Library

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in California (Updated). Long Beach, CA: Author.

The SCAN Foundation. (2012, June). Growing Demand for Long-Term Care in the U.S. (Updated). Long Beach, CA: Author.

Kaye, H.S. (2012, June). Gradual Rebalancing Of Medicaid Long-Term Services And Supports Saves Money And Serves More People, Statistical Model Shows. Health Affairs, 31(6), pp.1195-1203.

Reinhard, S., Kassner, E., Hendrickson, L. & Mollica, R. (2012, May). State Long-Term Services and Supports Scorecard. What Distinguishes High- from Low-Ranking States? Overview of Three Case Studies. Washington, DC: AARP Public Policy Institute.

The SCAN Foundation. (2012, April). Who Needs and Uses Long-Term Care in California? Long Beach, CA: Author.

Boushey, H. & Glynn. S.J. (2012, April). The Effects of Paid Family and Medical Leave on Employment Stability and Economic Security. Washington, DC: Center for American Progress.

Hoffman, G.J. & Wallace, S.P. (2012, April). Hidden in Plain Sight: California’s Paid Medi-Cal Caregivers Are Vulnerable. Los Angeles, CA: UCLA Center for Health Policy Research.

Legislative Analyst's Office. (2012, March). The 2012-13 Budget: In-Home Supportive Services Budget Update. Sacramento, CA: Author.

Boris, E. & Klein, J. (2012, March). Caring for America: Home Health Workers in the Shadow of the Welfare State. New York, NY: Oxford University Press.

Feinberg, L. (2012, March). Moving Toward Person- and Family-Centered Care. Washington, DC: AARP Public Policy Institute.

Shugarman, L.R. (2012, March). Testimony for Lisa R. Shugarman, Ph.D. Senate Human Services Hearing: In-Home Supportive Services (IHSS) Integration into Medi-Cal Managed Care: Policy Considerations. Long Beach, CA: The SCAN Foundation.

Legislative Analyst’s Office. (2012, February 17). The 2012-13 Budget: Integrating Care for Seniors and Persons with Disabilities. Sacramento, CA: Author.

Cheek, M., Roherty, M., Finnan, L, Cho, E., Walls, J., Gifford, K., Fox-Grange, W. & Ujvari, K. (2012, February). On the Verge: The Transformation of Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

Feder, J. & Komisar, H. (2012, February). The Importance of Federal Financing to the Nation’s Long-Term Care Safety Net. Long Beach, CA: The SCAN Foundation.

Neri, M.T., Wong, A. & Harrington, C. (2012, February). Barriers to Use of Workplace Personal Assistance Services to Support Employment in California. Journal of Disability Policy Studies. Published online before print February 14, 2012. doi: 10.1177/1044207311433205

Sammis, S., Detty, A. & Birnbaum, M. (2012, February). Implementing Long-Term Care Reform in New York's Medicaid Program. (Fact sheet No. 23). New York, NY: United Hospital Fund.

The SCAN Foundation. (2012, January). Medicaid Managed Care and Long-Term Services and Supports Spending. (DataBrief No. 27). Long Beach, CA: Author.

The SCAN Foundation. (2012, January). California's Proposed 2012-13 Budget: Impact on California's Seniors and People with Disabilities. (Fact sheet No. 23. ). Long Beach, CA: Author.

National Association of States United for Aging and Disabilities. (2012, January). State of the States Survey 2011: State Aging and Disability Agencies in Times of Change. Washington, DC: Author.

The SCAN Foundation. (2012, January). Long-Term Care Fundamentals: Nursing Facilities in California. (Technical Brief Series. No 10). Long Beach, CA: Author.

Office of Program Policy Analysis and Government Accountability. (2012, January). Profile of Florida’s Medicaid Home and Community-Based Services Waivers. (Report No. 12-03). Tallahassee, FL: Author.

Hendrickson, L. & Mildred, L. (2012, January). Flexible Accounting for Long-Term Care Services: State Budgeting Practices that Increase Access to Home- and Community-Based Services. Recommendations for California. Long Beach, CA: The SCAN Foundation.

Summer, L. & Alker, J. (2012, January). Proposed Medicaid Long-Term Care Changes Raise Host of Questions About Impact. Washington, DC: Georgetown University Health Policy Institute.

Mendelsohn, S., Myhill, W.N., & Morris, M. (2012). Tax Subsidizations of Personal Assistance Services. Disability and Health Journal, 5, pp.75-86.

Miler, E.A. (2012). The Affordable Care Act and Long-Term Care: Comprehensive Reform or Just Tinkering Around the Edges? , 24,, pp.101-117.

Stone, R.I. & Bryant, N. (2012). The Impact of Health Care Reform on the Workforce Caring for Older Adults. Journal of Aging & Social Policy, 24, 2, pp.188-205.

Weissert, W.G. (2012). A 10-Foot Rope for a 50-Yard Drop: The CLASS Act in the Patient Protection and Affordable Care Act. Journal of Aging & Social Policy, 24,, pp.136-151.

Wiener, J.M. (2012). The CLASS Act: Is It Dead or Just Sleeping? Journal of Aging & Social Policy, 24, 2, pp.118-135.

Barth, S., Klebonis, J. & Archibald, N. (2011, December). Long-Term Services and Supports Opportunities in the Affordable Care Act. Technical Assistance Brief. Hamilton, NJ: Center for Health Care Strategies, Inc..

Howard, J., Ng, T. & Harrington, C. (2011, December). Medicaid Home and Community-Based Service Programs: Data Update Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Kietzman, K.G., Durazo, E.M., Torres, J.M., Soon Choi, A. & Wallace, S.P. (2011, December). Independence at Risk: Older Californians with Disabilities Struggle to Remain at Home as Public Supports Shrink. Los Angeles, CA: UCLA Center for Health Policy Research.

O'Malley Watts, M. (2011, December). Case Study: Georgia's Money Follows the Person Demonstration. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

O'Malley Watts, M. (2011, December). Money Follows the Person: A 2011 Survey of Transitions, Services and Costs. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Park-Lee, E., Caffrey, C., Sengupta, M., Moss, A.J., Rosenoff, E. & Harris-Kojetin, L.D. (2011, December). Residential Care Facilities: A Key Sector in the Spectrum of Long-term Care Providers in the United States. (NCHS Data Brief, Number 78). Hyattsville, MD: National Center for Health Statistics.

Schoenbach, S. & Warren, L.B. (2011, December). Time to Care: How North Carolina Can Promote Health, Support Workers, and Strengthen Families. (DataBrief No. 20. ). Raleigh, NC: North Carolina Justice Center.

The SCAN Foundation. (2011, November, 28th). Proceedings Report: Inaugural Summit on Transforming California’s Long-Term Services and Supports Systems. Long Beach, CA: Author.

The SCAN Foundation. (2011, October). Seniors with Chronic Conditions and Functional Impairment. (DataBrief No. 20). Long Beach, CA: Author.

The SCAN Foundation. (2011, October). Dual Eligibles, Chronic Conditions and Functional Impairment. (DataBrief No. 21). Long Beach, CA: Author.

U.S. Department of Health and Human Services. (2011, October). A Report on the Actuarial, Marketing and Legal Analyses of the CLASS Program. Washington, DC: Author.

Dowler, D.L., Solovieva, T.I. & Walls, R.T. (2011, October). Personal assistance services in the workplace: A literature review. Disability and Health Journal, 4, pp.201-208. doi: 10.1016/j.dhjo.2011.04.003

Kim, K. & Antonopoulos, R. (2011, October). Unpaid and Paid Care: The Effects of Child Care and Elder Care on the Standard of Living. (Working Paper No. 691). Annandale-on-Hudson, NY: Levy Economics Institute of Bard College.

Komisar, H.L. & Feder, J. (2011, October). Transforming Care for Medicare Beneficiaries with Chronic Conditions and Long-Term Care Needs: Coordinating Care Across All Services. Washington, DC: Georgetown University.

Lipson, D.J., Stone Valenzano, C. & Williams, S.R. (2011, October). What Determines Progress in State MFP Transition Programs. (#8). Washington, DC: Center for Studying Disability Policy.

Smith, V.K., Gifford, K., Ellis, E., Rudowitz, R. & Snyder, L. (2011, October). Moving Ahead Amid Fiscal Challenges: A Look at Medicaid Spending, Coverage and Policy Trends. Results from a 50-State Medicaid Budget Survey for State Fiscal Years 2011 and 2012. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

The SCAN Foundation. (2011, September). Raising expectations: California’s long-term services and supports scorecard results. (Fact sheet No. 22). Long Beach, CA: Author.

Reinhard, S.C., Kassner, E., Houser, A. and Mollica, R. (2011, September). Raising expectations: A state scorecard on long-term services and supports for older adults, people with physical disabilities and family caregivers. Washington, DC: AARP.

Cynkar, P. & Mendes, E. (2011, July). More than one in six American workers also act as caregivers. Washington, DC: Gallup.com.

Feinberg, L., Reinhard, S.C., Houser, A. and Choula, R. (2011, July). Valuing the invaluable: 2011 update - the growing contributions and costs of family caregiving. Washington, DC: AARP Public Policy Institute.

Fox-Grage, W. & Flowers, L. (2011, July). Health Reform Law Creates New Opportunities for States to Save Medicaid Dollars. (Insight on the Issues, 52). Washington, DC: AARP Public Policy Institute.

Mendes, E. (2011, July). Most caregivers look after elderly parent; invest a lot of time. Washington, DC: Gallup.com.

Stone, J. (2011, July 19). Home and Community-Based Services Under Medicaid. (R41600). Washington, DC: Congressional Research Service.

Witters, D. (2011, July). Caregiving costs U.S. economy $25.2 billion in lost productivity. Washington, DC: Gallup.com.

The Arc. (2011, June). Still in the shadows with their future uncertain: A report on family and individual needs for disability supports. Summary of key findings and a call to action. Washington, DC: Author.

MetLife Mature Market Institute. (2011, June). The MetLife study of caregiving costs to working caregivers: Double jeopardy for baby boomers caring for their parents. New York, NY: Author.

The SCAN Foundation. (2011, May). Opportunities for transforming California’s system of home and community-based services. Background paper prepared for the Assembly Committee on Aging and Long-Term Care. Long Beach, CA: Author. Retrieved May, 2011 from http://www.thescanfoundat ion.org/foundation-public ations/scan-foundation-ba ckground-paper-may-17-cal ifornia-assembly-committe e-aging-

The SCAN Foundation. (2011, May). Transforming California's system of care for older adults and people with disabilities: A look at the state's administrative and fiscal organization. (Policy Brief #5). Long Beach, CA: Author. Retrieved May, 2011 from http://www.thescanfoundat ion.org/foundation-public ations/policy-brief-5-tra nsforming-california’s- system-care-older-adults- and-people

Anderson, L., Larson, S.A. and Wuorio, A. (2011, May). 2010 FINDS national survey technical report part 1: Family caregiver survey. Minneapolis, MN: University of Minnesota, Research and Training Center on Community Living.

Fox-Grage, W and Redfoot, D. (2011, May). Medicaid: A program of last resort for people who need long-term services and supports. Washington, DC: AARP Public Policy Institute.

Kassner, E. (2011, May). Home and community-based long-term services and supports for older people. Washington, DC: AARP Public Policy Institute.

National Senior Citizens Law Center. (2011, April). Medicaid Block Grants: Attacking the Safety Net for Low-Income Older Adults. Washington, DC: Author. Retrieved April, 2011 from http://www.nsclc.org/abou t-us/nsclc-in-the-news/ns clcnews.2011-04-26.907258 4672

National Consumer Voice for Quality Long-Term Care. (2011, March). Piecing Together Quality Long-Term Care: A Consumer’s Guide to Choices and Advocacy. Washington, DC: Author. Retrieved March, 2011 from http://www.theconsumervoi ce.org/piecing-together-q uality-long-term-care

Kaye, H.S., Jans, L.H. & Jones, E.C. (2011, March). Why don't employers hire and retain workers with disabilities? Journal of Occupational Rehabilitation, March. doi: 10.1007/s10926-011-9302-8

Powers, E.T. (2011, March). Should Government Subsidize Caregiver Wages? Some Evidence on Worker Turnover and the Cost of Long-Term Care in Group Homes for Persons With Developmental Disabilities. Journal of Disability Policy Studies, vol., pp.195-209. doi: 10.1177/1044207310389176

Bryan, M.L. (2011, January). Access to Flexible Working and Informal Care. Essex, UK: University of Essex, Institute for Social and Economic Research.

Kietzman, K.G., Wallace, S.P., Durazo, E., Torres, J., Soon Choi, A., Benjamin, A.E. & Mendez-Luck, C.A. (2011, January). Holding On: Older Californians with Disabilities Rely on Public Services to Remain Independent. Los Angeles, CA: UCLA Center for Health Policy Research.

Walls, J., Gifford, K., Rudd, C., O’Rourke, R., Roherty, M., Copeland, L. & Fox-Grage, W. (2011, January). Weathering the Storm: The Impact of the Great Recession on Long-Term Services and Supports. Washington, DC: AARP Public Policy Institute.

Henry, A.D., Long-Bellil, L. Zhang, J. & Himmelstein, J. (2011). Unmet need for disability-related health care services and employment status among adults with disabilities in the Massachusetts Medicaid program. Disability and Health Journal, 4, 4, pp.209-218.

Kusano, C.T., Bouldin, E.D., Anderson, L.A., McGuire, L.C., Salvail, F.R., Wynkoop Simmons, K. & Andresen, E. (2011). Adult informal caregivers reporting financial burden in Hawaii, Kansas and Washington: Results from the 2007 Behavioral Risk Factor Surveillance System. Disability and Health Journal, 4, 4, pp.229-237.

Miller, N.A. (2011). Relations among home- and-community based services investment and nursing home rates of use for working-age and older adults: A state-level analysis. American Journal of Public Health, 101,, pp.1735-1741.

Mitra, M., Bogen, K., Long-Bellil, L. & Heaphy, D. (2011). Unmet need for home and community-based services among persons with disabilities in Massachusetts. Disability and Health Journal, 4, 4, pp.219-228.

Newcomer, R., Kang, T. & Faucett, J. (2011). Consumer-directed personal care: Comparing aged and non-aged adult recipient health-related outcomes among those with paid family versus non-relative providers. Home Health Care Services Quarterly, 30, 4, pp.178-197.

Ogg, M. (2011). Running out of time, money and independence? Health Affairs, 30(1), pp.173-176.

Reinhard, S.C., Kassner, E. and Houser, A. (2011). How the Affordable Care Act can help move states toward a high-performing system of long-term services and supports. Health Affairs , 20, pp.3447-3453.

Health Policy Research Center, State University of New York. (2010, December). Paying for Long-Term Care: Families or Taxpayers? Albany, NY: Author.

Kaiser Family Foundation. (2010, December). Comparison of Medicaid Provisions in Deficit-Reduction Proposals. Washington, DC: Author.

McNichol, E., Oliff, P. & Johnson, N. (2010, December). States Continue to Feel Recession's Impact. Washington, DC: Center on Budget and Policy Priorities.

Rousseau, D., Clemans-Cope, L., Lawton, E., Langston, J., Connolly, J. & Howard, J. (2010, December). Dual Eligibles: Medicaid's Enrollment and Spending for Medicare Beneficiaries in 2007. Washington, DC: Kaiser Family Foundation.

Berthoud, R. (2010, November). The Take-Up of Carer's Allowance: A Feasibility Study. Essex, UK: University of Essex, Institute for Social and Economic Research.

Johnson, N. Oliff, P. & Williams, E. (2010, November). An Update on State Budget Cuts: At Least 46 States Have Imposed Cuts That Hurt Vulnerable Residents and Cause Job Loss. Washington, DC: Center on Budget and Policy Priorities.

United States Government Accountability Office. (2010, October). Recovery Act: Increased Medicaid Funds Aided Enrollment Growth and Most States Reported Taking Steps to Sustain Their Programs. (Report #GAO-11-58). Washington, DC: Author.

Jacobson, G., Neuman, T. & Damico, A. (2010, October). Medicare Spending and Use of Medical Services for Beneficiaries in Nursing Homes ad Other Long-Term Care Facilities: A Potential for Achieving Medicare Savings and Improving the Quality of Care. Washington, DC: Kaiser Family Foundation.

Perry, M., Cummings, J., Jacobson, G., Neuman, T. & Cubanski, J. (2010, October). To Hospitalize or Not to Hospitalize? Medical Care for Long-Term Care Facility Residents. Washington, DC: Kaiser Family Foundation.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2010, October). Workplace Personal Assistance Services (PAS) for People with Disabilities: Making Productive Employment Possible. Journal of Rehabilitation, 76(4), pp.3-8.

Langer Ellison, M., Glazier, R.E., O'Connell, E., Norton, G & Himmelstein, J. (2010, September ). Design Features for Employment-Supportive Personal Assistance Services in Medicaid Programs. Journal of Disability Policy Studies, 21(2), pp.90-100. doi: 10.1177/1044207310370682

Fosset, J.W. and Burke, C.E. (2010, August). Medicaid Policy and Long-Term Care Spending: An Interactive View. Albany, NY: Health Policy Research Center, State University of New York.

Friedman, E.M. & Seltzer, J.A. (2010, August). Providing for Older Parents: Is It a Family Affair? Los Angeles, CA: California Center for Population Research. Retrieved 40416 from http://papers.ccpr.ucla.e du/papers/PWP-CCPR-2010-0 12/PWP-CCPR-2010-012.pdf

National Association of Counties. (2010, July). Local Governments Cutting Jobs and Services: Job Losses Projected to Approach 500,000. Washington, DC: Author.

National Association of Counties. (2010, July). Local Governments Cutting Jobs and Services: Job Losses Projected to Approach 500,000. Washington, DC: Author.

Cassidy, A. (2010, July). Extra Federal Support for Medicaid. Princeton, NJ: Health Affairs/Robert Wood Johnson Foundation Health Policy Brief Series. Retrieved 40387 from http://www.rwjf.org/healt hpolicy/product.jsp?id=65 908

Tucker, A.M. & Johnson, K.E. (2010, May). Cross-Payer Effects on Medicare Resource Use: Lessons for Medicaid Administrators. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 40338 from http://www.hilltopinstitu te.org/publications/Cross PayerEffectsOnMedicareRes ourceUse-LessonsForMedica idAdministrators-May2010. pdf

Albert, S.M. & Schulz, R. (2010, February). New Insights and Innovations for Reducing Health Care Costs for Employers. Westport, CT: MetLife Mature Market Institute. Retrieved 40230 from http://www.metlife.com/mm i/research/working-caregi ver-employer-health-care- costs.html#findings

Wallace SP, Padilla-Frausto DI, Mendez-Luck CA, Benjamin AE, Durazo E, Pourat N. (2010, February). Budget Proposals Turn Back Clock 30 Years in Long-Term Care Services for California Seniors. Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved June 10th, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/Budget Proposals_2010_PB_021610. pdf

Minnesota Department of Human Services, Disability Services Division. (2010, January). Annual Report on the Use and Availability of Home and Community-Based Services Waivers for Persons with Disabilities. St. Paul, MN: Author. Retrieved 40340 from http://www.dhs.state.mn.u s/main/groups/disabilitie s/documents/pub/dhs16_148 067.pdf

Steenhausen, S. (2010, January). California's Proposed 2010-2011 Budget: Senior-Related Program Reductions. (Fact sheet, No.1.). Long Beach, CA: The SCAN Foundation.

Tucker, A.M., Johnson, K.E., Huang, Y. & Brewer, T. (2010, January). Examining the Medicare Resource Use of Dually Eligible Medicaid Recipients. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 40338 from http://www.hilltopinstitu te.org/publications/Exami ningtheMedicareResourceUs eofDuals-January2010.pdf

Misra, S., Orslene, L.E. & Walls, R.T. (2010). Personal assistance services (PAS) for workers with disabilities: Views and experiences of employers. Journal of Rehabilitation, 76(1), pp.22-27.

Family Caregiver Alliance. (2010). Health Care Reform and Family Caregivers. San Francisco: Author. Retrieved 40370 from http://caregiver.org/care giver/jsp/content_node.js p?nodeid=2397

National Governors Association and the National Association of State Budget Officers. (2010, Fall). The Fiscal Survey of States: An Update of State Fiscal Conditions. Washington, DC: Author.

National Governors Association and the National Association of State Budget Officers. (2010, Fall). The Fiscal Survey of States: An Update of State Fiscal Conditions. Washington, DC: Author.

Kaye, H.S., Harrington, C. & LaPlante, M.P. (2010). Long-term care: Who gets it, who provides it, who pays, and how much? Health Affairs, 29(1), pp.40503.