Center for Personal Assistance Services University of California, San Francisco  
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The Formal and Informal PAS Project

AboutA woman and a man in a wheelchair, in a kitchen

The primary goal of this 5-year research project is to study the relationship between formal and informal PAS and caregiving support, and the role of assistive technology (AT) in complementing PAS. The project is directed by Mitch LaPlante and co-directed by Steve Kaye, assisted by Taewoon Kang, research statistician.

Companion Center

The University of California Disability Statistics Center is a companion center that provides information on disability statistics. The site provides disability resources, a listing of publications, and information on finding disability data and understanding disability statistics.

Map of the United StatesState by State Formal and Informal PAS Data Available

State and National Disability Statistics

The Center for Personal Assistance Services has compiled state and national data on the prevalence of overall disability and of self-care difficulty, by gender, age, race and ethnicity, type of disability, family income, benefit recipiency, employment status, and living arrangement.

Reports and Publications

A list of reports and publications produced by the Formal and Informal PAS project. The citations have links to press releases, abstracts, and either the entire publication or information on where to obtain it.

All project reports and publications

Recent additions

Ripple,J,M. & Stoddard, S. (2005). California Statewide Independent Living Needs Assessment 2003-2004. California State Independent Living Council, Sacramento, CA.
View Abstract and Obtain Full Version

Harrington, C., Carillo, H., & Mercado-Scott, C. (2005). Nursing facilities, staffing, residents, and facility deficiencies, 1998 through 2004. University of California, San Francisco.
View Abstract and Obtain Full Version

Capitman, J., Bishop, C., and Casler, R. (2005). Long-Term Care Quality: Historical Overview and Current Initiatives. Washington, DC: National Quality Forum.
View Abstract and Obtain Full Version

Presentations

A list of presentations given by the Formal and Informal PAS project with links to summaries and powerpoint files.

All Formal and Informal PAS Presentations

Recent additions

Kraus, L., Oxford, M. , & Gold, S. (2005, July 11). Living independently and personal assistance services: From court research to action. Presented at the 2005 NCIL Independent Living Conference - "Advocacy IS a Service" hosted by The National Council on Independent Living (NCIL).
Summary | Download Powerpoint

Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., & Oxford, M. (2004, November 15). Center for Personal Assistance Services. Presented at the National Association of State Medicaid Directors Fall 2004 Annual Meeting hosted by Held in Cooperation with the Centers for Medicare & Medicaid Services (CMS).
Summary | Download Powerpoint

Kaye, S. (2004, November 8). Fluctuating disability rates among working-age adults: Economic versus epidemiologic factors. Presented at the American Public Health Association 132nd Annual Meeting and Exposition hosted by American Public Health Association.
Summary