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The Home and Community-Based PAS Project
About
The primary goal of this five-year research project is to identify, track
and analyze programs and policies concerning formal (paid) PAS delivered
in the home and community (as opposed to institutional settings). The
project is directed by Martin
Kitchener and Charlene Harrington
at the University of California, San Francisco and comprises four streams
of research.
Promising Programs
The Center for Personal Assistance Services is conducting
a study of Medicaid Optional State Plan Personal Care Services (PCS)
programs. The study involves two main activities. First, better practices
(e.g., consumer direction) are identified from the literature to use
as criteria for selecting promising programs. Second, detailed case studies
are conducted on the promising programs.
 State
by State Home and Community-Based PAS Data Available
State Medicaid 1915(c) HCBS Waiver Contact Info and Descriptions
Find contact information and learn about each Medicaid 1915(c) HCBS waiver
in any state.
The 1999 Olmstead Supreme Court Decision
In a landmark interpretation of the ADA (Americans with Disabilities Act),
the Supreme Court decided that people with disabilities have a right to receive
care in the most integrated setting appropriate and that unnecessary institutionalization
violates the ADA. All states must now comply with the decision. The Center
for PAS is tracking the legal and policy ramifications of the Olmstead decision
in each state.
State by State Medicaid Home and Community-Based Services for 2002
Find the total amount of expenditures, expenditures per 1,000 population,
the number of participants, and the participants per 1,000 population for
various Medicaid HCBS programs: Home Health, Personal Care Services, and
the 1915(c) HCBS Waivers. Compare these data with US totals.
State by State Medicaid 1915(c) HCBS Waiver Data for 2002
Find the total amount of expenditures, expenditures per 1,000 population,
the number of participants, and the participants per 1,000 population for
several waiver target groups. Compare these data with US totals.
PAS Funding by State:
Federal funding
Shows the total funding by state from the Older American's Act Title III Programs and Alzheimer's Disease
Demonstration Grants.
State funding
State matched funding to some federally funded long-term care programs.
Reports and Publications
A list of publications produced by the Home and Community-Based PAS
project. The citations provide links to abstracts, press releases, and
either the entire publication, or information about where to obtain it.
All Home and Community-Based PAS Reports and Publications
Recent additions
Miller, N.A., Elder, K.T., Kitchener, M., Kang, Y and Harrington, C. (2008). Medicaid 1915(c) Waiver Use and Expenditures for Persons Living With HIV/AIDS. Medical Care Research and Review, Vol. 65, No. 3, 338-355 (2008)
View Abstract and Obtain Full Version Kitchener, M., Ng, T., Lee, H.Y. and Harrington, H. (2008) Assistive Technology in Medicaid Home-and Community-Based Waiver Programs. The Gerontologist 48:181-189 (2008).
View Abstract and Obtain Full Version Newcomer, R., T. Kang, C. Graham. 2007. Outcomes in a nursing home transition case management program targeting new admissions. Gerontologist, 46: 385-390.
View Abstract and Obtain Full Version
Library
Citations and abstracts of important publications related to Home and
community-based PAS. Information on how to obtain the complete text is provided with each citation.
All Home and Community-Based PAS publications
Recent additions:
Research and Training Center on Disability in Rural Communities, University of Montana Rural Institute (March 2008). Nursing Home Emancipation: Accomplishments of Urban and Rural Centers for Independent Living. Rural Disability and Rehabilitation Research Progress Report #39
View Abstract and Obtain Full Version Rudowitz R. (January 2008). Medicaid: Overview and Impact of New Regulations. Kaiser Commission on Medicaid and Uninsured.
View Abstract and Obtain Full Version Acosta, P. and Hendrickson, L. (2008). Advancing Medicaid HCBS policy: From capped consumer to consumer-directed. New Brunswick, NJ: Rutgers Center for State Health Policy.
View Abstract and Obtain Full Version
Presentations
Presentations given by the Home and Community-Based PAS project with
links to abstracts, powerpoint files and summaries.
All Home and Community-Based PAS presentations
Recent additions:
Ng, T., Kitchener, M., & Harrington, C. (2007, November 19). Medicaid Long Term Care Home and Community Based Services for the Elderly: Trends in Programs and Policies. Presented at the 60th Annual Scientific Meeting of The Gerontological Society of America hosted by The Gerontological Society of America.
More information
Kang, T. (2007, November 7). Disparities in service utilization and expenditures for individuals living at home or in the community in California. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
Miller, N.A., Harrington, C., Brody, A.B., Yu Kang, R.N. (2005, December 14). Participation in a Nursing Home Admission Decision Among Working Age Individuals. Presented at the American Public Health Association Annual Meeting .
More information
Links
The Center for PAS has assembled a list of links to organizations,
resources and information available on the web related to Home and Community-Based PAS.
All Home and Community-Based PAS Links
Recent additions: Rosalynn Carter Institute for Caregiving
http://www.rosalynncarter.org/home/ The Rosalynn Carter Institute establishes local, state and national partnerships committed to building quality long-term, home and community- based services. We believe strongly in the need to provide greater recognition and support for America's professional and family caregivers. Our focus includes supporting individuals and caregivers coping with chronic illness and disability across the lifespan as well as limitations due to aging. Quality Mall
http://www.qualitymall.org/main/ Quality Mall is a place where you can find lots of free information about person-centered supports for people with developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with developmental disabilities live, work and participate in our communities and improve the quality of their supports. Washington State Home Care Quality Authority
http://www.hcqa.wa.gov/ The Home Care Quality Authority is a small agency of Washington State government. The agency operates the Home Care Referral Registry, a web-based tool that is used to match needs of Washington State residents who receive publicly funded long term in-home care with pre-screened and pre-qualified in-home care workers.
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