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All Center Information by Audience Center Publications
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LinksA list of important links. AARP Research Center: Independent Living The American Association of Retired Persons is a nonprofit membership organization dedicated to addressing the needs and interests of persons 50 and older. AARP’s Research Center provides information on Independent Living topics such as housing, transportation, technology, and family relations. Ability Hub This website offers solutions and ideas for people with many kinds of disabilities who find using a computer difficult, maybe even impossible. This website will direct you to adaptive equipment and alternative methods available for using computers. ABLEDATA ABLEDATA provides objective information about assistive technology products and rehabilitation equipment available from domestic and international sources. ABLEDATA does not sell any products, but can help you locate the companies that do. ADA & IT Information Center for the Mid-Atlantic Region Provides training, information, and technical assistance on the Americans with Disabilities Act (ADA) and accessible information technology (IT) to businesses, consumers, schools, and government agencies within the Mid-Atlantic Region (PA, DE, MD, VA, WV, and DC). AgeSource Worldwide AgeSource Worldwide describes clearinghouses, databases, libraries, directories, statistical resources, bibliographies and reading lists, texts, and Web metasites focused on aging or closely allied subjects. The topics covered range from Alzheimer's disease to wills and estate planning. Almost 300 information resources in 26 countries with the majority based in the United States alone. Most of the information resources are located in North America and Europe. AGS Foundation for Health in Aging (FHA) The American Geriatrics Society (AGS) Foundation for Health in Aging (FHA) is a national non-profit organization established in 1999 by The American Geriatrics Society. The foundation aims to build a bridge between the research and practice of Geriatrics and the Public, and to advocate on behalf of older adults and their special health care needs. The website has information on common health problems such as diabetes, falls, etc. and educational materials on geriatrics. American Association of Homes and Services for the Aging (AAHSA) This section helps consumers learn about the different types of living arrangements that are available, how to deal with the emotional stresses of caregiving, how to plan for long-term care costs, and how to get involved in aging services. American Association of People with Disabilities (AAPD) AAPD is the largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for the more than 56 million Americans with disabilities. American Association on Health and Disability One of the missions of the American Association on Health and Disability is to promote health and wellness of people with disabilities. The website has information, resources, and a newsletter for consumers on prevention and wellness. American Disabled for Attendant Programs Today (ADAPT) ADAPT is an organization at the forefront of activism regarding issues facing people with disabilities such as consumer direction of Personal Assistance Services in the community. American Public Health Association The APHA website represents the association of public health professionals in the US and provides specific information of use to this community including latest health policy research as well as public health announcements. It also provides links to individual state public health websites as well as international websites that addresses the issue. American Red Cross This website from the Red Cross gives suggestions on how to prepare for emergencies and natural disasters for people who have physical, visual, auditory, or cognitive disabilities. Arc of the USA The Arc is a national organization of and for people with mental retardation and related developmental disabilities and their families. This website has details of current Arc campaigns and publications on major policy initiatives for people with disabilities. The site includes an online report on the progress towards compliance with the ADA and the Olmstead ruling (2000) (http://www.thearc.org/olmstead_report.htm). Association of Programs for Rural Independent Living (APRIL) The Association of Programs for Rural Independent Living (APRIL) is a national network of rural independent living centers and individuals concerned with the unique aspects of rural independent living. Association on Higher Education and Disability This website contains a lot of information for people with disabilities interested in going to school after high school. The web site offers many helpful links to different universities and programs, and to information on a range of specific disabilities. Bazelon Center for Mental Health Law This organization advocates for people with mental disabilities and provides legal analysis and explanation of key cases and current legal issues brought under disability-related and mental health law, including Olmstead. The site provides reports about the Olmstead case, including a background to the case, key legal concepts it interpreted and links to other websites. Benefits Check Up: National Council on the Aging This website helps older adults find out what programs are available to them. California HealthCare Foundation This website provides the latest news, research and policy analysis on California’s health care system and its delivery and financing. Of particular interest for research into home and community based services and long term care in California is the Medi-Cal page of the website, http://www.chcf.org/topics/medi-cal/index.cfm, which is a gateway to relevant information about the various Medi-Cal programs that are available in California. California Long Term Care The California HealthCare Foundation and the University of California San Francisco have a free website on long term care services in California that is designed for consumers, caregivers, providers, discharge planners, and advocates. This site provides comprehensive information about the quality of long term care in the state including nursing and intermediate care facilities, home health, hospice, adult day health and other long term care services such as residential care. The site has information on Nursing Home Alternatives, How to Select a Service, Questions to ask when visiting potential choices, Resident and Family Rights, and Links. Career One Stop From the Department of Labor, Career One Stop is a collection of tools that can help you find a job, learn more about careers, and find employment services in your area. Carework Network The Carework Network is an international organization of researchers, policymakers, and advocates involved in various domains of care work. Carework research and policy focus on the caring work of individuals, families, communities, paid caregivers, social service agencies, and state bureaucracies, and ask important questions about such matters as: Cash and Counseling This is the website of the national Cash & Counseling program. The program sponsors are The Robert Wood Johnson Foundation (RWJF), the Office of the Assistant Secretary for Planning and Evaluation in the U.S. Department of Health and Human Services (ASPE/DHHS), and the Administration on Aging (AoA). The website given describes the cash and counseling approach and details of how states can apply for grants to try out the cash and counseling model as well as transcripts of teleconferences with states who are involved. Center for Aging Services Technologies The Center for Aging Services Technologies (CAST) is leading the charge to expedite the development, evaluation and adoption of emerging technologies that can improve the aging experience. CAST has become an international coalition of more than 400 technology companies, aging services organizations, research universities, and government representatives. Center for Assistive Technology & Environmental Access (CATEA) at Georgia Tech CATEA supports individuals with disabilities of any age within the State of Georgia and beyond through: expert services, research, design and technological development, information dissemination, and educational programs. The application of these resources is intended to promote maximum access to opportunity and environments by enhancing individuals' capabilities through the appropriate use of technology. Center for Home Care Policy & Research The Center for Home Care Policy and Research has become recognized as the pre-eminent research center for home care and is the only of its kind in the nation. Center for PAS - State resources for employment of people with disabilities To find US and state resources for employment of people with disabilities, the Center has a directory of government agencies you can locate by state. Center for the Study of Home and Community Life, Boston College Graduate School of Social Work This Center was established early in 2004 and is the national program office for the (expanded) cash and counseling program. The center will provide support for states involved in the program as well as providing comprehensive information and resources about consumer-directed care. The Home and Community-Based Services website (www.hcbs.org) is also included within the responsibilities of this Center. Center for Workers with Disabilities The Center, an affiliate of the National Association of State Medicaid Directors (NASMD), is a technical assistance center that is dedicated to helping states enhance employment support programs. One of the Center’s six task forces addresses current rules and regulations for workplace PAS, factors in the work place, and related concerns. Minutes of task force meetings, beginning in January 2003, as well as a small list of publications on workplace PAS are available. Centers for Medicare and Medicaid Services The "Ticket to Work and Work Incentives Improvement Act of 1999 (TWWIIA)", modernizes the employment services system for people with disabilities and makes it possible for millions of Americans with disabilities to no longer have to choose between taking a job and having health care. Centers for Medicare and Medicaid Services (CMS) Several links within this site related to Home and Community-Based PAS: Community Living Exchange Collaborative Clearinghouse The Community Living Exchange Collaborative Clearinghouse collects and shares information about home and community-based services (HCBS) for people with disabilities of all ages from different states. Council of State Administrators of Vocational Rehabilitation Vocational Rehabilitation is a program available in each state specifically to help people with disabilities work. The services can range from job training to counseling and transportation services. This website from the Council of State Administrators of Vocational Rehabilitation provides a contact list of each state’s program. Direct Care Alliance The DCA is a unique coalition of consumers, workers, and concerned providers dedicated to ensuring a stable, valued and well-trained workforce in long-term care. Direct Care Workers - Long Term Care in North Carolina A guide to being a direct care worker, including what services they provide, what skills are required to become one and how to find a job being a direct care worker. Directory of Centers for Independent Living Centers for Independent Living (CILs) are advocacy organizations run by and for people with disabilities. This website from the MetroWest Center for Independent Living has a directory of all CILs by state. Disability Benefits 101 Disability Benefits 101 (DB101) helps workers, job seekers, and service providers understand the connections between work and benefits. Although focused on California, it features a section on workplace PAS as well as practical information for employers or consumers, including frequently asked questions, policy updates publications list, and more. Disability Rights Education and Defense Fund (DREDF) DREDF is a national law and policy center dedicated to protecting and advancing the civil rights and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development. Disability World Disability World is an online magazine dedicated to advancing an exchange of information and expertise about the international independent living movement of people with disabilities. DisabilityInfo.gov DisabilityInfo.gov is the federal government's one-stop Web site site for people with disabilities, their families, employers, veterans and service members, workforce professionals and many others. Program topics by state are: employment, education, housing, transportation, health, benefits, technology, community life and civil rights. Disabled People and Disaster Planning This website gives people with disabilities, shelter managers and rescue workers information about how to prepare for a disaster such as an earthquake (grade level 12). Disabled Sports USA Disabled Sports USA is an organization that offers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions. DO-IT Center A project of the University of Washington, DO-IT serves to increase the participation of individuals with disabilities in academic programs and careers. It promotes the use of assitive technology to increase independence, productivity, and participation in education and employment. The Employer Assistance & Recruiting Network (EARN) is a free service that connects employers looking for quality employees with skilled job candidates. This web site is a source of disability employment information including: Eldercare Locator: Connecting Seniors to Community Services The Eldercare Locator links those who need assistance with state and local area agencies on aging and community-based organizations that serve older adults and their caregivers. Whether an older person needs help with services such as meals, home care or transportation, or a caregiver needs training and education or a well-deserved break from caregiving responsibilities, the Eldercare Locator is there to point that person in the right direction. Equal Access to Software and Information (EASI) EASI provides information and guidance to students and professionals with disabilities on adaptive software and technology used in schools, colleges, universities, libraries and the workplace. EUROFAMCARE EUROFAMCARE is an international research project funded within the 5th Framework Programme of the European Community, Key Action 6: The Ageing Population and Disabilities, 6.5: Health and Social Care Services to older People, Contract No QLK6-CT-2002-02647 "EUROFAMCARE". The EUROFAMCARE project will provide a European review of the situation of family carers of elderly people in relation to the existence, familiarity, availability, use and acceptability of supporting services. Family Caregiver Alliance This multilingual website of the Family Caregiver Alliance, a national community-based non profit organization provides information on a range of policy analysis and research publications on issues relating to informal caregivers. It also provides useful information, guides and factsheets for caregivers. Family Caregiving 101 Provides assistance, answers, new ideas and helpful advice to family care givers. Federal Emergency Management Administration: Disaster Preparedness for People with Disabilities The Federal Emergency Management Administration (FEMA) offers these suggestions to keep in mind when making emergency preparations addressing people with disabilities. Freedom Clearinghouse This is the website of a campaign against the institutionalization of people with disabilities by people with disabilities. George Washington University, Department of Health Policy The Center for Health Services Research and Policy has published briefings on the implications of the Olmstead case, with a focus on the legal meaning of the decision and subsequent interpretations of the ruling. This site also provides research reports published from a project analyzing the Olmstead case and subsequent litigation. Great Lakes ADA and Accessible IT Center Provides information, materials, technical assistance and training on the Americans with Disabilities Act of 1990 (ADA) and accessible information technology (IT). The ADA addresses all aspects of employment and the obligations of state and local governments and business to ensure that their programs and services are readily accessible to and useable by people with disabilities. Great Plains ADA/IT Center The Great Plains Americans With Disabilities Act & Accessible Information Technology Center is on e of 10 DBTACS authorized by the National Institute on Disability & Rehabilitation Research (NIDRR) to provide technical assistance, training and materials dissemination related to the Americans with Disabilities Act and Accessible Information Technology to the Great Plains Region (IA, KS, MO, NE). HCBS Promising Practices Reports. These reports highlight promising pracices in home and community-based services offered by states to enable persons of any age who have a long-term illness or disability to live in the most integrated community setting appropriate to their individual support requirements and preferences. Health Care for Health Care Workers An initiative from the Paraprofessional Healthcare Institute, Health Care for Heath Care Workers aims to bring public attention to the crisis facing tens of thousands of direct-care workers who assist millions of Americans with age-related and other disabilities but lack coverage themselves. Human Services Research Institute Online, periodically updated report on litigation relating to Medicaid HCBS waiver programs. Illinois Direct Support Professionals The Illinois Council on Developmental Disabilities (ICDD) has funded a three year workforce systems change initiative designed to improve recruitment and retention of Direct Support Professionals in Illinois, who are competent and confident in the skills needed to provide quality supports and services to individuals with developmental disabilities. Partners for this project include the University of Minnesota’s Institute on Community Integration, the Institute on Disability and Human Development at UIC, and the Human Services Research Institute. Institute for Community Inclusion (ICI) ICI offers training, clinical, and employment services, conducts research, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities. Publication topics listed on the site include: employment, disability policy, finding and keeping a job, health care, social security benefits and eduction. Iowa CareGivers Association Iowa CareGivers Association (ICA) is Iowa's first independent statewide professional association for Certified Nurse Assistants, Home Care Aides, Patient Care Technicians, and other direct care/support workers who deliver 80-90% of the care in Iowa's nursing facilities, home care agencies and in many other health care settings June Isaacson Kailes: Disaster Preparedness A disability policy consultant, June Isaacson Kailes’ website has an extensive collection of disaster preparedness and emergency resources for people with disabilities. Kaiser Commission on Medicaid and the Uninsured A range of information is available from this site regarding Medicaid and long-term care waivers, programs and practices, in the form of briefings, reports and analyses. State by state data on Medicaid waivers, home and community based services and general Medicaid information are also listed by service at http://www.kff.org/medicaid/benefits/ Kaiser Family Foundation Statistics on the number of nursing home residents, residents by primary payer source, nursing homes, nursing homes by ownership type, and nursing home beds nationwide have been updated by the University of California at San Francisco. These and other data are available on the Kaiser Family Foundation's State Health Facts.org website. This link leads directly to nursing home data. The general link above leads to further state data. Maine Personal Assistance Services Association (PASA) Maine PASA is an association that promotes professionalism and development for the direct care, direct support and personal assistance workforce to support the highest quality of life for elders and people with disabilities. National Academy for State Health Policy News The National Academy for State Health Policy is an independent academy of state health policymakers working together to identify emerging issues, develop policy solutions, and improve state health policy and practice. NASHP provides a forum for constructive, nonpartisan work across branches and agencies of state government on critical health issues facing states. National Alliance for Caregiving The National Alliance for Caregiving is dedicated to providing support and information to family caregivers and to increasing public awareness of issues facing family caregivers. National Association for Home Care and Hospice (NAHC) The NAHC is a trade association that represents the home care agencies, hospices, home care aide organizations and medical equipment suppliers. The site provides up to date information about the work that the association does in advocating for home and community based care as well as recent government policies that affect home and community based health care. National Association for Protection and Advocacy Services, Disability Issue Areas Reports and analyses of key disability policy areas including reports on state activity on Olmstead issues. Lists of key resources on issues such as community integration and Medicaid from other organizations are provided. Data on litigation and complaints relating to Olmstead is also provided. National Association of Area Agencies on Aging The National Association of Area Agencies on Aging (n4a) is the umbrella organization for the 655 area agencies on aging (AAAs) and more than 230 Title VI Native American aging programs in the U.S. Through its presence in Washington, D.C., n4a advocates on behalf of the local aging agencies to ensure that needed resources and support services are available to older Americans. National Association of State Units on Aging (NASUA) NASUA is a non-profit association representing the nation's 56 officially designated state and territorial agencies on aging. The mission of the Association is to advance social, health, and economic policies responsive to the needs of a diverse aging population and to enhance the capacity of its membership to promote the rights, dignity and independence of, and expand opportunities and resources for, current and future generations of older persons, adults with disabilities and their families. National Center for Health Statistics (NCHS) - Aging Activities Group The Aging Activities Group of the NCHS performs research and analysis and disseminates data on the health and health care utilization of aging Americans. National Center for Learning Disabilities The National Center for Learning Disabilities provides online information about learning disabilities, early literacy and learning resources, support for adolescents and adults with learning disabilities, public policy and advocacy tools. National Center on Physical Activity and Disability The National Center on Physical Activity and Disability believes being physically active is good for everybody. This website has guidelines to consider before starting any kind of exercise program plus factsheets on many activities, games, and sports that have been adapted for people with disabilities. National Center on Secondary Education and Transition (NCSET) The National Center on Secondary Education and Transition was established to create opportunities for youths with disabilities to achieve successful futures. NCSET provides technical assistance and provides information related to schooling after high school and other transition issues for youth with disabilities. National Center on Workforce and Disability/Adult (NCWD) The National Center on Workforce and Disability/Adult provides training, technical assistance, policy analysis, and information to improve access for all in the workforce system. This section includes resources for people with disabilities who are seeking jobs. National Clearinghouse on Postsecondary Education for Individuals with Disabilities The HEATH Resource Center provides information about educational support services, policies, procedures, adaptations, and opportunities for people with disabilities in the United States. National Clearinghouse on the Direct Care Workforce The National Clearinghouse on the Direct Care Workforce tracks national and state policies that relate to the PAS workforce. Information for consumers of Personal Assistance Services can be found on their Consumer Direction section of the Direct Care Clearinghouse web site. National Collaborative on Workforce and Disability/Youth (NCWD) NCWD is a source of information about employment and youth with disabilities. Summaries of publications on disability and employment can be sorted according to 5 classes of users: Administrators, Employer/Business, Youth Service Practitioners, Policymakers, and Youth or Family. Outlines of disability-related legislation highlight eligibility requirements and services they provide. National Conference of State Legislatures Links to publications and policy reports concerning HCBS and the Olmstead case. Includes annual reports on Olmstead planning activity by state and links to other projects. Olmstead was brought under the Americans with Disabilities Act (ADA) Title II and is most relevant for Formal and Informal PAS and Home and Community-Based PAS. National Consortium for Health Systems Development The NCHSD is a technical assistance partnership providing flexible, state-tailored technical assistance to states developing comprehensive health and employment service systems for people with disabilities who want to work. National Council on Disability Policy briefs and reports to Government on disability-related issues. Information leaflets for people with disabilities (for example on social security benefits, legal rights and housing) and a monthly newsletter are also available. National Direct Service Workforce Resource Center The National Direct Service Workforce (DSW) Resource Center supports efforts to improve recruitment and retention of direct service workers who help people with disabilities and older adults to live independently and with dignity. National Directory of Aging Resources The National Association of Area Agencies on Aging (n4a) publishes the National Directory of Aging Resources which provides the most complete listing available of local and state agencies on aging, as well as Native American aging programs. National Family Caregivers Association (NFCA) For people who have family members as caregivers, this website gives tips and advice for families and caregivers. National Governor’s Association Policy reports, networking and information aimed at State Governors covering 5 broad topic areas, which include healthcare. Center for Best Practices also disseminates information on initiatives in different states across the 5 topics. Briefings on Medicaid and disability-related issues such as Olmstead and Ticket to Work are available. National Health Law Program This national public interest law firm focuses on healthcare issues and publishes guides on key areas of law, such as Medicaid. It also provides a ‘Court Watch’ service giving news about key lawsuits, including some cases related to Olmstead and a ‘Waiver Watch’ page which gives news on developments in state’s waiver programs. National Health Policy Forum The National Health Policy Forum is a participant-driven, nonpartisan information exchange program that works to foster more informed government decision-making. National Organization on Disability The National Organization on Disability (NOD) provides the latest in disability news, information, and resources. NOD has a number of programs running dealing with issues such as employment, emergency preparedness and disability in the community. National Program Office on Self-Determination National Program Office on Self-Determination provides links, articles, and message boards on self-determination, as well as articles on personal care assistants. National Resource Center on Supportive Housing and Home Modification A project of the University of Southern California Andrus Gerontology Center, this resource center has an online directoy of home modifications resources, aimed at promoting independence and preventing accidents in the home. National Senior Citizen’s Law Center This Center advocates nationally through litigation and legislative representation, and assists attorneys to promote the independence of older people and people with disabilities. The website has legal news and details of cases relating to Medicaid, waiver programs and nursing facilities. New England ADA & Accessible IT Center One of ten regional disability and business technical assistance centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR). The Center is a project of Adaptive Environments, Inc., a nonprofit organization. The Center's goal is to facilitate voluntary and effective compliance with the Americans with Disabilities Act of 1990. North Carolina Office on Disability and Health: Publications The North Carolina Office on Disability and Health lists several publications available from their website on access to health care for people with disabilities. Women’s health, removing barriers, physical activity, health and wellness are some of the subjects covered in the publications. Northeast ADA & IT Center We provide training, technical assistance and materials on the Americans with Disabilities Act and Accessible Information Technology throughout New York, New Jersey, Puerto Rico and the US Virgin Islands. Funded by the US Department of Education's, National Institute on Disability and Rehabilitation Research (NIDRR)as one of 10 national DBTACS. Northwest ADA/IT Center - Northwest DBTAC The Northwest ADA/IT Center is one of 10 regional Disability and Business Technical Assistance Centers (DBTAC) funded by the National Institute on Disability and Rehabilitation Research (NIDRR) of the U.S. Department of Education. They are located at Oregon Health & Science University in Portland, Oregon. Working together with designated state affiliates and partners in Alaska, Idaho, Oregon and Washington, they provide technical assistance, training and dissemination of information regarding the Americans with Disabilities Act and accessible education-based information technology. Pacific ADA & IT Center - Pacific DBTAC The purpose of the Pacific Americans with Disabilities Act and Accessible Information Technology Center is to build a partnership between the disability and business communities and to promote full and unrestricted participation in society for persons with disabilities through education and technical assistance. The Pacific ADA & IT Center is one of 10 NIDRR DBTACs and server Arizona, California, Hawaii, Nevada, and the Pacific Basin (American Samoa, Guam, Northern Mariana Islands, and Palau). Personal Assistance Services (PAS) in the Workplace - Job Accommodation Network A report on Personal Assistance Services in the Workplace. Proceedings from the 7th Annual Developmental Disabilities: An Update for Health Professionals This conference provides a practical and useful update for primary care and subspecialty physicians, nurses, and other health care professionals caring for children, youth, and adults with complex health care needs and disabilities. This year’s topics offer new perspectives, research findings, and clinical guidelines, plus an overview of relevant information for pediatricians, family physicians, internists and nurse practitioners who are involved in the care of individuals with autism spectrum disorders and other developmental disabilities. The conference should also be of interest to those in allied health disciplines involved with mental and behavioral health, school health, special and vocational education, and social work professions. Proyecto Visión Proyecto Visión connects disabled Latinos with employment services and related resources by offering a bilingual website, newsletter and technical assistance hotline plus outreach to employers in the community. Quality Mall Quality Mall is a place where you can find lots of free information about person-centered supports for people with developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with developmental disabilities live, work and participate in our communities and improve the quality of their supports. Ready.Gov: Department of Homeland Security Ready.gov is the Department of Homeland Security’s public website on emergency preparedness. The section on making an emergency kit includes checklists for special needs items for infants, the elderly, and people with disabilities. Research and Training Center on Community Living This NIDRR-funded program at the University of Minnesota engages in research, evaluation and technical assistance to programs that support people with developmental disabilities to live in the community. The website provides information including case studies, research reports and links to further information on 6 topics covering; residential supports/Medicaid, disability statistics, self-advocacy, person centered practices, direct support professionals and leisure. Rewarding Work RewardingWork.org is an online direct care job registry connecting employees and employers in Connecticut, Massachusetts and New Jersey. Rocky Mountain ADA/IT Center Provides information on the Americans with Disabilities Act (ADA) and accessible education-based information technology to Colorado, Utah, Montana, Wyoming, North Dakota and South Dakota. One of 10 NIDRR DBTACs in the US. Rosalynn Carter Institute for Caregiving The Rosalynn Carter Institute establishes local, state and national partnerships committed to building quality long-term, home and community- based services. We believe strongly in the need to provide greater recognition and support for America's professional and family caregivers. Our focus includes supporting individuals and caregivers coping with chronic illness and disability across the lifespan as well as limitations due to aging. Rutgers Center for State Health Policy Rutgers Center for State Health Policy is an initiative of the Institute for Health, Health Care Policy and Aging Research (IHHCPAR) to create a formal capacity within Rutgers, the State University of New Jersey, for policy analysis, research, training, facilitation, and consultation on state health policy. The Center combines Rutgers University's traditional academic strengths in public health, health services research, and social science with applied research and policy analysis initiatives. It serves as the focal point within the University for research and related activities relevant to state health policy. Service Employees International Union, Home Care Workers The Service Employees International Union is 1.8 million working Social Security Administration Fact sheets provide monthly, individual state statistics that includes total expenditures and number of recipients receiving Disability Income and Supplemental Security Income benefits. Social Security Administration: Work Incentives A description of programs and policies that help SSI and SSDI recipients increase their earnings without losing their benefits. Two such programs are the Program for Achieving Self-Sufficiency (PASS), and the Impairment-Related Work Expenses (IRWE). Southeast Disability and Business Technical Assistance Center (DBTAC) One of ten Regional Disability and Business Technical Assistance Centers (DBTACs) funded by the National Institute on Disability and Rehabilitation Research (NIDRR). It supports efforts to strengthen ADA compliance for eight states in the Southeast Region, shares publications and resources on the ADA that are accurate and reliable, provides technical assistance promptly to telephone or written inquiries about the ADA, offers training and distance education on the ADA, disseminates news and ADA in Action articles about implementation and enforcement of the ADA, makes referrals to regional ADA experts for specialized assistance, works with a distinguished ADA Leadership Network to promote coalition building among business, government, education, and disability communities, and develops effective solutions for the challenges in ADA compliance. Southwest DBTAC - Disability Law Resource Project The Southwest's leading resource on the Americans with Disabilities Act, related laws and making Information Technology accessible to people with disabilities. The DLRP serves a wide range of audiences who are interested in or impacted by these laws, including employers, businesses, government agencies, schools and people with disabilities. Expert staff are available to provide training and publications and to respond to your inquiries via DLRP's toll free hotline 800-949-4232. Steve Gold’s Treasured Nuggets of Information Steve Gold is an experienced disability rights attorney based in Pennsylvania. He maintains this website which is a very useful resource for anyone interested in disability rights in the U.S. The website provides regular bulletins on policy developments, legislation, research and statistics concerning five key issues for people with disabilities: housing, medical assistance/Medicaid, nursing homes, education, and the Americans with Disabilities Act. TASH is a civil rights organization that works to include people with disabilities into every aspect of society. Texas Health & Human Services Commission STAR PLUS Program This website of the Texas STAR PLUS program which is an innovative waiver combining Medicaid 1915(b) and 1915(c) waiver to serve dual eligible (Medicare and Medicaid ) recipients in Harris County in Texas. This program is one of the largest in the country, serving almost 63,000 recipients by 2004. The Annapolis Coalition on the Behavioral Health Workforce The Annapolis Coalition is a not-for-profit organization dedicated to improving the recruitment, retention, training, and performance of the prevention and treatment workforce in the mental health and addictions sectors of the behavioral health field. The Independent Living Institute. The Independent Living Institute (ILI) is a policy development center specializing in consumer-driven policies for disabled peoples' freedom of choice, self-determination, self-respect and dignity. Our ultimate goal is to promote disabled people’s personal and political power. Towards this end we provide information, training materials and develop solutions for services for persons with extensive disabilities in Sweden and internationally. We are experts in designing and implementing direct payment schemes for personal assistance, mainstream taxi and assistive technology. The Lewin Group Center for Long-Term Care Part of a national healthcare and human services consulting firm, this website aims to be a central point for research and consulting services related to long term care carried out by the Lewin Group. The site includes a HCBS Population Tool that calculates estimates of the potential demand for HCBS based on data inputted by the user. The report also includes evaluation reports on state long-term care planning activities. The Urban Institute This policy organization analyses key social and economic policy. Some of the reports and data it produces are available online or can be purchased online. Through the Looking Glass Through the Looking Glass (TLG) is an organization that helps families in which a child, parent or grandparent has a disability by providing information and services on how to help families adapt to various disabilities. U.S. Department of Health and Human Services (DHHS), Office of Civil Rights Information and web-links to all Federal healthcare programs relating to the Olmstead decision and community integration, including new announcements made by the Government. U.S. Department of Justice, Americans with Disabilities Act This website provides information on the Americans with Disabilities Act that describe the rights of people with disabilities, employers and other public groups and buildings. This website lists Federal agencies with ADA responsibilities. U.S. Department of Labor/Office of Disability Employment Policy (ODEP) The following page provides the DOL definition of workplace personal assistance, examples of it, and links to additional resources. UCLA Center for Health Policy Research This website centralizes many policy research briefs and reports that have been published around the nation. It also provides custom data retrieval from the California Health Interview Survey conducted by the Center biannually. University of Southern Maine Muskie School of Public Service, Institute for Health Policy Through a diverse range of research projects, public service activities, and partnerships, the Institute for Health Policy seeks to increase access to health care, enhance the quality of care, and eliminate disparities in the availability and delivery of services. Timely information and practical support for decision makers improve health care for the citizens of Maine and across the nation. Washington State Home Care Quality Authority The Home Care Quality Authority is a small agency of Washington State government. The agency operates the Home Care Referral Registry, a web-based tool that is used to match needs of Washington State residents who receive publicly funded long term in-home care with pre-screened and pre-qualified in-home care workers. Worksupport.com Virginia Commonwealth University. Publishes reports and manuals on obtaining or managing workplace personal assistance services. Among them, Personal Assistance in the Workplace: A Customer-Directed Guide, 2003, (http://www.worksupport.com/Main/pass.asp) and Employer View of Workplace Supports (http://www.worksupport.com/Main/rrtcpapers.asp)
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