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PAS Center Reports and Publications

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PHI. (2010, July). State Chart Book On Wages For Personal And Home Care Aides, 1999‐2009. Bronx, NY: Author. Retrieved 8th July, 2010 from http://www.directcareclea ringhouse.org/download/PC A_Wage_Chart_Book_1999_20 09.pdf

Napoles, A.M., Chadiha, L., Eversley, R. & Moreno-John G. (2010, May). Reviews: Developing culturally sensitive dementia caregiver interventions: are we there yet? American Journal of Alzheimer's Disease and Other Dementias5) , 25(5), pp.389-406. doi: 10.1177/1533317510370957

LaPlante, M.P. (2010, January). The classic measure of disability in activities of daily living is biased by age but an expanded IADL/ADL measure is not. Journal of Gerontology: Social Sciences, 65B(1). doi: 10.1093/geronb/gbp129

LaPlante, M.P. & Kaye, H.S. (2010). Demographics and trends in wheeled mobility equipment use and accessibility in the community. Assistive Technology, 22(1), pp.3-17.

Kaye, H.S., Harrington, C. & LaPlante, M.P. (2010). Long-term care: Who gets it, who provides it, who pays, and how much? Health Affairs, 29(1), pp.11-21.

Solovieva, T.I, Walls, R.T. & Dowler D.L. (2010). Personal Assistance Services (PAS) for Individuals with Disabilities: Self-Care at the Workplace. WORK: A Journal of Prevention, Assessment & Rehabilitation, 36(3), pp.339-343. doi: 10.3233/WOR-2010-1035

Ng, T., Harrington, C., Kitchener, M. (2010). Medicare and Medicaid in long-term care. Health Affairs, 29(1), pp.22-28.

Misra, S., Orslene, L.E. & Walls, R.T. (2010). Personal assistance services (PAS) for workers with disabilities: Views and experiences of employers. Journal of Rehabilitation, 76(1), pp.22-27.

Harrington, C., & Kang, T. (2010). Personal Care Services Utilization By Individuals with Developmental Disabilities. Family Relations, 59(April), pp.136-151.

Okumura, M.J., Van Cleave, J., Gnanasekaran, S., & Houtrow, A. (2009, December). Understanding Factors Associated with Work Loss for Families Caring for CSHCN. Pediatrics, 124. doi: 10.1542/peds.2009-1255J

Ng, T., Harrington, C. & O’Malley, M. (2009, November). Medicaid Home and Community-Based Service Programs: Data Update. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved 8-Dec-09 from http://www.kff.org/medica id/7720.cfm

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2009, October). Cost of workplace accommodations for individuals with disabilities: With or without personal assistance services. Disability and Health Journal, 2(4), pp.196-205.

Paraprofessional Healthcare Institute. (2009, October). New York City’s Home Care Workforce: State Facts. Bronx, NY: Author.

Paraprofessional Healthcare Institute. (2009, October). Pennsylvania’s Direct-Care Workforce: State Facts. Bronx, NY: Author.

Paraprofessional Healthcare Institute. (2009, September). Iowa’s Direct-Care Workforce: State Facts. Bronx, NY: Author.

Paraprofessional Healthcare Institute. (2009, September). Massachusetts’ Direct-Care Workforce: State Facts. Bronx, NY: Author.

Wells, S., Hedt, A., Chapman, S., Bakerjian, D., Fagin, C.M., Bryant, N., Toten, A., Goldbert, L. & Ruff, A. (2009, August). Perspectives On: Investing in California’s Direct Care Workforce by Increasing Geriatric Training Opportunities. Long Beach, CA: The SCAN Foundation.

Paraprofessional Healthcare Institute. (2009, July). Illinois’ Direct-Care Workforce: State Facts. Bronx, NY: Author.

Paraprofessional Healthcare Institute. (2009, July). State chart book on wages from personal and home care aides, 1999-2008. Bronx, NY: Author.

Kaye, H.S., Neri, M. & Wong, A. (2009, July). Telecommunication needs of Californians with disabilities: Final Report. San Francisco, CA: UCSF Disability Statistics Center.

Newacheck, P.W., Houtrow A.J., Romm, D.L., Kuhlthau, K.A., Bloom, S.R., Van Cleave, J.M., & Perrin J.M. (2009, May). The Future of Health Insurance for Children With Special Health Care Needs. Pediatrics, 123(5), pp.e940-e947. doi: 10.1542/peds.2008-2921

Harrington, C., Kang, T. & Chang, J. (2009, April). Factors Associated With Living in Developmental Centers in California. Intellectual and Developmental Disabilities, 47(2), pp.108-124.

Wiener, J.M. (2009, April). Long-Term Care: Options In An Era Of Health Reform. Washington, DC: The SCAN Foundation. Retrieved June 15th, 2009 from http://www.pascenter.org/ documents/Wiener_2009.ppt

Wiener, J.M. (2009, April). Long-term care: Options in an era of health reform. Washington, DC: The SCAN Foundation.

Paraprofessional Healthcare Institute. (2009, march). Vermont’s Direct-Care Workforce: State Facts. Bronx, NY: Author.

Harrington, C., Ng, T., Kaye, S. & Newcomer, R. (2009, January). Home and Community-Based Services: Public Policies to Improve Access, Costs, and Quality. San Francisco, CA: Center for Personal Assistant Services.

Stone, R. & Newcomer, R. (2009). Advances and issues in personal care. Clinics in Geriatric Medicine, 25(1), pp.35-45.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2009). Cost of workplace accommodations for individuals with disabilities. Disability and Health Journal, 2(4), pp.196-205.

Kailes, J., & George, S. (2009). Disaster Planning For Technology-Dependent Patients Preparation must be ongoing. Retrieved March, from http://respiratory-care-s leep-medicine.advanceweb. com/Features/Article-1/Di saster-Planning-For-Techn ology-Dependent-Patients. aspx

Kaye, H.S., Yeager, P., & Reed, M. (2009). Disparities in usage of assistive technology among people with disabilities. Assistive Technology, 20(4), pp.194-203.

Kaye, H.S., LaPlante, M.P., & Harrington, C. (2009). Do Non-institutional Long-Term Care Services Reduce Medicaid Spending? Health Affairs, 28(1), pp.262-272.

Mullan, J.T., Grossman, B.R., Hernandez, M., Wong, A., Eversley, R. & Harrington, C. (2009). Focus Group Study of Ethnically Diverse Low Income- Users of Paid Personal Assistance Services. Home Health Care Services Quarterly, 28(1), pp.24-44.

Kailes, J. (2009). Functional Needs Focused Care and Shelter Checklist. Playa del Rey, CA: Kailes-Publications. Retrieved June 22nd, 2010 from http://www.jik.com/disast er.html

D’Souza, J.C., James, M.L., Szafara, K.L., Fries, B.E. (2009). Hard Times: The Effects of Financial Strain on Home Care Services Use and Participant Outcomes in Michigan. The Gerontologist, 49(2), pp.154-165.

Harrington, C., Ng., T., Kaye, H.S. & Newcomer, R.J. (2009). Medicaid home and community based services: Proposed policies to improve access, costs, and quality. Public Policy & Aging Report, 19(2), pp.13-18.

Harrington, C. & Ng, T. (2009). Medicaid Home and Community-Based Services Data, 2005. San Francisco, CA: Center for Personal Assistance Services. Retrieved September, 2009 from http://pascenter.org/medi caid/index.php

Seekins, T., Katz, M., Liston, R., Oxford, M., Altom, B., White, G., Petty, G., & Kafka, B. (2009). Nursing home emancipation: A preliminary study of efforts by Centers for Independent Living in urban and rural areas Missoula, MT: The University of Montana Rural Institute.

Campbell, V., Gilyard, J., Sinclair, L., Sternberg, T. and Kailes, J. (2009). Preparing for and Responding to Pandemic Influenza: Implications for People With Disabilities. American Journal of Public Health, 99(S2), pp.S294-S300.

Kailes, J. (2009). Standard, Accessible, and Medical Cots. Playa del Rey, CA: Kailes-Publications. Retrieved June 22nd, 2010 from http://www.jik.com/disast er.html

Kaye, H.S. (2009). Stuck at the bottom rung: Occupational characteristics of workers with disabilities. Journal of Occupational Rehabilitation, 19(2), pp.115-128.

Wiener, J.M., Squillace, M.R., Anderson, W.L., & Khatusky, G. (2009). Why do they stay? Job tenure among certified nursing assistants in nursing homes. Gerontologist, 49(2), pp.198-210.

Wiener, J.M., Squillace, M.R., Anderson, W.L. & Khatutsky, G. (2009). Why do they stay? Job tenure among certified nursing assistants in nursing homes. Gerontologist, 49(2), pp.198-210.

Paraprofessional Healthcare Institute. (2008, December). Michigan’s Direct-Care Workforce: State Facts. Bronx, NY: Author.

Harrington, C. and Kang, T. (2008, October). Disparities in service utilization and expenditures for individuals with developmental disabilities. Disability and Health Journal, 1(4)

Center for Personal Assistance Services (PHI). (2008, July). State Chart Book On Wages For Personal And Home Care Aides, 1999‐2006. San Francisco, CA: Author.

Seavey, D. (2008, April). Occupational Projections for Direct-Care Workers 2006-2016. Bronx, NY: Paraprofessional Healthcare Institute (PHI), fact sheet.

Scherzer, T. & Wolfe, N. (2008, January). Barriers to workers' compensation and medical care for injured Personal Assistance Services workers. Home Health Care Services Quarterly, 27(1), pp.37. doi: 10.1300/J027v27n01_03

Kitchener, M., Ng, T., Lee, H.Y. and Harrington, H. (2008). Assistive Technology in Medicaid Home-and Community-Based Waiver Programs. The Gerontologist, 48, pp.181-189.

Center for Personal Assistance Services. (2008). How to employ a personal assistant: Disaster preparedness. San Francisco, CA: Author. Retrieved June 22nd, 2010 from http://pascenter.org/pas_ users/health5.php

Center for Personal Assistance Services. (2008). How to employ a personal assistant: Emergency care. Berkeley, CA: Author. Retrieved January, 2009 from http://pascenter.org/pas_ users/health1.php

Harrington, C., O’Meara, J., Collier, E., Kang, T., Stephens, C. & Chang, J. (2008). Impact of California's Medi-Cal Long Term Care Reimbursement Act On Access, Quality and Costs. San Francisco, CA: Center for Personal Assistance Services.

Dobell, G. & Newcomer, R. (2008). Integrated care: Incentives, approaches and future considerations. Social Work in Public Health, 23(4), pp.25-47.

Kitchener, M., Willmott, M., Alameida, M., Wong, A. and Harrington, C. (2008). Introduction to Olmstead Lawsuits and Olmstead Plans. San Francisco, CA: Center for Personal Assistance Services. Retrieved March, 2009 from http://pascenter.org/olms tead/index.php

Miller, N.A., Elder, K.T., Kitchener, M., Kang, Y and Harrington, C. (2008). Medicaid 1915(c) Waiver Use and Expenditures for Persons Living With HIV/AIDS. Medical Care Research and Review, 65(3), pp.338-355.

Ng, T., Harrington, C., and O’Malley, M. (2008). Medicaid Home and Community Based Service Programs: Data Update. Washington, DC: Kaiser Commission on Medicaid and the Uninsured.

Collier, E. & Harrington, C. (2008). Staffing characteristics, turnover rates and quality of resident care in nursing facilities. Research in Gerontological Nursing, 1(3), pp.157-170.

Harrington, C., Tsoukalas, T., Rudder, C., Mollot, R.J., and Carrillo, H. (2008). Variation in the use of federal and state civil money penalties for nursing homes. Gerontologist, 48(5), pp.679-691.

Kang, T., & Harrington, C. (2008). Variation in types of service use and expenditures for individuals with developmental disabilities. Disability and Health Journal
Disability and Health Journal, 1, pp.30-41.

Jans., L. (2007, November). Personal Assistance Services (PAS) Cooperatives: Final Report. San Francisco, CA: Center for Personal Assistance Services.

Barrett, J. (2007, July). Leadership Stories from Maine: The Voices of Direct-Care Workers in Culture Change. Bronx, NY: National Clearinghouse on the Direct Care Workforce, Northern New England LEADS Institute. Retrieved Dec. 9, 2007 from http://www.directcareclea ringhouse.org/l_art_det.j sp?res_id=265110

Wong, A., Kaye, H.S. and Newcomer, R. (2007, July). State legislation regarding wages and benefits of home care workers: Thirteen promising practices. San Francisco: Center for Personal Assistance Services.

Kitchener, M., Wong, A., Willmott, M. & and Harrington, C. (2007, February). Home & Community-Based Services: State-Only Funded Programs. San Francisco, CA: Center for Personal Assistance Services. Retrieved Mar-07 from http://pascenter.org/stat e_funded/index.php

Kitchener, M., Ng, T., Carrillo, H. and Harrington, C. (2007). A Longitudinal Analysis of State Variation in the Provision of Personal Care Services. Inquiry, In

Chiu, W.K. & Newcomer, R. (2007). A systematic review of nurse-assisted case management to improve hospital discharge transition outcomes for the elderly. Professional Case Management, 12(6), pp.330-336.

Hernandez, M. & Newcomer, R. (2007). Assisted living and special populations: What do we know about differences in use and potential access barriers? Gerontologist, 47(3), pp.110-117.

Yeager, P., Kaye, H.S., Reed, M., & Doe, T.M. (2007). Assistive Technology and Employment: Experiences of Californians with Disabilities. Work, 27(4), pp.333-344.

Scherzer, T., & Newcomer, R. (2007). Barriers to documenting occupational injuries among personal assistance services workers. American Journal of Industrial Medicine, 50(7), pp.536-544.

Swan, J.H. & Harrington, C. (2007). California nursing facility quality and union environments. Journal of Aging & Health, 19(2), pp.183-199.

Kitchener, M., Ng, T., Carrillo, H., Miller, N., and Harrington, C. (2007). Developing personal care programs: National trends and interstate variation, 1992-2002. Inquiry, 44, pp.69-87.

Hewitt, A., Edelstein, S., Seavey, D., Morris, J. & Hoge, M. (2007). Direct Support Professional Work Group Report. Raleigh, NC: North Carolina Commission for Mental Health, Developmental Disabilities and Substance Abuse. Retrieved Dec. 9, 2007 from http://directcareclearing house.org/l_art_det.jsp?r es_id=265010

LaPlante, M.P., Kaye, H.S. and Harrington, C. (2007). Estimating the Expense of a Mandatory Home- and Community-Based Personal Assistance Services Benefit Under Medicaid. Journal of Health and Social Policy, 19(3), pp.47-64.

Scherzer, T., Wong, A. and Newcomer, R. (2007). Financial management services in consumer-directed programs. Home Health Care Services Quarterly, 26(1), pp.29-42.

Wong, A. & Newcomer, R. (2007). Health promotion and disease prevention for people with disabilities: An annotated bibliography. San Francisco: Center for Personal Assistance Services.

Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (2007). Home and Community-Based Services: Federal Funding to States. San Francisco: Center for Personal Assistance Services. Retrieved September, 2007 from http://www.pascenter.org/ federal_funding_to_states

Kitchener, M., Ng, T., and Harrington, C. (2007). Medicaid Home and Community-Based Services for the Elderly: Trends in Programs and Policies. Journal of Applied Gerontology, 26(3), pp.303-324.

Swan, J.H., Harrington, C., Dryer, K., Pickard, R.B., Covert, J.M. & Gulur, P. (2007). Medicaid Nursing Facility Payment in the Face of State Fiscal Meltdown. Long Term Care Interface, 8(5), pp.28-31.

Kitchener, M., Ng, T., and Harrington, C. (2007). Medicaid State Plan Personal Care Services: Trends in Programs and Policies. Journal of Health and Social Policy, 19(3), pp.9-26.

Harrington, C., Swan, J.H., and Carrillo, H. (2007). Nursing Staffing and Medicaid Reimbursement Rates. Health Services Research, 42(3), pp.1105-1129.

Newcomer, R., T. Kang, C. Graham. (2007). Outcomes in a nursing home transition case management program targeting new admissions. Gerontologist, 46, pp.385-390.

Grossman, B., M. Kitchener, J. Mullan, and C. Harrington. (2007). Paid Personal Assistance Services: An Exploratory Study of Working Age Consumers' Perspectives. Journal of Aging and Social Policy, 19(3), pp.27-45.

Miller, N.A. and Weinstein, M. (2007). Participation and Knowledge Related to a Nursing Home Admission Decision among a Working Age Population. Social Science & Medicine, 64(2), pp.303-313.

Jans, L. & Kraus, L. (2007). Personal Assistance Services (PAS) Cooperatives: An Annotated Bibliography. Retrieved November 17th, 2008 from http://www.pascenter.org/ documents/Annotat_Biblio_ PAS_Coops.php

Misra, S., Orslene, L.E., & Walls, R.T. (2007). Personal Assistance Services for Workers with Disabilities: Views and Experiences of Rehabilitation Service Providers. Disability Studies Quarterly, 27(3)

Gaugler, J.E., Kane, R.L. & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. Journal of Gerontology: Psychological Sciences, 62(1), pp.38-44.

Kitchener, M., O’Meara, J., Brody, A., Lee, H.Y., Harrington, C. (2007). Shareholder Value and the Performance of a Large Nursing Home Chain. Health Services Research, 43(3), pp.1062-84.

Harrington, C., O'Meara, J., Tsoukalas, T., & Ng, T. (2007). Snapshot: Long Term Care, Facts and Figures. Oakland, CA: California HealthCare Foundation. Retrieved June 18th, 2010 from http://www.chcf.org/publi cations/2009/11/long-term -care-facts-and-figures

Harrington, C., & O'Meara, J. (2007). Snapshot: The Changing Face of California's Nursing Home Industry. Oakland, CA: California HealthCare Foundation.

Kitchener, M., Ng, T. and Harrington, C. (2007). State Medicaid Home Care Policies: Inside the Black Box. Home Health Care Quarterly, 26(3), pp.23-38.

Kitchener, M., Willmott, M., Wong, A., & Harrington, C. (2006, December). Medicaid Managed Long-Term Care: An Introduction. UCSF San Francisco, CA: Center for Personal Assistance Services. Retrieved May 4th, 2008 from http://www.pascenter.org/ documents/Medicaid_Manage d_LTC.doc

Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (2006, November). Home and Community-Based Services: Medicaid Research and Demonstration Waivers. USCF, San Francisco: Center for Personal Assistance Services. Retrieved July 29th, 2007 from http://http://pascenter.o rg/demo_waivers/demoWaive rReport_2006.php

Stoddard, S. & Kraus, L. (2006). Arranging for personal assistance services and assistive technology at work. A report of the Rehabilitation Research and Training Center on Personal Assistance Services. Disability and Rehabilitation: Assistive Technology, 1(1-2), pp.89-95. doi: 10.1080/09638280500167365

Jans, L., & Scherer, M. (2006). Assistive technology training: Diverse audiences and multidisciplinary content. Disability and Rehabilitation: Assistive Technology, 1(1-2), pp.69-77.

Gamble, M.J., Dowler, D.L., & Orslene, L.E. (2006). Assistive technology: Choosing the right tool for the right job. Journal of Vocational Rehabilitation, 24(2), pp.73-80.

Seavey, D. & Salter, V. (2006). Bridging the gaps: State and local strategies for ensuring backup personal care services. Washington, D.C.: AARP Public Policy Institute. Retrieved 8-Oct-06 from http://www.aarp.org/resea rch/longtermcare/quality/ 2006_19_pcs.html

Kitchener, M., Willmott, M., Wong, A. & Harrington, C. (2006). Federal Systems Change Grants to States and Territories: 2001-2005. San Francisco, CA: Center for Personal Assistance Services. Retrieved March, 2007 from http://pascenter.org/syst emschange/index.php

Harrington, C., Beverly, C.J., Maas, M.L., Buckwalter, K.C., Bennett, J.A., Young, H.M., Sochalski, J., and Naylor, M. (2006). Influencing health policy for older adults: Initiatives by the John A. Hartford Centers of Geriatric Nursing Excellence. Nursing Outlook, 54(4), pp.236-242.

Kitchener, M., Ng, T., Miller, N. & Harrington C. (2006). Institutional and community-based long-term care: A comparative estimate of public costs. Journal of Health & Social Policy, 22(2), pp.31-50.

Scherzer, T., Chapman, S. & N. Newcomer. (2006). Consumer voice and choice in long-term care. (Chapter 6). In S. Kunkel & V. Wellin (Eds.), Integrating occupational health and safety into the United States' personal assistance services workforce agenda. New York, NY: Springer Publishing.

Carpenter, G.I., Hastie, C. L., Morris, J.N., Fries, B.E. & Ankri, J. (2006). Measuring change in activities of daily living in nursing home residents with moderate to severe cognitive impairment. BMC Geriatrics, 6(7). doi: 10.1186/1471-2318-6-7

Harrington, C., Carrillo, H., & LaCava, C. (2006). Nursing Facilities, Staffing, Residents, and Facility Deficiencies, 1999 through 2005. University of California, San Francisco: Center for Personal Assistance Services. Retrieved March 19th, 2007 from http://www.pascenter.org/ documents/OSCAR2005.pdf

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