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The Formal and Informal PAS Project
About
The primary goal of this five-year research project is to study the relationship
between formal and informal PAS and caregiving support, and the role
of assistive technology (AT) in complementing PAS. The project is directed
by Mitch LaPlante and co-directed
by Steve Kaye, assisted by Taewoon
Kang, research statistician.
Companion Center
The University
of California Disability Statistics Center is a companion center
that provides information on disability statistics. The site provides
disability resources, a listing of publications, and information on
finding disability data and understanding disability statistics.
 State
by State Formal and Informal PAS Data Available
State and National Disability Statistics
The Center for Personal Assistance Services has compiled state and
national data on the prevalence of overall disability and of self-care
difficulty, by gender, age, race and ethnicity, type of disability,
family income, benefit recipiency, employment status, and living arrangement.
Reports and Publications
A list of reports and publications produced by the Formal and Informal
PAS project. The citations have links to press releases, abstracts,
and either the entire publication or information on where to obtain
it.
All Formal and Informal PAS project reports and publications
Recent additions
Kitchener, M., Ng, T., and Harrington, C. 2007. Medicaid State Plan Personal Care Services: Trends in Programs and Policies. Journal of Health and Social Policy, 19 (3): 9-26.
View Abstract and Obtain Full Version Li, L.W. and Fries, B.E. 2005. Elder Disability as an Explanation of Racial Differences in Informal Home Care. Gerontologist, 45(2): 206-215.
View Abstract and Obtain Full Version Miller, N.A., Rubin, A., Elder, K.T., Kitchener, M., and Harrington, C. 2006. Strengthening Home and Community Based Care Through Medicaid Waivers. Journal of Health and Social Policy, 18 (1): 1-16.
View Abstract and Obtain Full Version
Library
Citations and abstracts of important publications related to Formal and Informal PAS. Information on how to obtain the complete text is provided with each citation.
All Formal and Informal PAS publications
Recent additions:
OECD. (2006). “Projecting OECD health and long-term care expenditures. What are the main drivers?” Economics Department Working Papers, No. 477. Paris: Organisation for Co-Operation and Development. Retrieved July 19, 2006, from:
http://www.oecd.org/dataoecd/57/7/36085940.pdf
View Abstract and Obtain Full Version Anttonen, A., Baldock, J. & Sipilä, J. (Eds.). (2003). The young, the old and the state: Social care systems in five industrial nations. Cheltenham, UK: Edward Elgar Publishing.
View Abstract and Obtain Full Version Agree, E.M., Freedman, V.A., Cornman, J.C., Wolf, D.A. & Marcotte, J.E. (2005). Reconsidering substitution in long-term care: When does assistive technology take the place of personal care? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 60B, 5, S272-S280.
View Abstract and Obtain Full Version
Presentations
A list of presentations given by the Formal and Informal PAS project
with links to summaries and powerpoint files.
All Formal and Informal PAS Presentations
Recent additions
Kang, T. (2007, November 7). Disparities in service utilization and expenditures for individuals living at home or in the community in California. Presented at the 2007 Annual Meeting & Exposition hosted by American Public Health Association (APHA).
Kraus, L., Oxford, M. , & Gold, S. (2005, July 11). Living independently and personal assistance services: From court research to action. Presented at the 2005 NCIL Independent Living Conference - "Advocacy IS a Service" hosted by The National Council on Independent Living (NCIL).
More information
Harrington, C., Newcomer, R., LaPlante, M., Kaye, S., Stoddard, S., Kitchener, M., & Oxford, M. (2004, November 15). Center for Personal Assistance Services. Presented at the National Association of State Medicaid Directors Fall 2004 Annual Meeting hosted by Held in Cooperation with the Centers for Medicare & Medicaid Services (CMS).
More information
Links
The Center for PAS has assembled a list of links to organizations, resources and information available on the web related to Formal and Informal PAS.
All Formal and Informal PAS Links
Recent additions: DisabilityInfo.gov
http://www.disabilityinfo.gov/ DisabilityInfo.gov is the federal government's one-stop Web site site for people with disabilities, their families, employers, veterans and service members, workforce professionals and many others. Program topics by state are: employment, education, housing, transportation, health, benefits, technology, community life and civil rights. National Center for Health Statistics (NCHS) - Aging Activities Group
http://www.cdc.gov/aging/ The Aging Activities Group of the NCHS performs research and analysis and disseminates data on the health and health care utilization of aging Americans.
The above link is to a page with a collection of data tables providing information on trends of health and health care use by older Americans and a family of surveys designed to measure changes in health status, health-related behaviors, health care utilization, and the causes and consequences of these changes within and across two cohorts of elderly Americans. National Family Caregivers Association (NFCA)
http://www.thefamilycaregiver.org/index.cfm For people who have family members as caregivers, this website gives tips and advice for families and caregivers.
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