar-06 from http://www.directcareclea ringhouse.org/l_art_det.j sp?res_id=171210

Paraprofessional Healthcare Institute & The Institute for the Future of Aging Services. (2005). The role of training in improving the recruitment and retention of direct-care workers in long-term care. (Workforce Strategies No. 3) New York: Author. Retrieved 13-Mar-06 from http://www.directcareclea ringhouse.org/l_art_det.j sp?res_id=150710

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Li, L.W. (2005). Longitudinal changes in the amount of informal care among publicly paid home care recipients. Gerontologist, 45(4), pp.465-473.

Foster, L., Brown, R., Phillips, B. & Carlson, B.L. (2005, 45). Easing the burden of caregiving: The impact of consumer-direction on primary informal caregivers in Arkansas. Gerontologist, 4, pp.474-485.

Dale, S., Brown, R., Phillps, B. & Carlson, B.L. (2005). How do hired workers fare under consumer-directed personal care? Gerontologist, 45(5), pp.583-592.

Albert, S.M., Simone, B., Brassard, A., Stern, Y. & Mayeux, R. (2005). Medicaid home care services and survival in New York City. Gerontologist, 45(5), pp.609-616.

Zola, I.K. (2005). Toward the necessary universalizing of a disability policy. The Milbank Quarterly, 83(4). doi: 10.1111/j.1468-0009.2005.00436.x

Weissert, W.G., Cready, C.M. & Pawelak, J.E. (2005). The past and future of home- and community-based long-term care. The Milbank Quarterly, 83(4). doi: 10.1111/j.1468-0009.2005.00434.x

Tilly, J. (2005). Recent research on consumer-directed home care in the Netherlands, England, Germany and the United States. Australasian Journal on Ageing, 24(S1), pp.S59-S59.

Sparks, L., Travis, S.S. & Thompson, S.R. (2005). Listening for the communicative signals of humor, narratives, and self-disclosure in the family caregiver interview. Health and Social Work, 30(4), pp.340-343.

Sanders, S. & Adams, K.B. (2005). Grief reactions and depression in caregivers of individuals with Alzheimer's disease: Results from a pilot study in an urban setting. Health and Social Work, 30(4), pp.287-295.

Ranney, M. (2005). Review of the book: The cultures of caregiving: Conflict and common ground among families, health, professionals, and policy makers. Journal of Women & Aging, 17(3), pp.109.

Lum, T.Y. (2005). Understanding the racial and ethnic differences in caregiving arrangements. Journal of Gerontological Social Work, 45(4), pp.3-21.

Lin, C.J. & Meit, M. (2005). Changes in Medicare home health care use and practices in rural communities. Journal of Aging and Health, 17(3), pp.351-362.

Glass, A.P., Teaster, P.B., Roberto, K.A. & Brossoie, N. (2005). Elderly and disabled waiver services: Important dimensions of personal care from the client's perspective. Home Health Care Services Quarterly, 24(3), pp.59-77.

Butler, S.S., Kaye, L.W., Ruffin, L. & Downey, R. (2005). Depression and caregiver burden among rural elder caregivers. Journal of Gerontological Social Work, 46(2), pp.47-63.

Brega, A.G., Goodrich, G.K., Powell, M.C. & Grigsby, J. (2005). Racial and ethnic disparities in the outcomes of elderly home care recipients. Home Health Care Services Quarterly, 24(3), pp.1-21.

Andersen, R. & Newman, J.F. (2005). Societal and individual determinants of medical care utilization in the United States. The Milbank Quarterly, 83(4). doi: 10.1111/j.1468-0009.2005.00428.x

Whittier, S., Scharlach, A.E. & Dal Santo, T.S. (2005). Availability of caregiver support services: Implications of the National family Caregiver Support Program. Journal of Aging & Social Policy, 17(1), pp.45-62.

Trinkoff, A.M., Johantgen, M., Muntaner, C. & Le, R. (2005). Staffing and worker injury in nursing homes. American Journal of Public Health, 95(7), pp.1220-1225.

Montgomery, R.J.V., Holley, L., Deichert, J. & Kosloski, K. (2005). A profile of home care workers from the 2005 Census: How it changes what we know. Gerontologist, 45(5), pp.593-600.

Matthias, R.E. & Benjamin, A.E. (2005). Intent to stay - among paid home care workers in California. Home Health Care Services Quarterly, 24,, pp.39-57.

Fried, T.R., Bradley, E.H., O'Leary, J.R. & Byers, A.L. (2005). Unmet desire for caregiver-patient communication and increased caregiver burden. Journal of the American Geriatrics Society, 53(1), pp.59-65.

Stacey, C.L. (2005). Finding dignity in dirty work: The constraints and rewards of low-wage home care labour. Sociology of Health & Illness, 27(6), pp.831-854.

Levine, C. Hunt, G.G., Harper, D., Hart, A.Y., Lautz, J., Gould, D.A. (2005). Young adult caregivers: A first look at an unstudied population. American Journal of Public Health, 95(9), pp.2071-2075.

Kitchener, M., Ng, T., Grossman, B., & Harrington, C. (2005). Medicaid Waiver Programs for Traumatic Brain and Spinal Cord Injury. Journal of Health and Social Policy, 20(3), pp.51-66.

McDowell, R.W. (2005). All 50 states' and D.C.'s home pages and Workers' Compensation agencies. Raleigh, NC: North Carolina Industrial Commission. Retrieved 2-Nov-05 from http://www.ic.nc.gov/ncic /pages/all50.htm

Kitchener, M., Ng, T., Miller, N., & Harrington, C. (2005). Medicaid Home And Community-Based Services: National Program Trends. Health Affairs, 24(1), pp.206-212.

Capitman, J., Bishop, C., and Casler, R. (2005). Long-term care quality: Historical overview and current initiatives. Washington, DC: National Quality Forum.

Harrington, C., Carrillo, H., & Mercado-Scott, C. (2005). Nursing facilities, staffing, residents, and facility deficiencies, 1998 through 2004. San Francisco: University of California.

Harrington, C., Chapman, S., Miller, E., Miller, N., and Newcomer, R. (2005). Trends in the supply of long-term-care facilities and beds in the United States. Journal of Applied Gerontology, 24(4), pp.265-282.

Harrington, C. (2005). Long Term Care Staff and Quality of Care. UCSF San Francisco, CA: Center for Personal Assistance Services. Retrieved June 7th, 2007 from http://www.pascenter.org/ documents/Harrington_LTC_ Testimony.html

Newcomer, R., Kang, T., LaPlante, M., and Kaye, S. (2005). Living quarters and unmet need for personal care assistance among adults with disabilities. Journal of Gerontology: Social Sciences, 60B(4), pp.S205-S213.

Tritz, K. (2005). Long-term care: Consumer-directed services Under Medicaid. Washington DC: Congressional Research Service. Retrieved 29-Jun-05 from http://www.law.umaryland. edu/marshall/crsreports/i ndex.asp?AlphaStart=L

Institute for Community Inclusion, University of Massachusetts. (2005). Show me the money: Flexible funding for job success. Boston, MA: Author. Retrieved 8-Apr-05 from http://www.communityinclu sion.org/article.php?arti cle_id=150

Cranford, Cynthia J. 2005. (2005). From Precarious Workers to Unionized Employees and Back Again?: The Challenges of Organizing Personal-Care Workers in Ontario. Montreal: McGill-Queens University Press.

Eiken, S. (2004, November). Promising practices in long term care systems reform: Common factors of systems change. Washington, D.C.: Centers for Medicare & Medicaid Services. Retrieved 11-Dec-06 from http://www.cms.hhs.gov/Pr omisingPractices/Download s/commonfactors.pdf

Holley, L.M., Montgomery, R.J.V., & Kosloski, K.D. (2004, November). Innovations in 33 states that address the respite worker crisis: Lessons from the ADDGS program. Poster presentation presented at the 57th Annual Scientific Meeting of the Gerontological Society of America.

Kitchener, M., Willmott, M., & Harrington, C. (2004, November). Home and Community-Based Service Programs Selected Robert Wood Johnson Foundation Grants to States. San Francisco, CA: Center for Personal Assistance Services. Retrieved January, 2005 from http://www.pascenter.org/ foundation_grants/index.p hp

Kitchener, M., Willmott, M. & Harrington, C. (2004, November). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. San Francisco, CA: Center for Personal Assistance Services. Retrieved December, 2004 from http://pascenter.org/demo _waivers/demoWaiverReport _2004.php

Williams, B., Dulio, A., Claypool, H., Perry, M.J., and Cooper, B.S. (2004, October). Waiting for Medicare: Experiences of Uninsured People with Disabilities. New York, NY: The Commonwealth Fund.

Geiger-Brown, J., Muntaner, C., Lipscomb, J. & Trinkoff, A. (2004, October). Demanding work schedules and mental health in nursing assistants working in nursing homes. Work and Stress, 18(4), pp.292-304.

National Council on Disability. (2004, October). Consumer-directed health care: How well does it work? Washington, DC: Author. Retrieved 5-Aug-05 from http://www.ncd.gov/newsro om/publications/2004/publ ications.htm

Seavey, D. (2004, October). The cost of frontline turnover in long-term care. (Practice & Policy Report: 1-3). New York, NY: Better Jobs Better Care.

Doty, P. (2004, October). Consumer directed home care: Effects on family caregivers. Policy Brief. San Francisco, CA: Family Caregiver Alliance.

Duffy, N (2004, October). Keeping workers covered: Employer-provided health insurance benefits in the developmental disabilities field. New York: JFK, Jr. Institute for Worker Education, City University of New York. Retrieved February 10th, 2005 from http://www.nysacra.org/do wnloads/Health_Insurance_ Report.pdf

Wittenburg, D. (2004, September). New Federalism: National Survey of America's Families. A health-conscious safety net? Health problems and program use among low-income adults with disabilities. (Series B, No. B-62). Washington, DC: Urban Institute.

Sciegaj, M., Capitman, J.A. & Kyriacou, C.K. (2004, August). Consumer-directed community care: Race/ethnicity and individual differences in preferences for control. Gerontologist, 44(4), pp.489-499.

Summer, L., Friedland, R., Mack, K. & Mathieu, S. (2004, August). Measuring the years: State aging trends and indicators. Washington, DC: Center on an Aging Society Health Policy Institute, Georgetown University, For the National Governors Association Center for Best Practices.

Horowitz, A., Goodman, C.R. & Reinhardt, J.P. (2004, August). Congruence between disabled elders and their primary caregivers. Gerontologist, 44(4), pp.532-542.

Moss, H. (2004, August). Bridging the gap between the needs of clients and the skills of the workforce in Oregon. San Francisco, CA: Paper presented at Carework Conference.

Bradley, E.H., Webster, T.R., Baker, D., Schlesinger, M., Inouye, S.K., Barth, M.C., Lapane, K.L., Lipson, D., Stone, R. & Koren, M.J. (2004, July). Translating research into practice: Speeding the adoption of innovative health care programs. (Issue Brief #724). New York, NY: The Commonwealth Fund. Retrieved June 10th, 2010 from http://www.cmwf.org/publi cations/publications_show .htm?doc_id=233248

Zacharias, L. (2004, June). Cash and counseling demonstration and evaluation report on New Jersey paid worker focus groups. Retrieved June 17th, 2010 from http://www.cashandcounsel ing.org/resources/2005120 2-160158/NJPdWrkrFcsGrps. pdf

Zacharias, Lee. (2004, June). Cash and counseling demonstration and evaluation report on Florida paid worker focus groups. Retrieved June 16th, 2010 from http://www.cashandcounsel ing.org/resources/2005120 2-160607/Gsswltc%20shared cashandcounseling.orgLibr ary%20ResourceFLpaidwkrFo cus.pdf

Center on an Aging Society, Georgetown University . (2004, June). Workers affected by chronic conditions: How can workplace policies and programs help? (Issue Brief Number 7). Washington, DC: Author.

Job Accommodation Network, Center for Personal Assistance Services. (2004, June). Personal Assistance Services (PAS) in the Workplace. San Francisco, CA: Author. Retrieved 7-Jul-04 from http://www.jan.wvu.edu/me dia/PAS.html

Ireys, H.T., Davis, S.R. & Andres, K.L. (2004, May). The interaction of policy and enrollment in the Medicaid Buy-In Program, 2005. Washington, D.C.: Mathematica Policy Research, Inc.. Retrieved 14-May-07 from http://www.mathematica-mp r.com/publications/redire ct_pubsdb.asp?strSite=pdf s/interaction.pdf

Boris, E., Chung, G., Delp, L., Matthias, R. & Zubin, C. (2004, May). Workforce needs in California healthcare system. Berkeley, CA: California Policy Research Center. Retrieved June 10th, 2010 from http://www.ucop.edu/cprc/ boris.pdf

Anderson, W. L., Wiener, J.M., Greene, A.M., & O'Keeffe, J. (2004, April). Direct service workforce activities of the Systems Change grantees. Research Triangle Park, NC: RTI International. Retrieved 12-Feb-07 from http://www.hcbs.org/files /35/1708/CMSWorkforce.pdf

Lipson, D. & Regan, C. (2004, March). Health insurance coverage for direct care workers: Riding out the storm. (Issue Brief, No. 3). Better Jobs Better Care: Washington, DC.

Tritz, K. (2004, February). Long-term care: Consumer directed services under Medicaid. Congressional Research Service Report (Order Code: RL32219). Washington, DC: The Library of Congress. Retrieved January 23rd, 2006 from http://www.law.umaryland. edu/marshall/crsreports/c rsdocuments/rl32219121200 5.pdf

HRSA/Bureau of Health Professions/National Center for Health Workforce Analyses. (2004, February). Nursing Aides, Home Health Aides, and Related Health Care Occupations - National and Local Workforce Shortages and Associated Data Needs. Washington, DC: Author. Retrieved August 17th, 2006 from http://bhpr.hrsa.gov/heal thworkforce/reports/nursi nghomeaid/nursinghome.htm

Milne, D., Chang, D., Mollica, R. (2004, January). State perspectives on Medicaid long-term care: Report from a July 2003 state forum. Portland, ME: National Academy for State Health Policy.. Retrieved 11-Dec-06 from http://www.nashp.org/File s/LTC_16_final.pdf

Wodchis, W.P., Fries, B.E. & Hirth, R.A. (2004). The effect of Medicare's prospective payment system on the discharge outcomes of skilled nursing facility residents. Inquiry, 41(4), pp.418-434.

Morris, J.N., Jones, R.N., Fries, B.E., Hirdes, J.P. (2004). Convergent validity of minimum data set-based performance quality indicators in postacute care settings. American Journal of Medical Quality, 19(6), pp.242-247.

Mitchell, S.L., Morris, J.N., Park, P.S. & Fries, B.E. (2004). Terminal care for persons with advanced dementia in the nursing home and home care settings. Journal of Palliative Medicine, 7(6), pp.808-816.

Diwan, S., Shugarman, L.R. & Fries, B.E. (2004). Problem identification and care plan responses in a home and community-based services program. Journal of Applied Gerontology, 23(3), pp.193-211.

Jang, Y., Clay, O.J., Roth, D.L., Haley, W.E. & Mittelman, M.S. (2004). Neuroticism and longitudinal change in caregiver depression: Impact of a spouse-caregiver intervention program. Gerontologist, 44(3), pp.793-801.

Friss Feinberg, L. & Newman, S.L. (2004). A study of 10 states since the passage of the National Family Caregiver Support Program: Policies, perceptions, and program development. Gerontologist, 44(6), pp.760-769.

Punch, R., Hyde, M., & Creed, P.A. (2004). Issues in the School-to-Work Transition of Hard of Hearing Adolescents. American Annals of the Deaf, 149(1), pp.28-38.

Hagglund, K. J. Clark, M. J. Mokelke, E. K. Stout, B. J. (2004). The current state of personal assistance services: Implications for policy and future research. NeuroRehabilitation, 19(2), pp.115-120.

Wewiorski, N J., Fabian, E. S. (2004). Association between demographic and diagnostic factors and employment outcomes for people with psychiatric disabilities: A synthesis of recent research. Mental Health Services Research, 6(1), pp.9-21.

Grasso, E., Jitendra, A. K., Browder, D. M., Harp, T. (2004). Effects of Ecological and Standardized Vocational Assessments on Office of Vocational Rehabilitation Counselors' Perceptions Regarding Individuals With Developmental Disabilities. Journal of Developmental and Physical Disabilities, 16(1), pp.17-31.

McKinley, W., Tewksbury, M. A., Sitter, P.; Reed, J., Floyd, S. (2004). Assistive technology and computer adaptations for individuals with spinal cord injury. NeuroRehabilitation, 19(2), pp.141-146.

Wang, P. P.; Badley, E. M.; Gignac, M. A. (2004). Perceived Need for Workplace Accommodation and Labor-Force Participation in Canadian Adults With Activity Limitations. American Journal of Public Health, 94(9), pp.1515-1518.

Tonner, C. and Harrington, C. (2004). Nursing Facility and Home and Community Based Service Need Criteria in the United States. Home Health and Community Services Quarterly, 22(4), pp.65-83.

Kitchener, M. and Harrington, C. (2004). The U.S. Long Term Care Field: A Dialectic Analysis of Institution Dynamics. Journal of Health and Social Behavior, 45(Supplement 1), pp.87-101.

Fries, B.E., James, M., Hammer, S.S., Shugarman, L.R., Morris, J.N. (2004). Is Telephone Screening Feasible? Accuracy and Cost-Effectiveness of Identifying Persons Medically Eligible for Home- and Community-Based Services. The Gerontologist, 44(5), pp.680-688.

Wodchis, W.P., Fries, B.E., Pollack, H. (2004). Payer incentives and physical rehabilitation therapy for nonelderly institutional long-term care residents: Evidence from Michigan and Ontario. Archives of Physical Medicine and Rehabilitation , 85(2), pp.210-217.

Carder, P.C. & Hernandez, M. (2004). Consumer discourse in assisted living. Journal of Gerontology, 59B(2), pp.S58-S67.

Litt, J. (2004). Women's carework in low-income households: The special case of children with Attention Deficit Hyperactivity Disorder. Gender & Society, 18(5), pp.625-644.

Schore, J. and Phillips, B. (2004). Consumer and Counselor Experiences in the Arkansas Independent Choices Program. Princeton, NJ: Mathematica Policy Research, Inc.. Retrieved 9-May-06 from http://aspe.hhs.gov/daltc p/reports/arkexp.htm

Phillips, B. & Schneider, B. (2004). Changing to consumer-directed care: The implementation of the Cash and Counseling Demonstration in Florida. Princeton, NJ: Mathematica Policy Research, Inc.. Retrieved 9-May-06 from http://aspe.hhs.gov/daltc p/reports/flchange.htm

Paraprofessional Healthcare Institute. (2004). Direct care worker associations: Empowering workers to improve the quality of home- and community-based care. (Workforce Tools, No. 3). Bronx, NY: Author. Retrieved 9-May-06 from http://www.paraprofession al.org/publications/Workf orceTools_No3final2.27.04 .pdf

Harris-Kojetin, L., Lipson, D., Fielding, J., Kiefer, K. & Stone, R.I. (2004). Recent findings on frontline long-term care workers: A research synthesis 1999-2003. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services.. Retrieved 9-May-06 from http://aspe.hhs.gov/daltc p/reports/insight.htm

Keilson, J. (2004). Recruiting direct service professionals/personal assistants in a competitive environment. HCBS Promising Practices Reports. Centers for Medicare and Medicaid Services Retrieved 9-May-06 from http://www.cms.hhs.gov/Pr omisingPractices/HCBSPPR/ itemdetail.asp?filterType =none&filterByDID;=-99&sor; tByDID=1&sortOrder;=ascend ing&itemID;=CMS040670

Centers for Medicare and Medicaid Services. (2004). Supporting family caregivers in ethnic minority communities. HCBS Promising Practices Reports. Washington, D.C: Author. Retrieved 9-May-06 from http://www.cms.hhs.gov/Pr omisingPractices/HCBSPPR/ itemdetail.asp?filterType =none&filterByDID;=-99&sor; tByDID=1&sortOrder;=ascend ing&itemID;=CMS030409

Centers for Medicare and Medicaid Services. (2004). Increasing service flexibility for caregivers. HCBS Promising Practices Reports. Washington, DC: Author. Retrieved 9-May-06 from http://www.cms.hhs.gov/Pr omisingPractices/HCBSPPR/ itemdetail.asp?filterType =none&filterByDID;=-99&sor; tByDID=1& sortOrder=ascen ding&itemID;=CMS030383

Lipson, D.J. (2004). Current findings and future directions in research on homecare work issues. Healthcare & Aging, 12(3), pp.2-3.

Parker, M. & Bergmark, E. (2004). Reforming the system for workers providing homecare. Healthcare & Aging, 11(4), pp.3-7.

Oktay, J.S. & Tompkins, C.J. (2004). Personal assistance providers' mistreatment of disabled adults. Health and Social Work, 29(3), pp.177-188.

Loughlin, D.M., Simon-Rusinowitz, L., Mahoney, K.J., Desmond, S.M., Squillace, M.R. & Powers, L.E. (2004). Preference for a cash option versus traditional services for Florida children and adolescents with developmental disabilities. Journal of Disability Policy Studies, 14(4), pp.229-240.

Piercy, K.W. & Dunkley, G.J. (2004). What quality paid home care means to family caregivers. Journal of Applied Gerontology, 23(3), pp.175-192.

Paraprofessional Healthcare Institute. (2004). Employing, supporting, and retaining your personal assistant: An orientation workshop for people with disabilities. New York: Author. Retrieved 13-Mar-06 from http://www.directcareclea ringhouse.org/l_art_det.j sp?res_id=262610

Coleman, B.J. (2004). Navigating the care system: A guide for providers to help family caregivers. San Francisco, CA: Family Caregiver Alliance. Retrieved 13-Mar-06 from http://www.caregiver.org/ caregiver/jsp/content_nod e.jsp?nodeid=1073

Toseland, R.W. (2004). Caregiver education and support programs: Best practice models. San Francisco, CA: Family Caregiver Alliance. Retrieved 13-Mar-06 from http://www.caregiver.org/ caregiver/jsp/content_nod e.jsp?nodeid=1314

Shireman, T.I. & Rigler, S.K. (2004). Penny wise, pound wise: A comparison of Medicaid expenditures for home and community-based services versus nursing facility care for older adults. Home Health Care Services Quarterly, 23(4), pp.15-28.

Porter, E.J. & Lasiter, S. (2004). Marker of older widows' trust of nonprofessional home-care helpers. Care Management Journals, 5(3), pp.145-150.

Hanley, E. (2004). The role of home care in palliative care services. Care Management Journals, 5(3), pp.151-157.

Johantgen, M., Trinkoff, A., Gray-Siracusa, K., Muntaner, C. & Nielsen, K. (2004). Using state administrative data to study nonfatal worker injuries: Challenges and opportunities. Journal of Safety Research, 35(3), pp.309-315.

Muntaner, C., Li, Y., Xue, X., O'Campo, P., Chung, H.J. & Eaton, W.W. (2004). Work organization, area labor-market characteristics, and depression among U.S. nursing home workers: a cross-classified multilevel analysis. International Journal of Occupational and Environmental Health, 10(4), pp.392-400.

McPhaul, K. (2004). Home care security: Nurses can take simple precautions to ensure safety during home visits. American Journal of Nursing, 104(9), pp.96.

Yoshida, K., Willi, V., Parker, I. & Locker, D. (2004). The emergence of self-managed attendant services in Ontario: Direct funding pilot project. An independent living model for Canadians requiring attendant services. Research in the Sociology of Health Care, 22, pp.177-204. doi: 10.1016/S0275-4959(04)22010-5

Gibson, M.J., Gregory, S.R., Houser, A.N., & Fox-Grage, W. (2004). Across the states: Profiles of Long-Term Care 2004. Washington, DC: AARP Public Policy Institute.

Ticket to Work and Work Incentives Advisory Panel, SSA. (2004). Annual report to the President and Congress: Year Four. Washington, DC: Author. Retrieved November 5th, 2006 from http://www.ssa.gov/work/p anel/panel_documents/annu al_report2004.html

Holcomb, P., & Barnow, B. (2004). Serving people with disabilities through the Workforce Investment Act's One-Stop Career Centers. Washington, D.C.: Urban Institute.

Goodman, N., & Livermore, G. (2004). The effectiveness of Medicaid Buy-In programs in promoting the employment of people with disabilities: Briefing paper prepared for the: Ticket to Work and Work Incentives Advisory Panel. Washington, DC: Cornell University Institute for Policy Research.

Kiernan, W.E., Halliday, J.F., & Boeltzig, H. (2004). Economic engagement: An avenue to employment for individuals with disabilities. Boston: University of Massachusetts, Institute for Community Inclusion.

Ticket to Work and Work Incentives Advisory Panel. (2004). Advice report to Congress and the Commissioner of the Social Security Administration: The crisis in EN participation a blueprint for action. Washington, DC: Author.

Wang, P.P., Badley, E.M., & Gignac, M.A. (2004). Perceived need for workplace accommodation and labor-force participation in Canadian adults with activity limitations. American Journal of Public Health, 94(9), pp.1515-1518.

Porter, E.J., Ganong, L.H., Drew, N. & Lane, T.I. (2004). A new typology of home-care helpers. Gerontologist, 44(6), pp.750-759.

Benjamin, A.E. & Matthias, R.E. (2004). Work-life differences and outcomes for agency and consumer-directed home care workers. Gerontologist, 44(4), pp.479-88.

Feinberg, L.F, Newman, S.L., Gray, L. & Kolb, K.N. (2004). The state of the states in family caregiver support: A 50-state study. San Francisco, CA: Family Caregiver Alliance.

Harrington, C., O'Meara, J. (2004). Report on California Nursing Homes, Home Health Agencies, and Hospice Programs Prepared for the California HealthCare Foundation for California Nursing Home Search. San Francisco, CA: Center for Personal Assistance Services. Retrieved October, 2004 from http://pascenter.org/docu ments/CCIS_Overview.pdf

Scherzer, T., Chapman, S., Newcomer, R. (2004). Workforce Development Projects in Personal Assistance Services. San Francisco, CA: Center for Personal Assistance Services. Retrieved February, 2005 from http://pascenter.org/stat e_based_stats/workforce_p rojects_inventory_home.ph p

Rosenbaum, S & Teitelbaum, J. (2004). Olmstead at five: Assessing the impact. Washington D.C. : The Kaiser Family Foundation,.

National Council on Disability. (2004). Consumer directed health care: How well does it work? Washington, D.C.: Author.

Enbar, E.G., Fred, M.A., Miller, L., Naiditch, Z. (2004). A nationwide study of deinstitutionalization & community integration: A special report of the public policy and legal advocacy programs Equip for Equality, Illinois.

Kitchener M., Beynon, M., & Harrington, C. (2004). Explaining the Diffusion of Medicaid Home Care Waiver Programs Using VPRS Decision Rules. Healthcare Management Science, 7(3), pp.237-244.

Waterstone, D., Kang, T., Flores, C., Howes, C., Harrington, C. & Newcomer, R. (2004). In-Home Supportive Services program: Who is served? San Francisco, CA: Center for Personal Assistance Services. Retrieved October, 2005 from http://www.pascenter.org/ documents/IHSS_Final_Repo rt.pdf

Sweeney, E. P. (2004). SSA's disability demonstration projects likely to provide important information about disability work incentives. Washington, DC: Center on Budget and Policy Priorities. .

Chapman, S., Kaye, S., & Newcomer, R. (2004). Home and Personal Care Workers by State. San Francisco, CA: Center for Personal Assistance Services. Retrieved November, 2004 from http://pascenter.org/stat e_based_stats/acs_workfor ce_state.php

Scherzer, T., Chapman, S., & Newcomer, R. (2004). Lost-worktime injuries and illnesses of Nursing Aides, Orderlies, and Attendants. San Francisco, CA: Center for Personal Assistance Services.

Newcomer, R., Graham, C.G., Sotelo, E., Anderson, L. (2004). Nursing Home Transition: Implementing the Program Providing Assistance to Caregivers in Transition (PACT). San Francisco, CA: Center for Personal Assistance Services.

Stone, R.I. (2004). The direct care worker: the third rail of home care policy. Annual Reviews of Public Health, 25, pp.21-37.

Kitchener, M., Carrillo. H., & Harrington, C. (2004). Medicaid Community-Based Programs: A Longitudinal Analysis of State Variation in Expenditures and Utilization. Inquiry, 40, pp.375-389.

Kitchener, M., Ng, T., & Harrington, C. (2004). Medicaid 1915(c) Home and Community Based Services Waivers: A National Survey of Eligibility Criteria, Caps and Waiting Lists. Home Health Care Services Quarterly, 23/2, pp.55-69.

LaPlante, M., Kaye, H.S., Kang, T., and Harrington, C. (2004). Unmet need for personal assistance services: Estimating the shortfall in hours of help and adverse consequences. Journal of Gerontology: Social Sciences, 59(2), pp.S98-S108. doi: 10.1093/geronb/59.2.S98

Young, L. & Newman, S. (2003, December). Caregiving and retirement planning: What happens to family caregivers who leave the workforce. (Policy Brief). San Francisco, CA: Family Caregiver Alliance. Retrieved June 21st, 2010 from http://www.caregiver.org/ caregiver/jsp/content_nod e.jsp?nodeid=1054

Mollica, R.L. (2003, November). Building nursing home transition into a balanced long term care systems: The Washington model. Portland, ME: National Academy for State Health Policy. Retrieved 11-Dec-06 from http://www.nashp.org/File s/WA_site_visit_summary_f inal.doc

Mollica, R.L. & Gillespie, J. (2003, August). Single entry point systems: State survey results. Portland, ME: National Academy for State Health Policy. Retrieved 11-Dec-06 from http://www.nashp.org/File s/SEPReport11.7.03.pdf

University of Nebraska Public Policy Center. (2003, June). Intermediary service organizations providing personal assistance services: Implementing lessons. Lincoln, NE: Author. Retrieved June 16th, 2010 from http://ppc.unl.edu/public ations/documents/price_pa siso_report.pdf

Dale, S., Brown, R., Phillips, B. & Carlson, B. (2003, June). The experiences of workers hired under consumer direction in Arkansas. Final Report. (Evaluation Reports: 1-56). Princeton, NJ: Mathematica .

Department of Health and Human Services and Assistant Secretary for Planning and Evaluation. (2003, May). The future supply of long-term care workers in relation to the aging baby boom generation. Washington, DC: Author. Retrieved June 18th, 2010 from http://aspe.hhs.gov/daltc p/reports/ltcwork.pdf

Dixon, Kl, Kruse, D., & Van Horn, C. (2003, March). Restricted access: A survey of employers about people with disabilities and lowering barriers to work. New Brunswick, NJ: University, John J. Heldrich Center for Workforce Development. Retrieved June 18th, 2010 from http://www.heldrich.rutge rs.edu/uploadedFiles/Publ ications/Restricted Acces s.pdf

Gray, L. & Feinberg, L.F. (2003, March). Survey of Californians about in-home care services. San Francisco, CA: Report, Family Caregiver Alliance.

Foster, L., Brown, R., Phillips, B., Schore, J. & Carlson, B.L. (2003, March). Improving the quality of Medicaid personal assistance through consumer direction. Health Affairs, Supplemental Web Exclusives, W3, pp.162-175.

Scharlach, A., Sirotnik, B., Bockman, S., Neiman, M., Ruiz, C. & Dal Santo, T. (2003, February). A profile of family caregivers: Results of the California statewide survey of caregivers. Berkeley, CA: Center for the Advanced Study of Aging Services.

Silverstein, R. (2003, February). Policy brief: The applicability of the ADA to personal assistance in the workplace. Boston, MA: The Institute for Community Inclusion.

Gallagher-Thompson, D. Solano, N., Coon, D. & Areán, P. (2003). Recruitment and retention of Latino dementia family caregivers in intervention research: Issues to face, lessons to learn. Gerontologist, 43(1), pp.45-51.

Pillemer, K., Czaja, S., Schulz, R. & Stahl, S.M. (2003). Finding the best ways to help: Opportunities and challenges of intervention research on aging. Gerontologist, 43(1), pp.5-8.

Pillemer, K., Suitor, J. & Wethington, E. (2003). Integrating theory, basic research and intervention: Two case studies from caregiving research. Gerontologist, 43(1), pp.19-28.

Feeney Mahoney, D., Tarlow, B.J. & Jones, R.N. (2003). Effects of an automated telephone support systems on caregiver burden and anxiety: Findings from REACH for TLC Intervention Study. Gerontologist, 43(4), pp.556-567.

Hepburn, K.W., Lewis, M., Wexler Sherman, C. & Tornatore, J. (2003). The Savvy Caregiver Program: Developing and testing a transportable dementia family caregiver training program. Gerontologist, 43(6), pp.908-915.

Gitlin, L.N., Winter, L., Corcoran, M., Dennis, M.P., Schinfeld, S. & Hauck, W.W. (2003). Effects of the Home Environmental Skill-Building Program on the caregiver-care recipient dyad: 6-Month outcomes from the Philadelphia REACH Initiative. Gerontologist, 43(4), pp.532-546.

Gallagher-Thompson, D., Coon, D.W., Solano, N., Ambler, C., Rabinowitz, Y. & Thompson, L.W. (2003). Change in indices of distress among Latino and Anglo female caregivers of elderly relatives with dementia: Site-specific results from the REACH National Collaborative Study. Gerontologist, 43(4), pp.580-591.

Burns, R., Nichols, L.O., Martindale-Adams, J., Graney, M.J. & Lummus, A. (2003). Primary care interventions for dementia caregivers: 2-Year outcomes from the REACH study. Gerontologist, 43(4), pp.547-555.

Bass, D.M., Clark, P.A., Looman, W.J., McCarthy, C.A. & Eckert, S. (2003). The Cleveland Alzheimer's Managed Care Demonstration: Outcomes after 12 months of implementation. Gerontologist, 43(1), pp.73-85.

Capella, M. E. (2003). Comparing Employment Outcomes of Vocational Rehabilitation Consumers with Hearing Loss to Other Consumers and the General Labor Force. Rehabilitation Counseling Bulletin, 47(1), pp.24-33.

Wolffe, K. E., Candela, T., Johnson, G. (2003). Wired to work: A qualitative analysis of assistive technology training for people with visual impairments. Journal of Visual Impairment & Blindness, 97(11), pp.677-694.

Twamley, E. W., Jeste, D. V., Lehman, A. F. (2003). Vocational Rehabilitation in Schizophrenia and Other Psychotic Disorders: A Literature Review and Meta-Analysis of Randomized Controlled Trials. Journal of Nervous and Mental Disease, 191(8), pp.515-523.

Mitchell, P. J.; Zampitella-Freese, C. (2003). Using the Workforce Investment Act of 1998 to Benefit Youth With Blindness and Visual Impairment. RE:view, 35(3), pp.109-119.

Millington, M. J., Miller, D. J., Asner-Self, K. K., Linkowski, D., Szymanski, E. (Ed.) M. & Parker, R. M. (Ed.) (2003). The business perspective on employers, disability, and vocational rehabilitation. Work and disability: Issues and strategies in career development and job placement. (2nd ed., pp.317-342). Austin, TX: Pro-Ed.

Olsheski, J., Schelat, R., Moxley, D. P. (Ed.), Finch, J. R. (Ed.) (2003). Sourcebook of rehabilitation and mental health practice. Plenum series in rehabilitation and health.Reasonable job accommodations for people with psychiatric disabilities. (xv ed., pp.61-76). New York, NY: Kluwer Academic/Plenum Publishers.

Newcomer, R.J., Covinsky, T., Clay, K., and Yaffe, K. (2003). Predicting 12-Month Mortality for Persons with Dementia. Journal of Gerontology: Social Sciences, 58(3), pp.S187-S198.

Kahn, K. (2003). Multi-stakeholder coalitions: Promoting improvements in the long-term care workforce. Better jobs, better care. (Issue brief 1(1)). Retrieved 16-Feb-07 from http://paraprofessional.o rg/publications/BJBCIssue Briefv1n1.pdf

Mollica, R.L. (2003). Sustaining nursing home transition programs: Covering case management services. Portland, ME: National Academy for State Health Policy. Retrieved 11-Dec-06 from http://www.nashp.org/File s/NFT_call_summary_final_ 11.10.doc

Weiner, J. (2003). Medicaid and Work Incentives for People with Disabilities: Background and Issues. Washington, DC: The Urban Institute.

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