A Descriptive List of Web Links Related to PAS
The National Association of Area Agencies on Aging (n4a) publishes the National Directory of Aging Resources which provides the most complete listing available of local and state agencies on aging, as well as Native American aging programs.
For people who have family members as caregivers, this website gives tips and advice for families and caregivers.
Policy reports, networking and information aimed at State Governors covering 5 broad topic areas, which include healthcare. Center for Best Practices also disseminates information on initiatives in different states across the 5 topics. Briefings on Medicaid and disability-related issues such as Olmstead and Ticket to Work are available.
This national public interest law firm focuses on healthcare issues and publishes guides on key areas of law, such as Medicaid. It also provides a 'Court Watch' service giving news about key lawsuits, including some cases related to Olmstead and a 'Waiver Watch' page which gives news on developments in state's waiver programs.
The National Health Policy Forum is a participant-driven, nonpartisan information exchange program that works to foster more informed government decision-making.
The National Organization on Disability (NOD) provides the latest in disability news, information, and resources. NOD has a number of programs running dealing with issues such as employment, emergency preparedness and disability in the community.
National Program Office on Self-Determination provides links, articles, and message boards on self-determination, as well as articles on personal care assistants.
National Resource Available for Respite Care
The ARCH National Respite Network and Resource Center assists and promotes the development of quality respite and crisis care programs and helps families locate respite and crisis care services in their communities. As part of their effort this Center has a National Respite Locator Service that helps parents, family caregivers, and professionals find respite services in their state and local area to match their specific needs.
To learn more about the National Respite Network, go to http://archrespite.org/home
To find the online Respite Locator, go to http://archrespite.org/respitelocator
A project of the University of Southern California Andrus Gerontology Center, this resource center has an online directoy of home modifications resources, aimed at promoting independence and preventing accidents in the home.
It is also the home to another project titled "Caregiver Adaptations to Reduce Environmental Stress" aimed at increaing caregiver use of environmental coping strategies to reduce physical burden and strain.
This Center advocates nationally through litigation and legislative representation, and assists attorneys to promote the independence of older people and people with disabilities. The website has legal news and details of cases relating to Medicaid, waiver programs and nursing facilities.
One of ten regional ADA centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR). The Center is a project of Adaptive Environments, Inc., a nonprofit organization. The Center's goal is to facilitate voluntary and effective compliance with the Americans with Disabilities Act of 1990.
Adaptive Environments Center, Inc.
374 Congress Street, Suite 301
Boston, MA 02210
(617) 695-0085 (V/TTY)
(617) 482-8099 (Fax)
adainfo@newenglandada.org
The North Carolina Office on Disability and Health lists several publications available from their website on access to health care for people with disabilities. Women's health, removing barriers, physical activity, health and wellness are some of the subjects covered in the publications.
We provide training, technical assistance and materials on the Americans with Disabilities Act and Accessible Information Technology throughout New York, New Jersey, Puerto Rico and the US Virgin Islands. Funded by the US Department of Education's, National Institute on Disability and Rehabilitation Research (NIDRR)as one of 10 national ADA centers.
201 ILR Extension Building
Cornell University
Ithaca, NY 14853-3901
Phone: 1-800-949-4232 Voice / TTY / Spanish - New York, New Jersey, Puerto Rico and the US Virgin Islands.
In other areas: 607-255-6686 Voice / TTY / Spanish
Fax: 607-255-2763
Email: northeastada@cornell.edu
The Northwest ADA/IT Center is one of 10 regional ADA Centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR) of the U.S. Department of Education. They are located at Oregon Health & Science University in Portland, Oregon. Working together with designated state affiliates and partners in Alaska, Idaho, Oregon and Washington, they provide technical assistance, training and dissemination of information regarding the Americans with Disabilities Act and accessible education-based information technology.
Northwest ADA Center
Northwest ADA/IT Center
P.O. Box 574
Portland, Oregon 97207-0574
(503) 494-4001
nwada@ohsu.edu
The purpose of the Pacific Americans with Disabilities Act and Accessible Information Technology Center is to build a partnership between the disability and business communities and to promote full and unrestricted participation in society for persons with disabilities through education and technical assistance. The Pacific ADA & IT Center is one of 10 ADA Centers and server Arizona, California, Hawaii, Nevada, and the Pacific Basin (American Samoa, Guam, Northern Mariana Islands, and Palau).
Pacific ADA & IT Center
555 12th Street, Suite 1030
Oakland, CA 94607-4046
510-285-5600 V/TTY
510-285-5614
adatech@adapacific.org
A report on Personal Assistance Services in the Workplace.
PHI PolicyWorks gives users access to, up-to-date statistics, timely research and analysis, and strategic legislative and regulatory recommendations. PolicyWorks features:
- Strategic Areas - Frameworks for understanding the leading policy issues affecting the direct-care workforce
- Workforce Facts - An introduction to the demographics, size, and economic impact of the direct-care workforce
- Policy Recommendations - Strategic recommendations on the critical issues affecting direct-care workers
- Chart Gallery - High quality graphics highlighting key data on the direct-care workforce
- Guide to Accessing Federal Recovery Act Funds - Help for those interested in taking advantage of the unprecedented level of public resources now available
- Health Reform Resource Center - Resources to help ensure that national health reform works for the direct-care workforce
This conference provides a practical and useful update for primary care and subspecialty physicians, nurses, and other health care professionals caring for children, youth, and adults with complex health care needs and disabilities. This year's topics offer new perspectives, research findings, and clinical guidelines, plus an overview of relevant information for pediatricians, family physicians, internists and nurse practitioners who are involved in the care of individuals with autism spectrum disorders and other developmental disabilities. The conference should also be of interest to those in allied health disciplines involved with mental and behavioral health, school health, special and vocational education, and social work professions.
Proyecto Vision connects disabled Latinos with employment services and related resources by offering a bilingual website, newsletter and technical assistance hotline plus outreach to employers in the community.
Quality Mall is a place where you can find lots of free information about person-centered supports for people with developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with developmental disabilities live, work and participate in our communities and improve the quality of their supports.
Ready.gov is the Department of Homeland Security's public website on emergency preparedness. The section on making an emergency kit includes checklists for special needs items for infants, the elderly, and people with disabilities.
This NIDRR-funded program at the University of Minnesota engages in research, evaluation and technical assistance to programs that support people with developmental disabilities to live in the community. The website provides information including case studies, research reports and links to further information on 6 topics covering; residential supports/Medicaid, disability statistics, self-advocacy, person centered practices, direct support professionals and leisure.
If disaster strikes your community, you might not have access to food, water, or electricity for some time. By taking time now to prepare emergency water supplies, food supplies and disaster supplies kit, you can provide for your entire family.
RewardingWork.org is an online direct care job registry connecting employees and employers in Connecticut, Massachusetts and New Jersey.
Mike Collins, a disability consultant living with paralysis, is a fundraiser, volunteer, advocate and Christopher/Dana Reeve fan.
Provides information on the Americans with Disabilities Act (ADA) and accessible education-based information technology to Colorado, Utah, Montana, Wyoming, North Dakota and South Dakota. One of 10 ADA centers in the US.
Meeting the Challenge, Inc.
3630 Sinton Road, Suite 103
Colorado Springs, CO 80907
(719) 444-0268 (V/TTY)
(719) 444-0269 (Fax)
rmdbtac@mtc-inc.com
The Rosalynn Carter Institute establishes local, state and national partnerships committed to building quality long-term, home and community- based services. We believe strongly in the need to provide greater recognition and support for America's professional and family caregivers. Our focus includes supporting individuals and caregivers coping with chronic illness and disability across the lifespan as well as limitations due to aging.
Rutgers Center for State Health Policy is an initiative of the Institute for Health, Health Care Policy and Aging Research (IHHCPAR) to create a formal capacity within Rutgers, the State University of New Jersey, for policy analysis, research, training, facilitation, and consultation on state health policy. The Center combines Rutgers University's traditional academic strengths in public health, health services research, and social science with applied research and policy analysis initiatives. It serves as the focal point within the University for research and related activities relevant to state health policy.
The Service Employees International Union is 1.8 million working people and 50,000 retirees united to improve services and our communities throughout North America. It is the largest health care union, with 900,000 members in the field, including nurses, LPNs, doctors, lab technicians, nursing home workers and home care workers.
The San Francisco Department of Emergency Management (DEM) manages disaster preparation, mitigation, and response; 9-1-1 dispatch; and homeland security grant distribution for the City and County of San Francisco. DEM was created in 2006 by local legislation that reorganized the Emergency Communications Department and the Office of Emergency Services into a single agency.
Fact sheets provide monthly, individual state statistics that includes total expenditures and number of recipients receiving Disability Income and Supplemental Security Income benefits.
A description of programs and policies that help SSI and SSDI recipients increase their earnings without losing their benefits. Two such programs are the Program for Achieving Self-Sufficiency (PASS), and the Impairment-Related Work Expenses (IRWE).
One of ten regional ADA Centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR). It supports efforts to strengthen ADA compliance for eight states in the Southeast Region, shares publications and resources on the ADA that are accurate and reliable, provides technical assistance promptly to telephone or written inquiries about the ADA, offers training and distance education on the ADA, disseminates news and ADA in Action articles about implementation and enforcement of the ADA, makes referrals to regional ADA experts for specialized assistance, works with a distinguished ADA Leadership Network to promote coalition building among business, government, education, and disability communities, and develops effective solutions for the challenges in ADA compliance.
Center for Assistive Technology & Environmental Access (CATEA) at Georgia Tech
490 Tenth St.
Atlanta, GA 30318
404-385-0636 (v/tty) 404-385-0641 (fax)
sedbtacproject@catea.org
The Southwest's leading resource on the Americans with Disabilities Act, related laws and making Information Technology accessible to people with disabilities. The DLRP serves a wide range of audiences who are interested in or impacted by these laws, including employers, businesses, government agencies, schools and people with disabilities. Expert staff are available to provide training and publications and to respond to your inquiries via DLRP's toll free hotline 800-949-4232.
The service area is Texas, Arkansas, New Mexico, Oklahoma and Louisiana. The Center is one of 10 regional centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR).
Independent Living Research Utilization
2323 South Shepherd Boulevard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V/TTY)
(713) 520-5785 (Fax)
dlrp@ilru.org
An interactive U.S. map which draws from the Commission on a High Performance Health System's report, Aiming Higher: Results from a State Scorecard on Health System Performance. The map can be used to view state-specific rankings and results compared to benchmarks, and to view the number of lives and dollars each state could save by achieving benchmark levels of performance.
Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act.
The website presents short, easy to read bulletins and also give tips on how to use the facts and figures in state and local lobbying. It also presents sources of further information. It is possible to sign-up online to receive new bulletins by email and there is a searchable archive of all previous bulletins.
TASH is a civil rights organization that works to include people with disabilities into every aspect of society.
This website of the Texas STAR PLUS program which is an innovative waiver combining Medicaid 1915(b) and 1915(c) waiver to serve dual eligible (Medicare and Medicaid ) recipients in Harris County in Texas. This program is one of the largest in the country, serving almost 63,000 recipients by 2004.
The Annapolis Coalition is a not-for-profit organization dedicated to improving the recruitment, retention, training, and performance of the prevention and treatment workforce in the mental health and addictions sectors of the behavioral health field.
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
The Independent Living Institute (ILI) is a policy development center specializing in consumer-driven policies for disabled peoples' freedom of choice, self-determination, self-respect and dignity. Our ultimate goal is to promote disabled people's personal and political power. Towards this end we provide information, training materials and develop solutions for services for persons with extensive disabilities in Sweden and internationally. We are experts in designing and implementing direct payment schemes for personal assistance, mainstream taxi and assistive technology.
Part of a national healthcare and human services consulting firm, this website aims to be a central point for research and consulting services related to long term care carried out by the Lewin Group. The site includes a HCBS Population Tool that calculates estimates of the potential demand for HCBS based on data inputted by the user. The report also includes evaluation reports on state long-term care planning activities.
This policy organization analyses key social and economic policy. Some of the reports and data it produces are available online or can be purchased online.
Through the Looking Glass (TLG) is an organization that helps families in which a child, parent or grandparent has a disability by providing information and services on how to help families adapt to various disabilities.
The "Ticket to Work and Work Incentives Improvement Act of 1999 (TWWIIA)", modernizes the employment services system for people with disabilities and makes it possible for millions of Americans with disabilities to no longer have to choose between taking a job and having health care.
This site looks at the four sections of the Act that provide health care support for people with disabilities who work. The sections are:
Information and web-links to all Federal healthcare programs relating to the Olmstead decision and community integration, including new announcements made by the Government.
This website provides information on the Americans with Disabilities Act that describe the rights of people with disabilities, employers and other public groups and buildings. This website lists Federal agencies with ADA responsibilities.
The following page provides the DOL definition of workplace personal assistance, examples of it, and links to additional resources.
This website centralizes many policy research briefs and reports that have been published around the nation. It also provides custom data retrieval from the California Health Interview Survey conducted by the Center biannually.
Through a diverse range of research projects, public service activities, and partnerships, the Institute for Health Policy seeks to increase access to health care, enhance the quality of care, and eliminate disparities in the availability and delivery of services. Timely information and practical support for decision makers improve health care for the citizens of Maine and across the nation.
The Home Care Quality Authority is a small agency of Washington State government. The agency operates the Home Care Referral Registry, a web-based tool that is used to match needs of Washington State residents who receive publicly funded long term in-home care with pre-screened and pre-qualified in-home care workers.
Virginia Commonwealth University. Publishes reports and manuals on obtaining or managing workplace personal assistance services. Among them, Personal Assistance in the Workplace: A Customer-Directed Guide, 2003, (http://www.worksupport.com/Main/pass.asp) and Employer View of Workplace Supports (http://www.worksupport.com/Main/rrtcpapers.asp)
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