Community Living Policy Center

Past Webinars

Below is a list of past webinars hosted by the CLPC. Please email us at clpolicy@brandeis.edu if you have any questions or would like to learn more about our webinars.

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Fire Through Dry Grass

Image of the "Fire Through Dry Grass" film promotion poster. Five poets face the camera in front of the Coler nursing home.

On January 10, 2024, the CLPC hosted a free screening of the vital documentary Fire Through Dry Grass and, the following week on January 17, an interactive panel discussion with the film's Reality Poets along with CLEC lived-experience experts.

Recording of the discussion now available

In Fire Through Dry Grass, Black and Brown disabled artists document their lives on lockdown during Covid, using their poetry and art to underscore the danger and imprisonment they feel. In the face of institutional neglect, they refuse to be abused, confined, and erased. The interactive panel took place one week after the film screening. It shed light on the intersectional experiences of disabled persons of color in institutional settings and raised awareness of the impacts of structural racism, systemic poverty, and incarceration. The campaign hopes to engage diverse stakeholders, including nursing home residents, advocates, and policymakers on community living policy reform. Tools related to resident rights will be shared with event attendees.

Disability Identity and Pride in Equity Research

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The Community Living Equity Center's first ever webinar, Disability Identity and Pride in Equity Research, centered the voices of members of the CLEC Community Advisory Committee. The webinar, held on August 16, 2023, included a brief introduction of the Community Living Equity Center mission and guiding principles. Researchers discussed gaps in equity research and self-advocates shared their perspectives on disability, identity, and representation within research.

Disability Identity and Pride in Equity Research registration

Panelists:
Janie Mejias
Andy Arias
Germán Parodi

State of the Science 2023: Community Living Policy

We hosted a three-part webinar series on State of the Science 2023: Community Living Policy.

State of the Science: Community Living Policy | Virtual discussions hosted by the Community Living Policy Center

June 12, 2023 | Webinar 1: A Reflection on Community Living Policy and Equity

June 23, 2023 | Webinar 2: Community Living Research: What Do We Know and What Do We Need to Learn?

June 27, 2023 | Webinar 3: Community Living Priorities and Issues: Feedback from Stakeholders

To learn more about the webinars and to access the recordings and slides, visit our State of the Science 2023 information page.

Affordable, Accessible Housing and Community Living Policy

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This webinar on December 8, 2022 featured the CLPC's analysis of the American Housing Survey, a promising practice housing case study in California, and the policy implications around housing and community living. Panelists included Kartik Trivedi, Mary Lou Breslin, and Mike Oxford.

Understanding and Addressing Unmet Needs in HCBS Through the Lens of Person-Centered Practices

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On March 31, 2022, the National Center on Advancing Person-Centered Practices and Systems hosted a webinar discussing research conducted by the Lurie Institute for Disability Policy studying how unmet needs for home- and community-based services (HCBS) might be connected to adverse outcomes such as hospitalization, institutionalization, and death. Unmet HCBS needs affect many people with disabilities and older adults. Lurie Institute researchers examined the perspectives of HCBS users themselves, who reported on the quality and sufficiency of HCBS and how these may be related to health and community-living outcomes.

Panelists also discussed the implications of the research results for person-centered planning in HCBS and what might be done to advance person-centered practices.

Discussants included Natalie Chong and Finn Gardiner of the Lurie Institute for Disability Policy.

6,000 Waiting - A Film about Disability Advocacy

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Three Georgia residents with disabilities fight to access Now/Comp Waiver funding that would allow them to live life on their own terms. A life guaranteed by their Olmstead rights. What happens when people with disabilities want to live outside of nursing facilities and in the community?

On October 27, 2021, the Community Living Policy Center and the Lurie Institute hosted a screening of the film 6,000 Waiting, followed by a 30-minute discussion with Naomi, Ben, and Nick, featured in the film. The discussion was facilitated by Finn Gardiner.

Panelists:
Naomi Williams
Nick Papadopoulos
Ben Oxley
Meg Ryan, Sound Off Films

Host and Facilitator:
Finn Gardiner, Lurie Institute for Disability Policy

A Conversation on the Use of Pain and Shock on People with Disabilities

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On October 12, 2021, the Community Living Policy Center, Lurie Institute, Brandeis Legal Studies Program, Brandeis University Press, and the International Center for Ethics, Justice and Public life presented a conversation with author Jan Nisbet on the use of pain at the Judge Rotenberg Center as treatment for children and adults with disabilities. Interview of the author of the first book on the JRC was followed by a panel and audience discussion. 

Moderator:
Ari Ne'eman, visiting scholar at the Lurie Institute for Disability Policy and co-founder of the Autistic Self Advocacy Network

Panelists:
Jennifer Mathis, Bazelon Center for Mental Health Law
Nancy Weiss, Director of National Leadership Consortium on Developmental Disabilities
Finn Gardiner, Lurie Institute for Disability Policy

The Biden-Harris Administration's Caregiving Initiative: Investing in Medicaid HCBS

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On June 16, 2021, the Lurie Institute and the Community Living Policy Center held a webinar on the Biden-Harris Administration's historic proposal to invest $400 billion in the Medicaid HCBS program.

Opening remarks were provided by:

Henry Claypool, Community Living Policy Center
Dean David Weil, Heller School for Social Policy and Management
Alison Barkoff, Administration for Community Living 

Attendees heard from:

Cathy Cranston, ADAPT of Texas
Latoya Maddox, Liberty Resources Inc., Philadelphia
Julia Bascom, Autistic Self Advocacy Network
Amber Christ, Justice in Aging

On February 22, 2021, the Lurie Institute and the Community Living Policy Center held a webinar discussion between disability community members, self-advocates, and policy researchers. Leaders and experts from the disability community considered lessons learned, future federal policies, and ways to promote equitable home- and community-based services during the pandemic. 

Presenters: 
Angel Miles, Healthcare and Home- and Community-Based Services Policy Analyst at Access Living
Julia Bascom, Executive Director at Autistic Self Advocacy Network
Nicole LeBlanc, National Center on Advancing Person-Centered Practices and Systems Group Coordinator, Human Services Research Institute
Scott Landes, Associate Professor of Sociology, Aging Studies Institute, Syracuse University

Moderator:
Joe Caldwell, Director of the Community Living Policy Center

Using Medicaid to Support Parents with Disabilities

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A growing number of people with disabilities are choosing to raise families. Although parents with disabilities exist in substantial and growing numbers, community-based services and supports remain scarce for these families. In fact, government-funded home- and community-based services (HCBS), such as personal care attendant (PCA) services, do not generally offer services to assist parents with disabilities with childrearing tasks, because parenting is not considered an activity of daily living. In a discussion at the intersection of the rights of parents with disabilities, a Medicaid policy expert, and lived-experiences from a parent with a disability - this webinar will delve policy solutions for assisting parents with disabilities with childrearing tasks through existing Medicaid-funded services and supports. Webinar hosted on Friday, December 11, 2020.

Presenters:
Robyn Powell, Stetson University College of Law, former Attorney-Advisor at the National Council on Disability (NCD)
Mary Sowers, National Association of State Directors of Developmental Disabilities Services, specialty in Medicaid HCBS, managed LTSS, person-centered systems of care.  
Nikki Villavicencio is parent with a disability from Maplewood, advocate for disability rights, recipient of the Political Courage Award from the Women’s Candidate Development Coalition. 

Long-Term Services and Supports Coordinator: A Promising Practice to Advance Independent Living Philosophy and Recovery Principles within Integrated Care

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Disability advocates worked with federal and state policymakers to establish the Long-Term Services and Supports (LTS) Coordinator in the Massachusetts’ OneCare program, a capitated financial alignment demonstration for individuals dually eligible for Medicaid and Medicare. This webinar will provide an overview of the envisioned roles of the LTS Coordinator.

Presenters:
Dennis Heaphy, Disability Policy Consortium
Bill Henning, Boston Center for Independent Living (BCIL)
OneCare member who has received services from a BCIL LTS Coordinator 

This webinar is being hosted by the Community Living Policy Center at Brandeis University. Support for this webinar is provided by the Administration for Community Living, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), grant number 90RTCP0004.

Best Practices in the HCBS Settings Rule: Bringing HCBS to the 21st Century

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This webinar presents an overview of the HCBS Settings Rule, and then dives deeper into its broader implications and heightened scrutiny. Using lessons learned from the initial pilot, this webinar explores promising practices and presents outcomes-focused tools for state advocates by the Autistic Self Advocacy Network (ASAN). 

Presenters:
Ari Ne'eman, Key contributor at the Community Living Policy Center
Samantha Crane, Legal Director at ASAN
Alison Barkoff, Director of Advocacy at the Center for Public Representation

Moderators:
Anne Womer, Research Project Manager of the CLPC, Brandeis University
Joe Caldwell, Director of the CLPC at Brandeis University

Evidence for the Impact of the Money Follows the Person Program

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Since its inauguration state MFP programs have transitioned more than 90,000 institutional residents back to the community. This webinar will look at the cost and care benefits of MFP programs, their impact on individual and state outcomes, and their future role in the LTSS landscape

Presenters:
Carol Irvan, Mathematica
Nicole Jorwic, The Arc
Steve Kaye, Principal Investigator at the CLPC, University of California San Francisco

Moderators:
Joe Caldwell, Director of the CLPC, Brandeis University
Anne Womer, Research Project Manager of the CLPC, Brandeis University

Promising Practices in Managed Long-Term Services and Supports: Network Adequacy and Accessibility

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This webinar will highlight recent research from the Community Living Policy Center on promising practices in Managed Long-Term Services and Supports. First, promising practices and options for states to measure network adequacy of Home and Community Based Services providers will be discussed. Second, practices will be highlighted to promote physical and programmatic accessibility of network providers for enrollees with disabilities.  

Presenters:
Ari Ne'eman, Key contributor at the Community Living Policy Center
Mary Lou Breslin, Disability Rights Education and Defense Fund (DREDF)

Moderators:
Joe Caldwell, Director of the CLPC at Brandeis University
Steve Kaye, Principal Investigator at the CLPC, University of California San Francisco