Information for Family or Friend Caregivers
- Disability Statistics for my State - Find information on PAS in your state
- Waivers in my State - Find waivers for PAS in your state
- Personal Home Care Workers - Find the Number of Personal Home Care Workers in your State
- Olmstead Plans and Lawsuits - Find Olmstead Plans and Lawsuits in your State
- Contact Information and Descriptions for Medicaid Waivers - Find Contact Information and Descriptions for Medicaid Waivers for your State
- State Agencies related to PAS - Find State Agencies related to PAS
- PAS Reports and Publications related to State - Find PAS Reports and Publications related to State
- State PAS Workforce Library - Find PAS Workforce Library resources related to State
Reports and Publications
All Family or Friend Caregivers related Reports and Publications
Recent additions:
(2012, August). State Tax Law and People with Disabilities: Opportunities for Supporting Fuller Participation in Community and Society. New York: Burton Blatt Institute, Syracuse University.
(2012). Changes and inertia in the New York State Medicaid Personal Care Services Program: An Institutional Case Study. Journal of Aging & Social Policy, 24, 3, pp.309-327.
(2012). Medicaid Home- and Community-Based Services: Impact of the Affordable Care Act. Journal of Aging & Social Policy, 24, 2, pp.169-187.
Library
All Family or Friend Caregivers related Publications
Recent additions:
(2004). The state of the states in family caregiver support: A 50-state study. San Francisco, CA: Family Caregiver Alliance.
(2004, May). Workforce needs in California healthcare system. Berkeley, CA: California Policy Research Center. Retrieved June 10th, 2010 from http://laborcenter.berkel ey.edu/homecare/IHSSworkf orce04.pdf
(2004, October). Consumer directed home care: Effects on family caregivers. Policy Brief. San Francisco, CA: Family Caregiver Alliance.
Presentations
All Family or Friend Caregivers related Presentations
Recent additions:
Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., Oxford, M. (2004, Apr 26) Meeting the Nation. Presented at the National Conference: "Meeting the Future Research and Training Needs of the Disability Community" hosted by Nartional Association of Rehabilitation Research and Training Centers (NARRTC).
Kraus, L. (2007, Nov 06) New promising practices in workplace personal assistance services. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
LaPlante, M., Harrington, C., Ng, T. & Kaye, H.S. (2011, Nov 19) The Affordable Care Act & Home and Community Based Service Options. Presented at the 64th Annual Scientific Meeting hosted by Gerontological Society of America.
Links
All Family or Friend Caregivers related Links
Recent additions:
The California HealthCare Foundation and the University of California San Francisco have a free website on long term care services in California that is designed for consumers, caregivers, providers, discharge planners, and advocates. This site provides comprehensive information about the quality of long term care in the state including
For people who have family members as caregivers, this website gives tips and advice for families and caregivers.
Emergency Preparedness for persons with disabilities, their families and support networks. Covers specific individual preparedness for people with disabilities and activity limitations and content includes:
- Guides
- Hazard Specific
- Lessons Documented
- Specific Functional Need Focus
- Forms, Checklists, Tools, Samples, etc.
- Videos
- General Preparedness Information

