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Friedman, E.M. & Seltzer, J.A. (2010, August). Providing for Older Parents: Is It a Family Affair? Los Angeles, CA: California Center for Population Research. Retrieved August 26, 2010 from http://papers.ccpr.ucla.e du/papers/PWP-CCPR-2010-0 12/PWP-CCPR-2010-012.pdf

PHI. (2010, July). State Chart Book On Wages For Personal And Home Care Aides, 1999‐2009. Bronx, NY: Author. Retrieved 8th July, 2010 from http://www.directcareclea ringhouse.org/download/PC A_Wage_Chart_Book_1999_20 09.pdf

Cassidy, A. (2010, July). Extra Federal Support for Medicaid. Princeton, NJ: Health Affairs/Robert Wood Johnson Foundation Health Policy Brief Series. Retrieved July 28, 2010 from http://www.rwjf.org/healt hpolicy/product.jsp?id=65 908

Johnson, K. (2010, June). Managing the “T” in EPSDT Services. Washington, DC: National Academy for State Health Policy. Retrieved 10th June 2010 from http://nashp.org/sites/de fault/files/ManagingTheTi nEPSDT.pdf

Tucker, A.M. & Johnson, K.E. (2010, May). Cross-Payer Effects on Medicare Resource Use: Lessons for Medicaid Administrators. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/Cross PayerEffectsOnMedicareRes ourceUse-LessonsForMedica idAdministrators-May2010. pdf

Norton, M.C., Smith, K.R., Østbye, T., Tschanz J.T., Corcoran, C., Schwartz, S., Piercy, K.W., Rabins, P.V., Steffens, D.C., Skoog, I., Breitner, J.C.S. & Welsh-Bohmer, K.A. (2010, May). Greater risk of dementia when spouses have dementia? The Cache County Study. Journal of American Geriatrics Society, 58(5), pp.895-900. doi: 10.1111/j.1532-5415.2010.02806.x

Engquist, G., Johnson, C., Lind, A. & Palmer Barnette, L. (2010, May). Medicaid-Funded Long-Term Care: Toward More Home- and Community-Based Options. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253871

Engquist, G., Johnson, C. & Courtland Johnson, W. (2010, May). Medicaid-Funded Long-Term Supports and Services: Snapshots of Innovation. Hamilton, NJ: Center for Health Care Strategies, Inc.. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253869

Engquist, G., Johnson, C. & Courtland Johnson, W. (2010, May). Systems of Care: Environmental Scan of Medicaid-Funded Long-Term Supports and Services. Hamilton, NJ: Center for Health Care Strategies, Inc.. Retrieved 10-Jun-10 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1253866

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author.

Triantafillou, J., Naiditch, M., Repkova, K., Stiehr, K., Carretero, S., Emilsson, T., Di Santo, P., Bednarik, R., Brichtova, L., Ceruzzi, F., Cordero, L., Mastroyiannakis, T., Ferrando, M., Mingot, K., Ritter, J. & Vlantoni, D. (2010, May). Informal care in the long-term care system. European Overview Paper. (Grant agreement no. 223037). Athens/Vienna: Interlinks. Retrieved August, 2010 from http://www.euro.centre.or g/data/1278594816_84909.p df

The HSC Foundation. (2010, May). The Overlooked Caregiver: A Series of Listening Sessions. Washington, DC: Author. Retrieved August, 2010 from http://www.hscfoundation. org/aboutus/publications/ caregivers_brief.pdf

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Center for Medicare Advocacy, Inc.. (2010, April). Interim Final Rules to Implement the Mental Health Parity and Addiction Equity Act of 2008 Go Into Effect on April 5, 2010. CMA Weekly Alert. Washington, DC: Author. Retrieved 4-Apr-10 from http://www.medicareadvoca cy.org/InfoByTopic/Mental Health/10_04.01.MHPAEA.ht m

Center for Medicare Advocacy, Inc. (2010, March). CMS Sanctions Missouri Medicaid for Overly Restrictive Home Health Standards. CMS weekly report. Washington, DC: Author. Retrieved 11-Mar-10 from http://www.medicareadvoca cy.org/InfoByTopic/Medica idAndRelatedTopics/Medica idandRT_10_03.11.Medicaid AndHomeHealth.htm

Minnesota Department of Human Services, Disability Services Division. (2010, March). Personal Care Assistance Services - A Report to the 2010 Minnesota Legislature. St. Paul, MN: Author. Retrieved 11-Jun-10 from http://www.dhs.state.mn.u s/main/groups/disabilitie s/documents/pub/dhs16_149 239.pdf

Wallace SP, Padilla-Frausto DI, Mendez-Luck CA, Benjamin AE, Durazo E, Pourat N. (2010, February). Budget Proposals Turn Back Clock 30 Years in Long-Term Care Services for California Seniors. Los Angeles, CA: UCLA Center for Health Policy Research. Retrieved June 10th, 2010 from http://www.healthpolicy.u cla.edu/pubs/files/Budget Proposals_2010_PB_021610. pdf

Anderson, G. (2010, February). Chronic Care: Making the Case for Ongoing Care Princeton, NJ: Robert Wood Johnson Foundation.

Fields, N.L. & Dabelko-Schoeny, H. (2010, February). Factors Related to a Successful Transition in the Ohio Medicaid Assisted Living Waiver Program: A Provider’s Perspective. Columbus, OH: Ohio Department of Aging, Community Long Term Care Division. Retrieved 11-Jun-10 from http://aging.ohio.gov/res ources/publications/Assis tedLivingProviderPerspect ive2010.pdf

Albert, S.M. & Schulz, R. (2010, February). New Insights and Innovations for Reducing Health Care Costs for Employers. Westport, CT: MetLife Mature Market Institute. Retrieved 21-Feb-10 from http://www.metlife.com/mm i/research/working-caregi ver-employer-health-care- costs.html#findings

Minnesota Department of Human Services, Disability Services Division. (2010, January). Annual Report on the Use and Availability of Home and Community-Based Services Waivers for Persons with Disabilities. St. Paul, MN: Author. Retrieved 11-Jun-10 from http://www.dhs.state.mn.u s/main/groups/disabilitie s/documents/pub/dhs16_148 067.pdf

Steenhausen, S. (2010, January). California’s Proposed 2010-2011 Budget: Senior-Related Program Reductions. (Fact sheet, No.1.). Long Beach, CA: The SCAN Foundation.

Tucker, A.M., Johnson, K.E., Huang, Y. & Brewer, T. (2010, January). Examining the Medicare Resource Use of Dually Eligible Medicaid Recipients. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/Exami ningtheMedicareResourceUs eofDuals-January2010.pdf

LaPlante, M.P. (2010, January). The classic measure of disability in activities of daily living is biased by age but an expanded IADL/ADL measure is not. Journal of Gerontology: Social Sciences, 65B(1). doi: 10.1093/geronb/gbp129

National Council on Disability. (2010, January). The State of Housing in America in the 21st Century: A Disability Perspective. Washington, DC: Author. Retrieved July 6, 2010 from http://www.ncd.gov/newsro om/publications/2010/A_Di sability_Perspective.html

LaPlante, M.P. & Kaye, H.S. (2010). Demographics and trends in wheeled mobility equipment use and accessibility in the community. Assistive Technology, 22(1), pp.3-17.

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Kaye, H.S., Harrington, C. & LaPlante, M.P. (2010). Long-term care: Who gets it, who provides it, who pays, and how much? Health Affairs, 29(1), pp.11-21.

Family Caregiver Alliance. (2010). Health Care Reform and Family Caregivers. San Francisco: Author. Retrieved July 11, 2010 from http://caregiver.org/care giver/jsp/content_node.js p?nodeid=2397

San Francisco. (2010). Health Care Reform and Family Caregivers. Family Caregiver Alliance: Author. Retrieved July 28, 2010 from http://www.caregiver.org/ caregiver/jsp/content_nod e.jsp?nodeid=2397

Coughlin J. (2010). Estimating the Impact of Caregiving and Employment on Well-Being. Outcomes & Insights in Health Management , 2(1), pp.1-7.

Solovieva, T.I, Walls, R.T. & Dowler D.L. (2010). Personal Assistance Services (PAS) for Individuals with Disabilities: Self-Care at the Workplace. WORK: A Journal of Prevention, Assessment & Rehabilitation, 36(3), pp.339-343. doi: 10.3233/WOR-2010-1035

Nyberg, J.P. (2010, Spring). Community College and Caregiver Training: Implications for Policymakers. (Caregiving Brief). New York, NY: International Longevity Center USA. Retrieved 25-Mar-10 from http://www.ilcusa.org/pag es/publications/caregivin g/community-colleges-and- caregiver-training-implic ations-for-policymakers.p hp

Wadensten, B. & Ahlström, G. (2010). Ethical values in personal assistance: Narratives of people with disabilities. Nursing Ethics, 16(6), pp.759-774.

Ng, T., Harrington, C., Kitchener, M. (2010). Medicare and Medicaid in long-term care. Health Affairs, 29(1), pp.22-28.

Misra, S., Orslene, L.E. & Walls, R.T. (2010). Personal assistance services (PAS) for workers with disabilities: Views and experiences of employers. Journal of Rehabilitation, 76(1), pp.22-27.

Harrington, C., & Kang, T. (2010). Personal Care Services Utilization By Individuals with Developmental Disabilities. Family Relations, 59(April), pp.136-151.

Chen, Y.M. & Thompson, E.A. (2010). Understanding factors that influence success of home- and community-based services in keeping older adults in community settings. Journal of Aging and Health, 23(3), pp.267-291.

Robert B. Hudson (Ed.) (2010, Winter/Spring). Advancing Home and Community-Based Services: Transforming Policies, Programs, and Service Delivery in Long-Term Care Boston, MA: Public Policy & Aging Report. Retrieved August, 2010 from http://www.hcbs.org/files /193/9616/PP&AR.pdf

Bornstein, S. & Rathmell, R.J. (2009, December). Caregivers as a Protected Class?: The Growth of State and Local Laws Prohibiting Family Responsibilities Discrimination. San Francisco, CA: University of California, Hastings College of Law. Retrieved 17-Dec-09 from http://www.worklifelaw.or g/pubs/LocalFRDLawsReport .pdf

Center for Medicare Advocacy, Inc. (2009, December). Medicare and Discharge Planning: Think Through Your Needs. CMA Weekly Alert. Washington, DC: Author. Retrieved 4-Dec-09 from http://www.medicareadvoca cy.org/Discharge_09_12.03 .CHecklist.ThinkThroughNe eds.htm

Okumura, M.J., Van Cleave, J., Gnanasekaran, S., & Houtrow, A. (2009, December). Understanding Factors Associated with Work Loss for Families Caring for CSHCN. Pediatrics, 124. doi: 10.1542/peds.2009-1255J

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: Nursing Facilities. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-NursingFacil ities-December2009.pdf

The Hilltop Institute, UMBC. (2009, December). Medicaid Long-Term Supports and Services in Maryland: The Autism Waiver. Baltimore, MD: Author. Retrieved July 6, 2010 from http://www.hilltopinstitu te.org/publications/DHMHL TSSChartBook-AutismWaiver -December2009.pdf

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National Alliance for Caregiving. (2009, November). Caregiving in the U.S. 2009: Executive Summary. Bethesda, MD: Author. Retrieved 17-Dec-09 from http://www.caregiving.org /data/CaregivingUSAllAges ExecSum.pdf

Denny-Brown, N. & Lipson, D.J. (2009, November). Early Implementation Experiences of State MFP Programs. Washington, DC: Mathematica Policy Research, Inc..

Ng, T., Harrington, C. & O’Malley, M. (2009, November). Medicaid Home and Community-Based Service Programs: Data Update. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved 8-Dec-09 from http://www.kff.org/medica id/7720.cfm

National Association of State Units on Aging. (2009, November). The Economic Crisis and Its Impact on State Aging Programs. Washington, DC: Author. Retrieved 17-Dec-09 from http://www.nasua.org/docu ments/TheEconomicCrisisan dItsImpactonStateAgingPro grams11.2009.pdf

Gimm, G., Andrews, K.L., Schimmel, J., Ireys, H.T. & Liu, S. (2009, October). Analysis of Medical Expenditures and Service Use of Medicaid Buy-In Participants, 2002-2005: Final Report. Washington, DC: Mathematica Policy Research, Inc..

Wallace, S.P., Benjamin, A.E., Villa, V.M. & Pourat, N. (2009, October). California Budget Cuts Fray the Long-Term Safety Net. Los Angeles, CA: UCLA Center for Health Policy Research.

Wallace, S.P., Villa, V.M. Smith, B.A., Satter, D.E., Pourat, N, Padilla-Frausto, D.I., Leos, R., Durazo, E., Benjamin, A.E. (2009, October). Community-Based Long-Term Care: Potential Consequences of California’s 2009 Budget Cuts. Los Angeles, CA: UCLA Center for Health Policy Research.

Solovieva, T.I., Walls, R.T., Hendricks, D.J. & Dowler, D.L. (2009, October). Cost of workplace accommodations for individuals with disabilities: With or without personal assistance services. Disability and Health Journal, 2(4), pp.196-205.

Paraprofessional Healthcare Institute. (2009, October). New York City’s Home Care Workforce: State Facts. Bronx, NY: Author.

Paraprofessional Healthcare Institute. (2009, October). Pennsylvania’s Direct-Care Workforce: State Facts. Bronx, NY: Author.

National Association of State Units on Aging. (2009, October). State of Aging: 2009 State Perspectives on the State Units on Aging Policies and Practices. Washington, DC: Author. Retrieved 17-Dec-09 from http://www.nasua.org/docu ments/StatePerspective200 9_000.pdf

MetLife Mature Market Institute. (2009, October). The 2009 MetLife Market Survey of Nursing Home, Assisted Living, Adult Day Services and Home Care Costs. Westport, CT: Author.

O’Malley Watts, M. (2009, October). The Community Living Assistance Services and Supports (CLASS) Act. Washington, DC: Kaiser Commission on Medicaid and the Uninsured. Retrieved 28-Oct-09 from http://www.kff.org/health reform/7996.cfm

Kronick, R.G., Bella, M. & Gilmer, T.P. (2009, October). The Faces of Medicaid III: Refining the Portrait of People with Multiple Chronic Conditions. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved 22-Oct-09 from http://www.chcs.org/publi cations3960/publications_ show.htm?doc_id=1058416

Shriver, M. & Center for American Progress. (2009, October). The Shriver Report: A Woman’s Nation Changes Everything. Washington, D.C.: Center for American Progress.

Kaiser Commission on Medicaid and the Uninsured. (2009, September). Advancing Access to Medicaid Home and Community-Based Services: Key Issues Based on a Working Group Discussion with Medicaid Experts. Washington, DC: Author. Retrieved 22-Sep-09 from http://www.kff.org/medica id/7970.cfm

Uscher-Pines, L., Hausman, A.J., Powell, S ., DeMara, P., Heake, G., Hagen, M.G. (2009, September). Disaster preparedness of households with special needs in southeastern Pennsylvania. American Journal of Preventive Medicine, 37(3), pp.227-230.

Summer, L. (2009, September). Efforts in States to Promote Medicaid Community-Based Services and Supports. Washington, DC: Kaiser Family Foundation. Retrieved 22-Sep-09 from http://www.kff.org/medica id/7969.cfm

PHI, PolicyWorks. (2009, September). Illinois's Direct-Care Workforce - State Facts. Bronx, NY: Author.

PHI, PolicyWorks. (2009, September). Iowa's Direct-Care Workforce - State Facts. Bronx, NY: Author.

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PHI, PolicyWorks. (2009, September). Massachusetts's Direct-Care Workforce - State Facts. Bronx, NY: Author.

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The Southwest Pennsylvania Partnership for Aging. (2009, September ). Principles of the Ideal Long Term Living System for Pennsylvania's Older Adults. Warrendale, PA: Author.

Mollica, R.L. (2009, September). State Medicaid Reimbursement Policies and Practices in Assisted Living. Washington, D.C.: National Center for Assisted Living. Retrieved 22-Oct-09 from http://www.ahcancal.org/n cal/news/releases/Pages/S tateMedicaidRateSettingMe thods.aspx

National Disability Rights Network. (2009, September). Decade of "Little Progress" Implementing Olmstead: Evaluating Federal Agency Impact After 10 Years Washington, DC: Author. Retrieved July 11, 2010 from http://www.ndrn.org/Decad e_of_Little_Progress_Impl ementing_Olmstead.pdf

National Council on Disability. (2009, August). Effective Emergency Management: Making Improvements for Communities and People with Disabilities. Washington, DC: Author.

Wells, S., Hedt, A., Chapman, S., Bakerjian, D., Fagin, C.M., Bryant, N., Toten, A., Goldbert, L. & Ruff, A. (2009, August). Perspectives On: Investing in California’s Direct Care Workforce by Increasing Geriatric Training Opportunities. Long Beach, CA: The SCAN Foundation.

Marin, B., Leichsenring, K., Rodrigues, R. & Huber, M. (2009, August). Who Cares? Care Coordination and Cooperation to Enhance Quality in Elderly Care in the European Union. Vienna, Austria: European Centre for Social Welfare Policy and Research.

Department of Banking, Insurance, Securities and Health Care Administration. (2009, July). Chapter 5: Long Term Care Services. 2009 The Health Resource Allocation Plan. Montpelier, VT: Author.

Tucker, A.M., & Johnson, K.E. (2009, July). Examining Rate Setting for Medicaid Managed Long-Term Care. Baltimore, MD: The Hilltop Institute, UMBC. Retrieved 9-Jun-10 from http://www.hilltopinstitu te.org/publications/A%20F ramework%20for%20State-Le vel%20Analysis%20of%20Dua ls_September%205%202008.p df

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Komisar, H.L., Tumlinson, A., Feder, J. & Burke, S. (2009, July). Long term care in health care reform: Policy options to improve both. Long Beach, CA: The SCAN Foundation.

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Kaye, H.S., Neri, M. & Wong, A. (2009, July). Telecommunication needs of Californians with disabilities: Final Report. San Francisco, CA: UCSF Disability Statistics Center.

Wallace, S.P., Padilla-Frausto, D.I. & Peter, S.E. (2009, June). Elder Economic Security Standard Index: Supplemental Home- and Community-Based Long erm Care Service Package Costs, California 2007. Los Angeles, CA: UCLA Center for Health Policy Research.

Bazelon Center for Mental Health Law. (2009, June). Still waiting…the unfulfilled promise of Olmstead: A call to action on the 10th anniversary of the Supreme Court’s decision. Washington, DC: Bazelon Center for Mental Health Law.

Gleckman, H. (2009, June). The Future of Long-Term Care: What Is Its Place in the Health Reform Debate? Los Angeles, CA: Urban Institute.

Gibson, B.E., Brooks, D., DeMatteo, D. & King, A. (2009, May). Consumer-directed personal assistance and 'care': Perspectives of workers and ventilator users. Disability & Society, 24(3), pp.317-330.

Livermore, G., Stapleton, D. & Claypool, H. (2009, May). Health insurance and health care access before and after SSDI entry. New York, NY: The Commonwealth Fund. Retrieved 20-May-09 from http://www.commonwealthfu nd.org/Content/Publicatio ns/Fund-Reports/2009/May/ Health-Insurance-and-Heal th-Care-Access-Before-and -After.aspx

Newacheck, P.W., Houtrow A.J., Romm, D.L., Kuhlthau, K.A., Bloom, S.R., Van Cleave, J.M., & Perrin J.M. (2009, May). The Future of Health Insurance for Children With Special Health Care Needs. Pediatrics, 123(5), pp.e940-e947. doi: 10.1542/peds.2008-2921

Guterman, S. & Drake, H. (2009, May). The long wait: The impact of delaying Medicare coverage for people with disabilities. (Volume 3). New York, NY: The Commonwealth Fund: The Commonwealth Fund. Retrieved 20-May-09 from http://www.commonwealthfu nd.org/Content/Publicatio ns/Perspectives-on-Health -Reform-Briefs/2009/May/T he-Long-Wait.aspx

Clinton, B., DeGaetano, E., Foster, A., Lautz, C.A., Ryan, L.A., Sullivan, C., Wasserman, K. & Reynolds, L. (2009, May). When no one cares: Why we need to save Connecticut’s direct care workforce. Norwich, CT.: Senior Resources Agency on Aging.

Hartnett, J.T., Morris, M. & Stengel, J. (2009, April). Creating a roadmap out of poverty for Americans with disabilities: A report on the relationship of the Employment and Training Administration’s workforce development system and local asset-building coalitions. Washington, DC: U.S. Department of Labor.

Harrington, C., Kang, T. & Chang, J. (2009, April). Factors Associated With Living in Developmental Centers in California. Intellectual and Developmental Disabilities, 47(2), pp.108-124.

Genworth Financial, Inc. (2009, April). Genworth 2009 Cost of Care Survey: Home Care Providers, Adult Day Health Care Facilities, Assisted Living Facilities and Nursing Homes. Richmond, VA: Author.

Wiener, J.M. (2009, April). Long-Term Care: Options In An Era Of Health Reform. Washington, DC: The SCAN Foundation. Retrieved June 15th, 2009 from http://www.pascenter.org/ documents/Wiener_2009.ppt

Wiener, J.M. (2009, April). Long-term care: Options in an era of health reform. Washington, DC: The SCAN Foundation.

National Alliance for Caregiving. (2009, April). The Evercare® Survey of the Economic Downturn and its Impact on Family Caregiving. Bethesda, MD: Author. Retrieved 17-Dec-09 from http://www.caregiving.org /data/EVC_Caregivers_Econ omy_Report%20FINAL_4-28-0 9.pdf

Toleos, A. (2009, March). Report Offers Workforce Data Collection Recommendations for Long-Term Care [press release]. Retrieved 23rd June, 2010 from http://phinational.org/ar chives/report-offers-work force-data-collection-rec ommendations-for-ltc/

Mollica, R.L., Kassner, E., Walker, L. & Houser, A.N. (2009, March). Taking the long view: Investing in Medicaid home and community-based services is cost-effective. Washington, D.C.: AARP Public Knowledge Management.

Eisenman, D.P., Zhoe, Q., Ong, M., Asch, S., Glik, D., Long, A. (2009, March). Variations in disaster preparedness by mental health, perceived general health, and disability status. Disaster Medicine and Public Health Preparedness [Disaster Med Public Health Prep], 3(1), pp.33-41.

PHI Northern New England. (2009, March). Vermont's Direct-Care Workforce - State Facts. Vermont: Author.