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PAS Library Publications

A list of important publications with links to abstracts and information about obtaining the complete publication.

Promising practices: Home and community-based services for the elderly and people with disabilities. Various authors, National Conference of State Legislators, 2002
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Ticket to Work and Work Incentives Advisory Panel (2004). Annual report to the President and Congress: Year Four. Washington, DC: Author.
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Wages and Benefits Return of Investment Calculator. Paraprofessional Healthcare Institute.
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Acosta, P. and Hendrickson, L. (2008). Advancing Medicaid HCBS policy: From capped consumer to consumer-directed. New Brunswick, NJ: Rutgers Center for State Health Policy.
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Adams, M., Beatty, P. (1998). Consumer-directed personal assistance services: Independent living, community integration and the vocational rehabilitation process. Journal of Vocational Rehabilitation. 10(2) 93-101
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Agree, E.M., Freedman, V.A., Cornman, J.C., Wolf, D.A. & Marcotte, J.E. (2005). Reconsidering substitution in long-term care: When does assistive technology take the place of personal care? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 60B, 5, S272-S280.
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Albert, S.M. & Levine, C. (2005). Family caregiver research and the HIPAA factor. Gerontologist, 45(4), 432-437.
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Albert, S.M., Simone, B., Brassard, A., Stern, Y. & Mayeux, R. (2005). Medicaid home care services and survival in New York City. Gerontologist, 45(5), 609-616.
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Amador, T.K., Travis, S.S., McAuley, W.J., Bernard, M. & McCutcheon, M. (2006). Recruitment and retention of ethnically diverse long-term family caregivers for research. Journal of Gerontological Social Work, 47(3/4), 139-152.
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American Association of Retired Persons. (2006). European experiences with long-term care: France, the Netherlands, Norway and the United Kingdom. Washington, D.C.: AARP Public Policy Institute. Retrieved January 13, 2007 from:
http://www.aarp.org/research/international/report/leadershipstudy_reports.html
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Andersen, R. & Newman, J.F. (2005). Societal and individual determinants of medical care utilization in the United States. The Milbank Quarterly, 83(4), Online-only.
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Anderson, W. L., Wiener, J.M., Greene, A.M., & O'Keeffe, J. (2004, April). Direct service workforce activities of the Systems Change grantees. RTI International. Retrieved February 12, 2007 from: http://www.hcbs.org/files/35/1708/CMSWorkforce.pdf
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Anderson, W.L., Wiener, J.M. & Khatutsky, G. (2006). Workforce issues and consumer satisfaction in Medicaid personal assistance services. Health Care Financing Review, 28, 1, 87-101. Retrieved November 21, 2006 from:
http://www.cms.hhs.gov/
HealthCareFinancingReview/09_2006%20Edition.asp#TopOfPage
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Angley, P. & Newman, B. (2002). Who will care? The recruitment and retention of community care (aged and disability) workers. Fitzroy Vic., Australia: Brotherhood of St. Laurence.
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Anttonen, A., Baldock, J. & Sipilä, J. (Eds.). (2003). The young, the old and the state: Social care systems in five industrial nations. Cheltenham, UK: Edward Elgar Publishing.
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Argiropolis, M., Nielsen, A. & Ricker, R. (2006). Eldercare in New Hampshire: Labor market trends and their implications. New Hampshire Economic and Labor Market Information Bureau: Concord, NH.
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Bachman, J. (2006). Pay-for-performance initiatives and B. F. Skinner. Psychiatric Services. 57(2) 273
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Bailey, C. (2004). Minnesota's 2003 PCA consumer survey. Saint Paul, MN: Wilder Research Center.
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Bainbridge, D., Traci, M.A., Brod, R. & Seekins, T. (2005, December 13). Why personal assistant staff leave: Factors that increase turnover. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Baldridge, D.C., & Veiga, J.F. (2006). The impact of anticipated social consequences on recurring disability accommodation requests. Journal of Management, 32 (1), 158-179.
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Barcus, J.M., & Targett, P. (2003). Maximizing employee effectiveness through use of Personal Assistance Services at the workplace. Journal of Vocational Rehabilitation, 18(2), 99-106.
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Barker, J.C. (2002). Neighbors, friends, and other nonkin caregivers of community-living dependent elders. Journal of Gerontology B: Social Sciences, 57(3), S158-S167.
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Barnes, C. & Mercer. G. (2006). Independent futures: Creating user-led disability services in a disabling society. Bristol, UK: Policy Press.
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Barnett, K. (2004). Personal assistance services study: Report of findings.
Richmond, VA: Virginia Commonwealth University, Survey and Evaluation Research Laboratory.
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Barrett, E. (2005). Family-directed support network for families of people with disabilities. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/
itemdetail.asp?filterType=none&
filterByDID=-99&sortByDID=1&sortOrder=ascending&itemID=CMS030406
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Barrett, J.C. (2003). Being an effective workplace personal assistant. Journal of Vocational Rehabilitation, 18(2), 93-97.
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Barrett, Jocelyn. (2004). "Common sense and patience: Arlene's story." Our Stories series, Maine Personal Assistance Services Association
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Batljan, I. & Lagergren, M. (2005). Future demand for formal long-term care in Sweden. European Journal of Ageing, 2, 3, 216-224.
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Beauchamp, N., Irvine, B., Seeley, J. & Johnson, B. (2005). Worksite-based internet multimedia program for family caregivers of persons with dementia. Gerontologist, 45, 6, 793-801.
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Belknap, P.J.; Korwin, K.A. & Long, N.M. (1995). Job coaching: A means to reduce unemployment and underemployment in the deaf community. Journal of the American Deafness & Rehabilitation Association. Spring Vol 28(4) 21-38.
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Bell, H.S. (2003). Creating financial incentives to serve partial benefit recipients in the Ticket to Work program. Washington, D.C.: Urban Institute.
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Benach, J., Amable, M., Muntaner, C. & Benavides, F.G. (2002). The consequences of flexible work for health: Are we looking at the right place? Journal of Epidemiology and Community Health, 56, 405-406.
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Benjamin, A.E. (2001). Consumer-directed services at home: A new model for persons with disabilities. Health Affairs, 20 (6): 80-95.
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Benjamin, A.E. & Matthias, R.E. (2004). Work-life differences and outcomes for agency and consumer-directed home care workers. Gerontologist, 44 (4): 479-88.
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Better Jobs Better Care. (2007). FutureAge. Washington, D.C.: Institute for the Future of Aging Services. Retrieved on April 30, 2007, from: http://www.bjbc.org/page.asp?pgID=224
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Binette, J. & Dinger, E.L. (2008). The 2008 Hawaii health and long-term care survey. Washington, D.C.: AARP Knowledge Management. Retrieved March 22, 2008 from:
http://www.aarp.org/research/longtermcare/costs/hi_ltc_08.html

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Binette, J. (2008). Long-term care in Tennessee: A survey of self-identified registered likely voters age 18+. Washington, D.C.: AARP Knowledge Management. Retrieved March 22, 2008 from:
http://www.aarp.org/research/longtermcare/programfunding/tn_ltc_08.html

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Black, W.E., Liu, S., & Ireys, H.T. (2006, May). How much are Medicaid Buy-In participants earning? Working with Disability Issue Brief, 1. Retrieved July 5, 2006 from Mathematica Policy Research web site: http://www.mathematica-mpr.com/publications/PDFs/howmuchmedicaid
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Blitz, C. L., Mechanic, D. (2006). Facilitators and barriers to employment among individuals with psychiatric disabilities: A job coach perspective. Work: Journal of Prevention, Assessment & Rehabilitation. 26(4) 407-419
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Blume. R. (March, 2007). Money Follows the Person Toolbox: Services for Individuals with Developmental Disabilities. Rutgers Center for State Health Policy.
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Boris, E. & Klein, J. (2006). Organizing home care: Low-waged workers in the welfare state. Politics & Society, 34, 1, 81-108.
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Boris, E., Chung, G., Delp, L., Matthias, R. & Zubin, C. (2004, May). Workforce needs in California's healthcare system. Briefing Paper. California Policy Research Center, Berkeley, CA.
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Bowman, V. (2001). Home care, home support, personal assistance: The co-operative model in context. Occasional papers, BCI Institute for Co-operative Studies, University of Victoria, Canada. Retrieved November 2, 2006 from: http://web.uvic.ca/bcics/research/pdf/pub-4-12Apr01.pdf
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Bradley, E.H., Webster, T.R., Baker, D., Schlesinger, M., Inouye, S.K., Barth, M.C., Lapane, K.L., Lipson, D., Stone, R. & Koren, M.J. (2004). Translating research into practice: Speeding the adoption of innovative health care programs. Issue Brief (Commonwealth Fund), 724, 1-12.
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Brannon, D., Barry, T., Kemper, P., Schreiner, A. & Vasey, J. (2007). Job perceptions and intent to leave among direct care workers: Evidence from the Better Jobs Better Care demonstrations. Gerontologist, 47, 6, 820-829.
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Bratesman, S. (2000). Direct care workforce challenges: Improving the recruitment and retention of workers who provide direct support to persons with disabilities. Edward S. Muskie School of Public Service, University of Southern Maine.
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Braun, K.L., Cheang, M. & Shigeta, D. (2005). Increasing knowledge, skills, and empathy among direct care workers in elder care: A preliminary study of an active-learning model. Gerontologist, 45, 1, 118-124.
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Brega, A.G., Goodrich, G.K., Powell, M.C. & Grigsby, J. (2005). Racial and ethnic disparities in the outcomes of elderly home care recipients. Home Health Care Services Quarterly, 24, 3, 1-21.
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Bridges, T. & Regan, C. (2006). Subsidizing health insurance coverage for the home care workforce in two Wisconsin counties: An analysis of options. Bronx, New York: Paraprofessional Healthcare Institute. Retrieved June 26, 2007, from: http://www.directcareclearinghouse.org/download/HealthInsCovWIreport.pdf
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Brooks-Lane, N., Hutcheson, S., Revell, G. (2005) Supporting consumer directed employment outcomes. Journal of Vocational Rehabilitation. 23(2) 123-134
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Brown, J.G., Trinkoff, A., Rempher, K., McPhaul, K., Brady, B., Lipscomb, J. & Muntaner, C. (2005, May). Nurse's inclination to report work-related injuries: Organization, work-group and individual factors associated with reporting. American Association of Occupational Health Nurses Journal, 53 (5), 213-217.
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Brown, R., Lepidus Carlson, B., Dale, S., Foster, L., Phillips, B. & Schore, J. (2007). Cash and Counseling: Improving the Lives of Medicaid Beneficiaries Who Need Personal Care or Home- and Community-Based Services. Princteon, NJ: Mathematica Policy Research, Inc. Retrieved Dec. 9, 2007 from: http://www.mathematica-mpr.com/publications/
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Browne, J. & Russell, S. (2005). My home, your workplace: People with physical disability negotiate their sexual health without crossing professional boundaries. Disability & Society, 20, 4, 375-388.
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Bruen, W. (2005). Policy update. Aged care in Australia: Past, present and future. Australasian Journal on Ageing, 24, 3, 130-133.
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Bruyère, S. M.; Erickson, W. A.; VanLooy, S. A. (2006). The Impact of Business Size on Employer ADA Response. Rehabilitation Counseling Bulletin. 49(4) 194-206.
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Buhr, G.T., Kuchibhatla, M. & Clipp, E.C. (2006). Caregivers' reasons for nursing home placement: Clues for improving discussions with families prior to the transition. Gerontologist, 46, 1, 52-61.
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Burack-Weiss, A. (2006). The caregiver's tale: Loss and renewal in memoirs of family life. New York: Columbia University Press.
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Burke, S.P., Feder, J. & Vander de Water P.N. (eds.) (2005, November). Developing a better long-term care policy: A vision and strategy for America 's future. Washington: National Academy of Social Insurance.
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Burns, B. (2006). Comparing long-term care insurance policies: Bewildering choices for consumers. AARP Public Policy Institute Issue Paper. Washington, D.C.: American Association of Retired Persons. Retrieved on June 23, 2006 from: http://www.aarp.org/research/longtermcare/insurance/2006_13_ltci.html
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Burton, C. & Bridges, K. (2007). Long-term care: An AARP survey of New York residents age 50+. Washington, D.C.: AARP Public Policy Institute. Retrieved April 30, 2007 from:
http://www.aarp.org/research/longtermcare/costs/ny_ltc_2007.html
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Butler, S.S., Kaye, L.W., Ruffin, L. & Downey, R. (2005). Depression and caregiver burden among rural elder caregivers. Journal of Gerontological Social Work, 46, 2, 47-63.
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California Center for Long Term Care Integration. (2003). Creating better systems of care for people with chronic conditions: A building block approach. Los Angeles, CA: California Center for Long Term Care Integration. Retrieved on December 7, 2006 from: http://www.ltci.ucla.edu/ccltciproducts/Chronic%20Care%20Integration
%20Planning%20Guide-%20July%202003.pdf
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California Center for Long Term Care Integration. Long term care integration primer. Los Angeles, CA: California Center for Long Term Care Integration. Retrieved on December 7, 2006 from: http://www.ltci.ucla.edu/ccltciproducts/Integration%20Primer.pdf
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Cameron, C. & Moss, P. (2007). Care work in Europe: Current understandings and future directions. Oxford, UK: Routledge.
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Capella, M. E. (2003). Comparing Employment Outcomes of Vocational Rehabilitation Consumers with Hearing Loss to Other Consumers and the General Labor Force. Rehabilitation Counseling Bulletin. 47(1) 24-33
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Capella-McDonnall, M. E. (2005). Predictors of Competitive Employment for Blind and Visually Impaired Consumers of Vocational Rehabilitation Services. Journal of Visual Impairment & Blindness. 99(5) 303-315
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Capella-McDonnall, M. E. (2005). The Ticket to Work Program: Employment Networks' Views on Serving Beneficiaries Who Are Blind or Visually Impaired. Journal of Visual Impairment & Blindness. 99(6) 336-344
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Capitman, J., Bishop, C., and Casler, R. (2005). Long-term care quality: Historical overview and current initiatives. Washington, DC: National Quality Forum.
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Carlson, B.L., Foster, L., Dale, S.B. and Brown, R. (2007). Effects of Cash and Counseling on personal care and well-being. Health Services Research, 42, 1, 467-487.
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Casper, E. S.; Carloni, C.(2007). Assessing the Underutilization of Supported Employment Services. Psychiatric Rehabilitation Journal. 30(3) 182-188
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Castle, N.G. & Engberg, J. (2006). Organizational characteristics associated with staff turnover in nursing homes. Gerontologist, 46, 1, 62-73.
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Castro, C. M., King, A. C., Housemann, R., Bacak, S. J., McMullen, K. M., & Brownson, R. C. (2007). Rural family caregivers and health behaviors: results from an epidemiologic survey. Journal of Aging and Health, 19, 1, 87-105.
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Center for Disability Issues and the Health Professions, Center for Healthcare Strategies, and Lewin Group (2005). Performance standards for Medi-Cal care organizations serving people with disabilities and chronic conditions. California HealthCare Foundation, Oakland, CA.
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Center for Practical Bioethics. (1999). Implementing end-of-life treatment preferences across clinical settings. State Initiatives in End-of Life Care, Issue 3. Kansas City, MO: Center for Practical Bioethics. Retrieved on December 7, 2006 from:
http://www.ltci.ucla.edu/ccltciproducts/Chronic%20Care%20Planning%20Guide-%20July%202003.pdf
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Center for Workers with Disabilities (n.d.). PAS eligibility criteria: Technical assistance for the Medicaid Infrastructure Grants. Retrieved May 25, 2006, from http://www.cms.hhs.gov/TWWIA/Downloads/PASeligibilitycriteria.pdf
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Center for Workers with Disabilities. (2002). Building work incentives using Section 1902(r)(2) of the Medicaid statute. (Report No. 02-2). Washington, D.C.: Author.
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Center for Workers with Disabilities. (n.d.) Overview of MBI for working individuals with disabilities. Washington, D.C.: Author.
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Center on an Aging Society (2004, June). Workers affected by chronic conditions: How can workplace policies and programs help? (Issue Brief Number 7). Washington DC: Georgetown University.
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Centers for Disease Control and Prevention. (2008). Assuring Healthy Caregivers, A Public Health Approach to Translating Research into Practice: The RE-AIM Framework Atlanta, GA: Centers for Disease Control and Prevention.
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Centers for Medicare and Medicaid Services. (2004). Increasing service flexibility for caregivers. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/itemdetail.asp?
filterType=none&filterByDID=-99&sortByDID=1&
sortOrder=ascending&itemID=CMS030383
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Centers for Medicare and Medicaid Services. (2004). Supporting family caregivers in ethnic minority communities. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from
http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/itemdetail.asp?
filterType=none&filterByDID=-99&sortByDID=1&sortOrder=ascending&itemID=CMS030409
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Chaney, R. (2003). Promoting community integration: Barriers and best practices from seven state recipients of Olmstead planning grants. Center for Health Care Strategies, Inc.
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Cinsavich, S. & Rado, G. (2002, April). Medicaid Buy-In: Concept and implementation (Policy Brief Volume 4, Number 2). Boston, MA: Institute for Community Inclusion.
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Clark, H. & Spafford, J. (2001). Piloting choice and control for older people: An evaluation. Bristol, UK: Policy Press.
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Clark, H., Gough, H. & Macfarlane, A. (2004). 'It pays dividends:' Direct payments and older people. Bristol, UK: Policy Press.
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Claypool, H. & O’Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: A review of four state programs. Washington, D.C.: Kaiser Family Foundation. Retrieved March 24, 2008, from: http://www.kff.org/medicaid/7757.cfm

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Coble-Temple, A. (Summer, 2002). Understanding the differences between worksite personal assistance services (PAS) and personal PAS on the job: Why this is important to rehabilitation? Rehabilitation Psychology News, 29 (4).
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Coble-Temple, A., Mona, L.R., & Bleecker, T. (2003). Accessing personal assistance services in the workplace: Struggles and successes. Journal of Vocational Rehabilitation, 18(2), 113-123.
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Cohen, A., Timmons, J.C. & Fesko, S.L. (2005). The Workforce Investment Act: How policy conflict and policy ambiguity affect implementation Journal of Disability Policy Studies, 15, 4, 221-230.
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Coleman, B., Fox-Grage, W., & Folkemer, D. (2003) State Long-Term Care: Recent Developments and Policy Directions 2003 Update. National Conference of State Legislators.
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Coleman, B.J. (2004). Navigating the care system: A guide for providers to help family caregivers.San Francisco, CA.: Family Caregiver Alliance. Retrieved March 13, 2006, from:
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1073
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Coogle, C.L., Parham, I.A., Jablonski, R. & Rachel, J.A. (2007). The Value of Geriatric Care Enhancement Training for Direct Service Workers. Gerontology & Geriatrics Education, 28, 2, 109-121.
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Costa-Font, J. & Patxot, C. (2005). "The design of the long-term care system in Spain: Policy and financial constraints." Social Policy and Society, 4, 1, 11-20.
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Cousineau, M.R. (2000). Providing health insurance to IHSS providers (home care workers) in Los Angeles County. University of Southern California.
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Craft Morgan, J., Haviland, S.B., Allyson Woodside, M. & Konrad, T.R. (2007). Fostering Supportive Learning Environments in Long-Term Care: The Case of WIN A STEP UP. Gerontology & Geriatrics Education, 28, 2, 55-75.
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Cranford, C. (2004, August 17). Security without Flexibility: Personal Care Workers and People with Disabilities in Ontario. Paper presentation at the 99th Annual Meeting of the American Sociological Association.
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Cranford, Cynthia J. 2005. "From Precarious Workers to Unionized Employees and Back Again?: The Challenges of Organizing Personal-Care Workers in Ontario." Pp. 96-135 in Self-Employed Workers Organize: Law, Unions and Policy, by Cynthia J. Cranford, Judy Fudge, Eric Tucker and Leah F. Vosko. Montreal: McGill-Queens University Press.
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Crowley, J.S. (2006). Medicaid long-term services reforms in the Deficit Reduction Act. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7486.cfm
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Crudden, A., Hanye, R. (1999). Employment differences among persons with congenital and adventitious vision loss. Journal of Vocational Rehabilitation. 12(1) 19-23
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Crudden, A., Sansing, W., Butler, S. (2005). Overcoming Barriers to Employment: Strategies of Rehabilitation Providers. Journal of Visual Impairment & Blindness. 99(6) 325-335
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Crudden, A.; McBroom, L. W. (1999). Barriers to employment: A survey of employed persons who are visually impaired. Journal of Visual Impairment & Blindness. 93(6) 341-350.
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Dal Santo, T., Scharlach, A. & Fox, P. (2005, November 19). Implementation of the National Family Caregiver Support Program: How has caregiver service use changed in California? Presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Dale, S., Brown, R. (2006, August). Reducing Nursing Home Use Through Consumer-Directed Personal Care Services. Medical Care. 44(8):760-767.
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Dale, S., Brown, R., Phillips, B. & Carlson, B. (2003, June). The experiences of workers hired under consumer direction in Arkansas. Final Report, Mathematica Evaluation Reports: 1-56.
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Dale, S., Brown, R., Phillips, B. & Carlson, B. (2005, August). The experiences of workers hired under Cash and Counseling: Findings from Arkansas, Florida, and New Jersey. Final Report, Mathematica Evaluation Reports: 1-98.
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Dale, S., Brown, R., Phillps, B. & Carlson, B.L. (2005). How do hired workers fare under consumer-directed personal care? Gerontologist, 45, 5, 583-592.
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Daly, M. (2002). Care as a good for social policy. Journal of Social Policy, 31, 2, 251-270.
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Daly, Mary (Ed.). (2001). Care Work: The Quest for Security. Geneva: International Labour Office. Retrieved June 20, 2005, from http://www.ilo.org/public/english/protection/ses/info/publ/care.htm
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Dautel, P., & Frieden, L. (1999). Consumer choice and control: Personal attendant services and supports in America. Report of the Blue Ribbon Panel on personal assistance services. Houston, TX: Independent Living Research Utilization.
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Davey, A., Johansson, L., Malmberg, B. & Sundström, G. (2006). Unequal but equitable: An analysis of variations in old-age care in Sweden. European Journal of Ageing, 3, 1, 34-40.
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Davis, S.R. & Ireys, H.T. (2006). How does the Medicaid Buy-In Program relate to other federal efforts to improve access to health coverage for adults with disabilities? Mathematica Policy Research, Inc., Work and Insurance in Brief, Number 2. Retrieved on November 14, 2006 from: http://www.mathematica-mpr.com/publications/pdfs/buyinprogram.pdf
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Dellve, L., Lagerstrom, M. & Hagberg, M. (2003). Work-system risk factors for permanent work disability among home-care workers: a case-control study. International Archives of Occupational and Environmental Health 76, 216-24.
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Delp, L. & Quan, K. (2002). Homecare worker organizing in California: An analysis of a successful strategy. Labor Studies Journal, 27, 1, 1-23.
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Denton, M. A., Zeytinoglu, I. U., & Davies, S. (2002). Working in clients' homes: the impact on the mental health and well-being of visiting home care workers. Home Health Care Services Quarterly 21(1), 1-27.
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Denton, M., Zeytinoglu, I. U., Davies, S., & Lian, J. (2002). Job stress and job dissatisfaction of home care workers in the context of health care restructuring. International Journal of Health Services 32:327-357.
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Denton, M., Zeytinoglu, I.U., Davies, S. & Hunter, D. (2005). Where have all the home care workers gone? Research Paper No. 140. Hamilton, Ontario: SEDAP (Program for Research on Social and Economic Dimensions of an Aging Population). Retrieved July 21, 2006 from: http://ideas.repec.org/p/mcm/sedapp/128.html
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Department of Health and Human Services and Department of Labor. (2003). The future supply of long-term care workers in relation to the aging baby boom generation: Report to Congress. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP). Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/ltcwork.htm
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Desonia, R. (2003) Is community care a civil right? The unfolding saga of the Olmstead decision. National Health Policy Forum.
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Dinger, E.L. & Binette, J. (2008). Health care reform and long-term care: A survey of AARP members in New Mexico. Washington, D.C.: AARP Knowledge Management. Retrieved March 22, 2008 from: ttp://www.aarp.org/research/longtermcare/programfunding/nm_hcr_ltc_08.html

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Dixon, J. M. (1983). Attitudinal barriers and strategies for overcoming them. Journal of Visual Impairment & Blindness. 77(6) 290-292
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Dixon, Kl, Kruse, D., & Van Horn, C. (2003). Restricted access: A survey of employers about people with disabilities and lowering barriers to work (Work Trends Survey, 3:6). New Brunswick, NJ: Rutgers University, John J. Heldrich Center for Workforce Development.
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Donelan, K., Hill C.A., Hoffman, C., Scoles, K., Feldman, P.H., Levine, C. & Gould, D. (2002). Challenged to care: Informal caregivers in a changing health system. Health Affairs, 21 (4), 222-231.
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Doty, M., Koren, M.J. & Davis, K. (2008). Health care opinion leaders views on the future of long-term care. New York, NY: The Commonwealth Fund. Commonwealth Fund publication # 1157, Vol. 10. Retrieved July 23, 2008 from: http://www.commonwealthfund.org/publications/publications_show.htm?doc_id=695883

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Doty, P. (2004, October). Consumer directed home care: Effects on family caregivers. Policy Brief, Family Caregiver Alliance, San Francisco, CA.
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Doty, P. (1998). The cash and counseling demonstration: An experiment in consumer-directed personal assistance services. American Rehabilitation, Summer-Autumn. Retrieved November 29, 2006, from http://www.hhp.umd.edu/AGING/CCDemo/Publications/dotyRehab.html
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Driscoll, M. P., Rodger, S. A., de Jonge, D. M. (2001). Factors that prevent or assist the integration of assistive technology into the workplace for people with spinal cord injuries: Perspectives of the users and their employers and co-workers. Journal of Vocational Rehabilitation. 16(1) 53-66
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Duffy, Niev. (2004, October). Keeping workers covered: Employer-provided health insurance benefits in the developmental disabilities field. JFK, Jr. Institute for Worker Education, City University of New York, New York.
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Dulio, A., Perry, M., Claypool, H. & O’Malley, M. (2008). Consumer direction of personal assistance services programs in Medicaid: Insights from enrollees in four states. Washington, D.C.: Kaiser Family Foundation. Retrieved March 24, 2008, from: http://www.kff.org/medicaid/7756.cfm

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Ebenstein, W. (2006). Health insurance coverage of direct support workers in the developmental disabilities field. Mental Retardation, 44, 2, 128-134.
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Eborall, C. (2003). Summary of the first annual report of the Topss England Workforce Intelligence Unit, 2003. Topss England, Leeds, England.
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Eiken, S. (2004, November). Promising practices in long term care systems reform: Common factors of systems change. Washington, D.C.: Centers for Medicare & Medicaid Services. Retrieved December 11, 2006 from: http://www.cms.hhs.gov/PromisingPractices/Downloads/commonfactors.pdf
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Enbar, E.G., Fred, M.A., Miller, L., Naiditch, Z. (2004). A nationwide study of deinstitutionalization & community integration: A special report of the public policy and legal advocacy programs Equip for Equality, Illinois. (233 pages)
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Escovitz, K.; Donegan, K.; Granger, B. (2006) Staff Presence in job Interviews Is Still Suspect. Psychiatric Rehabilitation Journal. 30(1) 9-10
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Evers, A., Halverlnen, R., Lelchsenring, K. & Wlstow, G. (1997). Developing quality in personal social services: Concepts, cases and comments. Aldershot, UK: Ashgate Publishing.
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Feder, J., Komisar, H.L. & Friedland, R.B. (2007). Long-term care financing: Policy options for the future. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved June 25, 2007, from: http://ltc.georgetown.edu/forum/ltcfinalpaper061107.pdf
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Feinberg, L.F, Newman, S.L., Gray, L. & Kolb, K.N. (2004, November) The state of the states in family caregiver support: A 50-state study. Family Caregiver Alliance, San Francisco, CA.
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Feinberg, L.F., Wolkwitz, K. & Goldstein, C. (2006). Ahead of the curve: Emerging trends and practices in family caregiver support. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Feldman, P.H., Nadash, P. & Gursen, M. (2001). Response to improving communication between researchers and policy makers in long term care: Or researchers are from Mars; Policy makers are from Venus Reply. Gerontologist, 41 (6), 831.
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Ferrari, J.R. (2004). Australian eldercare providers: Comparing volunteers and temporary staff on work environment, interpersonal relationships, and self-efficacy. Evaluation & the Health Professions, 27, 4,383-397.
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Fishman, E., & Cooper, B. (2002). Medicaid Buy-In options: Helping persons with severe disabilities and chronic conditions to work. New York: Mount Sinai School of Medicine.
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Flannery, K. B., Slovic, R., Treasure, T., Ackley, D., Lucas, F. (2002). Collaboration and partnership to improve employment outcomes. Journal of Vocational Rehabilitation. 17(3) 207-215
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Folbre, N. (2006). Demanding quality: Worker/consumer coalitions and "High Road" strategies in the care sector. Politics & Society, 34, 1, 11-32.
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Folkemer, D. & Coleman, B. (2006). Home care quality: Emerging state strategies to deliver person-centered services. AARP Public Policy Institute Issue Paper: Washington, D.C.
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Folkemer, D., Jensen, A., Silverstein, R., & Straw, T. (2002). Medicaid Buy-In Programs: Case studies of early implementer states. Washington, D.C.: U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and George Washington University.
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Folkemer, D., Jensen, A., Silverstein, R., & Straw, T. (2002). The Medicaid Buy-In Program: Lessons Learned from Nine Early Implementer States. Washington, D.C.: U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and George Washington University.
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Foster, L., Brown, R., Phillips, B. & Carlson, B.L. (2003, August). Easing the burden of caregiving: The impact of consumer direction on primary informal caregivers in Arkansas. . Washington, D.C.: Mathematica Policy Research, Inc. Retrieved June 20, 2005. Executive summary available from http://aspe.hhs.gov/daltcp/reports/easinges.htm
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Foster, L., Brown, R., Phillips, B. & Carlson, B.L. (2005). Easing the burden of caregiving: The impact of consumer-direction on primary informal caregivers in Arkansas. Gerontologist, 45, 4, 474-485.
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Foster, L., Brown, R., Phillips, B., Schore, J. & Carlson, B.L. (2003, March). Improving the quality of Medicaid personal assistance through consumer direction. Health Affairs, Supplemental Web Exclusives: W3-162-175.
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Foster, L., Dale, S.B. and Brown, R. (2007). How caregivers and workers fared in Cash and Counseling. Health Services Research, 42, 1, 510-532.
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Fox-Grage, W., Folkemer, D., & Lewis, J. (2003) The States response to the Olmstead decision: How are states complying? National Conference of State Legislators.
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Francis, J. & Netten, A. (2004). Raising the quality of home care: A study of service users' views. Social Policy and Administration, 38, 3, 290-305.
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Fried, T.R., Bradley, E.H., O’Leary, J.R. & Byers, A.L. (2005). Unmet desire for caregiver-patient communication and increased caregiver burden. Journal of the American Geriatrics Society, 53, 1, 59-65.
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Friedman, S.M., Steinwachs, D.M., Temkin-Greener, H. & Mukamel, D.M. (2006). Informal caregivers and the risk of nursing home admission among individuals enrolled in the Program of All-Inclusive Care for the Elderly. Gerontologist, 26, 4, 456-463.
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Furniss, F., Lancioni, G., Rocha, N., Cunha, B., Seedhouse, P., Morato, P., O'Reilly, M. F. (2001). VICAID: Development and evaluation of a palmtop-based job aid for workers with severe developmental disabilities. British Journal of Educational Technology. 32(3) 277-287
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Gamble, M. J., Dowler, D. L., Hirsh, A. E. (2004). Informed decision making on assistive technology workplace accommodations for people with visual impairments. Work: Journal of Prevention, Assessment & Rehabilitation. 23(2) 123-130.
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Garcia-Iriarte, E.; Balcazar, F.; Taylor-Ritzler, T.(2007). Analysis of case managers' support of youth with disabilities transitioning from school to work. Journal of Vocational Rehabilitation. (3) 129-140
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Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer's disease during the transition to institutionalization? Results from the New York University Caregiver Intervention Study. Journal of the American Geriatrics Society, 56, 3, 421-428.
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Geiger-Brown, J., Muntaner, C., Lipscomb, J. & Trinkoff, A. (2004, October). Demanding work schedules and mental health in nursing assistants working in nursing homes. Work and Stress, 18 (4), 292-304.
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Geiger-Brown, J., Muntaner, C., McPhaul, K., Lipscomb, J. & Trinkoff, A. (2007). Abuse and violence during home care work as predictor of worker depression. Home Health Care Services Quarterly, 26,1, 59-77.
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General Accounting Office (December 2005) Nursing Homes: Despite increased oversight, challenges remain in ensuring high-quality care and resident safety. Washington DC: General Accounting Office. GAO-06-117.
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Genworth Financial (2008). Genworth Financial 2008 Cost of Care Study: Home care providers, adult day health care facilities, assisted living facilities and nursing homes. Richmond, VA: Rutgers Center for State Health Policy.
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Georgetown University Long-Term Care Financing Project. (2007). Medicaid and long term care: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved January 16, 2007, from:
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Georgetown University Long-Term Care Financing Project. (2007). Medicaid's spousal impoverishment protections: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. February 5, 2007, from: http://ltc.georgetown.edu/papers.html
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Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet (updated). Washington, D.C.: Georgetown University Long-Term Care Financing Project. February 5, 2007, from: http://ltc.georgetown.edu/papers.html
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Georgetown University Long-Term Care Financing Project. (2007). National spending for long-term care: Fact sheet. Washington, D.C.: Georgetown University Long-Term Care Financing Project. Retrieved January 16, 2007, from: http://ltc.georgetown.edu/papers.html
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Gershon, R.R.M., Sherman, M., Rosen, J., Qureshi, K., Barrera, M., Gebbie, & Brandt-Rauf, P. (2005, December 12). Bloodborne pathogen exposure in non-hospital based nurses. Presentation at the 133rd Annual Meeting of the American Public Health Association.
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Gervey, R. (2006). "Staff Presence in Job Interviews Is Still Suspect": Reply. Psychiatric Rehabilitation Journal. 30(1) 10
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Gervey, R.; Kowal, H.(2005). The Job Developer's Presence in the Job Interview: Is It Helpful or Harmful to Persons with Psychiatric Disabilities Seeking Employment? Psychiatric Rehabilitation Journal. 29(2) 128-131
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Getzel, E. E., Gugerty, J. J.; McManus, S.(2006). Applications for Youth with Learning Disabilities. Wehman, P. Life beyond the classroom: Transition strategies for young people with disabilities (4th ed.). (pp. 475-504). Baltimore, MD, US: Paul H Brookes Publishing xxx, 719 pp.
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Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved June 26, 2007 from:
http://www.aarp.org/research/housing-mobility/caregiving/ib82_caregiving.html
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Gibson, M.J. & Houser, A.N. (2007). Valuing the invaluable: A new look at the state estimates of the economic value of family caregiving. Washington, D.C.: AARP Public Policy Institute. Retrieved June 26, 2007 from:
http://www.aarp.org/research/longtermcare/programfunding/dd158_caregiving.html
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Gibson, M.J. & Redfoot, D.L. (2007). Comparing Long-Term Care in Germany and the United States: What Can We Learn from Each Other? Washington, D.C.: AARP Public Policy Institute. Retrieved Dec. 9, 2007 from: http://www.aarp.org/research/longtermcare/trends/2007_19_usgerman_ltc.html
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Gibson, M.J. (2006). A growing crisis in health and long-term services and supports for older persons with disabilities: Changes from 2002-2005. Washington, D.C.: AARP Public Policy Institute. Retrieved February 11, 2007 from:
http://www.aarp.org/research/housing-mobility/homecare/2006_26_il.html
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Gibson, M.J. and Verma, S. (2006). Just getting by: Unmet need for personal assistance services among persons 50 or older with disabilities. Washington, D.C.: AARP Public Policy Institute. Retrieved February 11, 2007 from: http://www.aarp.org/research/housing-mobility/homecare/2006_25_disability.html
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Gibson, M.J., Gregory, S.R., Houser, A.N., & Fox-Grage, W. (2004). Across the states: Profiles of Long-Term Care 2004. AARP Public Policy Institute, Washington, D.C. Retrieved from
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Gilbride, D. Stensrud, R., Ehlers, C., Evans, E., & Peterson, C. (2000). Employers' attitudes toward hiring persons with disabilities and vocational rehabilitation services. Journal of Rehabilitation, 66 (4), 17-23.
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Gilbride, D., Stensrud, R., Vandergoot, D., & Golden, K. (2003). Identification of the characteristics of work environments and employers open to hiring and accommodating people with disabilities. Rehabilitation Counseling Bulletin, 46 3, 130-139. Available at http://www.worksupport.com/Main/proed_Identification.asp.
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Gillespie, Jennifer. (2003). Direct care worker associations and public authorities. Portland, ME: National Academy for State Health Policy. Retrieved June 20, 2005, from
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Gillespie, Jennifer. (2005). Assessment instruments in 12 states. Portland, ME: National Academy for State Health Policy. Retrieved December 11, 2006 from:
http://www.nashp.org/Files/Assessmentinstruments022205.pdf
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Glass, A.P., Teaster, P.B., Roberto, K.A. & Brossoie, N. (2005). Elderly and disabled waiver services: Important dimensions of personal care from the client's perspective. Home Health Care Services Quarterly, 24, 3, 59-77.
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Glazier, R. E. (2001). The "reinvention" of personal assistance services. Disability Studies Quarterly, 12 (Spring). Retrieved November 29, 2006 from http://www.dsq-sds.org/_articles_pdf/2001/Spring/dsq_2001_Spring_12.pdf
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Golub, D. B. (2006). A model of successful work experience for employees who are visually impaired: The results of a study. Journal of Visual Impairment & Blindness. 100(12) 715-725
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Goodman, C., Robb, N., Drennan, V. & Woolley, R. (2005). Partnership working by default: District nurses and care home staff providing care for older people. Health and Social Care in the Community, 13, 6, 553-562.
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Goodman, N., & Livermore, G. (2004).The effectiveness of Medicaid Buy-In programs in promoting the employment of people with disabilities: Briefing paper prepared for the: Ticket to Work and Work Incentives Advisory Panel. Washington, DC: Cornell University Institute for Policy Research.
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Gradel, K. (1991). Customer service: What is its place in assistive technology and employment services? Journal of Vocational Rehabilitation. 1(2) 41-54
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Gran, J. (2003) Olmstead: reclaiming institutionalized lives. Public Interest Law Center of Philadelphia for the National Council on Disability.
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Grasso, E., Jitendra, A. K., Browder, D. M., Harp, T. (2004). Effects of Ecological and Standardized Vocational Assessments on Office of Vocational Rehabilitation Counselors' Perceptions Regarding Individuals With Developmental Disabilities. Journal of Developmental and Physical Disabilities. 16(1) 17-31
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Gray, C., & Salley, S. (2004). MaineCare Personal Assistance Services in the workplace. Portland, ME: University of Southern Maine, Muskie School of Public Service.
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Gray, L. & Feinberg, L.F.. (2003, March). Survey of Californians about in-home care services. Report, Family Caregiver Alliance, San Francisco, CA.
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Greene, J. (2007, June). State approaches to consumer direction in Medicaid. Hamilton, NJ: Center for Health Care Strategies, Inc. Retrieved August 1, 2007 from:
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Gustavson, K.A. & Scharlach, A.E. (2005, November 19). Impact of employment on caregiver and care recipient service use. Presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Hagglund, K. J. Clark, M. J. Mokelke, E. K. Stout, B. J. (2004). The current state of personal assistance services: Implications for policy and future research. NeuroRehabilitation. 19(2) 115-120
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Hall, A. C.; Butterworth, J.; Winsor, J.; Gilmore, D.; Metzel, D. (2007). Pushing the employment agenda: Case study research of high performing states in integrated employment. Intellectual and Developmental Disabilities. 45(3) 182-198
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Hammer, E. & Österle, A. (2003). Welfare state policy and informal long-term care giving in Austria: Old gender divisions and new stratification processes among women. Journal of Social Policy, 32, 1, 37-53.
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Hams, M., Herold, N., Lee, M. & Worters, A. (2002). Health insurance access survey of direct-care workers in nursing homes and home-based care agencies in Boston, New Bedford/Fall River, including surveys of employees and of employers. (Final report). New York: Direct Care Workers Initiative and Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Han, B. & Remsburg, R.E. (2006). Impact of the Medicare interim payment system on length of use in home care among patients with Medicare-only payment source.Home Health Care Services Quarterly, 24, 4, 65-79.
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Hanes, P., & Folkman, J. (2003). State Medicaid options that support the employment of people with disabilities. Portland, OR: Oregon Health and Science University, Center for Health and Disability Policy.
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Hanley, E. (2004). The role of home care in palliative care services. Care Management Journals, 5, 3, 151-157.
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Hanley-Maxwell, C., Griffin, S. L., Szymanski, E. M., Godley, S. H. (1990) Supported and time-limited transitional employment services. Journal of Visual Impairment & Blindness. 84(4) 160-166
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Hannerz, H. & Tüchsen, F. (2002). Hospitalizations among female home-helpers in Denmark, 1981-1997. American Journal of Industrial Medicine, 41, 1-10.
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Harmuth, S. & Dyson, S. (2005). Results of the 2005 national survey of state initiatives on the long-term care workforce. Bronx, NY: National Clearinghouse on the Direct Care Workforce and the Direct Care Workers Association of North Carolina. Retrieved on May 9, 2006, from
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Harris-Kojetin, L., Lipson, D., Fielding, J., Kiefer, K. & Stone, R.I. (2004). Recent findings on frontline long-term care workers: A research synthesis 1999-2003. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services. Retrieved on May 9, 2006, from http://aspe.hhs.gov/daltcp/reports/insight.htm
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Hash, K. (2006). Caregiving and post-caregiving experiences of midlife and older gay men and lesbians.Journal of Gerontological Social Work, 47, 3/ 4, 123-138.
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Health Care for Health Care Workers. (2006). Caregivers without coverage: The facts about a critical gap in long-term care (Policy Brief no. 1). New York: Paraprofessional Healthcare Institute. Retrieved March 13, 2006, from:
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Health Care for Health Care Workers. (2006). Caregivers without health care: Maine fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.hchcw.org/docs/HCHCW_ME_FactSheet.Final.pdf
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Health Care for Health Care Workers. (2006). Caregivers without health care: Michigan fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.hchcw.org/docs/HCHCW_Fact_Sheet-MI.pdf

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Health Care for Health Care Workers. (2006). Caregivers without health care: Pennsylvania fact sheet. New York: Paraprofessional Healthcare Institute. Retrieved April 30, 2007, from:
http://www.hchcw.org/docs/HCHCW_Fact_Sheet-PA.pdf
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Health Management Associates (2005). Department of Public Health 2005 report: Its effectiveness as an integrated health care delivery system and provider of a continuum of long term care services. Lansing, MI, Author.
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Health Workforce Solutions LLC. (2006, November). Workers who care: A graphical profile of the frontline health and health care workforce. Retrieved August 8, 2007, from http://www.rwjf.org/pr/product.jsp?id=15943
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Hegeman, C., Hoskinson, D, Munro, H., Maiden P. & Pillemer, K. (2007). Peer Mentoring in Long-Term Care: Rationale, Design and Retention. Gerontology & Geriatrics Education, 28, 2, 77-90.
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Hendrix, C.C., Heflin, M.T., Twersky, J., Knight, C., Payne, J., Bradford, J.Y. & Schmader, K.E. (2008). Post-hospital clinic for older patients and their family caregivers. Annals of Long-Term Care, 16, 5, 20-24.
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Henn, J.; Henn, M. (2007). Facilitating integrated employment outcomes for individuals with significant disabilities: Parents' perspective. Journal of Vocational Rehabilitation. 26(1) 1-3
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Hernandez, B., Keys, C., & Balcazar, F. (2000). Employer attitudes toward workers with disabilities and their ADA employment rights: A literature review. Journal of Rehabilitation, 66 (4). Retrieved April 11, 2004, from http://www.findarticles.com/p/articles/mi_m0825/is_4_66/ai_68865430/print.html
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Hershorn, M. (1993). The elusive population: Characteristics of attenders versus non-attenders for community mental health center intakes. Community Mental Health Journal. 29(1) 49-57.
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Hewitt, A. & Lakin, K. C. (2001). Issues in the direct support workforce and their connections to the growth, sustainability and quality of community supports. Research and Training Center on Community Living, University of Minnesota.
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Hewitt, A., & Lakin, K.C. (2001). Issues in the direct support workforce and their connections to the growth, sustainability and quality of community supports. Minneapolis, MN: Research and Training Center on Community Living, University of Minnesota. Retrieved on June 18, 2006, from:
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Hill, M. A. (1989). Work status outcomes of vocational rehabilitation clients who are blind or visually impaired. Rehabilitation Counseling Bulletin. 32(3) 219-230
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Hinton, D. (2003, September). Personal assistance services on the job.(InfoBrief Issue 6). . Washington, DC: National Collaborative on Workforce and Disability. Retrieved January 31, 2005 from
http://www.ncwd-youth.info/resources_&_Publications/info.php
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Hoff, D., Dreilinger, D., Fesko, S., Fichera, K., Jordan, M., Marrone, J. et. al. (2001). Access for all: A resource manual for meeting the needs of One-Stop customers with disabilities. Boston: University of Massachusetts, Institute for Community Inclusion.
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Holcomb, P., & Barnow, B. (2004). Serving people with disabilities through the Workforce Investment Act's One-Stop Career Centers. Washington, D.C.: Urban Institute.
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Holle, M. (2004). California can save over a hundred million a year by amending the State Plan to cover domestic and related services under the Medi-Cal personal care services program. Memorandum published on Center for PAS web site:http://pascenter.org/pas_workforce/memo.php
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Holley, L.M., Montgomery, R.J.V., & Kosloski, K.D. (2004, November 19). Innovations in 33 states that address the respite worker crisis: Lessons from the ADDGS program. Poster presentation presented at the 57th Annual Scientific Meeting of the Gerontological Society of America.
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Holt, J. M.; Chambless, C. E.; Christensen, H. (2006) Work Ability and PAR: A guide for implementing full participation in complex systems change initiatives. Journal of Vocational Rehabilitation. 24(1) 23-31.
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Holt, J.M., Chambless, C.E., & Hammond, M. (2006). Employment personal assistance services (EPAS): A Medicaid work support. Journal of Vocational Rehabilitation, 24(3) 165-175.
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Hood, E. L., Test, D. W., Spooner, F., Steele, R. (1996). Paid co-worker support for individuals with severe and multiple disabilities. Education & Training in Mental Retardation & Developmental Disabilities. 31(3) 251-265
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Horowitz, A., Goodman, C.R. & Reinhardt, J.P. (2004, August) Congruence between disabled elders and their primary caregivers. Gerontologist, 44 (4): 532-542.
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Houser, A.N. (2007). Women & Long-Term Care. Washington, D.C.: AARP Public Policy Institute. Retrieved May 21, 2007 from: http://www.aarp.org/research/longtermcare/trends/fs77r_ltc.html
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Houser, A.N. (2007). Women & Long-Term Care. Washington, D.C.: AARP Public Policy Institute. Retrieved Dec. 9, 2007 from: http://www.aarp.org/research/longtermcare/trends/fs77r_ltc.html
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Houser, A.N. and Gibson, M.J. (2007). Valuing the Invaluable: A New Look at State Estimates of the Economic Value of Family Caregiving. Washington, D.C.: AARP Public Policy Institute.
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Houser, A.N., Fox-Grage, W. & Gibson, M.J. (2006). Across the states: Profiles of long-term care and independent living. Washington, D.C.: AARP Public Policy Institute. Retrieved January 13, 2007 from: http://www.aarp.org/research/longtermcare/trends/d18763_2006_ats.html
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Howartha, E., Mann, J. R., Zhou, H., McDermott, S., Butkus, S. (2006). What predicts re-employment after job loss for individuals with mental retardation? Journal of Vocational Rehabilitation. 24(3) 183-189
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Howes, C. (2002). The impact of a large wage increase on the workforce stability of IHSS homecare workers in San Francisco County. University of California Institute for Labor and Employment, and the University of California Center for Labor Research and Education, Berkeley.
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HRSA/Bureau of Health Professions/National Center for Health Workforce Analyses. (2004,February). Nursing Aides, Home Health Aides, and Related Health Care Occupations -- National and Local Workforce Shortages and Associated Data Needs. Health Resources and Services Administration.
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Hunt, G., Levine, C. & Naiditch, L. (2005, September). Young caregivers in the U.S.: Findings from national survey. Bethesda, MD: National Alliance for Caregiving in collaboration with United Hospital Fund.
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Hussein, S. & Manthorpe, J. (2005). An international review of the long-term care workforce: Policies and shortages. Journal of Aging & Social Policy, 17, ,4, 75-94.
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Hutchinson, D.; Anthony, W.; Massaro, J.; Rogers, E. S. (2007). Evaluation of a Combined Supported Computer Education and Employment Training Program for Persons with Psychiatric Disabilities. Psychiatric Rehabilitation Journal. l 30(3) 189-197
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Infield, Donna Lind. (2004). State's experiences implementing consumer-directed home and community services: Results of the 2004 survey of state administrators, opinion survey and telephone interviews. Washington, D.C.: National Association of State Units on Aging and The National Council on the Aging. Retrieved June 20, 2005, from http://www.consumerdirection.org/news.php
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InfoUse. (2003). Consumer direction in personal assistance services: How to work together [CD Rom & Video]. United States: Program Development Associates.
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Inge, K. J.; Wehman, P.; Strobel, W.; Powell, D.; Todd, J. (1998). Supported employment and assistive technology for persons with spinal cord injury: Three illustrations of successful work supports. Journal of Vocational Rehabilitation. 10(2) 141-152
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Institute of Medicine. (2008). Retooling for an aging America: Building the health care workforce. Washington, D.C.: Institute of Medicine.
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Ireys, H., White, J., & Thornton, C. (2003). The Medicaid Buy-In Program: Quantitative measures of enrollment trends and participant characteristics in 2002. Washington, D.C.: Mathematica Policy Research, Inc.
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Ireys, H.T., Davis, S.R. & Andres, K.L. (May 2007). The interaction of policy and enrollment in the Medicaid Buy-In Program, 2005. Mathematica Policy Research, Inc.: Washington, D.C. Retrieved May 14, 2007 from: http://www.mathematica-mpr.com/publications/
redirect_pubsdb.asp?strSite=pdfs/interaction.pdf
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Jacoby, D. (2006). Caring about caring labor: An introduction. Politics & Society, 34, 1, 5-10.
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Jee, J. & Menges, J. (2003). The California Working Disabled Program: Lessons learned, looking ahead, Oakland, CA: Lewin Group, for the Medical Policy Institute.
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Jensen, A., & Silverstein, B. (2002). SSDI state work incentive policy demonstration projects: Purposes, principles, and issues. University of Iowa, Rehabilitation Research and Training Center on Workforce Investment and Employment Policy.
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Jensen, A., Silverstein, R., Folkemer, D. & Straw, T. (2002). Policy Frameworks for Designing Medicaid Buy-In Programs and Related State Work Incentive Initiatives. Washington, D.C.: U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and George Washington University
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Jensen, C.J., Ferrari, M. & Cavanaugh, J.C. (2004). Building on the benefits: Assessing satisfaction and well-being in elder care. Ageing International, 29, 1, 88-110.
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Jenson, J. & Jacobzone, S. (2000). “Care allowances for the frail elderly and their impact on women care-givers.” Labour Market and Social Policy Occasional Papers, No. 41. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from: http://www.olis.oecd.org/olis/2000doc.nsf/linkto/deelsa-elsa-wd(2000)2
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Johantgen, M., Trinkoff, A., Gray-Siracusa, K., Muntaner, C. & Nielsen, K. (2004). Using state administrative data to study nonfatal worker injuries: Challenges and opportunities. Journal of Safety Research, 35 (3), 30-315.
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Johnson, R.W. (2007). The burden of caring for frail parents: Statement before the Joint Economic Committee, United States Congress. Washington, D.C.: Urban Institute. Retrieved June 26, 2007, from: http://www.urban.org/UploadedPDF/901078_johnson_testimony.pdf
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Johnson, R.W. (2008). The strains and drains of long-term care. Washington, D.C.: The Urban Institute. Retrieved July 25, 2008 from: http://www.urban.org/publications/1001188.html
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Johnson, R.W., Toohey, D. & Wiener, J.M. (2007). Meeting the long-term care needs of the baby boomers: How changing families will affect paid helpers and institutions. Washington, D.C.: Urban Institute. Retrieved June 26, 2007, from:
http://www.urban.org/UploadedPDF/311451_Meeting_Care.pdf
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Johnson, S.; Hafer, M. (1985). Employment status of severely visually impaired men and women. Journal of Visual Impairment & Blindness. 79(6) 241-244
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Kadushin, G. & Egan, M. (2006). Unmet patient need in home care under managed care. Journal of Gerontological Social Work, 47, 3/ 4, 103-120.
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Kahn, K. (2003). Multi-stakeholder coalitions: Promoting improvements in the long-term care workforce. Better jobs, better care. Issue brief, 1 (1). Retrieved February 16, 2007 from http://www.paraprofessional.org/publications/BJBCIssueBriefv1n1.pdf
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Kaiser Family Foundation Issue Paper. (2006). Medicaid 1915(c) home and community-based services program: Data update. Washington, D.C.: Kaiser Family Foundation. Retrieved January 16, 2007, from: http://www.kff.org/medicaid/7575.cfm
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Kaiser Family Foundation. (2007). The basics of Medicare and Medicaid. Washington, D.C.: Kaiser Family Foundation. Retrieved April 30, 2007, from:
http://www.kff.org/medicare/med031907pkg.cfm
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Kao, H.F.S. and Acton, G.J. (2006). Conceptualization and psychometric properties of caregiver burden scale in Taiwan. Issues in Mental Health Nursing, 27, 8, 853-866.
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Kassner, E. (2006). Home and community-based long-term services and supports for older people. AARP Public Policy Institute Fact Sheet: Washington, D.C.
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Kassner, E., Reinhard, S., Fox-Grage, W., Houser, A.N., Accius, J.C., Coleman, B. & Milne, D. (2008). A balancing act: State long-term care reform. Washington, D.C.: AARP Public Policy Institute. Retrieved July 19, 2008 from:
http://www.aarp.org/research/longtermcare/programfunding/2008_10_ltc.html
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Katungi, D., Neale, E. & Barbour, A. (2006). People in low-paid informal work: 'Need, not greed.' Bristol, United Kingdom: The Policy Press. Retrieved on June 18, 2006 from:
http://www.jrf.org.uk/knowledge/findings/socialpolicy/0346.asp
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Kauff, J., Kirby, G. & Pavetti, L. (2005). Linking TANF recipients with paraprofessional long-term care jobs (Issue Brief No. 8). Princeton, NJ: Mathematica Policy Research, Inc. Retrieved March 13, 2006, from: http://www.directcareclearinghouse.org/l_art_det.jsp?res_id=171210
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Kaye, N., & Wysen, K. (2003). Using Medicaid to cover the uninsured: Medicaid participant Buy-In programs. Portland, ME: National Academy for State Health Policy.
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Keefe, J., Légaré, J. & Y. Carrière. (2005, November). Developing new strategies to support future caregivers of the aged in Canada: Projections of need and their policy implications. Research Paper No. 140. Hamilton, Ontario: SEDAP (Program for Research on Social and Economic Dimensions of an Aging Population).
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Keeslar, K. (2007). Governor's FY 07-08 State Budget Proposal on IHSS (memo). Sacramento, CA: California Association of Public Authorities for IHSS.
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Keilson, J. (2004). Recruiting direct service professionals/personal assistants in a competitive environment. HCBS Promising Practices Reports. Washington, D.C.: Centers for Medicare and Medicaid Services. Retrieved on May 9, 2006, from http://www.cms.hhs.gov/PromisingPractices/HCBSPPR/itemdetail.asp?
filterType=none&filterByDID=-99&sortByDID=1&sortOrder=ascending&itemID=CMS040670
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Keller, J. (2003a). Using PAS service in Vermont to support employment-Part One: Current programs, promising practices and next steps for study. Burlington, VT: Keller & Fuller, Inc.
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Keller, J. (2003b). Using PAS service in Vermont to support employment-Part Two: Gaps in current programs and possible remedies. Burlington, VT: Keller & Fuller, Inc.
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Keller, J. (2003c). Using PAS service in Vermont to support employment-Part Three: Eligibility, services, utilization, and costs. Burlington, VT: Keller & Fuller, Inc.
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Keller, P. (2000). Pre-employment intentions of home care aides. Caring 19:26-31.
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Kemper, P., Komisar, H.L. & Alecxih, L. (2006). Long-term care over an uncertain future: What can current retirees expect? Inquiry, 42, 4, 335-350.
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Khatutsky, G., Anderson, W.L. & Wiener, J.M. (2006). Personal care satisfaction among aged and physically disabled Medicaid beneficiaries. Health Care Financing Review, 28, 1, 69-86. Retrieved November 21, 2006 from:
http://www.cms.hhs.gov/HealthCareFinancingReview/
09_2006%20Edition.asp#TopOfPage
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Kiernan, W.E., Halliday, J.F., & Boeltzig, H. (2004). Economic engagement: An avenue to employment for individuals with disabilities. Boston: University of Massachusetts, Institute for Community Inclusion.
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Kirchner, C., Smith, B. (2005). Transition to What? Education and Employment Outcomes for Visually Impaired Youths after High School. Journal of Visual Impairment & Blindness. 99(8) 499-504.
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Kregel, J., & Revell, W.G. (2003). An evolving partnership: The role of state vocational rehabilitation agencies in the implementation of the Ticket to Work program. Richmond, VA: Virginia Commonwealth University, Rehabilitation Research and Training Center on Workplace Support.
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Kregel, J., O'Mara, S., & West, M. (2003). Consumer advocacy in the implementation of the Ticket to Work Act. Richmond, VA: Virginia Commonwealth University, Rehabilitation Research and Training Center on Workplace Supports.
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Kroger, T. & Sipila, J. (Eds). (2005). Overstretched: European families up against the demands of work and care. Malden, MA: Blackwell Publishing.
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Kuster, P.A. & Badr, L.K. (2006). Mental health of mothers caring for ventilator-assisted children at home. Issues in Mental Health Nursing, 27, 8, 817-835.
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La Grow, S. J.(2004). Factors that Affect the Employment Status of Working-Age Adults with Visual Impairments in New Zealand. Journal of Visual Impairment & Blindness. 98(9) 546-559
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Laamanen, R., Broms, U., Happola, A. & Brommels, M. (1999). Changes in the work and motivation of staff delivering home care services in Finland. Public Health Nursing, 16, 60-71.
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Lakin, K.C., Prouty, R. & Coucouvanis, K. (October 2007). HCBS Recipients Are Increasingly Likely to Live With Parents or Other Relatives. Intellectual and Developmental Disabilities, Volume 45, Number 5: 359–361.
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Langton, A. J., Ramseur, H. (2001). Enhancing employment outcomes through job accommodation and assistive technology resources and services. Journal of Vocational Rehabilitation. 16(1) 27-37
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Larson, J. E.; Barr, L. K.; Corrigan, P. W.; Kuwabara, S. A.; Boyle, M. G.; Glenn, T. L. (2007). Perspectives on benefits and costs of work from individuals with psychiatric disabilities.
Journal of Vocational Rehabilitation. 26(2) 71-77
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Larsson, K., Thorsulnd, M. & Kåreholt, I. (2006). Are public care and services for older people targeted according to need? Applying the Behavioural Model on longitudinal data of a Swedish urban older population. European Journal of Ageing, 3, 1, 22-33.
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Lauren, D.,Harris-Kojetin, L., Kiefer, K., Brannon, D., Barry, T., Vasey, J. & Lepore, M. (2005). Measuring long-term care work: A guide to selected instruments to examine direct care worker experiences and outcomes. Washington, D.C.: Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Institute for the Future of Aging Services. Retrieved on May 9, 2006, from
http://aspe.hhs.gov/daltcp/reports/dcwguide-file.htm
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Leavitt, J. & Lingafelter, T. (2005). Low wage workers and high housing costs. Labor Studies Journal, 30, 2, 41-60.
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Leonard, R., D'Allura, T., Horowitz, A. (1999). Factors associated with employment among persons who have a vision impairment: A follow-up of vocational placement referrals. Journal of Vocational Rehabilitation. 12(1) 33-43.
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Levine, C. Hunt, G.G., Harper, D., Hart, A.Y., Lautz, J., Gould, D.A. (2005). Young adult caregivers: A first look at an unstudied population. American Journal of Public Health, 95 (9): 2071-2075.
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Li, L.W. (2005). Longitudinal changes in the amount of informal care among publicly paid home care recipients. Gerontologist, 45, 4, 465-473.
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Lida, K. (2006, May). Highlights of fourth quarter MIG activities. Center for Workers with Disabilities. Retrieved August 10, 2006 from http://www.aphsa.org/disabilities/home/index.htm
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Lieberman, L.A. (2005). A "stranger" among us: Hiring in-home support for a child with autism spectrum disorders or other neurological differences. Shawnee Mission, KS: Autism Asperger Publishing Company.
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Liese, H., and Sheen, J. (2003). Employment Personal Assistance Services (EPAS): Focus group report on program awareness and needs. Salt Lake City, UT: Utah Governor’s Committee on Employment of People with Disabilities.
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Lin, C.J. & Meit, M. (2005). Changes in Medicare home health care use and practices in rural communities. Journal of Aging and Health, 17, 3, 351-362.
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Lipson, D. (2005, November 19). Stand up and tell them: Views from the frontline of long-term care. Media presentation at the Gerontological Society of America 58th Annual Scientific Meeting.
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Lipson, D. & Regan, C. (2004, March). Health insurance coverage for direct care workers: Riding out the storm. Better Jobs Better Care Issue Brief, No. 3.
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Lipson, D.J. (2004). Current findings and future directions in research on homecare work issues. Healthcare & Aging, 12, 3, 2-3, 6.
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Litt, J. (2004). Women's carework in low-income households: The special case of children with Attention Deficit Hyperactivity Disorder. Gender & Society, 18, 5, 625-644.
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Liu, S., & Ireys, H.T. (2006, May). Participation in the Medicaid Buy-in program: A statistical profile from integrated data. Final report. Mathematica Policy Research, Inc. Retrieved February 27, 2007 from: http://www.mathematica-mpr.com/publications/PDFs/medbuyinstatprof.pdf
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Liu, S., Ireys, H, White, J., & Black, W. (2004). Enrollment patterns and medical expenditures for Medicaid Buy-In participants in five states. Washington, DC: Mathematica Policy Research, Inc.
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Livermore, G., Nowak, M., & Stapleton, D. (2001). The role of health insurance in successful labor force entry and employment retention. Falls Church, VA: The Lewin Group.
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Livermore, G.A. (2003). Proceedings of the Employment Network (EN) summit: Summary of work group recommendations. Washington, D.C.: Cornell Center for Policy Research.
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Long Term Care Group, Inc. & LifePlans, Inc. (2006). Final Report on the "Own Your Future" Consumer Survey. Washington, D.C.: U.S. Department of Health and Human Services, Assistant Secretary for Planning and Evaluation. Retrieved December 9, 2007 from: http://aspe.hhs.gov/daltcp/reports.htm
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Lopez, S.H. (2006). Culture change management in long-term care: A shop-floor view. Politics & Society, 34, 1, 55-80.
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Loprest, P., & Maag, E. (2001). Barriers to and supports for work among adults with disabilities: Results from the NHIS-D. Washington, D.C.: Urban Institute.
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Loughlin, D.M., Simon-Rusinowitz, L., Mahoney, K.J., Desmond, S.M., Squillace, M.R. & Powers, L.E. (2004). Preference for a cash option versus traditional services for Florida children and adolescents with developmental disabilities. Journal of Disability Policy Studies, 14, 4, 229-240.
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Louisiana Grantee produced (June, 2007). Transition Guide to Community Living with a Self Assessment Tool.
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Loy, B., Hirsh, A., Batiste, L. C. (2006) Including employees with disabilities in emergency evacuation plans: 9/11's Effect on the demand for information. Work: Journal of Prevention, Assessment & Rehabilitation. 27(4) 407-411
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Luecking, D. M.; Luecking, R. G. (2006). A Descriptive Study of Customizing the Employment Process for Job Seekers with Significant Disabilities. Journal of Applied Rehabilitation Counseling. 37(4) 14-21.
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Luecking, R.G. (2003) Doing it the company way: Employer perspectives on workplace supports. Washington, D.C.: George Washington University, HEATH Resource Center.
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Luke, E.L. (2008). Stakeholder recommendations to improve recruitment, retention, and the perceived status of paraprofessional direct service workers in Texas. Report Number 08-039. Austin, Texas: Texas Department of Aging and Disability Services. Ret