Information for Advocates
- Promising Practices
- State Related Information
- State Disability Statistics - Find disability statistics for your state
- Personal Home Care Workers - Find the Number of Personal Home Care Workers in your State
- Medicaid Waiver Data - Find Medicaid Waiver Data for your State
- Medicaid HCBS Data - Find Medicaid HCBS Data for your State
- Federal HCBS Funding - Find Federal HCBS Funding for your State
- State only Funded HCBS - Find State only Funded HCBS for your State
- Demo Waiver Information - Find Demo Waiver Information for your State
- Olmstead Plans and Lawsuits - Find Olmstead Plans and Lawsuits in your State
- Research Demo Projects - Find Research Demo Projects in your State
- Contact Information and Descriptions for Medicaid Waivers - Find Contact Information and Descriptions for Medicaid Waivers for your State
- State Agencies related to PAS - Find State Agencies related to PAS
- State Resources for Employment of Persons with Disabilities - Find State Resources for Employment of Persons with Disabilities
- PAS Reports and Publications related to State - Find PAS Reports and Publications related to State
- PAS Workforce Library related to State - Find PAS Workforce Library resources related to State
Reports and Publications
All Avocate related Reports and Publications
Recent additions:
(2012). Allowing spouses to be paid personal care providers: Spouse availability and the effects of Medicaid-funded service use and expenditures. Gerontologist, 52, 4, pp.517-530.
(2012). Changes and inertia in the New York State Medicaid Personal Care Services Program: An Institutional Case Study. Journal of Aging & Social Policy, 24, 3, pp.309-327.
(2012, June). Gradual Rebalancing Of Medicaid Long-Term Services And Supports Saves Money And Serves More People, Statistical Model Shows. Health Affairs, 31(6), pp.1195-1203.
Library
All Avocate related Publications
Recent additions:
(2004). In-Home Supportive Services program: Who is served? San Francisco, CA: Center for Personal Assistance Services. Retrieved October, 2005 from http://www.pascenter.org/ documents/IHSS_Final_Repo rt.pdf
(2004, May). Workforce needs in California healthcare system. Berkeley, CA: California Policy Research Center. Retrieved June 10th, 2010 from http://laborcenter.berkel ey.edu/homecare/IHSSworkf orce04.pdf
(2003, February). A profile of family caregivers: Results of the California statewide survey of caregivers. Berkeley, CA: Center for the Advanced Study of Aging Services.
Presentations
All Advocates related Presentations
Recent additions:
Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., Oxford, M. (2004, Apr 26) Meeting the Nation. Presented at the National Conference: "Meeting the Future Research and Training Needs of the Disability Community" hosted by Nartional Association of Rehabilitation Research and Training Centers (NARRTC).
Kraus, L., Oxford, M. , & Gold, S. (2005, Jul 11) Living independently and personal assistance services: From court research to action. Presented at the 2005 NCIL Independent Living Conference - "Advocacy IS a Service" hosted by The National Council on Independent Living (NCIL).
Kraus, L. (2007, Nov 06) New promising practices in workplace personal assistance services. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
Links
Recent additions:
Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act.
The website presents short, easy to read bulletins and also give tips on how to use the facts and figures in state and local lobbying. It also presents sources of further information. It is possible to sign-up online to receive new bulletins by email and there is a searchable archive of all previous bulletins.
Emergency Preparedness for persons with disabilities, their families and support networks. Covers specific individual preparedness for people with disabilities and activity limitations and content includes:
- Guides
- Hazard Specific
- Lessons Documented
- Specific Functional Need Focus
- Forms, Checklists, Tools, Samples, etc.
- Videos
- General Preparedness Information
The Carework Network is an international organization of researchers, policymakers, and advocates involved in various domains of care work. Carework research and policy focus on the caring work of individuals, families, communities, paid caregivers, social service agencies, and state bureaucracies, and ask important questions about such matters as:
- how women's labor force participation has affected the nature & scope of women's and men's caring work;
- how identities influence carework;
- how inequality based on gender, race/ethnicity, sexual orientation, and other factors relates to caring;
- how caring work is recognized and compensated;
- how various state welfare policies the distribution of carework;
- and whether and to what extent citizens have a right to receive, and a duty to provide, care.