Do you want to be paid for caring for your family member with a disability?
Yes! It is possible for a family member to be paid for caring for another family member. It is likewise possible for parents of minor children to be paid and for spouses to be paid. While these situations are possible, they are not guaranteed. There is great variation from state to state and there is even variation between programs within the same state. The federal government allows the states a lot of flexibility in determining who can provide services and what their qualifications are. Some states think it makes perfect sense for family members to provide care for other family members and are very supportive of this role. Other states feel that family ought to help family anyway and so do not see a reason, or need, to pay. Many states feel that parents of minor children and spouses are already legally obligated to provide care and nurture for their children or spouses. This being the case, why should they pay?
A final common and important factor is the states' nursing and licensure laws. Most states' nursing laws provide exemptions in the law for parents and spouses to provide care for their family members and minor children as long as it is gratuitous. As soon as payment comes into the picture, however, things change. The problem is that many of the supports that people need constitute nursing under state law and require a license or for the caregiver to, at least, be supervised by a health professional with a license. Even simple things like opening a pill bottle or changing a band-aid can require that a person have a license.
Because there is so much variation, I almost always recommend contacting a states' Medicaid officials to explain the possibilities. If permissible in a state, you need to be aware that there are steps to this process. For example, before being paid, the family member must first qualify for a program that will provide the funding or the payment (if the family member is not already eligible for services). Then, the person eligible to receive the service or assistance must select or hire the family member so they can be enrolled or processed by an agency that will actually be paying the wages, taxes, benefits, etc.
Our website can assist with locating contact information that will be useful for beginning the process of asking the necessary questions and finding out the answers mentioned above. The PAS Center website has contact information for every state Medicaid program in the USA and Territories. Just go to Agencies Related to PAS. Next, click on your State on the USA map. Next, click on "Medicaid Agency". You will find the contact information you need to get started and usually a website that can be very helpful once you start poking around.
Regard,
Mike Oxford
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